British Congenital Cardiac Association...Pregnancy MDT: Case 1 - Decisions, Decisions, Decisions! 15:05 15:10 Pregnancy MDT: Case 2 15:15 15:20 REFRESHMENTS, EXHIBITION & POSTERS 15:45

Annual Meeting of the British Congenital Cardiac Association

British Congenital Cardiac Association

19th & 20th November 2019 Sage Gateshead, Newcastle upon Tyne

The companies below have sponsored the event and may have a stand present. However, they have had no input into or influence over the programme content except where indicated.

We would like to say a special thank you to the Children’s Heart Unit Fund for their generous support

PLATINUM SPONSORS:

GOLD SPONSOR:

SILVER SPONSORS:

CHARITY SPONSORS:

LeMaitre acquired Admedus on 13th October 2019

Welcome:Welcome to the 2019 Scientific Meeting of the BCCA, PECSIG, CCNA and BACCNA and the inaugural meeting of congenital cardiac physiologists at the Sage in Newcastle upon Tyne.

On behalf of the team at Freeman Hospital, Newcastle University and the Northern Neonatal, Paediatric and Adult Congenital Cardiac Network we look forward to an exciting meeting focusing on the key topics of Aortic Disease and Single Ventricle Circulations. We have aimed to combine our local expertise in the origins of congenital heart disease and advanced heart failure management with thought-provoking talks from patients and their families, who are at the heart of our work, and the experience of a distinguished National and International faculty. We hope the rich and varied programme will reflect the truly cross-disciplinary nature of our speciality and stimulate discussion that inspires future innovation and collaboration.

We would like to thank our sponsors for supporting this year’s meeting and wish you all a successful conference.

Best wishes David, Louise and Tony

Organising Committee BCCADr David Crossland, Dr Louise Coats and Dr Antony HermuziFreeman Hospital, Newcastle upon Tyne Hospitals NHS Foundation Trust and Newcastle University

Pre-Conference Mechanical Support SymposiumDr Zdenka Reinhardt, Dr Emma Simpson and Dr Katrijn Jansen Freeman Hospital, Newcastle upon Tyne Hospitals NHS Foundation Trust

BACCNAMs Lorna Carruthers Freeman Hospital, Newcastle upon Tyne Hospitals NHS Foundation Trust

CCNAMs Debbie Lawson and Ms Debbie Richardson Freeman Hospital, Newcastle upon Tyne Hospitals NHS Foundation Trust

PECSIGDr Majd Abu-Harb South Tyneside and Sunderland NHS Foundation Trust

Dr Poothirikovil Venugopalan Brighton and Sussex University Hospitals NHS Trust

Physiologist MeetingMs Anna Johnson and Ms Alison Heads-Baister Freeman Hospital, Newcastle upon Tyne Hospitals NHS Foundation Trust

Dinner Information:Venue: BALTIC, Gateshead, NE8 3BATime: 19:15 for welcome drinks, 20:00 for dinnerDinner: Banqueting style To be followed by entertainment from ‘The Baghdaddies’ There will also be a display of the Heart of the Matter exhibition – a project by the artist Sofie Layton and bioengineer Giovanni Biglino with health psychologist Jo Wray.Dress code: Smart/cocktail dress (not black tie)

BALTIC is located just a 5 minute walk from the SAGE Gateshead

The Madeleine Steel Charitable Trust:Madeleine Louise Steel, universally loved as “Maddy” was born on June 5th 2001 in the Simpson Memorial Pavilion in Edinburgh. She is Andrew and Veronica’s first child and despite having numerous health challenges in her short life, she was mainly cheerful, highly engaging and was cherished by all her family. Maddy died in her mother’s arms on November 24th 2001, following essential heart surgery for her Ebstein’s Anomaly, but her memory and her fight go on in the treasured memories of her family and in the practical form of the Fellowship established in her name.The Trust aims to endow permanent annual scholarships to promote transatlantic sharing of latest research and medical best practices in the field of paediatric cardiology. The Trust also supports related activities, such as visiting professorships and one-off medical research awards.We hope to provide opportunities for specialists to gain and develop better and more effective treatments for people with congenital cardiac conditions. Not only will we have a spread of returning trainees across the specialist centres in the UK, but we hope they will be passing on their new expertise to other specialists in the UK.The Madeleine Steel Charitable Trust is delighted to be sponsoring Dr Mike Seed to speak at this conference. The Young Investigator Award offering the opportunity to travel to a US conference is also being made with the generosity of the supporters and donors of the Madeleine Steel Charitable Trust.

