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10.1177/0038038512456779 2013 47: 51 originally published online 17
December 2012 SociologyAaron V CicourelSustaining Communal Social
Structure Throughout the Life CycleDeath: Caregiver 'Scaffolding'
Practices Necessary for Guiding and Origin and Demise of
Socio-cultural Presentations of Self from Birth toPublished
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10.1177/0038038512456779soc.sagepub.comOrigin and Demise of
Socio-cultural Presentations of Self from Birth to Death: Caregiver
Scaffolding Practices Necessary for Guiding and Sustaining Communal
Social Structure Throughout the Life CycleAaron V
CicourelUniversity of California, San Diego and San Francisco,
USAAbstractTheemergence,socialdifferentiation,andreproductionofhumancommunitiesrequire
socializationoftheyoung.Socializationpracticesrequirecaregiversandsociallydistributed,
intuitive, normative knowledge systems to enable progeny to acquire
and sustain habitual, socially organized skills and belief
systems.Neurobiological,cognitive,emotional,andsocio-culturalevolutionenabledandparalleled
theacquisitionofcommunicativeandsocio-culturalskillsindispensablefortheemergenceand
reproduction of a sense of others. Stable adult capacities
differentially weaken over the life cycle.
Thisreversesocializationmeansgraduallossofself,senseofothers,anddeclineofroutine
practices necessary for reproduction of communal life.A modest
corpus of data (10 minutes of discourse between six couples, two
deemed normal, and four where one spouse diagnosed with Alzheimers
Disease or Frontotemporal Dementia)
isusedtoillustratecaregiverscaffoldingsimulationofappropriatesocio-culturalinteraction,
illuminating the origin and demise of socio-cultural presentations
of self from birth to death.Keywordsdementia, discourse analysis,
representational re-descriptions, scaffolding, social self,
socialization practicesCorresponding author:Professor Emeritus,
Aaron V Cicourel, University of California, San Francisco, The
Institute for Health and Aging, Department of Social and Behavioral
Sciences, Laurel Heights, Suite 340, 3333 California Street, San
Francisco, CA 94118, USA. Email:
[email protected]/0038038512456779SociologyCicourel2012Article
by guest on September 11, 2014 soc.sagepub.com Downloaded from
52Sociology 47(1)IntroductionThe article examines why
socio-cultural processes cannot be reduced to, yet are neces-sarily
enabled by, neurobiology, cognition, and emotion. The simultaneous
evolution of neurobiology and the human genome enabled cognition,
emotion, and culture to evolve, and for contemporary human groups
to create culturally derived concepts called intelli-gence, belief
systems, religion, philosophy, literature, art, myths, and science.
Sociology, therefore, need not look inside the human brain and
genome for social structure, but to contemporary documentation of
socio-cultural processes and structure using a variety of
theoriesandmethodologies.Thepresentworkreliesondiscourseanalysis(Brown,
1995) and linguistic anthropology (Hanks, 1990; Duranti, 1997;
Sapir, 1949[1933]). The
methodologyencouragesthereadertofollowthediscoursematerialandethnographic
settingsdepictedtodiscerntheplausibilityoftheauthorsinterpretationofdifferent
speech events and their substantive relevance.The ubiquitous
necessity of communication skills embedded in ethnographically
con-firmed settings underscores their fundamental role in creating
human communities and socially organized activities or social
structure. Native speakers are expected to display appropriate
communication through normative, locally evolved dialectical speech
(or sign language) patterns, gestures, facial expressions, and body
movements. Formal and
informalspeecheventsareshapedandconstrainedbysociallyorganizednormative
expectations. Ignoring such expectations can invite sanctions.The
article hypothesizes that dementia and related illnesses can be
diagnosed using socio-cultural discourse data as evidence. Further,
that the emergence, social
differentia-tion,andreproductionofhumancommunallifeisnecessarilylinkedtosocialization
practicesoftheyoungandcaregiverpracticeswithagedpersons,especiallywhenthe
lattergroupisdiagnosedashavingmodestoradvanceddementia.Theempiricalevi-dence
for the hypothesis identifies differences in social interaction
among spousal cou-ples diagnosed as normal in contrast to couples
where one spouse has been diagnosed with either Alzheimers Disease
(AD) or Frontotemporal Dementia (FTD). The author was unaware of
the diagnosis of the six cases prior to his analysis of 10 minutes
of vide-otaped interaction between the spouses. The results of the
empirical section suggest ways that socially organized discourse
material may improve the diagnosis and treatment of patients with
dementia.The practices called scaffolding (see below) are
hypothesized to be constitutive of the emergence, sustenance, and
reproduction of human communal life. Socializing
theyoungtoadulthoodandtheagedtodeathrequiresthesimulationofnormal
socialinteractiondespitethevariablelackofsocialcompetenceofthoseattended.
Thescaffoldingpractices(simulationofnormalsocialinteraction)bycaregivers
enablethemtomaintaintheirownidentityandsenseofsocialstructureduring
exchangeswithsocially,cognitive,andemotionallycompromisedconsociates.
Scaffolding practices presuppose normatively evolving communicative
skills across different human
communities.Childrenacquire,andelderlyadultsbegintolose,thenecessaryproblem-solving
skills,communicative,andsocio-culturalpracticesconstitutiveoftheemergenceand
persistence of a sense of social structure we associate with the
acquisition of a social self necessary for socio-cultural stability
and change over the human life cycle. by guest on September 11,
2014 soc.sagepub.com Downloaded from
Cicourel53Communalliferevolvesaroundtheindividualspossessionofagency,orasocio-cultural
self. The notion of a social self and the awareness and ability to
take others into
accountrequirescollectivelivingconditionsonlysustainablethroughcollaborative
socialinteractionbetweenconspecifics.Whereasneurobiologists(SeeleyandSturm,
2007)speakcogentlyofthebiologicaloriginsofthenotionofsocialself,thepresent
worktakesasself-evidentthepropositionthathumancommunallifecouldonlyhave
emerged had there been simultaneous evolution of neurobiological,
cognitive, emotional, and cultural processes and structures.The
theoretical perspective followed in the present work is indebted to
the work of George Herbert Mead (1934). According to Mead (1934:
135): the language process is essential for the development of the
self. The self has a character which is different from that of the
physiological organism proper [and] arises in the process
ofsocialexperienceandactivity,thatis,developsinthegivenindividualasaresultofhis
relations to that process as a whole and to other individuals with
that process.Mead (1934: 154) continues: The organized community or
social group which gives to the individual his unity of self may be
called the generalized other. The attitude of the generalized other
is the attitude of the whole community. Socially organized
activi-ties, therefore, are constitutive of social structure.The
following pages begin with a discussion of neurobiological aspects
of a social self to give readers a sense of how neurobiology
enabled the possibility of socio-cultural life forms. Despite the
clear relevance of the brain and the human genome for the human
acquisition of a social self, the study of the brain and genome
cannot explain the evolu-tion of human communities. Going beyond
neurobiology requires specifying elements of the cultural origins
of cognition; the unavoidable interaction between culture and
cogni-tion, and their essential role in the socialization of
infants and children into socio-cultural environments (Tomasello,
1999).Thefollowingsectionincludesliteratureoncaregiverpracticesandthenecessary
development of a communicatively competent social self required for
the reproduction of human communal life. The conditions viewed as
necessary for communal reproduc-tion parallel observable aspects of
the gradual deterioration of social and communicative competency
evident in the patients with dementia discussed
below.Neurobiological Aspects of Self Seeley and Sturm (2007: 317)
ask: How do our brains build the self as we know it? I assume
brains and genes can only understand and build [and conceive] the
self as we know it within an evolutionarily emergent,
socio-cultural community of others noted by
Mead.Theneurobiological,emotionalandcognitiveconceptionsofselfpresuppose
the necessary role of culturally organized others and essential
daily social interaction constitutive of human group
survival.SeeleyandSturm(2007:317)refertoself-representationasaneuralaccomplish-mentthatemergesfromadynamicsetofcomponentprocesses.
