Brisbane Health-y Data: RedCap

"REDCap is a mature, secure web application for

building and managing online surveys and

databases. While REDCap can be used to collect virtually

any type of data, it is specifically geared to support data

capture for research studies."

http://project-redcap.org/

• 1,807 active institutional partners

• 98 countries

• >243,000 projects

• >333,000 users

Institute # Projects in production

# Projects in development

# of users

University of Queensland

- Medical School 64 46 389

- Royal Brisbane and Women's Hospital 1 1 8

Griffith University 35 34 223

Queensland University of Technology

- Institute of Health and Biomedical Innovation 3 11 32

- Translational Research Institute Stats not currently available

http://projectredcap.org/consortium.php

DATA CAPTURE• Surveys• Direct data entry• Calculated fields• Branching logic• Auto validation (data QC)• Longitudinal events

AVAILABILITY

• Web-based

• Multi-site access facilitates collaboration

• No cost for REDCap Consortium PartnersANALYSIS & REPORTS

• On-demand reports

• Export data to multiple common data analysis packages (R, SASS, Excel)

SECURITY• Deployment under your control

– can be deployed in environments for compliance e.g. ISO27001, IRAP, HIPAA, 21 CFR Part 11, FISMA (low, moderate, high)

• User management system

• Data collection 'instruments' (forms)

• Specify the question or field

• Specify the answer type

• Specify identifiable information– i.e. identifiable fields will be

removed when exporting "unidentifiable information"

Direct data entry Online surveysvs

• Usually entered by participant/patient

• Public link (anyone, multiple times)• Invited (email, configured to one

time, tracking)• Scheduled

• by date and/or condition

• User needs to login to REDCapbefore they can enter data

• usually by the researcher, clinician, group personnel

• Can enter data at any time

• Calculated fields

• Real-time data validation support (e.g. number min/max; dates)

• Supports branching logic

• Together this enforces data integrity

Australian Wound Registry

1) Where is the wound located?

• So far is similar to LimeSurvey, SurveyMonkey, Google Forms etc

• Supports Longitudinal Events, that is, one form can be repeated a fixed number of times to collect repeated measurements– e.g. Quality of Life forms

• carried out 10 times

• 1 time every 6 months over 5 years

UPGI Cancer Registry, PAH (School of Medicine, UQ)

User level or role based access to functions and data collection instruments (forms)

Supports sub setting data to specific groups

Cohort A

Cohort B

Reports (unidentifiable information)

Data Entry(have access to

relevant forms only)

Directly in REDCap, can query the data and generate simple on-demand reports

When more complex analyses are required, export the data to more sophisticated data analysis packages

DATA CAPTURE

• …

AVAILABILITY

• …

More features• Calendar• File Repository• Audit trail logging• Data Import• Data Comparison• Data Quality • REDCap mobile app• API access• Field comments

SECURITY

• …

ANALYSIS & REPORTS

• …

Example projects

Princess Alexandra Hospital