DAY 1 Summary: Tuesday 19th November 2019

BCCA Room: SAGE 1

BACCNA Room: Barbour West

Physiologist Day Room: Barbour East

08:00 REGISTRATION

08:50 Welcome & Introduction

09:00 Pearls for the Clinician from the Basic Scientist

09:17 Clinical Anatomy of the Aortic Valve and Root

09:36 Echocardiographic assessment of the aortic valve and replaced aortic valve

09:55 Genomics and Heart Malformation

10:17 The impact of aortic dissection and aortopathy screening on patients and families

10:30 REFRESHMENTS, EXHIBITION & POSTERS

11:00 Aortic valve repair for congenital aortic valve disease Fontan patients: watching

decline or making a real difference?

Imaging single ventricle patients: Is it all over for echocardiography?11:22

TAVI for congenital aortic valve disease. Ready for younger, ready for smaller?

11:25

Management of Fontan failure

11:30Echo for children and adults on ECMO11:39

Is it all over for the Ross procedure?

11:50

Quality of life and managing expectation in complex CHD

Echo assessment of the sub pulmonary left ventricle11:56

Who and when? Medical management of aortic root dilation

12:08Who and when? Timing of surgery and surgical approach to aortic root dilation

12:10 “These are not the Droids you’re looking for” (Echo surprises!)12:15 The future

12:30 LUNCH, EXHIBITION & POSTERS

12:45 POSTER WALK

13:00 BVM SYMPOSIUM

DAY 1 Summary: Tuesday 19th November 2019

13:45

Oral Abstracts Presentations

Pregnancy in the Fontan patient Coronary anatomy: From the

normal to the weird and not so wonderful14:00

ACHD/Pregnancy14:05 Coronary arteries in

congenital heart disease: what the surgeon needs to know14:15

ACHD/Pregnancy

14:25Kawasaki disease: from infant to adult14:30

Dilemmas in pre conception counselling and obstetric care of women with aortic disease

14:45

Beyond anatomy: functional assessment of coronary flow

15:00 Pregnancy MDT: Case 1 - Decisions, Decisions, Decisions!15:05

15:10Pregnancy MDT: Case 2

15:15


15:45 The Collapse and Collaborations of the North West ACHD Service

Advanced techniques in routine clinical practice

15:50 When your results are questioned/ when you question your results16:05

Network Model of care in North Yorkshire & Humber

16:07 Developing and introducing a new procedure16:15

Is it time for echocardiographer-led research in congenital heart disease?

16:24

Prospects for mechanical support for the single ventricle over the next 10 years

16:25Closing

16:29

16:35 Meeting Closes Training, service and network development a level 1 centre model

16:55 National training past, present and future; introducing the role therein of BCCA physiologist steering group

16:49Meeting Closes

17:15 Meeting Closes

17:15 - 19:00 BCCA Annual General Meeting

19:15 Conference Dinner at BALTIC

Day 2 Summary: Wednesday 20th November 2019

BCCA Room: SAGE 1

CCNA Room: Barbour West

PECSIG Room: SAGE 2

07:30 REGISTRATION

09:00 Risk: What does it mean, how is it understood, how can you explain it?

09:35 All single ventricles are not equal: Outcomes by diagnosis and implications for counselling

09:57 Managing the impact of uncertainty on patients and families

10:16 Being told


11:00 Realistic Decision Making from Livebirth Case

Evidence for Decision Making for the First Palliation

Managing and understanding the child's anxiety in intensive care and beyond

‘Everything looks fine see you again in a year' Congenital Heart Disease follow up - when and why?

11:10

11:20

The child is 'fine' - what about the parents?11:25 Acute Post operative Fontan

Failure Case

Predicting and Managing Early Post-Op Fontan Failure

11:30

Abstract Oral presentations

11:40The impact and management of social media on patients and care givers11:50 Stable Fontan at Home

Case

Does Medical Therapy improve outcome?

Screening for FALD, for what purpose, to what end

Embolising Collaterals, making a real difference or cosmetic intervention

12:00Developing a pathway for neuropsychological assessment of children with CHD

12:20

The non-medical MDT; We might be able to but…..: Advocating for patients and families being offered high risk procedures

12:30

PECSIG General Body Meeting

12:35The basis for and management of arrhythmia in single ventricle patients

13:00 LUNCH, EXHIBITION & POSTERS

13:15 POSTER WALK

13:30 ACTELION SYMPOSIUM

Day 2 Summary: Wednesday 20th November 2019

14:15

Brain Development in Congenital Heart Disease

Dzung Memorial lecture - Inauguration

14:20 Dzung Memorial lecture 'Can you have a quick look at this ECG' - when to worry?14:45