Theauthors
stressthatself-representationinvolvesdiverseprocesseswithinbroadlydistributed,
interacting neural networks at many biological levels. Further
(2007: 318), the notion of by guest on September 11, 2014
soc.sagepub.com Downloaded from 54Sociology 47(1)self includes
recyclable mental representations of objects, including the self
[and]
permanentothers(her,him,perhapsthem)[thatprovide]predictabilityand
security in competitive social environs.How did the anterior insula
cortex (AIC), and anterior cingulate cortex (ACI) noted by Seeley
and Sturm emerge and guide the development of an infant social
self, interact with other areas of the brain to enable memory
systems to emerge and sustain the notion of a human primate
self?Seeley and Sturm (2007: 318) also refer to the necessary human
ability to reflect on ones representations of self and thus develop
an awareness of awareness. The reflexive notion of self by Seeley
and Sturm, therefore, acknowledges the existence of locally
organized, socio-cultural environments (the social realm), but does
not refer to norma-tive, cross-cultural socialization practices
needed for the survival and development of an infant social
self.Taking the role of ones self reflexively is part of an
essential cultural accomplishment
(Mead,1934)whoseassumedneurobiologicalsubstratesareunavoidable,butwhose
emergent functional accomplishment in daily life remains unclear
and which the present work seeks to explore with socio-cultural
evidence.If the notion of self emerges as an embodiment of
neurobiological, cognitive, emo-tional, and socio-cultural systems,
then it must consist of constantly renewable,
cultur-allycoherent,sequential,temporallyordered,interacting,sociallyfunctionalmemory
systemswhichnourishaselfobservableinitiallyininfancy,thenadulthood,andit
declineswithage.Normativelyorganizedhumancommunities,therefore,areanuna-voidableevolutionarynecessityforsocializingtheyoung.Theevolutionaryprocesses
whereby group social interaction, patterned socio-cultural
activities or structure emerged remain a mystery, yet their
variable, cross-cultural, present-day existence is an
incontro-vertible material fact.Childhood Socialization and
EvolutionSix million years are said to separate human beings from
other great apes (Tomasello, 1999: 2); a brief period of
evolutionary time. Yet despite a 99 percent overlap in their
genetic composition, Tomasello notes: there has not been enough
time for normal biological processes of evolution to have taken
placeintermsofgeneticvariationandnaturalselectioninordertohavecreatedonebyone
each of the cognitive skills necessary for modern humans to invent
and maintain complex tool-use industries and technologies [much
less] complex forms of symbolic communication and representation,
and complex social organizations and institutions. The problem is
magnified by the claim of paleontologists; for most of the 6
million years, no new cognitive skills emerged.Tomasello continues
(1999: 45): (b) the first dramatic signs of species-unique
cognitive skills emerged only in the last one-quarter of a million
years with modern Homo sapiens. Even if 6 million or 2 million or
250,000
years,therewouldnothavebeenenoughtimetoaccountforcognitiveevolutionasthe
biological mechanism responsible for the rapid evolution. Hence the
only possible solution to by guest on September 11, 2014
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Cicourel55thepuzzlewouldbesocialorculturaltransmission.Henceculturalevolutionworksmuch
faster than organic evolution.Cultural evolution is
species-specific, and could only occur with species-unique modes of
cultural transmission. Humans are unique because of so-called
cumulative cultural evolution or the modification of accumulated
cultural traditions and artifacts over time not shown by other
species. The invention of a primitive version of an artifact or
practice and its modification or improvement enabled others to
adopt it, perhaps without change for several generations. Tomasello
calls this the ratchet effect.Creative invention and faithful
cultural transmission are essential to prevent slipping backward,
and holding on to the new and improved form until modifications or
improve-ments came
along.Akeyissueofprimateculturesistheintentionalsignificanceoftooluseorsome
symbolic practice, what it is for, and what others do with. Thus
(1999: 6):Processes of cultural learning are especially powerful
forms of social-collaborative creativeness
andinventiveness,thatis,processesofsociogenesisinwhichmultipleindividualscreate
something together that no one individual could have created one
another, she identifies with that other person and his intentional
and sometimes mental states [The suggestion is] that
onlyhumanbeingsunderstandconspecificsasintentionalagentsliketheselfandsoonly
human beings engage in cultural learning (Tomasello, 1996b, 1998;
Tomasello and Call, 1997; see Chapter 2).Tomasellos discussion
provides a sociological basis for cognitive processes. Hence, the
focus of psychologists on individual cognitive skills always
presupposes socio-cultural structures and processes for their
identification and study.Culture, Information and the Emergence of
Social
StructureFollowingRoberts(1964:4389),culturescanbeviewedasinformationeconomies
whereby information is received or created, stored, retrieved,
transmitted, utilized, and even lost. Socialization to adulthood
and death, therefore, requires an information econ-omy that is
stored in the minds of its members and, to a greater extent, in
artifacts.Socialization of infants and children through adulthood
requires essential scaffold-ing (Vygotsky, 1978). The
labour-intensive role of scaffolding practices after birth
paral-lels the social interaction employed during socialization of
the aged to death. Socialization to adulthood and to death sustains
human communal systems and their variation across cultures and
functional specificity in different settings.Vygotskys (1978: 81)
notion of the zone of proximal development, adult guidance
ofchildren,suggestsneurobiologicalmaturationinvolvingasimultaneousfusionof
learning and development. A key notion of his work (1978: 85) is
that what children can
dowiththeassistanceofothersmightbeinsomesenseevenmoreindicativeoftheir
mental development than what they can do alone. Scaffolding, the
assistance of other
isembeddedinsocio-culturalconditionstacitlypresupposedbutnotaddressedby
Vygotsky. by guest on September 11, 2014 soc.sagepub.com Downloaded
from 56Sociology 47(1)For Vygotsky (1978: 86), the zone of proximal
development refers to the
dis-tancebetweentheactualdevelopmentallevelasdeterminedbyindependentproblem
solving and the level of potential development as determined
through problem solving under adult guidance or in collaboration
with more capable peers [Thus,] what a child can do with assistance
today she will be able to do by herself
tomorrow.Vigotskyszonereferstolocalsocialsettingscreatedorstructuredbyparentsor
caregivers or teachers in which a peer or adults guidance and
collaboration (scaffold-ing) can enable the child (or a patient) to
succeed at (or simulate) a given task or prob-lem-solving activity
that is not as likely to occur if the child or patient were left to
her or his own devices or
capabilities.Thescaffoldingusedbycaretakersofpatientswith
AlzheimersDisease(AD)and Frontotemporal Dementia (FTD) enables the
reproductive simulation of routine socio-cultural contexts
essential for communal stability; for example, enabling patients,
tem-porarily,toaccessmemoriesofpastsocio-culturalexperiencesand/oreventstheycan
hopefully recognize as relevant to an existing here and now framed
by a caretaker. The
extenttowhichscaffoldingcanimprovethepatientscognitive,linguistic,orcultural
skills is doubtful, but scaffolding can enable caregivers to
simulate a needed social sense of self to sustain normal cultural
stability. The extent to which caregivers differentially maintain a
sense of denial vis-a-vis their scaffolding activities is an
empirical issue.Social Structure and
CognitionSocialstructurecanbeviewedaslocalandabstractpatternsofinstitutionalized,often
bureaucraticallyorganized, developmental, cultural, and cognitively
devised beliefsys-tems and activities, empirically grounded in
daily life practices. Such practices invariably consist of
representational re-descriptions (Karmiloff-Smith, 1992);
memory-dependent
re-descriptivelanguagewhichgoesbeyondthelimitationsofourimmediatesensory
capabilities.Socio-cultural childhood socialization activities and
practices expose the young to an
activelife-worldanddifferent,overlappingformsofnormativecommunalexistence.
