Biographies of the members of the Guideline Development Group for the WHO TB Ethics Guidelines Revision Meeting Disclaimer In 2010, WHO published its “Guidance on ethics of tuberculosis prevention, care and control”. The document provides guidance to health care workers, policy makers, patients and civil society on ethical issues related with counselling, consent, testing, health care workers’ rights and obligations, involuntary isolation and research in TB. While the document has become an important reference point for informed ethical policy-making and public health practice, new issues surrounding TB and ethics have emerged and/or gained more attention since its publication. Amongst others, these issues relate to paediatric TB, TB and migrants, TB and prisoners, rights to health and scientific progress in TB research, non-voluntary isolation, compassionate use for TB treatment, palliative care, latent TB infection, and systematic screening of people in whom TB is suspected. In order to reflect these new developments and challenges, the present meeting brings together experts from clinical and programmatic management of TB, public Health, and ethics. The goal is to arrive at an updated guidance that addresses emerging issues and offers operational advice for dealing with the issues identified. Contact persons for feedback from the public: Dr. Ernesto Jaramillo ([email protected]) Dr. Andreas Reis ([email protected]) 1. Tammam Aloudat Name Tammam Aloudat Affiliation Medecins Sans Frontieres (MSF) Switzerland Current position Deputy Medical Director Address Rue de Lausanne 78, 1201, Geneva, Switzerland Tel +41-79-251-8020 Fax Mail [email protected]Brief biography Tammam Aloudat Deputy Medical Director of MSF Switzerland. He is a Syrian medical doctor and public health expert. He has worked for the International Red Cross and Red Crescent Movement and for MSF in the field and headquarters directly supporting emergency medical assistance in multiple contexts.
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Biographies of the members of the Guideline Development ......Biographies of the members of the Guideline Development Group for the WHO TB Ethics Guidelines Revision Meeting Disclaimer
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Biographies of the members of the Guideline Development Group for the
WHO TB Ethics Guidelines Revision Meeting
Disclaimer
In 2010, WHO published its “Guidance on ethics of tuberculosis prevention, care and control”. The
document provides guidance to health care workers, policy makers, patients and civil society on
ethical issues related with counselling, consent, testing, health care workers’ rights and obligations,
involuntary isolation and research in TB. While the document has become an important reference
point for informed ethical policy-making and public health practice, new issues surrounding TB and
ethics have emerged and/or gained more attention since its publication. Amongst others, these
issues relate to paediatric TB, TB and migrants, TB and prisoners, rights to health and scientific
progress in TB research, non-voluntary isolation, compassionate use for TB treatment, palliative care,
latent TB infection, and systematic screening of people in whom TB is suspected.
In order to reflect these new developments and challenges, the present meeting brings together
experts from clinical and programmatic management of TB, public Health, and ethics. The goal is to
arrive at an updated guidance that addresses emerging issues and offers operational advice for
I am Tsira Chakhaia, Public Health Specialist with over 5 years of experience in public health, epidemiology, and clinical research mostly focused on Tuberculosis (TB). I hold higher education diploma from Tbilisi State Medical University, postgraduate diploma from Saint-Petersburg Postgraduate Medical Academy and Master's degree in Public Health from Braun School of Public Health & Community Medicine in the Hebrew University – Hadassah, Jerusalem, Israel. In 2010-2011 I worked as a public health specialist at the National Center for Tuberculosis and Lung Diseases (NCTBLD). I have experience in working for various public health projects related to TB including: coordinator of “Global Fund” project implemented by NCTBLD: “Improving Management of Resistant Tuberculosis in Georgia” (2011); Consultant of Treatment Adherence Monitoring of “Global Fund” Project implemented by NCTBLD: “Insuring Universal Access to Quality Treatment and Diagnosis of All forms of Tuberculosis Including Drug-resistant Tuberculosis in Georgia” (2011); Advocacy, Communication and Social Mobilization (ACSM) Advisor of USAID Georgia Tuberculosis Prevention Project (GTPP) implemented by University Research Co., LLC. Branch in Georgia (from 2011). I have extensive experience working with civil society organizations (CSOs) on different public health projects.
In addition, I am involved in different TB research projects. I was Principal Investigator of the studies: “Contact Investigation for Tuberculosis (TB) in Georgia, Tbilisi (Pilot Project) funded by the International Society for Infectious Diseases”. I am an author of a publication on TB contact investigation and co-author of several publications in international scientific journals. Currently I am clinical trial study coordinator.