Fontan Failure. The known unknowns and the unknown unknowns

Assessing and listing Congenital Heart Disease patients for transplant14:50

The lesson I learned from this case: Near missed reversible cardiomyopathy

15:00

The Waiting Games

The lesson I learned from this case: Infant with VSD - Diastolic flow reversal in Aorta15:05

Beyond case series and registries, using research to develop a new approach to the single ventricle, complex population and transplantation in CHD

15:10 The lesson I learned from this case: An unusual cause of Cyanosis in a neonate15:15

ECPR - Outside the ITU15:20

‘The child has a temperature - can you exclude a cardiac cause please'

15:25 Triumph and disaster in Fontan transplant: The Newcastle Experience15:30 VAD at home….is this the

future?

15:45

A view from the other side

Post Transplant perspective - Nurse Specialist

15:50Prize for posters and oral presentations

16:00 Post Transplant perspective - Patient

16:05 MEETING CLOSE MEETING CLOSE

16:15 MEETING CLOSE

BCCA Programme - Day 1Tuesday 19th November 2019SAGE 1


08:00 Registration Opens08:50 Welcome & Introduction

Session 1: Aortic Valve and Root: Anatomy and Screening Chairs: Dr Anna Beattie, Dr Brian Grant

09:00 Pearls for the Clinician from the Basic Scientist – Prof Deborah Henderson 09:17 Clinical Anatomy of the Aortic Valve and Root – Prof Robert Anderson 09:36 Echocardiographic assessment of the aortic valve and replaced aortic valve – Prof John Simpson09:55 Genomics and Heart Malformation – Dr Bill Chaudhry 10:17 The impact of aortic dissection and aortic screening on patients and families – Len Redpath & Jackie Redpath

10:30 Refreshments, Exhibition & Posters

Session 2: Aortic Valve and Root: Surgery and Intervention Chairs: Mr Ed Peng, Mr Mohamed Nassar

11:00 Aortic valve repair for congenital aortic valve disease – Prof. Dr Hans-Joachim Schäefers11:22 TAVI for congenital aortic valve disease. Ready for younger, ready for smaller? – Dr Michael Mullen11:39 Is it all over for the Ross procedure? – Mr Serban Stoica11:56 Who and when? Medical management of aortic root dilation – Dr John O’Sullivan12:08 Who and when? Timing of surgery and surgical approach to aortic root dilation – Prof Mark Redmond 12:30 Lunch, Exhibition & Posters12:45 Poster Walk

13:00 - 13:45 Join BVM in celebrating “30 years of Interventions in Congenital Heart Disease” Chairman - Professor Shak Qureshi

Historical Perspectives of Paediatric Cardiology Professor Mike Tynan

How interventions developed in 1980s and 1990s Professor Neil Wilson

Collaboration between clinicians and industry in development of new technologies – industry perspective Al Tower Jnr/Hitesh Tailor

Collaboration between clinicians and industry in development of new technologies – clinician’s perspective Dr Gareth Morgan

Difficulties encountered in the development of new interventions Professor Eric Rosenthal

BCCA Programme - Day 1ContinuedSAGE 1


Session 3: Abstracts Chairs: Dr Jaspal Dua, Dr Alan Magee

13:45 Heart Transplant for the Failing Fontan Population - Dr Barbara Cardoso

13:56 Linking morphology of aortic arch anomalies to their presentation, prognosis and management - Elena Ctori

14:07 The Urgent Ross/Konno Operation in Neonates and Infants: Intermediate-Term Survival, Autograft and Allograft Function, and Reintervention - Mr Muhammed Hebala

14:18 Mixed Reality View of Cardiac Specimens: a new approach to understand complex intra-cardiac congenital lesions - Dr Sok Leng Kang

Session 4: Pregnancy Chairs: Prof Mark Johnson, Dr William Wight, Dr Kenneth Hodson

14:30 Dilemmas in pre conception counselling and obstetric care of women with aortic disease – Prof Jolien Roos-Hesselink

15:00 Pregnancy MDT: Case 1 - Decisions, Decisions, Decisions! – Dr Ian Peart

15:10 Pregnancy MDT: Case 2 – Dr Aisling Carroll


Session 5: Shaping the future Chairs: Dr Sonya Babu-Narayan, Dr Zdenka Reinhardt

15:50 When your results are questioned/ when you question your results - Dr Aaron Bell

16:07 Developing and introducing a new procedure - Prof Eric Rosenthal

16:24 Prospects for mechanical support for the single ventricle over the next 10 years - Mr Fabrizio De Rita

