WHAT TO EXPECT WHEN YOU’REEXPECTING . . .
TO CARE FOR ANELDERLY PARENT
• Develops quickly
• Dramatic changes
• Medication/infections
• Reversible
• Develops slowly
• Progression may go unnoticed
• Alzheimer’s is most prevalent
• Not reversible
Delirium Dementia
Dementia
Alzheimer’s Disease
Parkinson’s Disease
Multi-Infarcts (TIA/Stroke)
HIV
Pick’s Disease
Huntington’s Disease
Creutzfeldt-Jacob Disease
Alzheimer’s Disease
At First:
Lack of Motivation
Loss of Memory
Money
Misnames
Repetition
Time Confusion
Misplaces Things
Hoards
Alzheimer’s Disease
Midway:
Behavior Changes
Poor Judgment
Restless
Confusion
Isolative
Alzheimer’s Disease
Final:
Incoherent Speech
Unaware of Surroundings
Oppositional
Weight Loss
Cries/Screams
Incontinent
Medicare
Healthcare- 65+
Does not cover residencecost
Sets rate of pay
Has several parts- A,B,C,D
Medicaid
Healthcare- Low Income
Total care
Spend down
Where to live?
Where to live?
• Own home• Family• Board and Care Home/Rest Home• Independent Living Facility• Assisted Living Facility• Continuous Care Retirement Community (CCRC)• Memory Care (Alzheimer’s)• Skilled Nursing Facility
W H O P A Y S ?
NOT MEDICARE!!!
MEDICAID?
Important Legal Documents
• Will• Trust• Power of Attorney (POA)• Advance Directives (Living Will)• Medical Orders for Scope of Treatment
(MOST)• Legal Guardianship• Personal Care Contract
Other Important Legal Documents
• Birth Certificates
• Death Certificate
• Marriage License
• Property Deeds
• Drivers’ License
• Military Discharge Papers
• Vehicle Title• Insurance policies• Social Security Card
Insurance Policies
• Life
• Health
• Medicare Supplements
• Dental
• Accident
• Vehicles
• Homeowners
• Renters
• Other Property
• Flood
• Long Term Care
• Burial
What to do now????
Talk/Plan
• Parent
• Siblings
• Family
• Physician
Collect Information
• Medical
• Financial
• Insurance
• Assets
• Liabilities
• Legal
Collect and Copy Legal/Financial Documents
• Power of Attorney
• Health Care Proxy
• Living Will
• M.O.S.T.
• Personal Care Contract
• Trust
• Driver’s License• Birth Certificate• Marriage Certi
Get Codes/Passwords/Account #’s
• Pin Numbers
• Passwords
• Voicemail Code
• Banking Account Numbers
Make Copies of…..
• Keys
• Drivers’ License
• Birth Certificate
• Marriage Certificate
• Insurance Cards
• Medicaid Card
• Legal Docs
Other Important Information
• Safe Deposit box• Electronic transfers• Automatic deposits• Voicemail codes• Email address• Storage units and lock
What Elderly Want
• To be independent • To be safe• Help• To be valued and validated
What Elderly Don’t Want
• To be told what to feel, think, do, . . .• To be: Resented, Dismissed, Devalued
(Invalid)• To be a burden, to bother • To be dependent
Help for your elderly
• Medical needs• Finances• Safety• Legal Issues• Emotional Issues– Losing control (bodily functions, mind)– Losing usefulness in family/society– Dying
What do the Elderly Fear
• Running out of money• Not having a good/safe place to live• Loneliness• Losing control• Being abandoned• Losing independence• Being sent to a nursing home – too soon• Dying alone
What to plan for
• Plan for incapacitation• Plan for nursing home• Plan for long, extended need for your care• Unpleasant surprises• Death
Do Not Expect
• Things to get better• Miracles• Winning the lottery• Everything to go smoothly• Complete cooperation from all involved• Everything to go away• To be able to do it alone
What to expect to feel
• Overwhelmed• Like you’re not doing enough• Guilt• Confused• Caught in the middle• Like you’re spread too thin