Between the end of adolescence, and the early or late onset of
aging, adults experience various forms of apprenticeship practices
associated with a wide variety of task
environ-mentswhoselocusofauthorityresidesinfamilial,interpersonal,andbureaucratically
organized institutional settings of power. Roberts (1964: 4389)
structural view of
cog-nitionandculturenotesthattribalcommunitiesaretoolargeforsingleindividualsto
absorb and store overlapping, distributed, elements of
socio-cultural life.An explicit, related, real-time cognitive view
of culture can be found in DAndrades (1989) notion of culture as an
immense, distributed, self-organizing productive system.
AnessentialaspectofDAndradescognitiveperspectiveofcultureincludesexplicit
references to daily life encounters faced by human groups, and
memory systems
consist-ingoflargecollectionsofsustainable,partial(re-descriptive)solutionsforproblems.
The work of Roberts and DAndrade underscores a constitutive element
of culture: the necessity of human memory systems and artifacts for
addressing distributive systems of learning and practice. by guest
on September 11, 2014 soc.sagepub.com Downloaded from
Cicourel57BuildingonRobertsandDAndrade,Hutchins(1991:284)hasproposedtheexist-ence
of socially distributed cognition in locally cooperative efforts of
humans working
insociallyorganizedgroupswithinavarietyoftaskenvironments.ForHutchins,a
socially organized task environment: involves the distribution of
two kinds of cognitive labor: the cognition that is the task, and
the cognition that governs the coordination of the elements of the
task. In such a case, the group
performingthecognitivetaskmayhavecognitivepropertiesthatdifferfromthecognitive
properties of any individual.The integration of cognition and
culture, therefore, is a socio-cultural accomplishment of social
interaction.Caregiver Practices and the Development of a Social
SelfThe literature on child language acquisition, cognitive
development and socio-cultural
socializationsuggeststhatearlyexposuretosocio-culturalactivitiesandpractices
includescommunicationskillsthatbeginafterbirthandarelinguisticallyacquired
between10and44monthsformostlanguages.In
Westerncultures,parallelfindings exist between middle-income adults
speech to young children, and how four-year-olds
speaktotwo-year-olds(GelmanandShatz,1976;Shatz,1975;ShatzandGelman,
1973). Routine conversational practices reveal the caregivers role
in simulating a
com-munityofothersduringspeecheventswiththeyoung.Thesamekindsofspeech
eventsoccurbetweencaregiversandagedpersonswithcognitiveandsocio-cultural
deficits (Cicourel, 2010).Elissa Newports (1977: 177) research in
the United States on motherese begins with the recognition that
others must speak with the infant or child and the child acquires
whatever language is spoken to him [sic]. I summarize Newports
(1977: 178) succinct review of the literature about a special
speech register motherese. For example, the child limits its
language environment by repeating (parsing) utterances that go
beyond
herorhisspeechproductioncapabilities(Shipleyetal.,1969),andignoreslanguage
perceived to be too difficult or unfamiliar. As noted by Newport,
the nature of the selec-tivity of utterances suggests the child
does not rely on innate preprogramming abilities and is probably
incapable of processing complex speech. Caregivers are presumed to
be
sensitivetoconstraintsonthechildscapabilities,includingtheirshort-termmemory
limitations. Adults, in this view, become selective in their use of
speech acts assumed to be appropriate less complex lexically, and
structurally simplified. Similar to Vigotskys zone of proximal
development, the child reacts to utterances somewhat beyond its
cur-rent rule system.Newport notes (1977: 179) even 3- and 4-year
old children, who in some cul-tures are the primary caretakers of
younger siblings (Slobin, 1968a), produce this type
ofspeechtoyounglanguagelearners(SachsandDevin,1976;ShatzandGelman,
1973).NewportconcludesherreviewbydescribingahypothesisbyGelmanand
Shatz(1973:33)thatspeakersselectutterancesperceivedasrelevantforparticular
by guest on September 11, 2014 soc.sagepub.com Downloaded from
58Sociology
47(1)contextsbyassessingappropriateconversationalmeaning.Newportandothersshe
cites acknowledge leaving the problem of [cultural] meaning
untouched.Child development research on adult speech to young
infants and children refers to interpretative frames imposed by the
caregiver (Ochs, 1988: 21) often viewed as self-evident. Ochs
(1988: 23)
continues:Whileallresearcherswillreadilyadmitthatexoticpeopleshaveaculture,veryfewsee
themselvesashavingacultureandevenfewerseetheirmiddle-classresearchsubjectsas
having a culture (but see Lock 1981; Shotter 1974). As noted in
Ochs and Schieffelin (1984),
middle-classlanguageacquirersandcaregivershaveaninvisibleculture(seePhilips1983).