16:49 BCCA Day 1 Close17:15 – 19:00 BCCA Annual General Meeting 19:15 Conference dinner at BALTIC

Physiologist Programme – Day 1Tuesday 19th November 2019Barbour East


Session 1: Aortic Valve and Root: Anatomy and Screening (SAGE 1) Chairs: Dr Anna Beattie, Dr Brian Grant



Session 2: Key Note Chairs: Alison Heads-Baister

11:00 Imaging single ventricle patients: Is it all over for echocardiography? – Dr Lucy Roche

Session 3: Echo Outside Your Comfort Zone Chairs: Anna Johnson, Dr Saleha Kabir

11:30 Echo for children and adults on ECMO – Dr Antony Hermuzi 11:50 Echo assessment of the sub pulmonary left ventricle – Alison Heads-Baister 12:10 “These are not the Droids you’re looking for” (Echo surprises!) – Stuart Lilley

12:30 Lunch, Exhibition & Posters12:45 Poster Walk

13:00 - 13:45 Join BVM in celebrating (SAGE 1) “30 years of Interventions in Congenital Heart Disease” Chairman- Professor Shak Qureshi






Physiologist Programme – Day 1ContinuedBarbour East

Session 4: Coronary Arteries Chairs: Jill Wake, Debbie Rawlins-Dashwood

13:45 Coronary anatomy: From the normal to the weird and not so wonderful – Dr Caroline Jones14:05 Coronary arteries in congenital heart disease: what the surgeon needs to know – Mr Mohamed Nassar 14:25 Kawasaki disease: from infant to adult – Alexandra Savis 14:45 Beyond anatomy: functional assessment of coronary flow – Dr Katrijn Jansen


Session 5: Advanced Echo and Shaping the Future Chairs: Jan Forster, Alison Heads-Baister

15:45 Advanced techniques in routine clinical practice – Prof John Simpson 16:15 Is it time for echocardiographer-led research in congenital heart disease? – Tom Banks 16:35 Training, service and network development of a level 1 centre model – Dr Saleha Kabir 16:55 National training past, present and future; introducing the role therein of BCCA physiologist steering group – Debbie Rawlins-Dashwood

17:15 Physiologist Programme Closes17:15 – 19:00 BCCA Annual General Meeting 19:15 Conference dinner at BALTIC

BACCNA Programme - Day 1Tuesday 19th November 2019Barbour West


Session 1: Aortic Valve and Root: Anatomy and Screening (SAGE 1) Chairs: Dr Anna Beattie, Dr Brian Grant



Session 2: Fontan surveillance and the future Chairs: Linda Griffiths, Anna Harrison

11:00 Fontan patients: watching decline or making a real difference? – Debbie McParlin 11:25 Management of Fontan failure – Dr Bruno Lopes 11:50 Quality of life and managing expectation in complex CHD – Dr Jenny Paton 12:15 The future – Dr Louise Coats


13:00 - 13:45 Join BVM in celebrating (SAGE 1) “30 years of Interventions in Congenital Heart Disease” Chairman- Professor Shak Qureshi






BACCNA Programme - Day 1ContinuedBarbour West

Session 3: Pregnancy 1 Chair: Lorna Carruthers

13:45 Pregnancy in the Fontan patient - Maggie Simpson 14:00 ACHD/Pregnancy - Sheena Vernon 14:15 ACHD/Pregnancy - Rebecca Mercaldi

Session 4: Pregnancy (SAGE 1) Chairs: Prof Mark Johnson, Dr William Wight, Dr Kenneth Hodson

14:30 Dilemmas in pre conception counselling and obstetric care of women with aortic disease – Prof Jolien Roos-Hesselink

15:00 Pregnancy MDT: Case 1 - Decisions, Decisions, Decisions! – Dr Ian Peart

15:10 Pregnancy MDT: Case 2 – Dr Aisling Carroll


Session 5: CHD & Network Chairs: Maggie Simpson, Debbie McParlin

15:45 The Collapse and Collaborations of the North West ACHD Service – Anna Harrison 16:05 Network Model of care in North Yorkshire & Humber – Jo Quirk 16:25 Closing – Lorna Carruthers

16:35 BACCNA Programme Closes17:15 – 19:00 BCCA Annual General Meeting 19:15 Conference dinner at BALTIC

BCCA Programme - Day 2Wednesday 20th November 2019SAGE 1


08:00 Registration Opens

08:00 UK Single Ventricle Registry Meeting (Barbour Room West)

