CHDR Grant profile Identify current and proposed relevant cancer and cancer health disparities research grants. Discovery/Development BMaP elective strengths, identifying the most salient areas with potential for growth and development research addressing cancer health disparities Training NCI CURE supported trainees, with mechanism of support, nature of research, and current and future plans. Network Readiness Assessment (RAT) Level of community involvement in planning, developing, implementing and assessing CHD research. As well as intra- and inter-institutional collaborations; shared resources; and NCI CHEs. Biospecimens Science Identify types of biospecimens collected from racial/ethnic and underrepresented populations. Bioinformatics Identify current bioinformatics areas with cancer health disparities related research is currently being conducted, and areas in which it is needed. CT recruitment/retention Capacity Collect information by race/ethnicity about number of patients eligible for trials, enrolled in trials, and retained in trials for the last 3 years. As well as the top 5 cancers treated at each institution in the last 3 years. Emerging Technologies Identify ET areas in which cancer health disparities related research is currently being conducted, and areas where it is needed. The Minority Biospecimen/Biobanking - Geographic Management Program (BMaP) is supported by the Center to Reduce Cancer Health Disparities (CRCHD) of the National Cancer Institute (NCI) to create state-of-the-art networks/centers dedicated to ensuring the adequate and continuous supply of high-quality human biospecimens from multi-ethic communities for cancer research, using a Geographic Management Program (GMaP) approach. The ultimate goal of BMaP is to create unique, centralized, public resources for multi-ethnic biobanking/biospecimens. The primary mission of which is to ensure high-quality human biospecimens for cancer research that also takes into account the cultural sensitivities of diverse communities in specific regions. The BMaP Region 4 is composed of Arizona, Colorado, New Mexico, Oklahoma and Texas. Participating Institutions and Principal Investigators: Northern Arizona University (NAU): Laura Huenneke, Diane Sterns University of Arizona (UAZ): Dave Alberts, Kathryn Coe University of Colorado at Denver (UCD): Paula Espinoza University of Oklahoma Health Science Center (UOHSC): Janis Campbell New Mexico State University (NMSU): Mary O’Connell University of New Mexico (UNM): Barbara Damron University of Texas at El Paso (UTEP): Marian Manciu, Robert Kirken University of Texas Health Science Center at San Antonio (UTHSCSA): Amelie Ramirez, Alonso Gutierrez, Donald Dudley, Susan Naylor University of Texas MD Anderson Cancer Center (MDACC): Gabriel Lopez University of Texas Pan American (UTPA): Bimal Banik Background / Objectives Three methods, a group meeting and two survey tools were employed to identify regional resources. The NCI-developed Readiness Assessment Tool (RAT) collected data on cores; the “Face-to-Face” gathering provided for a SWOT analysis in cancer health disparities among Region 4 Stakeholders. The online Comprehensive Needs Assessment (CNA) survey identified institutional-level characteristics necessary to develop a regional implementation plan. A virtual center was created for networking through developing various internet-based protocols, the Region 4 GM aP/BMaP SharePoint Site and teleconferences. Information collected has generated suggestions to reduce cancer health disparities at multiple levels: administrative, training, bioinformatics/biospecimen banking, clinical trials, community translation and emerging technology and communication. •Readiness Assessment Tool (RAT) Survey • designed and carried out to provide a preliminary idea of the potential capacity to build infrastructure or a team science approach to conducting cancer health disparities research/training within and across the BMaP/GMaP core and elective areas for each region. •Comprehensive Needs Assessment (CNA) • used to generate information useful in identifying and leveraging regional strengths, which will assist in developing regional implementation plans and in defining a meaningful regional cancer health disparities research problem at the regional level. Core elements focused on research grant profile, discovery/development research, training profile, network readiness assessment, biospecimen science, bioinformatics, community translation recruitment/retention capacity, and emerging technologies. Strengths Identified for Implementation of Virtual Biorepository • 100% complete response for RAT and CNA surveys. • Primary diseases of interest include breast and colorectal cancers. • all members reported strong training programs • The Face-to-Face meeting strengthened existing partnerships and increased collaboration while providing attendees a regional overview of strengths and weaknesses, opportunities and threats. Challenges Identified for Implementation of Virtual Biorepository • Few of the Region 4 participants utilize biospecimens routinely in their research • There are no central institutional biospecimen records, so resource listings are all ad hoc. • Lack of desire and trust by some ethnic groups to contribute to biospecimen research. • Biospecimens collection between institutions may have problems due to lack of trust between target populations, and certain collaborating institutions • Some repositories fail to cooperate due to competition, territorial issues, lack of communication, lack of standardization (protocols, databases, storage practices etc.) Methods Results Future Directions Region 4 Researchers Attitudes and Perceptions to Participation in a National Virtual Biorepository Core elements and activities A short electronic survey will be piloted at NMSU and UTEP; 20 researchers working with or aiming to work with biospecimens will be identified at each institution. Participants will be surveyed for general receptiveness toward biobanks, presumed usefulness of biobanks, and perceived attitude and barriers in recruiting patients for biobanks. Based on the results of the pilot a full study to assess interests, attitudes, and barriers in the virtual repository concept among the ~250 funded investigators in the region will be conducted. The survey is a combination of open and closed ended questions; and will be an anonymous online password- protected survey designed using Survey Monkey. Acknowledgements This work was supported in part by the NM Agricultural Experiment Station, and grant support from NIH NCI CA 132383.
