1 1 Campaign Webinar Transgender Experience and Retention in+care November 20, 2013
Feb 18, 2016
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Campaign WebinarTransgender Experience and Retention in+care
November 20, 2013
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Ground Rules for Webinar Participation
• Actively participate and write your questions into the chat area during the presentation(s)
• Do not put us on hold• Mute your line if you are not speaking (press *6, to
unmute your line press #6)• Slides and other resources are available on our
website at incareCampaign.org• All webinars are being recorded
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Agenda
1. Welcome & Introductions, 5min2. Campaign Update, 10min3. HIPS Presentation, 40min4. Announcements, 5min
In the chat room, Enter your:
1. name, 2. agency, 3. city/state, and 4. professional role at agency
Michael Hager, MPH MA NQC Manager,in+care Campaign ManagerNew York, NY
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Campaign Update
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in+care Campaign in 2014• Campaign database running through 2018!• Campaign website running through 2018!• Partners in+care Facebook maintained indefinitely• Campaign Newsletter moves to quarterly• Campaign Webinars move to quarterly• Partners in+care Webinars move to quarterly• Campaign Coaching integrates into NQC
Continuous TA Portfolios• Local Retention Groups that wish to continue
meeting should do so – NQC will support where possible
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2013-2014 in+care Campaign Activities
2013 2014
Activities JUL AUG SEP OCT NOV DEC JAN FEB MAR APR MAY JUN JUL AUG SEP OCT NOV DEC
1-Campaign Webinar 2-Journal Club Webinar 3-Campaign Data Reporting Cycle by Participants
4-Availability of Database Benchmark Function
5-Improvement Strategy Cycle 6-in+care Website and Posting of Updates
7-Campaign Newsletter 8-Partners Webinar 9-Partners in+care Facebook 10-Campaign Coaching Availability
11-Local Retention Group Availability
12-Case Study Drafting 13-Final Report Drafting 14-Communications with participants around transition
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Submit Improvement Updates!
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Disseminating Improvement Work
Lightning Rounds!• 1 or 2 slides that contain the most salient points of your
retention projects• Include information on patient target, rationale for target selection and
baseline data from your measures (including the date)• Include information on each improvement cycle (what was tried, what
was the result per the data) – for early cycles short measures of change are not necessary, but add value!
• What are your conclusions? How are you sustaining improvement
• Simplicity and clarity are the idea!
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Disseminating Improvement Work
Case Studies• Help us tell your story!
• Campaign coaches are seeking longer, written stories about various groups’ journey through the in+care Campaign
• Contact your Campaign quality coach if you are interested in sharing your story!
• We are collecting 12 stories in total for publication
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Gap Measure Results (12/11 – 10/13)
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Visit Frequency Measure Results (12/11 – 10/13)
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New Patients Measure Results (12/11 – 10/13)
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Viral Load Suppression Measure Results (12/11 – 10/13)
The Transgender Experience
and Retention in HIV Care
Cyndee Clay, Executive Director HIPS Washington D.C.
International Transgender Day of Remembrance 11/20/13
Who are You?Improving Retention in Care
involves a community. Let’s see who’s on board today…
Poll: Medical Provider Community Member Transgender Cisgender HIV Prevention worker Community Health worker Government Policy Advocate Activist
HIPS Full Service harm reduction organization in Washington DC
HIV Prevention and Crisis Intervention Services to the trans* community since 1993
Other programs include Syringe Access & Education, Diversion Programs, Advocacy, Peer Educator Program
3,000 clients a year, approximately 35% trans*
Implemented Testing, Linkage and Retention in Care Pilot for HIV & HCV in 2012
Pop QuizPercentage of respondents to the 2011-2012 DC Transgender Needs Assessment Survey who reported
being HIV+ 5% 12% 33%
Source: DCTC Trans Needs Assessment, 2012
Pop QuizTrue or False:
Discrimination decreases in a medical setting when the client feels comfortable enough to disclose his/her/their transgender status
Pop QuizPercentage of transgender
individuals who reported being verbally harassed in a medical
setting 28% 57% 81%
Source: National Transgender Discrimination Survey, 2011
Trans* + ?
High Rates of HIV Stigma Access to Care Retention in Care
Why Now?
National HIV/AIDS Strategy High Impact Prevention New Strategies
Barriers to Care
What could be some reasons that trans* people have
challenges to gaining access and retention in care?
Common Barriers
Stigma Discrimination Previous Poor Experience Actual Discrimination Perceived Discrimination
Other Common Barriers• Street Harassment• Housing Discrimination• Poverty• Involvement in Underground
Economies• Lack of Health Knowledge• Prioritization of Gender Related
Care• Provider Knowledge
Facilitating Care Staff Incentives Collaboration Transportation Hormone Services Advocacy Follow-up
Community Health Workers? Pro’s Peer-led Peer-Support Community
Norms
Challenges Stigma Small Communities HIV Focused Prioritization
Community Health Workers?
Getting There
Collaboration Training Patience Perseverance
Thank You!Questions?
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Announcements
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Upcoming Webinars: ― in+care Campaign Webinar | State-Level Efforts to Retain
New Patients in HIV CareWednesday, December 4, 2013 | 2pm ET.
― Partners in+care Webinar | SPNS Projects Examine Retention in+care for HIV-Infected Transgender IndividualsThursday, December 10, 2013 | 2pm ET
Data Collection Submission Deadline: December 2, 2013
Improvement Update Submission Deadline: December 16, 2013
December, 2013 Campaign TopicDigital Health and Retention in+care
Upcoming Events and Deadlines
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Campaign Headquarters:National Quality Center (NQC)90 Church Street, 13th floorNew York, NY 10007Phone [email protected]
incareCampaign.orgyoutube.com/incareCampaign