Session 1: Risk Chairs: Dr Kerry Gaskin, Dr Paul Moran

09:00 Risk: What does it mean, how is it understood, how can you explain it? – Sir David Spiegelhalter09:35 All single ventricles are not equal: Outcomes by diagnosis and implications for counselling – Dr Caroline Jones 09:57 Managing the impact of uncertainty on patients and families – Dr Sue Brown 10:16 Being told – Sophie Mansuy


Session 2: The Single Ventricle MDT Chairs: Dr Dominic Hares, Dr Sachin Khambadkone

11:00 Realistic Decision Making from Live birth Case - Dr Stavros Polyviou Evidence for Decision Making for the First Palliation - Mr Tim Jones11:25 Acute Post operative Fontan Failure Case - Dr Gareth Morgan Predicting and Managing Early Post-Op Fontan Failure - Dr Michael Quail11:50 Stable Fontan at Home Case - Dr Aidan Bolger Does Medical Therapy improve outcome - Dr James Oliver Screening for FALD, for what purpose, to what end - Dr Alexandra Thompson Embolising Collaterals, making a real difference or cosmetic intervention - Professor Alain Fraisse

Session 3 Chairs: Dr Neil Seller

12:35 The basis for and management of arrhythmia in single ventricle patients - Prof. Dr Nico Blom


13:30 Actelion Symposium (SAGE 1) Pulmonary arterial hypertension in repaired congenital heart disease: Clinical insights from the CHAMPION group

Speaker: Dr Andrew Constantine Panel (for discussions): Dr Paul Clift, Dr Robin Condliffe, Prof Kostas Dimopoulos and Prof Rob Tulloh

13:30 – 13:45 Case 1: Arterial switch with severe pulmonary hypertension13:45 – 14:00 Case 2: Repaired ventricular septal defect14:00 – 14:15 Case 3: Mustard case

Session 4 Chairs: Mr Asif Hasan

14:15 Brain Development in Congenital Heart Disease – Dr Mike Seed

Session 5: Heart Failure in Single Ventricle Patients Chairs: Dr Aidan Bolger, Dr Bejal Pandya

14:45 Fontan Failure. The known unknowns and the unknown unknowns – Dr Lucy Roche 15:05 Beyond case series and registries, using research to develop a new approach to the single ventricle, complex population and transplantation in CHD - Prof. Dr Gerhard-Paul Diller15:25 Triumph and disaster in Fontan transplant: The Newcastle Experience – Dr Katrijn Jansen15:45 A view from the other side – Dr Adrian Chester

16:05 BCCA Programme Closes

BCCA Programme - Day 2ContinuedSAGE 1


CCNA Programme - Day 2Wednesday 20th November 2019Barbour West

08:00 Registration


Session 1: Risk (SAGE 1) Chairs: Dr Kerry Gaskin, Dr Paul Moran


10:30 Refreshments, Exhibition & Posters Session 2: Managing High Risk and Anxiety Chairs: Mr Asif Hasan

11:00 Managing and understanding the child’s anxiety in intensive care and beyond - Gillian Colville11:20 The child is ‘fine’ - what about the parents? - Gillian Colville 11:40 The impact and management of social media on patients and care givers - Lynn Watson12:00 Developing a pathway for neuropsychological assessment of children with CHD - Dr Catherine Hankinson12:20 The non-medical MDT; We might be able to but…..: Advocating for patients and families being offered high risk procedures - Deb Richardson, Debbie Lawson, Jacqueline Laydon





CCNA Programme - Day 2ContinuedBarbour West

Session 3 Chairs: Mr Asif Hasan

14:15 Brain Development in Congenital Heart Disease – Dr Mike Seed

Session 414:45 Assessing and listing congenital heart disease patients for transplant – Dr David Crossland 15:00 The Waiting Games – Joanne Moore 15:15 ECPR - Outside the ITU – Lesley Hamilton, Kelly Whitfield 15:30 VAD at home….is this the future? – Claire McGraith15:45 Post Transplant Perspective - Nurse Specialist – Julie Flett16:00 Post Transplant Perspective – Patient – Scott Rutherford

16:15 CCNA Programme Closes

PECSIG Programme - Day 2Wednesday 20th November 2019SAGE 2

08:00 Registration


Session 1: Risk (SAGE 1) Chairs: Dr Kerry Gaskin, Dr Paul Moran



Session 2: Chairs: Dr Poothirikovil Venugopalan, Dr Majd Abu-Harb

11:00 ‘Everything looks fine see you again in a year’ Congenital Heart Disease follow up - when and why? - Dr Tara Bharucha

