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Transcultural Psychiatry
DOI: 10.1177/136346159603300304 1996; 33; 319 TRANSCULT
PSYCHIATRY
Monica B. Lfvander and Anna-Karin Furhoff Backache in Greek
Immigrants to Sweden: A Cultural Interpretative Approach
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Backache in Greek Immigrants to Sweden:A Cultural Interpretative
Approach
MONICA B. LFVANDER & ANNA-KARIN FURHOFF
Scandinavian medical methods for treating musculoskeletalpain
have often proved unsuccessful with immigrant patients.This study
examined the perception and meanings of backpain among Greek
immigrants to Sweden to identify possiblecauses of this poor
outcome. Fifteen Greek immigrant patientson long-term sick-leave
because of backache and 21 strategi-cally selected members of a
Greek cultural association inStockholm, Sweden, not on sick-leave
received semi-structuredinterviews about backache. In addition to a
content analysis, acultural approach was used in the interpretation
of the mate-rial. On the whole, pain was considered as
somethingdangerous, inevitably leading to permanent disability if
the suf-ferer should deliberately aggravate the pain. Persistent
pain wasalso linked to the tendency to worry and obsess in a way
thatwould eventually make one ill. There was little confidence
indoctors examinations and physiotherapy. The study providesa
possible explanation as to why Scandinavian medical treat-ment of
backache is less successful in this immigrant group.
INTRODUCTION
In Sweden, as in most industrialized nations, there is a high
prevalenceof work disability due to musculoskeletal pain. This
prevalence appearsto be even higher among certain immigrant groups
(Donovan,dEspaignet, Merton &von Ommeren, 1992; Sundquist,
1994). Unsuc-cessful rehabilitation programmes for immigrants have
been reportedfrom many countries (Grunfeld & Noreik, 1991;
Holtedahl, 1991; Keel& Calanchini, 1989; Lee, Chow, Lieh-Mak
& Chan, 1989; Parker, 1977).The poor outcome of these
programmes has been attributed to the
prolonged duration of pain prior to treatment and/or to
psychosocialcauses including migrant status and ongoing
litigation.
Back pain is among the most common forms of musculoskeletalpain
and is often frustrating and difficult to manage for patients
andphysicians alike. Many patients are partially incapacitated or
unable to
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work. In societies, like Sweden, where work, self-reliance, will
powerand personal achievement are central values, an inability to
workbecause of pain, especially of undocumented origin, evokes
mistrustand anger (Spitzer, Le Blanc & Dupuis, 1987).
Cultural background influences how people perceive and respondto
pain; how pain is communicated; where and when it is translatedfrom
private experience to public expression; and, help-seeking(Helman,
1990a; Wolff & Langley, 1977; Zborowski,1952; Zola,
1966).Cultural and individual factors contribute to a persons
interpretationof the significance of pain, whether it is normal and
thus accepted as apart of life, or abnormal and hence unacceptable
(Helman,1990a). Thecause of pain is also an object of evaluation.
Is it caused by natural orsupernatural forces, by events in the
social world, or is it due to theindividuals own actions? Is it
potentially under ones own control?(Helman, 1990b).
In a previous study, it was noted that, compared to Swedish
patients,Greek patients kept still or moved very slowly when
suffering from pain(Lofvander & Papastavrou, 1990; 1993).
Physiotherapy or psychosocialcounselling was of no use in the
rehabilitation efforts. The pain behav-iour was, in most cases,
distinct from depressive symptomatology andalso from the concept
of&dquo;nevra&dquo; pain (L6fvander &
Papastavrou,1990,1993). Greek patients did not seem to adapt to the
limitations of pain,and refused to participate in the abundant
opportunities offered inSweden for job retraining, and school
programmes or in restructuringthe work place (L6fvander &
Papastavrou, 1990,1993).
Greek immigrants to Sweden form a relatively homogenous
group.They arrived in the 60s and 70s to earn a living. The vast
majority grewup in poorly developed rural areas in the northern and
western partsof Greece and few completed their basic schooling. In
Sweden, theylive in the larger cities where they work mostly in the
service sector,notably in cleaning offices. Unemployment among
immigrants, includ-ing the Greeks, was almost non-existent ( 1 %)
at the time of the study.The annual income was generally good and
so was housing andopportunities for special educational programmes
for immigrants.Children live in their parents home until the age of
30 and, in manycases, even after they get married. When they leave
home, they settle inthe vicinity. Even amongst the second
generation, the first language is
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321
usually Greek. The connections with Greece are close and most of
theGreeks in Sweden go &dquo;home&dquo; every summer for
holidays.
The present research concerns the possibility that discrepancies
inthe meaning and treatment of backache between the Swedish
medicaltradition and the conceptions of backache among Greek
immigrantsin Stockholm, Sweden, also contribute to poor treatment
outcome andchronicity. The first aim of this study was to find out
if there were anypotential links between the way Greek patients
think about their painand their clinically observed pain behaviour.
Secondly, we wanted toinvestigate prevailing attitudes among Greek
non-patients. Backachewas chosen as the focus for the study since
it is the most common paincomplaint in this group.
METHOD
The study involved two series of subjects, patients and
controls. Dur-ing a six week period, we asked all Greek immigrant
patients at thehealth centre, who were on sick-leave or had a
disability pensionbecause of back pain, for permission to be
interviewed. Patients withserious concurrent diseases were
excluded. To ascertain prevailing atti-tudes among Greek immigrants
not on sick-leave, contact wasestablished with a Greek cultural
association in Stockholm. Subjectswere selected to represent
diversity in age (16-65 years), sex, educa-tion, occupation and
length of time in Sweden.