Their culture is not usually perceived because the researcher
usually speaks the same language and participates in the same
cultural system as the children and caregivers and/or because the
researcher does not have a heightened awareness of his or her own
orientations and behaviors, and does not look for these
underpinnings in interpreting the behavior of others.Ochs (1988:
23) also raises questions about missing cultural implications of
the notion of simplification in caregiver speech:We do not see, for
example, that the speech of caregivers to and in the presence of
young children is organized by cultural expectations regarding the
status and role of children and caregivers and regarding relative
incompetence (see Ochs and Schieffelin, 1984) Simplified caregiver
speech is one kind of caregiver speech that exists in the worlds
societies. It is a social register. It is not universal and not a
necessary environmental condition for language acquisition to take
place.The above remarks suggest we are missing data showing
different socio-cultural set-tings in which variable scaffolding
conditions can be said to exist or in which the claim could be made
that such conditions can be minimized yet can result in normal
language acquisition, cognitive skills, and socio-cultural problem
solving. Ochs (1988: 24) sug-gests that:American caregivers indulge
the egocentric tendencies of children, whereas traditional Samoan
caregiversresisttheseegocentrictendencies.Americanwhitemiddle-classcaregivers
compensate for the inability of infants and small children to meet
the informational and social need of others by carrying out a lot
of the work for them and caregivers will often fill in
missinginformationorparaphrase(expand)whatthecaregiverinterpretstobethechilds
intended
message.Ochsremarksparalleltheculturalproblemsexistingwhencommunicatingwiththe
aged.The work of Miller (1994) also provides convincing data on the
emergence of a socio-cultural self in early childhood
(approximately at 2 years of age). Citing work by Basso (1984),
Sapir (1949[1933]), Herdt (1981), and Malinowski (1984[1926]),
Miller (1994: 158) refers to the essential role of myth for
preserving the culture of a community by the use of narratives. She
underscores the socializing potential of: informal, mundane, and
often pervasive narrative accounts that people give of their
personal
experiences.Theverbalactivityoftellingotherpeopleabouteventsthathavehappenedto
by guest on September 11, 2014 soc.sagepub.com Downloaded from
Cicourel59oneself may well be a cultural universal: Versions of
this type of storytelling occur in diverse cultural traditions
within the United States and around the world. (Miller and Moore,
1989)Thechildsearlyfamilialsocializationexperienceswithsystemsofmeaningoccur
within specific kinds of discourse, especially personal
storytelling. For Miller, the three-year-olds storytelling reflects
a self-construction process notable for its revision and
reconstruction.Incontrast,amongtheagedwithdementia,spontaneousstorytellingdiminishes
sharply and becomes a diagnostic marker for the study of patients
with AD and FTD.Comparing Normal and Diminished Displays of Self
and Social StructureThe materials presented below are from white
middle-income adult patients diagnosed with AD and FTD. The six
pairs of patients and spouses were initially seen at the Memory and
AgingCenter(MAC)(DepartmentofNeurology)attheUniversityofCalifornia,
San Francisco (UCSF), and subsequently tested for their emotional
displays and
psycho-physiologicalcorrelatesatthePsychophysiologyLaboratoryattheUniversityof
California, Berkeley (UCB). I was not told the diagnosis of the
relevant spouse of the six
casesselectedbytheDirector(RobertLevenson)oftheUCBLabwhereIconducted
most of my analysis.A key empirical issue is the extent to which we
can assess the ability of patients with
ADorFTDtosharetheimmediatesocialenvironment,andprospectivelyandretro-spectively
assess and anticipate relevant motivations, intentions, and
emotional states of others. Amongearlyonset
ADpatients,partialislandsofstorytellingwithcaregivers
occur,butpatientswithmoderatelyadvancedstagesofADandFTDhavedifficulty
articulating spontaneous storytelling.Ten minutes of focused
discussion by six couples enabled the author to identify nor-mal
and clinically relevant speech acts and discourse, and infer a
differential diagnosis
suggestiveofaninabilitybythepatientstopresentaviablesocio-culturalselfbefore
others.The dyads were asked to discuss marital conflict
situation(s) (Gottman and Levenson, 1992) experienced prior to the
initial neuropsychological and clinical assessments at the MAC. All
subjects engaged in the requested social interaction about a
conflict
situa-tion,butdifferencesquicklyemergedbetweenpatientsdesignatedashaving
ADand FTD, and those perceived as normal controls.The videotaped
sessions were examined independent of the patients clinical
diagno-sis,prioroccupationalhistory,publiccontacts,participationinactivesocialnetworks
and routine social activities at home. Ten minutes of discourse
proved sufficient to infer which of the couples were normal. The
couples in which one spouse was presumed to
haveFTDalsoappearedself-evident.Buta10-minutesessionprovedpuzzlingfora
misdiagnosed case of AD. The problems associated with the
misdiagnosed case are dis-cussed below.The study of speech events
during staged but surprisingly spontaneous social inter-action in
the Berkeley Lab provided a valuable source of information about
the couples by guest on September 11, 2014 soc.sagepub.com
Downloaded from 60Sociology 47(1)awareness of self when
communicating with each other and others about daily life topics,
planningactivities,problemsolvingorcarryingouttasksoractivitiesathomeandin
their
community.Inthetwoassumednormalcases,thesubjectsreadilyinitiatedspeechactswith
detailed elements of past family relationships, social activities
and work experiences, or
along-standingmaritalproblem.The10-minutesessionscouldbeviewedasmicro-cosms
of normal marital life for these articulate
subjects.Tenminutesofdiscourse,however,lacktheecologicalvalidity(Bronfenbrenner,
1977;Brunswik,1956;Cicourel,2004;Cole,1996;Neisser,1982)ofhomevisitsin
which audio and videotapes of patients initiating and sustaining a
sense of self during
discoursecoulddifferfromsemi-controlledclinicalandcontrolledpsychologicalset-tings.
Subsequent research by the author addresses these issues.Two Normal
CasesThe discourse fragments discussed below were first examined
and reported in Cicourel (2010). The expanded analysis addresses
how spousal social interaction reflects cogni-tive problem solving,
and complex, essential patterns of culture or social structure and
their reproduction. As in Cicourel (2010: 2), the focus of analysis
is on the role of scaf-folding practices in both control (normal)
discourse and caregiverpatient social inter-action. For
example:1Can each spouse initiate and pursue a topic?2Can subjects
use metaphors and related semantic constructions typical of
every-day discourse?3Does one spouse dominate the discourse and
provide leading questions and tag statements to sustain the speech
event?4Can subjects sustain a reciprocity of perspectives or
consistent theory of mind (Gopnick and Meltzoff, 1997; Mead, 1934;
Schtz, 1962)?5Can subjects remember and conceptualize a future
event, and plan an activity?Normal Discourse Case
7142Theopeningmomentsconsistoftwoadults(W=wife,H=husband)facingeachother,
theireyesopeningandclosingduringaprior,designatedperiodofsilence.