11:30 4 Oral Abstracts Presenters Characteristics of WPW in Welsh Population - Dr Afzal Abubakker Bapputty Haji West Midlands Congenital Heart Network Paediatrician with Expertise in cardiology (PEC) service - A single centre evaluation over 11 years - Dr Nicola Boyd Cardiac surveillance in Duchenne and Becker muscular dystrophies: Are we getting it right? - Dr Yousef Gargani How to do better… a patient’s perspective - Dr Katy Huxstep

12:30 PECSIG General Body Meeting - Dr Poothirikovil Venugopalan, PECSIG Team





PECSIG Programme - Day 2ContinuedSAGE 2

Session 3: Chairs: Prof Jonathan Wyllie, Dr Yogen Singh

14:15 Dzung Memorial lecture – Inauguration - Dr Yogen Singh14:20 Dzung Memorial lecture ‘Can you have a quick look at this ECG’ - when to worry? – Prof Nico Blom 14:50 The lesson I learned from this case: Near missed reversible cardiomyopathy - Dr Madhu Podalakur15:00 The lesson I learned from this case: Infant with VSD - Diastolic flow reversal in Aorta - Dr Narayana Reddy Vayyeti 15:10 The lesson I learned from this case: An Unusual Cause of Cyanosis in a Neonate - Dr Apoorva Aiyengar15:20 ‘The child has a temperature - can you exclude a cardiac cause please’ - Dr Abbas Khushnood15:50 Prize for posters and oral presentations - Dr Yogen Singh

16:00 PECSIG Programme Closes

International Speakers Prof. Dr Nico BlomProfessor of Paediatric CardiologyLeiden University Medical Centre, The Netherlands

Prof. Dr Gerhard-Paul DillerAdult Congenital Heart Disease ConsultantUniversity Hospital Muenster, Germany

Dr Gareth MorganDirector of Interventional CardiologyChildren’s Hospital of Colorado and University of Colorado, USA

Dr Lucy RocheAdult Congenital Heart Disease CardiologistToronto General Hospital and University of Toronto, Canada

Prof Jolien Roos-HesselinkProfessor of CardiologyErasmus University Medical Center, Rotterdam, The Netherlands

Prof. Dr Hans-Joachim SchäfersDirector of the Department of Thoracic and Cardiovascular SurgerySaarland University Hospital, Germany

Dr Mike SeedDivision Head of CardiologyThe Hospital for Sick Children and University of Toronto, Canada

Sir David SpiegelhalterChair of the Winton Centre for Risk and Evidence Communication and Winton Professor for the Public Understanding of RiskCambridge University

BCCA Faculty Prof Robert Anderson Visiting Professorial FellowInstitute of Genetic MedicineNewcastle University, Newcastle upon Tyne

Dr Sonya Babu-NarayanConsultant CardiologistRoyal Brompton Hospital, London

Dr Anna Beattie Consultant Cardiothoracic Radiologist Freeman Hospital, Newcastle upon Tyne

Dr Aaron BellConsultant Paediatric CardiologistEvelina London Children’s Hospital, London

Dr Aidan BolgerConsultant Cardiologist and Honorary Senior Lecturer Glenfield Hospital, Leicester

Dr Sue BrownConsultant Clinical PsychologistFreeman Hospital, Newcastle upon Tyne

Dr Aisling CarrollConsultant Cardiologist in Adult Congenital Heart Disease and Cardiac Obstetric Lead University Hospital Southampton

Dr Bill ChaudhrySenior LecturerInstitute of Genetic Medicine Newcastle University, Newcastle upon Tyne

Faculty List

Organising Committee Dr Louise Coats

Clinical Intermediate Fellow and Honorary Consultant Adult Congenital Heart DiseaseNewcastle University and The Newcastle upon Tyne Hospitals NHS Foundation Trust

Dr David CrosslandConsultant Paediatric and Adult Congenital Cardiologist

The Newcastle upon Tyne Hospitals NHS Foundation Trust

Dr Antony HermuziConsultant Paediatric and Adult Congenital Cardiologist

The Newcastle upon Tyne Hospitals NHS Foundation Trust

Dr Adrian Chester Patient

Mr Fabrizio De RitaConsultant Congenital Heart SurgeonFreeman Hospital, Newcastle upon Tyne

Dr Jaspal Dua Adult Congenital Heart Disease CardiologistLiverpool Heart and Chest Hospital, Liverpool

Prof Alain FraisseConsultant Paediatric CardiologistRoyal Brompton Hospital, London

Dr Kerry Gaskin Head of Department for Post Qualifying Courses, Three Counties School of Nursing and Midwifery. Chair of the Congenital Cardiac Nurses AssociationUniversity of Worchester