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CHDR Grant profile Identify current and proposed relevant cancer and
cancer health disparities research grants.
Discovery/Development BMaP elective strengths, identifying the most salient
areas with potential for growth and development research addressing cancer health disparities
Training NCI CURE supported trainees, with mechanism of
support, nature of research, and current and future plans.
Network Readiness Assessment (RAT) Level of community involvement in planning, developing,
implementing and assessing CHD research. As well as intra- and inter-institutional collaborations; shared resources; and NCI CHEs.
Biospecimens Science Identify types of biospecimens collected from
racial/ethnic and underrepresented populations.
Bioinformatics Identify current bioinformatics areas with cancer
health disparities related research is currently being conducted, and areas in which it is needed.
CT recruitment/retention Capacity Collect information by race/ethnicity about number of patients
eligible for trials, enrolled in trials, and retained in trials for the last 3 years. As well as the top 5 cancers treated at each institution in
the last 3 years.
Emerging Technologies Identify ET areas in which cancer health disparities related research is currently being conducted, and
areas where it is needed.
The Minority Biospecimen/Biobanking - Geographic Management Program (BMaP) is supported by the Center to Reduce Cancer Health Disparities (CRCHD) of the National Cancer Institute (NCI) to create state-of-the-art networks/centers dedicated to ensuring the adequate and continuous supply of high-quality human biospecimens from multi-ethic communities for cancer research, using a Geographic Management Program (GMaP) approach. The ultimate goal of BMaP is to create unique, centralized, public resources for multi-ethnic biobanking/biospecimens. The primary mission of which is to ensure high-quality human biospecimens for cancer research that also takes into account the cultural sensitivities of diverse communities in specific regions. The BMaP Region 4 is composed of Arizona, Colorado, New Mexico, Oklahoma and Texas. Participating Institutions and Principal Investigators: Northern Arizona University (NAU): Laura Huenneke, Diane Sterns University of Arizona (UAZ): Dave Alberts, Kathryn Coe University of Colorado at Denver (UCD): Paula Espinoza University of Oklahoma Health Science Center (UOHSC): Janis Campbell New Mexico State University (NMSU): Mary O’Connell University of New Mexico (UNM): Barbara Damron University of Texas at El Paso (UTEP): Marian Manciu, Robert Kirken University of Texas Health Science Center at San Antonio (UTHSCSA): Amelie Ramirez, Alonso Gutierrez, Donald Dudley, Susan Naylor University of Texas MD Anderson Cancer Center (MDACC): Gabriel Lopez University of Texas Pan American (UTPA): Bimal Banik
Background / Objectives Three methods, a group meeting and two survey tools were employed to identify regional resources. The NCI-developed Readiness Assessment Tool (RAT) collected data on cores; the “Face-to-Face” gathering provided for a SWOT analysis in cancer health disparities among Region 4 Stakeholders. The online Comprehensive Needs Assessment (CNA) survey identified institutional-level characteristics necessary to develop a regional implementation plan. A virtual center was created for networking through developing various internet-based protocols, the Region 4 GM aP/BMaP SharePoint Site and teleconferences. Information collected has generated suggestions to reduce cancer health disparities at multiple levels: administrative, training, bioinformatics/biospecimen banking, clinical trials, community translation and emerging technology and communication. •Readiness Assessment Tool (RAT) Survey
• designed and carried out to provide a preliminary idea of the potential capacity to build infrastructure or a team science approach to conducting cancer health disparities research/training within and across the BMaP/GMaP core and elective areas for each region.
•Comprehensive Needs Assessment (CNA) • used to generate information useful in identifying and leveraging regional strengths, which will
assist in developing regional implementation plans and in defining a meaningful regional cancer health disparities research problem at the regional level. Core elements focused on research grant profile, discovery/development research, training profile, network readiness assessment, biospecimen science, bioinformatics, community translation recruitment/retention capacity, and emerging technologies.
Strengths Identified for Implementation of Virtual Biorepository • 100% complete response for RAT and CNA surveys. • Primary diseases of interest include breast and colorectal cancers. • all members reported strong training programs • The Face-to-Face meeting strengthened existing partnerships and increased collaboration
while providing attendees a regional overview of strengths and weaknesses, opportunities and threats.
Challenges Identified for Implementation of Virtual Biorepository • Few of the Region 4 participants utilize biospecimens routinely in their research • There are no central institutional biospecimen records, so resource listings are all ad hoc. • Lack of desire and trust by some ethnic groups to contribute to biospecimen research. • Biospecimens collection between institutions may have problems due to lack of trust
between target populations, and certain collaborating institutions • Some repositories fail to cooperate due to competition, territorial issues, lack of
communication, lack of standardization (protocols, databases, storage practices etc.)
Methods Results
Future Directions Region 4 Researchers Attitudes and Perceptions to Participation in a National Virtual Biorepository
Core elements and activities
A short electronic survey will be piloted at NMSU and UTEP; 20 researchers working with or aiming to work with biospecimens will be identified at each institution. Participants will be surveyed for general receptiveness toward biobanks, presumed usefulness of biobanks, and perceived attitude and barriers in recruiting patients for biobanks. Based on the results of the pilot a full study to assess interests, attitudes, and barriers in the virtual repository concept among the ~250 funded investigators in the region will be conducted. The survey is a combination of open and closed ended questions; and will be an anonymous online password-protected survey designed using Survey Monkey.
Acknowledgements This work was supported in part by the NM Agricultural Experiment Station, and grant support from NIH NCI CA 132383.
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