Afterfive minutes of silence, the voices of the lab assistant (LA)
and couple follow:Excerpt 1 Case 71421LA: Please begin your
conversation.2H: I was just going to say that the um that we used
to go off about is the 3you contend that I put my mom first and um
I contend I dont.4W: Im not sure thats the case anymore and my
frustration is that you 5you tend not to see some of your mothers
manipulative tactics6and you bought into the whole story about, you
know, by guest on September 11, 2014 soc.sagepub.com Downloaded
from Cicourel617she wanted you to believe over the years8and yet
your sister and brother have seen it very clearly.9I just think
possibly being the oldest child and having been doted on the10most.
I think you just feel like you would be betraying your mother11if
you admitted that you saw those things.12Thats the part that
frustrates me.The couple recreates a long-time conflict in their
marriage; the wifes view of the hus-bands domineering mother. The
husband subsequently acknowledges the wifes view;
hissubmissivebehaviorindealingwithhismother,buthesubsequentlyreferstoher
agingyearstojustifyhismothersbehavior.Thehusband(line3)contextualizesthe
conflict by using a metaphor (we used to go off about) alluding to
prior occasions of conflict, and the metaphoric, alleged claim by
the wife that I [the husband] put my mom first and um I contend I
dont. The husband presumably favors his mother over his wife and
did not (line 5) recognize his mothers manipulative tactics. The
wife (line 4) initially retracts her presumed earlier claim by
stating Im not sure thats the case any-more The remainder of her
remarks in lines 411 demonstrates her ability to articu-late a
long-standing conflict in their marriage by underscoring the
frustration she cites in line 4, but does not provide substantive
details about what manipulative tactics were used by her
mother-in-law.Thelanguageusedbyeachpartyremainedarticulateandsubstantivelyconvincing
throughout the session. Each spouse appeared to engage in animated
social interaction
withnosignofapathy,aswellasastrongcommandofEnglishsyntax,phonology,
semantics, paralinguistic skills, and task-oriented cognitive
reasoning. The couple used appropriate metaphors and deictic
lexical items such as pronouns like I, we, them, they, you, and
spatiotemporal adverbs like that, there, these, those, and this
(Hanks, 1990). They referenced substantive conditions of a normal
conflict consistent with research by Gottman and Levenson (1992) on
social interaction in normal long-term marriages.Normal Discourse
Case 1416At the end of a scheduled silent period, the lab assistant
tells the couple they can now speak.Excerpt 5 Case 14161H: This
kind of reminds me of Saturday Night Live. (both laugh)2where
Kurtland would say something to Jane,3insults like (unintelligible,
both laughing).4W: Um, I voted to approve a strike vote at uh,
Peninsula Hospital5and theyre in negotiations now.6And the reason I
voted to uh approve a possible strike is that7they uh, I feel the
nurses should have better retirement and health care8when they
retire. They want to change it to a thirty-two thousand dollar by
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62Sociology 47(1)9fund that you get when you retire,10but you have
to pay your premiums and they give it back from that.11/And thats
not going to be enough to, to 12/H: My, my; the questions not on
the specifics,The opening three lines reflect small talk, but in
line 4, the wife introduces a topic
(astrikevoteatuh,PeninsulaHospital).Apparentlysheisanurseandnota
patient. The wife seeks to justify the strike (lines 69); better
retirement conditions
fornursesandhealthcareafterretirement.Thehusband(line12)challengesthe
wifesremarksusinganindexicalexpressionthespecifics,implyingthereisa
problem to be found in unstated details of the negotiations,
suggesting a conflict between them.My commonsense interpretation of
the husbands facial expressions and initial
com-mentsalsosuggestsheisnotapatient.Bothhusbandandwifeengageinexpected
presentations of self and marital conflict. The next section of
discourse appears to
clar-ifytheseinitialimpressionsbyanarticulatepolarizationoftheirviewsaboutunions.
For example:Excerpt 6 Case 141613H: my question is on the benefits
of having a labor union negotiate14for you under the conditions
that, that they dont negotiate.15W: Well, the fact that theres 5000
nurses from eight or ten, I think its16eight, Peninsula Hospitals,
carries more weight with the negotiations.17I think theyll find, in
the long term, that universal health care,18itll make the hospital
and the medical, hospital communities more19receptive to universal
health care, which /is the real solution to the20problems.21H:
/This is, its not,22its not an argument about universal health
care,23its an argument about the unions and how the unions
represent you.23Its uh, its an argument about the unions
tactics,24are, to get a bunch of people to threaten to strike,26and
not a bunch of people that are willing to
negotiate.Thehusbandsanti-unionperspective(lines2123)seekstorefocustheissues
raised by the wife (better retirement benefits for nurses) on the
unions tactics. The
wife,meanwhilealsointroduces(lines1719)thenotionofalong-termgoalof
universal health care, which for the wife is the real solution to
the problem. The husband disagrees (lines 2126). The wife and
husband appear to be in good control of their views and
consistently reveal an ability to express them clearly. The
remain-der of the discourse continues in a spirited vein with the
wife defending her position and husband doing likewise but without
any appearance of rancor or irritation. The
coupledidnotmasktheseriousnessoftheirdifferentperspectives,yetremained
civil throughout the discourse, perhaps motivated by the public
(recorded) nature of the social interaction. by guest on September
11, 2014 soc.sagepub.com Downloaded from Cicourel63Two Possible FTD
CasesCase 5692 In the opening moments of Excerpt 7, the husbands
face appeared expressionless. The wife revealed slight smiles
during the five minutes of silence. The lab assistant (LA) asks
them to please stop sleeping while the wife mouths I love you to
her husband.Excerpt 7 Case 56921LA: We want the two of you to talk
about anything you want and then?2W: [to Husband] do you have any
idea of where we disagree?3H: No. [Wife smiles, Husband begins to
smile [not clear]]4LA: Pick something youd like to talk about,
something you can agree?5W: [fairly animated] Oh, I know! We have
differences of opinion on6how were going to be buried.7H: [smiles
and seems to chuckle]8W: [Wife smiles] but we resolved that.9Did
you think of something you could talk about?10You dont want to talk
about that?11H: Nope.12W: We already decided on that. Ah uhm, about
this weekend.13H: wh oh (?) [flat affect]14W: What were doing.15H:
Were going to play some tennis.In the present and subsequent case,
the wifes scaffolding simulates a socially stable speech zone, thus
giving the patient access to a limited set of current and past
events. The patient does not introduce his own topics. My initial
impression suggested the hus-bands face consistently lacked
expressive features, in contrast to the wifes immediate animation
even during the silent period. The husband seemed subdued, not
motivated
toengageindiscourse,andpresupposesmyhavingviewedthevideotapeandprior
familiarity with FTD patients. The wifes scaffolding practices
simulate a speech event about future events involving both spouses.
The husbands speech acts were limited to occasional, appropriate,
truncated, limited views about the wifes reference to activities.