Dr Brian Grant Consultant Paediatric CardiologistRoyal Belfast Hospital for Sick Children, Ireland

Dr Dominic Hares Consultant Paediatric CardiologistLeeds General Infirmary, Leeds

Mr Asif HasanConsultant Cardiothoracic SurgeonFreeman Hospital, Newcastle upon Tyne

Prof Deborah Henderson Professor of Cardiac Development Institute of Genetic MedicineNewcastle University

Dr Kenneth HodsonConsultant in Maternal Medicine and ObstetricsRoyal Victoria Infirmary, Newcastle upon Tyne

Dr Katrijn JansenConsultant Congenital CardiologistFreeman Hospital, Newcastle upon Tyne

Dr Caroline Jones Consultant Paediatric CardiologistAlder Hey Childrens Hospital, Liverpool

Mr Tim JonesConsultant Cardiac SurgeonBirmingham Women’s and Children’s NHS Foundation Trust

Prof Mark JohnsonProfessor of Clinical ObstetricsChelsea and Westminster Hospital, London

Dr Sachin KhambadkoneConsultant in Paediatric and Adolescent CardiologyGreat Ormond Street Hospital for Children, London

Dr Alan Magee Consultant Paediatric Cardiologist & BCCA President University Hospital Southampton

Ms Sophie Mansuy Parent

Dr Paul MoranConsultant in Obstetrics and Fetal MedicineRoyal Victoria Infirmary, Newcastle upon Tyne

Dr Michael MullenConsultant Cardiologist & Lead for Structural Heart DiseaseSt Bartholomew’s Hospital, London

Mr Mohamed NassarConsultant Paediatric and Adult Congenital Cardiothoracic SurgeonFreeman Hospital, Newcastle upon Tyne

Dr James Oliver Consultant in Adult Congenital Heart Disease Leeds Teaching Hospitals NHS Trust

Dr John O’SullivanConsultant CardiologistFreeman Hospital, Newcastle upon Tyne

Dr Bejal Pandya Adult Congenital Heart Disease CardiologistBart’s Health Centre, London

Dr Ian PeartConsultant Paediatric CardiologistAlder Hey Children’s Hospital, Liverpool

Mr Ed PengConsultant Cardiac SurgeonThe Royal Hospital for Sick Children, Glasgow

Dr Stavros PolyviouSpecialty Registrar in Paediatric CardiologyFreeman Hospital, Newcastle upon Tyne

Dr Michael QuailPaediatric CardiologistGreat Ormond Street Hospital for Children, London

Prof Mark RedmondConsultant Cardiothoracic SurgeonOur Lady’s Children Hospital, Dublin

Dr Zdenka ReinhardtConsultant Paediatric and Transplant CardiologistNewcastle upon Tyne Hospitals NHS Foundation Trust

Mr & Mrs Len and Jackie RedpathPatient Parents

Prof Eric RosenthalConsultant Paediatric and Adult Congenital CardiologistEvelina London Children’s Hospital

Dr Neil Seller Consultant Paediatric Cardiologist and ElectrophysiologistFreeman Hospital, Newcastle upon Tyne

Prof John SimpsonProfessor of Paediatric and Fetal CardiologyEvelina London Children’s Hospital, London

Mr Serban StoicaConsultant Cardiac SurgeonBristol Children’s Hospital and the Heart Institute, Bristol

Dr Alexandra ThompsonST7 Gastroenterology/HepatologyRoyal Infirmary of Edinburgh

Dr William WightConsultant Obstetric AnaesthetistRoyal Victoria Infirmary, Newcastle upon Tyne

Physiologist FacultyMr Tom BanksHighly Specialised Cardiac Physiologist/Clinical ScientistFreeman Hospital, Newcastle upon Tyne

Mrs Jan Forster Consultant Congenital SonographerLeeds Teaching Hospitals NHS Trust

Mrs Alison Heads-BaisterPrincipal Cardiac Physiologist Congenital Heart UnitFreeman Hospital, Newcastle upon Tyne

Ms Anna JohnsonHighly Specialised EchocardiographerFreeman Hospital, Newcastle upon Tyne

Dr Saleha KabirSenior Chief Cardiac Physiologist & Lead of Paediatrics and Advanced ImagingEvelina London Children’s Hospital, London

Mr Stuart LilleyCardiac Ultrasound Manager and Cardiac Department LeadRoyal Hospital for Children, Glasgow

Mrs Debbie Rawlins-DashwoodLead of Fetal and Paediatric Echo ServiceUniversity Hospital of Southampton

