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CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

Jan 12, 2016

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Page 1: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.
Page 2: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

CEOSean Murray

Page 3: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

Vision:

To cure mitochondrial disease and to provide support to patients and their families

until a cure is found

Page 4: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

Mission:

To fund research into mitochondrial disease

To support sufferers of mitochondrial disease & their families

To educate the general public & the medical profession about mitochondrial disease

Page 5: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

research

Page 6: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

AMDF PhD Research Scholars

Paula Minal Matt

Ben (this is not really Ben)

Hayley Nicole

Page 7: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.
Page 8: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.
Page 9: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

Mitochondrial DiseasePatient Registry

amdf.org.au/mitoregistry

Page 10: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

support

Page 11: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.
Page 12: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.
Page 13: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

www.amdf.org.au

Page 14: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.
Page 15: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

education

Page 16: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.
Page 17: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.
Page 18: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.
Page 19: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

AMDF Ambassadors

Page 20: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

get involved

Page 21: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

Sunday 29 June 2014www.stayinbedday.org.au

Page 22: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

Sunday 19 October 2014www.bloodylongwalk.com.au

Page 23: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

14-20 September 2014

www.gmdaw.org

Page 24: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

14-20 September 2014

www.gmdaw.org

Distribute a fact sheetCreate a YouTube videoEmail 10 peopleWrite to your local, state and federal politicianContact your local newspaperContact your local radio stationMake mitochondria shaped biscuitsMake a poster…

Page 25: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

Point 1:1 in 200 people (over 110,000 Australians) carry genetic mutations and are at risk of developing mitochondrial disease

Previous Current

1:250

1:200

Page 26: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

Point 2:One Australian child born each week will develop a severe or life threatening form of mitochondrial disease

Page 27: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

Point 3:There is no cure and few, if any, meaningful treatments for mitochondrial disease. Research is vital.

Page 28: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

Faces ofMitochondrial Disease

Page 29: CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their families until a cure is found.

14-20 September 2014

www.gmdaw.org