He did, however, remember their plans to play tennis on the
weekend.In lines 911, the wife asks a leading question which
provides a scaffolding frame for the husbands negative response. In
lines 1630, the wife (not shown) again asks leading questions to
sustain the conversation. The husband responds appropriately in
lines 18, 20, and 22, and expands on the topic in line 20. The
husband employs deictic pronouns but the speech events do not
contain speech acts that use spatiotemporal deictic expres-sions
(those, here, that, there, these). There appears to be a lack of
affect and emotional lexical items and phrases in the husbands
responses.Speecheventsthatfollow(notshown)makereference(bythewife)toapossible
pending suspension of the husbands driving license and her claim
that she can drive an RV with his guidance. The husband insists she
should not drive the RV. There are other by guest on September 11,
2014 soc.sagepub.com Downloaded from 64Sociology 47(1)indications
that the husband is the patient. The wife suggests that she and her
husband do little socializing, and she refers to a trip to Paris
that apparently had been planned and alludes to not taking the trip
because of the husbands medical condition.Case 7162The wife begins
the exchange with winks and chuckles. The husband moves his fingers
to his lips, suggesting comprehension of lab assistants remarks to
observe silence. The wife smiles broadly. The husbands head drops
to his chest and then up again. The hus-bands facial expression
appears frozen and barely animated when communicating. The husband
says something and the wife puts a finger to her lips to signal
dont talk. Brief non-verbal facial expressions follow and husband
smiles slightly. Wife closes her eyes.
Husbandlooksaround.Wifeputsfingersonhereyestoindicatethehusbandshould
close his eyes but he doesnt and looks around. The silent period
ends with the laboratory assistant asking the couple to begin the
problem conversation.The wifes immediate reference to clutter
appears to presuppose a prior, long-standing problem. The wife
immediately begins to control the exchange by providing the initial
scaffolding needed to initiate the exchange. I assumed the wife
believes the husband is not likely to initiate the
discourse.Excerpt 10 Case 71621W: We can talk now. So, I have one
question.2Thegarageandthehousewherewelivenow,wevelivedtherefor3years,
where3we live now, and the day that we moved in you persuaded4me to
lets just throw it in, because well organize it later.5H: Okay.The
wife (lines 15) immediately asks a question, which turns into a
prolonged
com-plaintaboutthehusbandsapparentlong-termdisregardforcleaningthegarage.The
wife uses several deictic and indexical terms including one
fragment (line 4) of alleged unreported speech attributed to the
husband whose reported usage we cannot confirm.
Thedeictictermitreferstounidentifiedentitiesthatwereplacedinthegarage.
The husbands response is a flat Okay. The husband makes no attempt
to refute the wifes
allegationsandshebeginstoelaboratetheproblem.Theopeninglines,therefore,
resembles a caregiver monologue I assume is typical.Excerpt 11 Case
71626W: And then 3 years have past, and I was angry at you various
times,7for not going out in the garage and making an attempt at
organizing it,8cause today, its just as bad as the first day we
moved in.9And you promised me you would help me organize it.10And
uh, basically there were lots of opportunities for you to do
it,11because you would be watching TV, football, whatever, and by
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Cicourel6512You had nothing else to do but watch TV.13You could
have gone out to possibly do a little bit.14Start a few things here
and there.15And, I dont think you ever made any movement towards
organizing16the garage. Now, today, the garage is still undone.The
wife (lines 69) continues the monologue by reference to the
indexical term clut-ter.
Thewifeaccusesthehusbandofmakingnoattempttoorganizetheclutterand
notesthesituationremainsthesamenowaswhentheyfirstmovedintothedwelling.
Instead of taking advantage of many opportunities to organize the
garage, the wife notes (lines 1112) her husband would watch TV. The
wife pursued the allegation through lines 1316. The scaffolding
provided by the wife is clear and closely resembles the prior case.
In the next fragment, there is a shift to the patients present
problem.Excerpt 12 Case 716217W: I, I understand why I cant expect
for you to do the garage any more,18is that you are incapable of it
because of the new prognosis we have19on you. But, it was true 2, 2
years ago that you also had the problem20and when you dont do it
now it is the same reason as 2 years ago,21You think so?22H: could
be.23W:
OkayThewife(lines1718)statesIunderstandwhyIcantexpectforyoutodothe
garage any more, is that you are incapable of it because of the new
prognosis we have on you. The direct reference to the new prognosis
is stated as a self-evident fact, and the wife (line 19) associates
the husbands inaction with clutter to be a consequence of the new
prognosis apparently identified 2, 2 years ago. The wife (line 20)
asks the
hus-bandtoreflectonheranalysisofthereasonforhisnotorganizingtheclutter.The
husbands response is brief and semantically ambiguous, but perhaps
could be viewed as
appropriate,giventheinformationaboutthenewprognosisandthelackofamore
elaborate response by the husband. The husbands answer, however, is
not self-evident. Should we assume he is not capable of
understanding the wifes linking of clutter to his
newprognosis?Subsequently(notshown),thehusbandappearstorevealaminimal
sense of self and comprehension and the wife persists with her view
of the problem.Two Possible AD CasesCase 5733Excerpt 16 Case
57331H: We can talk, lets just talk, well talk about that.2LA:
about the clutter?3H: Yah, cause then shell talk a lot. (husband
and wife smile) by guest on September 11, 2014 soc.sagepub.com
Downloaded from 66Sociology 47(1)4LA: Well, the two of you talk.