Ms Alexandra SavisSenior Chief Cardiac Physiologist & Physiologist Lead in Research and TrainingEvelina London Children’s Hospital, London

Mrs Jill WakeHighly Specialised Cardiac PhysiologistFreeman Hospital, Newcastle upon Tyne

BACCNA FacultyMs Lorna CarruthersAdult Congenital Heart Disease Nurse SpecialistFreeman Hospital, Newcastle upon Tyne

Ms Linda Griffiths Lead Nurse Adult Congenital Heart Disease Specialist Nursing TeamLiverpool Heart and Chest Hospital

Mrs Anna Harrison Adult Congenital Heart Disease Nurse SpecialistLiverpool Heart and Chest Hospital

Dr Bruno LopesVisiting Honorary Fellow in Adult Congenital Heart DiseaseFreeman Hospital, Newcastle upon Tyne. Visiting from University Hospital Zurich, Switzerland

Mrs Debbie McParlinFontan Nurse SpecialistFreeman Hospital, Newcastle upon Tyne

Ms Rebecca Mercaldi Adult Congenital Heart Disease Nurse SpecialistBart’s Hospital, London

Dr Jenny PatonConsultant Clinical PsychologistFreeman Hospital, Newcastle upon Tyne

Mrs Jo QuirkLead Nurse for Yorkshire & Humber Congenital Heart DiseaseLeeds General Infirmary

Ms Maggie SimpsonSenior Nurse Specialist, Scottish Adult Congenital Cardiac ServiceLead Clinician, Scottish Obstetric Cardiology Network

Ms Sheena VernonLead Nurse for Congenital Heart Disease Network for South Wales and South WestUnited Hospitals Bristol NHS Foundation Trust

CCNA FacultyMrs Gillian ColvilleConsultant Clinical PsychologistSt George’s University Hospitals NHS Foundation Trust, London

Ms Julie Flett Children’s Transplant Specialist NurseFreeman Hospital, Newcastle upon Tyne

Dr Catherine HankinsonClinical PsychologistNewcastle upon Tyne Hospitals NHS Foundation Trust

Ms Lesley HamiltonSenior Sister Freeman Hospital, Newcastle upon Tyne

Ms Debbie LawsonChildren’s Cardiac Nurse SpecialistFreeman Hospital, Newcastle upon Tyne

Ms Jacqueline LaydonChildren’s Cardiac Nurse SpecialistFreeman Hospital, Newcastle upon Tyne

Ms Claire McGraithChildren’s Ventricular Assist Device (VAD) and Heart Failure Nurse SpecialistFreeman Hospital, Newcastle upon Tyne

Mrs Joanne MooreHealth Play Specialist Freeman Hospital, Newcastle upon Tyne

Ms Deborah RichardsonChildren’s Cardiac Nurse SpecialistFreeman Hospital, Newcastle upon Tyne

Mr Scott Rutherford Patient

Ms Lynn Watson Communications ManagerFreeman Hospital, Newcastle upon Tyne

Ms Kelly WhitfieldStaff NurseFreeman Hospital, Newcastle upon Tyne

PECSIG FacultyDr Majd Abu-HarbConsultant Neonatologist and Honorary Consultant Paediatric CardiologistSunderland Royal Hospital & RVI, Newcastle upon Tyne

Dr Apoorva AiyengarNeonatal DoctorHomerton University Hospital, London

Dr Tara BharuchaConsultant Fetal and Paediatric CardiologistUniversity Hospital Southampton NHS Foundation Trust

Dr Abbas KhushnoodConsultant Paediatric CardiologistFreeman Hospital, Newcastle upon Tyne

Dr Madhu PodalakurConsultant Paediatrician with Cardiology ExpertiseNorth Tees University Hospital, Stockton-on-Tees

Dr Yogen Singh Consultant Neonatologist & Expertise in Paediatric CardiologyCambridge University Hospitals NHS Foundation Trust

Dr Narayana Reddy Vayyeti Cardiology Clinical FellowAlder Hey Children’s Hospital, Liverpool

Dr Poothirikovil VenugopalanPECSIG Chair & Consultant Paediatrician with Cardiology ExpertiseRoyal Alexandra Children’s Hospital, Brighton

Prof Jonathan WyllieProfessor of Neonatology and PaediatricsJames Cook University Hospital, Middlesbrough

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CFS Events Ltdwww.cfsevents.co.uk

British Congenital Cardiac Association...Pregnancy MDT: Case 1 - Decisions, Decisions, Decisions! 15:05 15:10 Pregnancy MDT: Case 2 15:15 15:20 REFRESHMENTS, EXHIBITION & POSTERS 15:45

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