Centre for Genetics Education NSW Health Australia€¦ · •Good news: Development of a National Genomic Strategy Framework just commenced. Centre’s Strategy for NSW •Program

CentreforGeneticsEducationNSWHealthAustralia

KateDunlop:Director

ANeeds-BasedApproachtogenomicseducation

TheCentreforGeneticsEducationNSWHealth:

• astate-widegovernmenteducationprogramoftheNSWGeneticsService• providesgeneticinformationandeducationtoawiderangeofaudiences• currentfocusistoassistnon-geneticshealthprofessionalswiththeskillsandknowledgetomanagetheimpactofgeneticandgenomictechnologiesontheirpractice.

www.genetics.edu.au

TheAustralianContext

• Mixofpublic(Commonwealthandthestates)andprivate• CommonwealthfundsMedicare(GPs),nationalscreeningprograms• Statesresponsibleforfundinghospitals• GeneticservicesrelativelyconsistentacrossAustralia• Stateshavedifferentprioritieseg education• NationalProfessionalCollegesandAssociations• Challenge:statevnationalorganisations/funding/approaches• Goodnews:DevelopmentofaNationalGenomicStrategyFrameworkjustcommenced

Centre’sStrategyforNSW

• Programgoals:AssisthealthprofessionalsmanagetheimpactofgenomicsontheirclinicalpracticethroughContinuingProfessionalDevelopment(CPD)andpointofcaretools• Needsbasedapproach• Identifygaps/needs(2016)• Developresourcestoprovideafoundationforfurthereducationalstrategies(2017)• Implementingprograms2018

• Genomicexpertise:NSWClinicalGeneticsService,Garvan InstituteofMedicalResearch,AustralianGenomicHealthAlliance(AGHA)Program4

Needsofmedicalspecialistsorderinggenomictesting

• PartnershipwiththeGarvan InstituteofMedicalresearch• Qualitativesemistructuredinterviewsearlyadopters• ClinicalGeneticists(15),MedicalSpecialistorderingtesting(10)• Unanimousagreementforneedforeducation• Occurthroughanumberofavenues• Needfordifferentmodelsofcare• Spectrumofeducationalneeds• “noteveryonewantstoknowthefinerdetails.Theyjustneedtoknowenoughtogetonandbeconversantwiththeirpatients”

• Challenges– Interpretinggeneticvariants• 2017:Currentlydecidingontheresourcetodeveloptofocuson“interpretingvariants”

Exploringtheeducationalneedsofalliedhealthprofessionals,nursesandmidwives

• Semi-structuredinterviews• Recruitment viaprofessionalorganisationsandhospitalsinNSW• Findings– Genomicfundamentals/impactonroles&practicesetting• Consistentwithinternationalcompetenciesandprograms• Priority:Howtotalktopatientsaboutgenomics• OnlineinteractiveeducationalmodulewithcasesforHETI(HealthandEducationTrainingInstituteallonlineresourcesNSW)beingdeveloped2017• Trialbeforeandafterknowledgewith6monthfollowupofimpactonpractice• Hopetoinfluencedevelopmentofcompetencies

• AustralianGenomicHealthAlliance(AGHA)- anationalnetworkofclinicians,diagnosticiansandresearchersledbytheMurdochChildren’sResearchInstitute,Melbourne• Fundedtodeveloparoadmapfortheintegrationofgenomicsintoclinicalcare• Program4iscurrentlyundertakinganationalgapanalysisandneedsassessmenttoidentifytrainingandeducationrequirementsforhealthprofessionals

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Information.Education.Insight

• Australianbased• facilitateeducationservicestopharmaceutical,medicaldeviceand

biotechnologyindustryandalliedhealthcarepractitioners• tosupporttheintegrationofgenomicmedicineintoclinicalpractice,clinical

research,regulatoryandreimbursementactivities• toensurepatientsgetappropriateandtimelyaccesstonewtreatments• facilitatepatienteducationandunderstandinginconjunctionwithpatient

advocacygroupsDirector:Nicholette ConwayStage: DevelopingandplanningPlannedActivities:

• PiloteducationseminarMaywithlaunchofEducationSeriesinAugust(1dayseminars)• Focusontheinterpretationofgenomicresearchforuseinclinicaltrials,regulatoryandreimbursement

(Payer)submissions• Hostedbytheindustry’skeyeducationprovider

• Variedservicesfromspecificfocus(Analyseagenomicjournalarticle/Casestudyinadiseasestate),tobroadbased“Lunch&Learn”forcrossfunctionalcorporategroups

• HostasessionatHealthcareIndustryConferencewithfocusoneducationalneedstosupportregulatoryandreimbursementrequirements.

Response:Positive– 12monthsagonointerest,nowstronginterest.Comments:Nofundingforthis,thereforefeeforservicemodel.Multiplepartnersneededtosupportmodel–

fromeducationspecialiststoclinical,scientificandregulatoryspecialists…andalotofcooperationandgoodwill!

Thankyou