Finally, I would like to mention that I have personal experience with TB disease, as I became a TB patient myself. During my treatment period I was trying to answer the questions I had as a Health Care Worker from the perspective of TB patient. After my personal experience, as the former TB patient, I have started to advocate OUR rights. For this purpose, I try to use every opportunity to share my experience to everybody who is involved in TB management, including decision makers, HCWs, representatives of CSOs and TB effected population. One of my biggest public speaking experiences was the speech about the challenges of TB treatment from the patient perspective at the 17th Wolfheze Workshops in Hague, the Netherlands.
In summary, currently I am public health specialist with personal TB experience and this experience helps me a lot while working on TB issues.
6. Stéphanie Dagron
Name Stéphanie Dagron
Affiliation Institute of Law, University of Zurich, Switzerland
Dr. Poonam Dhavan is the Migration Health Programme Coordinator. Dr. Dhavan is the thematic resource person for the MHD thematic area of Health Promotion and Assistance to Migrants. In this position, she will be responsible for providing technical advice on migration health matters; plan, oversee and evaluate H2 activities; perform liaison and advocacy functions and integrate migration health into other work areas at IOM. Prior to this position, Dr. Dhavan was the Sr. Public Health and Research Specialist at the Migration Health Support Unit of IOM in Manila. Dr. Dhavan is a medical doctor, epidemiologist and global health specialist, trained in India and the United States of America, with over fourteen years’ medical and public health work experience. Before joining IOM, she has worked at the World Health Organization, the University of Texas Health Science Centre and the Public Health Foundation of India.
8. Bernice Elger
Name Elger, Bernice
Affiliation Universities of Geneva and Basel
Current position Associate professor (Geneva), Head of the Institute for Biomedical Ethics
Mike Frick is a project officer in TAG’s TB/HIV Project, where he conducts advocacy to support TB research and promote community engagement in TB research. He coordinates the Community Research Advisors Group, the community advisory board to the U.S. CDC’s Tuberculosis Trials Consortium, and leads resource-tracking activities for TAG’s annual Report on Tuberculosis Research Funding Trends. Before joining TAG, Mike worked at Asia Catalyst, where he supported grassroots activists across China conducting human rights documentation and advocacy on the right to health. In 2009, Mike was a Fulbright Fellow at Kunming Medical College. He holds a BA in international studies
Dr Michel GASANA, MD, MPH (Health Policy and Organization of Health Services from the Institute of Tropical Medicine, Antwerp, Belgium) brings over 25 years of multidisciplinary experience in Tuberculosis, public health, policy development and health management. He is leading from 2003 to now the National Tuberculosis Programme of Rwanda. .Throughout his career, Dr Michel GASANA has developed a solid understanding of the health sector strengthening system, decentralizing TB management activities at the health facilities level and integrating communities in TB control at the grassroots level.
He has been involved in many operational researches, attended different International conferences around the world and has been guiding Rwanda’s national TB program, based on scientific evidence to become a model of best practice. He initiated and implemented different strategies including TB/HIV integration activities, MDR-TB management activities and the involvement of TB Community Health Workers in the fight against TB countrywide. Dr Michel GASANA is a TB consultant for the WHO/African Region. He is currently a member of the STAG TB (Strategic and Technical advisory Group for TB). He was the President of the Africa Union Against TB and Other Respiratory Disease (The Union 2011-2013).
Address Field Services and Evaluation Branch Division of Tuberculosis Elimination National Center for HIV, Hepatitis, STD and TB Prevention Centers for Disease Control and Prevention Address: 1600 Clifton Rd, Atlanta, GA 30333, United States
Dr. Sundari Mase joined CDC January, 2008 as the Medical Team Lead for the Field Services and Evaluation Branch in the Division of TB Elimination at the Centers for Disease Control and Prevention. Her area of expertise is MDR/XDR TB and she provides medical consultation and technical assistance for challenging MDR TB cases, contacts and investigations. Dr. Mase started her career in TB as a Medical Officer with the CA State TB Control Branch after completing medical school and residency at University of CA, San Francisco and working as an internist in private practice for 6 years. While at CA State she started up the state MDR TB consult service. She then became a regional MDR TB consultant for the Francis J. Curry International TB Center. She then served as Deputy Health Officer/TB Controller for Santa Clara County after which she was recruited to CDC. As Medical Team Lead, her duties also include serving as medical consultation liaison to the five CDC-funded Regional Training and Medical Consultation Centers, designing and implementing research studies, writing guidelines and policies, and supervising domestic field medical officer staff.