But uh, so then what I am going to do,5talk about this issue of
getting the clutter in the basement for 10 minutes.6LA: First,
though,7H: (refers to something about eating)8W: (laughs) I dont
have a problem with eating.9H: I know. You have a problem with my
eating.10W: Yah.The speech event begins with a response to the lab
assistant asking the couple to discuss a conflict situation and
specifically refers to clutter. A few minutes later, the husband
(lines 13) refers to the deictic expression that (clutter), used by
the LA, and he notes the topic will motivate his wife to talk a
lot, implying his wife might otherwise not say much, suggesting she
is perhaps the patient. Thus, early on, the husband seemed to be
informingthelabassistantofthekindofscaffoldingappropriatefordiscussion.The
wifes animation appeared appropriate when she did speak. The wifes
facial expression, however, appeared to be periodically fixed and
she frequently lowered her eyes after
speaking.Herfacialappearanceseemedsubduedandlackedexpressiveness,except
when speaking. The reference in lines 810 to a problem with eating
seemed appropri-ate. After five minutes of silence, the official
session began.Excerpt 17 Case 57331LA: You can begin your
conversation.2W: About what? (laughs as does husband) I dont think
we have3I think we have (animated and smiling) a lot of clutter.4H:
Mmhm5W: But I dont know what to do in terms of getting the
stuff6OUT of the house. I?? know??, I cant manage to pick up all
the,7all the stuff. Id like to take the, the band stuff to the
storage space,8(H: Mm) but you dont want to do that.9H: I
havent/10W:/And I cant drive (said loudly).11H: I know (laughs) I,
I, um, I have/ you know what?12thats the first time you mentioned
about the band stuff13going in the storage space, but, yeah, we can
take it to the storage space.14W: And I think we could have the,15I
really think that we dont need the one storage space, whatever.16I
mean we have three storage spaces and one of them is hardly
full.17H: I know. Actually, I think I want to try to, well I want
to18get a hold of (first male name) and see if I can get some of
the stuff19out of there. (W: Mm)20H: Sooner the better.The wife
(line 2) expresses doubt about clutter as a topic, yet in line 3
seems to claim they have a lot of clutter. In lines 58, the wife
expresses concern about getting the stuff OUT of the house,
suggesting she cannot be the one who can remove all the stuff by
guest on September 11, 2014 soc.sagepub.com Downloaded from
Cicourel67to a storage space, and tells her husband (line 8) but
you dont want to do that. Is the wife saying the husband opposes
moving the band stuff to the storage space? In line 9, the husband
seems about to negate something, and the wife cuts him off (line
10) by not-ing And I cant drive. There is no way to know if the
wifes drivers license has been suspended or if she has never
driven. The husbands reply (I know (laughs)) suggests but does not
confirm a suspended license. The remarks suggest the wife has been
diag-nosed with
AD.Inlines1113,thehusbandseemedsurprisedbythewifesreferencetotheband
stuff, and states it was the first time you mentioned about the
band stuff going to the storage space. Perhaps this is an example
of memory difficulties. Yet, the wife remem-bers their having more
storage space than needed. The dialogue appears appropriate for
both spouses; the wife by reference to the band stuff and unneeded
space, and the
hus-band(line1719)suggestinghewillcallsomeone(name),presumablytohelphim
remove the stuff. The husband suggests a way to solve their
problem.Although the case seemed somewhat perplexing, I viewed the
husbands expressions
ofplanningactualactivitiestofacilitatethemovementofclutterasindicativeofhis
creative scaffolding role for the wife despite her periodically
competent remarks.Several of the wifes initial remarks appeared
appropriate in lines 2126 (not shown). The husbands remarks,
however, seemed more appropriate, especially his reference to using
email to contact (first male named) to have him help move the
stuff.In lines 3242 (not shown), the husband states I want to sell
that drum set and the wife (line 33) agrees. The husband suggests
the wife call (first female named) to see if shell come and take
some of our stuff. Thus both spouses initiate possible plans and
suggest ways of achieving solutions. But the husbands remark that
he will email (first male named) suggests an ongoing, complex
cognitive skill.In lines 6973, 7779, and 8890 (not shown), the wife
laughs and changes the topic,
butappearstoexperiencedifficultyarticulatingherconcernwithourfinances.She
continues by stating her desire to consolidate their finances. An
awkward use of syntax, lack of semantic clarity, and the use of
many confusing deictic expressions (And you know, I dont, it, I,
Im, I, I, our, Id, I, I, I, it). The husband (line 74) remains
supportive and does not question the wife as she continues
expressing uncertainty about financial matters.In lines 7779, the
wifes confusion about her funds (we just dont know what, how to
deal with it) could be viewed as a common problem among the aged
but this wife appeared to be in her fifties (and I subsequently
learned she was 60 years old at the time of the session). The
husband (lines 8081) provides a scaffolding response that
legitimizes the wifes remarks by noting this would be a good time
to recon-sider doing something about mutual funds not identified by
the wife. After the wife murmurs apparent agreement with the
husbands remark, the husband continues by implying (line 83) an
unstated possible solution (Actually, I feel that, you know, we
could figure out). The husband then states his own doubts (I dont
even [line 83]
knowwheretobeginwithyourstuff).Thehusbandsuseofthemetaphoryour
stuff is followed by the wife (line 86) stating With my stuff? as
if to question its meaning. Perhaps she forgot what was said a few
lines earlier. I decided the wife was the patient. by guest on
September 11, 2014 soc.sagepub.com Downloaded from 68Sociology
47(1)The Puzzling AD Case 5268 After making presentations to the
UCB psychophysiology laboratory and a seminar at the Memory and
Aging Center at UCSF, I was told I had misdiagnosed one of the two
AD cases. I was not surprised; the videotapes of the AD cases
proved difficult. I subse-quently returned to the tape I suspected
was the problem case for an additional review. The case alerted me
to a problem about which I needed reminding: non-verbal and
emo-tional displays and the word-by-word analysis of the videotape
require repeated (neces-sarily filtered) representational
re-descriptions of what are presented as data. I asked myself: What
knowledge about antecedent ethnographic conditions would be helpful
to the research analyst before beginning her or his analysis? The
conceptual/methodologi-cal issue is how do analysts decide
intuitively and factually what elements are indicative
ofbringingintoexistenceadefiningorexplanatoryframeofreference(toparaphrase
KahnemanandMiller,1986).Theproblemofbehavioralindicativeelementsisalso
paramount for the families or caregivers who must decide when a
referral to a physician appears necessary, and is also a deep
concern of clinicians during their initial interaction with
caregivers and interviews with
patients.Initially,Iassumedthewifewasthepatient;herappearanceseemedsomewhat
disheveled for someone who appeared to being in her fifties and at
a formally arranged session in a university laboratory. Her glasses
were sitting on the lower part of her nose, and her hair seemed
un-combed. The husband appeared to be well groomed, and his face
seemed to be somewhat fixed, with an occasional smile, but no
laughter.The wife appeared to initiate the conversation, but the
husband intervened immedi-ately, yet he seemed odd to me because of
his serious facial expression, lack of
anima-tion,andrigid,controlled,directmanner.Thewifesvoiceappearedclearand
moderatelyanimatedwithappropriateprosody.Ibeganthinkingthehusbandwasthe
patient,yetthehusbandwasactiveintheconversation. Thediagnosisof
ADforthe
husbandappearednottobesubstantiated.Thehusbandseemedquitearticulatein
expressinghisviewsaboutreligion,yetsomeviewersmightsuggestthatthehusband
seemed to be somewhat dogmatic about his religious views. On the
other hand, his views could also be based on prior, well-rehearsed
discourse known to the wife.As the discourse continued, the wife,
unsurprisingly, seemed to know the husbands previous views on
religion. She wanted the husband to address his religious beliefs.
The initial exchange follows.Excerpt 22 Case 52681H: Hi2W: You are
hi and where (laugh)3H: Would you like to start or would you want
me to?4W: Oh, you can start.5H: Yes. Why do you always want me to
go to /church?In lines 15, the husband initiates the conversation
and refers to a viable topic: Why do you always want me to go to
church? The question presupposes the topic of going to church was a
source of past conflict. by guest on September 11, 2014
soc.sagepub.com Downloaded from Cicourel69Excerpt 23 Case 52686W:
/ok. Oh because I 7I felt like you are not giving yourself a
chance. You dont know as far as,8I dont understand why you dont
want to try to go to church.9It is almost like maybe you are afraid
to go, but 10I just dont understand it even if just even if you
went 11I mean, of course I like you [to] go with me a lot more but
just12give it a chance.13H: But you already know my views on it.
