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Change for Hearts. Congenital Heart Defects (CHD’s) When a baby is born with a heart problem Most common birth defect Leading cause of infant death in.

Jan 13, 2016

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Polly Houston
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Page 1: Change for Hearts. Congenital Heart Defects (CHD’s) When a baby is born with a heart problem Most common birth defect Leading cause of infant death in.

Change for Hearts

Page 2: Change for Hearts. Congenital Heart Defects (CHD’s) When a baby is born with a heart problem Most common birth defect Leading cause of infant death in.

Congenital Heart Defects (CHD’s)

• When a baby is born with a heart problem• Most common birth defect• Leading cause of infant death in the US• Lifelong follow up with cardiologist (heart

doctor)• Sometimes activity limitation,

medicine, catheterization/surgery

Page 3: Change for Hearts. Congenital Heart Defects (CHD’s) When a baby is born with a heart problem Most common birth defect Leading cause of infant death in.

Aaron was “blue” before his surgery

Page 4: Change for Hearts. Congenital Heart Defects (CHD’s) When a baby is born with a heart problem Most common birth defect Leading cause of infant death in.

Aaron needed to eat through a tube after surgery because he didn’t learn how to

swallow when he was born

Page 5: Change for Hearts. Congenital Heart Defects (CHD’s) When a baby is born with a heart problem Most common birth defect Leading cause of infant death in.

Carson after heart surgery

Page 6: Change for Hearts. Congenital Heart Defects (CHD’s) When a baby is born with a heart problem Most common birth defect Leading cause of infant death in.

Kara after heart surgery

Page 7: Change for Hearts. Congenital Heart Defects (CHD’s) When a baby is born with a heart problem Most common birth defect Leading cause of infant death in.

• Is a support group• Family Matching• Heart Bags• Monthly social or educational events

Page 8: Change for Hearts. Congenital Heart Defects (CHD’s) When a baby is born with a heart problem Most common birth defect Leading cause of infant death in.

Pool Party

The kids can see they are not the only one with a heart scar

Page 9: Change for Hearts. Congenital Heart Defects (CHD’s) When a baby is born with a heart problem Most common birth defect Leading cause of infant death in.

Christmas Party

Kids and parent’s can have happy memories of being at the hospital

Page 10: Change for Hearts. Congenital Heart Defects (CHD’s) When a baby is born with a heart problem Most common birth defect Leading cause of infant death in.

Monthly get-togethers

• Parents can talk and help each other• Kids can hang out and help each other• Speakers come and share their experience

Page 11: Change for Hearts. Congenital Heart Defects (CHD’s) When a baby is born with a heart problem Most common birth defect Leading cause of infant death in.

• Gives money to research the diagnosis, treatment and prevention of CHDs

• Has contributed $5 million toward 48 CHD research studies