Community Asset Mapping and Partnerships in Washington …...Autism Awareness: Partnership for Change Grant Improve access to quality, comprehensive, coordinated, community-based systems

Community Asset Mappingand Partnerships

in Washington State

A Project of the Washington State Combating Autism Advisory Council

Sponsored by the Washington State Department of Health Children with Special Health Care Needs Program and the University of Washington Leadership

Education in Neurodevelopmental and Related Disabilities Program

State Autism Grants

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Autism Awareness: Partnership for Change Grant

Improve access to quality, comprehensive, coordinated, community-based systems of health care and related services for ASD and other developmental disabilities.

Goals:

• Engage and empower new stakeholders to increase awareness.

• Coordinate training to providers and families.

• Impact existing benefit systems for children with special health care needs, particularly those with ASD and other developmental disabilities.

Department of Health Children with Special

Health Care Needs Program (CSHCN)

CSHCN Partners:Adolescent Health

Transition Plan-UW, Seattle Children’s,

Family Support Organizations

Providers, Care Coordinators, Medical

Home Leadership Network Teams,

Health Plans

DSHS-Division of Developmental

Disabilities, Office of the Superintendent of

Public Instruction, DSHS-Medicaid

Leadership Education in

Neurodevelopmental and Related

Disorders (LEND)

Families and Youth with Autism Spectrum Disorder

Combating Autism Advisory Council

Multi-Disciplinary Team Summit

Held June 2009, the Summit brought together medical professionals across the state to discuss screening, assessment and autism diagnosis.

The Tiers to Autism Diagnosis Pyramid was conceived at the summit.

Tiers to Autism Diagnosis Pyramid

The Tiers to Autism Diagnosis Pyramid was a product of the June 2009 Summit

• Outlines a process for early screening to rule out autism to reduce the number of children with other developmental delays from being referred to autism specialists. This allows for more timely ASD referrals.

Current Diagnostic Challenge

Tiers to Diagnosis

Tiers to Diagnosis

Tiers to Diagnosis

Tiers to Diagnosis

Tiers to Diagnosis

Education & Health Collaboration

The Children with Special Health Care Needs Program (CSHCN) and the University of Washington Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Program partnered through two state autism implementation grants to form the Combating Autism Advisory Council (CAAC).

Community Asset Mapping Team

Partnership with Local Communities

Three Levels of Partnership

Leveraging Partnerships

Six important factors considered:

• Environment

• Membership Characteristics

• Setting up Process and Structure

• Communication

• Clear Purpose

• Resources

Successful Partnership Factors

Environment

• History of collaboration and cooperation

Membership Characteristics

• Mutual respect, understanding, trust

• Cross section of Members

• Collaborative Effort

Successful Partnership Factors

Process and Structure

• Members share a stake in both process and outcome

Communication

• Open and frequent

• Established information links - ListServs and newsletters

Purpose

Clear vision

• Concrete goals

Resources

• Sufficient funds, staff, materials, time

• Skilled leadership

Successful Partnership Factors

Combating Autism Advisory Council

45-60 Members

LEND and Title V Leadership Partners

Six factors

Rotate meetings sites across the state

Goals:

1) Community development of a coordinated team approach

2) Identification of local referral patterns to prevent large backlogs at the autism diagnostic centers

3) Capacity building through identified training needs for providers that the grant helps to address

4) Local development of resources for parents and providers.

Community Asset Mapping

Team Development

Community Asset Mapping Team

• Title V representative

• Medical Home

• LEND representative

• Parent

Community Partnership Developed

Grant Coordinator

• Community Leaders for the Initiative

– CSHCN County Coordinator

– Birth to Three Family Resource Coordinators

– Medical Home Leadership Network

– Community Psychiatrists, Pediatricians

– Combating Autism Advisory Council Member

Steps to Date

Selected facilitated pilot communities meeting the identified criteria.

Community liaison invited key community stake-holders from public schools, Birth to 3, Parent to Parent, pediatric medicine, Head Start/ECEAP, etc. to participate.

Mapped the Community

Each community identified next priority steps and linked back to the Combating Autism Advisory Council for ongoing technical assistance.

Three Pilot Communities

Next Phase

Benefits

Connections To:

• Local community medical providers with each other

• Public Health

• Developmental Pediatricians at Diagnostic Centers

• Bridging of Educational system to Medical system locally and state wide

The Community momentum is pushing this effort forward.

Infrastructure Building

Connections of key community leaders

Training

• Medical clinics

• Hospital staff

• Education staff-school psychologists, nurses, school administrators

• Child Care providers

Developing Diagnostic Centers

Maria Nardella, MA, RDChildren with Special Health Care Needs Program Manager

(360) 236-3573, [email protected] L. Miller, MPH

Autism Grant Coordinator (360) 236-3572, [email protected]

[email protected]/CFH/MCH/Autism/Autism.htm

For More Information…

University of WashingtonLEND Program

Combating Autism Advisory Council