Education: 1989-1996, Faculty of General Medicine, Mongolian National Medical University, Ulaanbaatar, Mongolia (MNMU)
1999-2002, Postgraduate Study in Master of Medical Bacteriology, Mongolian National Medical University, Ulaanbaatar, Mongolia (MNMU)
2003-2005, Postgraduate Study in PhD, Health Science University, Ulaanbaatar, Mongolia (HSU) 2015, Assistant professor, Mongolian National University of Medical Science, Ulaanbaatar, Mongolia (MNUMS)
Professional career: 1996-2001, Bacteriologist, National Tuberculosis Center, NTC
2001-2006, Vice director, National center for Communicable Diseases, NCCD 2006-2007, TB officer, PCU, Mongolia of the Global fund fight AIDS, TB, Malaria, 2007-2008, Vice director, NCCD
2008-2010, Guest research, TB Reference Laboratory, Institute Medical Veterinary Science, Adelaide, South Australia
Since 2010, President, Mongolian TB Coalition
Publications: More than 100 publications in Mongolian, English, Russian including 10 books
15. Christoph Ostgathe
Name Univ. Prof. Dr. med. Christoph Ostgathe
Affiliation: Dep. Palliative Medicine, University Hopsital Erlangen
Dr. Lee Reichman is Professor of Medicine and Epidemiology at Rutgers New Jersey Medical School in Newark, NJ. After receiving his medical degree from New York University and his first year of residency at Bellevue Hospital in New York, he served as a Peace Corps physician in Bolivia. He then completed residency and a pulmonary fellowship at Harlem Hospital Center and earned a Masters in Public Health at Johns Hopkins University School of Hygiene and Public
Health. Dr. Reichman served as Director, Bureau of Tuberculosis Control and Assistant Commissioner of Health at the New York City Department of Health. Subsequently, he joined the faculty at the College of Medicine and Dentistry of New Jersey (now Rutgers), New Jersey Medical School as Director of the Pulmonary Division. He was the Founding Executive Director of the Global Tuberculosis Institute for 21 years and currently continues to share his extensive TB expertise as Senior Advisor to the Institute. Dr. Reichman has published over 200 articles, scientific reviews and book chapters about TB and has served on several national and international committees, advisory boards, professional organizations and societies including the U.S. Advisory Council for the Elimination of Tuberculosis, the International Union Against Tuberculosis and Lung Disease (The Union), the American Lung Association, American Thoracic Society, and the World Health Organization Stop TB Partnership (Founding Member of The Advocacy and Communication Working Group).
18. Maria Rodriguez
Name Maria de los M Rodriguez de Dominguez
Affiliation Programa de Control de la Tuberculosis - MOH Dominican Republic
Current possition MDR TB National Thecnical Unit coordinator
Pulmonologist started working for the National Tuberculosis Program (NTP) in 1992 at the local hospital Las Caobas. From 2004-2014 supported the NTP in the programatic management of MDR TB and currently I works as the coordinator of the Technical Unit of MDR in Dominican Republic. Dr. Rodriguez have also participated as a facilitator in several TB DR courses implemented by the Union in the region of The Americas. As international consultant, she is a member of f the rGLC of the Pan-American Health Organization (PAHO/WHO) and have been part of several evaluating missions of PMDT.
Diego joined the FHS in September 2015 as Assistant Professor specializing in bioethics and public health ethics. He completed his PhD, which focused on ethical and political issues in the prevention and treatment of tuberculosis (TB) in persons with severe and persistent mental illnesses, at the Dalla Lana School of Public Health, University of Toronto in 2013. Prior to his appointment at SFU, Diego was a Scientist at the Centre for Research on Inner City Health (CRICH) at St. Michael’s Hospital in Toronto where he worked with the Gates Foundation on various global health projects. Most recently, he was part of a project that analyzed the ethics and governance issues related to translational research as a Research Fellow at the Hannover Medical School in Hannover, Germany. Diego’s main research project currently focuses on ethical and political challenges related to new TB technologies.