Right?14W: Mm. I want to hear them again.In lines 614, the wife
begins with several false starts and finally (lines 910) uses the
deictic term it (line 12) and the metaphor give it a chance to
refer back to line 8 (try togotochurch).
Thewifesremarksseemedconfusing.Iviewedherdifficultyin topicalizing
the source of conflict, coupled with my initial perception of her
appear-ance,asindicativethatthewifewasthepatient.Thehusbandseemedimpeccably
groomed and his opening remark seemed articulate. The wifes remarks
in lines 913, however, revealed a moderate ability to first frame,
and pursue the husbands reluctance to attend church with her. The
wife suggests he is afraid to go, and sounds frustrated
withthisreluctance.
Thewifesremarkscouldbeviewedasscaffoldinginorderto motivate the
husband to address an apparently long-term, contentious issue in
their mar-riage. The husband (line 13) insists his wife already
knows his views. The wife, how-ever, insists the husband tell his
views again.Excerpt 24 Case 526815H: You know I dont believe in
religion. It doesnt mean that I dont believe in God.16It just that
I dont believe in religion. I think there/17W: /So you do believe
in18god?19H: Of course I do.20W:
Ok.Inlines1520,thehusbanddisplaysaclearself-conceptionofhisreligiousviews,and
states It doesnt mean that I dont believe in god. He reiterates
this view in line 19. The husband did not appear to be the patient;
his speech acts appear to reveal a strong sense of self-awareness
about his dislike of organized religion. The wifes interrogation
appeared deliberate and suggests an equally strong sense of self.
Husband and wife seemed obsessed with their conflict over religion
and church attendance. The case appeared
confusing.Thewifeappearstouseasubtlebutorganizedformofadultmotherese.Isthisa
strategy to entice the husband to speak about his views and perhaps
satisfy the request
ofthelabteam?Thehusbandspreoccupationwithhisdescriptionoftheevilsof
organized religion is difficult to assess given the paucity of
ethnographic observation and only a 10-minute, staged speech event.
by guest on September 11, 2014 soc.sagepub.com Downloaded from
70Sociology
47(1)Afterre-examiningthevideotapesofCase5268,anddespitefindingbothnegative
and supportive evidence for perceiving the woman and her husband
alternatively as the patient or as normal, I decided the husband
was probably the patient.Discussion The article attempts to build
on and extend the innovative research of scholars who have focused
on developmental issues by applying some of their insights to
social interaction amongtheaged.
Theanalysisofthesixcasessoughttoidentifyanddocumentsocio-cultural
scaffolding practices necessary for understanding the emergence and
stability of a social self, and coping with the decline of human
communal life among the elderly.The empirical materials presented
above are a modest beginning. Current research by the author
explores the diagnostic process, including the role of bureaucratic
constraints faced by the neurology clinic with their patients, and
then obtains audio and videotapes of the patients in their home
environments.Making diagnostic inferences using videotapes of
staged 10-minute discourse
ses-sionsaboutanelicitedproblemthatspouseshadexperiencedappearedtobeself-evident
for the two controlled cases and two FTD patients, but daunting in
the analysis of one AD patient. I attribute my diagnostic
difficulty to not having access to more than 10 minutes of
discourse given that the two cases were diagnosed as early onset
AD. For example, the wife of the misdiagnosed case was 59 years old
at the time of the session whilethefirstcaseof
ADwas60yearsold.Ibelieve30minutesofopendiscourse between the
misdiagnosed AD case and her husband would have suggested the wife
was the patient.The empirical data suggest social research methods
can contribute to our understand-ing of human development and
decline. Further, that normal, sustained social interac-tion is the
hallmark of socially organized, normatively constrained social
structures. The patients revealed both fairly self-evident and
subtle problems for maintaining expected normal presentations of a
social self during social interaction.Sociological studies of local
social interaction in which patients and others engage in problem
solving and social exchanges can help caregivers and clinicians
understand the
significanceofroutineandcomplexdailylifeactivitiesfordiagnosingearlysignsof
socio-cultural-cognitivedeterioration,andconditionswhichledthespouseorfamily
members to consult health care professionals. The early
observations and inferences of
familymembers,friends,neighbors,andworkcolleaguesremainclinicalempirical
issues, and are difficult to document. Within clinical settings,
such data are seldom trans-parent and their discourse properties
are seldom
self-evident.Theauthorscurrentresearchexplorestheinitialclinicaldiagnosticprocessand
asks: How do health care personnel obtain evidence about when, with
whom, and to what extent patients with signs of dementia begin to
exhibit aberrations or alterations in their behavior with others?
When do patients show signs of having difficulty
engag-inginroutineandabstracttasks,re-conceptualizingmemoriesofpastevents,and
coping with everyday social interaction? Recorded home visits are
being pursued to
obtainindependentevidenceondailylifecommunicationskillsandproblem
solving. by guest on September 11, 2014 soc.sagepub.com Downloaded
from Cicourel71The modest corpus of data examined above underscores
the relevance of necessary moment-to-moment communicational skills
ubiquitously present in local communal liv-ing, including the
useful staged 10-minute exchanges presented above. The data
iden-tify aspects of appropriate and inappropriate communication
skills among the couples studied and reveal aspects of the
normative expectations participants expect if they are to
perceivesociallyorganizedactivitiesaslifeasusualornormalorunexpectedor
inappropriate displays of social interaction. The results support
the hypothesized differ-ences in social interaction among spousal
couples diagnosed as normal in contrast to
coupleswhereonespousehasbeendiagnosedwitheitherAlzheimersDiseaseor
FrontotemporalDementia.Normativelyexpectedsocialdiscourse,therefore,proved
useful in distinguishing communicational differences among normal
couples and those in which one patient was diagnosed with
dementia.AcknowledgementI am grateful to Bruce Miller, Director,
Memory and Aging Center, University of California, San Francisco,
and Robert Levenson, Director, Psychophysiology Laboratory,
University of California,
Berkeley,forallowingmetousetheirdata.Theresearchreportedbelowcouldnothavebeen
undertakenandcompletedwithouttheiressentialsupport.RoyDAndrade,TroyDuster,and
Howard Schwartz provided useful suggestions for revising the
manuscript.FundingThis research received no specific grant from any
funding agency in the public, commercial, or not-for-profit
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Cicourel73ofCalifornia,SanFrancisco,andVisitingScholarattheUniversityofCalifornia,
Berkeley(InstitutefortheStudyofSocietalIssues).Hiscurrentresearchactivities
includethestudyoffamilialandinstitutionalsocio-culturalcaregiverpractices(scaf-folding)byindividualsandgroupscaringforpatientsdiagnosedwithAlzheimers
Disease,SemanticDementia,andFrontotemporalDementia(Cicourel,2010).Anew
project was completed recently on the diagnostic processes of a
neurological clinic with new patients suspected of being afflicted
with dementia.Date submitted June 2011Date accepted March 2012