Most interviews took place in the homes of the interviewees
andwere conducted in Swedish; a professional Greek interpreter was
avail-able for those who so desired. A set of open-ended questions
devisedfor primary care research, was used to explore informants
concepts ofpain (Helman, 1990c). The interview also collected
sociodemographicbackground information.
The study was approved by the local ethical committee at
SachsChildrens Hospital, Stockholm. All interviewees gave their
informedconsent to participate in the study. All interviews were
conducted bythe same researcher (ML). The average interview lasted
60-90 minutes.Each interview was tape-recorded and transcribed for
later analysis.Answers to questions were categorized and
interpreted in relation tothe social and cultural context of the
respondents, with emphasis onthe internal logic and coherence of
accounts of backache (Kvale,1991 ).
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RESULTS
All eligible patients consented to take part in the study.
Amongst thecontrols, two persons did not want to be interviewed. In
total, 15
patients and 21 controls were interviewed (Table 1). Nine of
theinformants were less than 30 years old. It was not possible to
find anyfemale controls older than 50 years, as all eligible women
of that agewere either on sick-leave or had a disability
pension.
Table 1. General characteristics of the participants in the
study
All patients and 17/21 controls were married. Five of the
controlswere born in Sweden or had arrived before the age of seven.
These arereferred to as &dquo;second generation: Almost all
patients had worked infactories in the past and were now working as
cleaners. The controlswere younger than the patients, better
educated and had more skilledjobs (Table 1). Many of the controls
worked at second jobs as cleaners,a business which is profitable in
Stockholm. Although some had lim-ited knowledge of the language,
all but seven participants preferred tospeak Swedish.
Despite differences in sex, age, education and duration of
back-pain, pain concepts converged on a specific pattern with no
consistent
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323
differences in the meaning of the symptom between patients and
con-trols. There was a tendency for younger informants to rely more
on activemeasures like physiotherapy and to relate the cause of
pain to &dquo;stress.&dquo;Two case histories illustrate
concepts common to most interviews:
Case 1. Patient
A.K., a 46 year old man, was born in a village in northern
Greece.At the age of 21, he came to Sweden to earn his living. His
painbegan after four years of working as a cleaner. As a result, he
trainedas a bus driver and, after some years, as a driver of
undergroundtrains. The back pain recurred some years later and has
continuedever since. He doesnt know where the pain comes from:
&dquo;I cantunderstand why it comes...it might be sciatica,
maybe my back isworn out and the nerves come between the bones and
cut them. Idont know. I havent worked so bloody hard, but I think
my back istired. Or something has gone wrong. The pain keeps
comingback- that means something is really wrong with me. Its just
thatthe doctors havent found out what it is yet. He gets relief
from painby resting and from warmth and massage. He is afraid of
movingor even doing a little housework, because then the pain
startsimmediately.&dquo; He feels that working when in pain is
very dangerousfor the body. As for the future, he thinks he will
deteriorate andbecome paralyzed or perhaps psychiatrically ill, as
well. He just can-not imagine being able to go back to work in the
future. &dquo;Its bad forthe family that I cant help my wife
and our economy is not as goodas it used to be...but thats the way
it is:
Case 2. Control
S.L., a 40 year old man, grew up in a village in the northwest
ofGreece. He spent six years at school. After school, he trained to
bean electrician. Due to lack of employment in Greece, he moved
toSweden at the age of 27. In Sweden, he first worked as a cleaner
fornine years. After that, he trained as a chef and is presently
workingin a restaurant. He lives in a flat with his wife and three
children.Now and then he has pain, mostly in the upper part of his
back andin one or both legs. He has consulted the GP several times
but hebelieves the examinations were too brief, and he is
disappointedsince he was not given any explanation for his pain.
The pain usu-ally disappears quickly, so he seldom has to take sick
leave. Heconsiders the cause of the pain to be only coincidental or
due tostress at work. He avoids thinking about pain because if he
starts tothink, this leads to worries which would make him ill.
However, he
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is concerned about his wife, aged 29, who has more or less
constantpain in her back as well as in other parts of her body.
This beganwhen she was pregnant with her first child. The doctors
told herthe pain would disappear when the baby was born but,
instead, itgot worse and she now has persistent pain. Both S.L. and
his wifeare convinced that her pain will never end and fear that
she mightend up like a friend of theirs who also had constant back
pain. Thedoctors told this friend that nothing was wrong with her
back butnow she goes around on crutches. His wife gets no relief
from medi-cation or physiotherapy. He thinks his wifes pain could
be causedby her work load as a cleaner combined with the cold
weather. Thecouple are not worried about their economy and both
want to workhard for the sake of their children. However, his wife
doesnt con-sider it possible that she will ever be able to work
outside the homeagain.
CORE CONTENT OF THE INTERVIEWS
What has happened?-Symptom Labelling. All interviewees,
exceptone male control, had experienced pain. The main difference
betweenthe patients and the controls was in how often they
experienced pain.All the patients had pain almost all the time,
often varying accordingto the weather. Two were free of pain during
the night-time. Nearlytwo-thirds of the controls (13/21) had
occasional pain. Four of thesewere on 50% sick-leave or had been
certified sick for a short period(
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325
ache was thus considered a serious and abnormal symptom, a
symp-tom one must pay attention to and do something about. The
persistent,but not necessarily intense, backache was considered a
&dquo;sick&dquo; pain (e.g.,&dquo;As soon as I move,
start walking, there is pain. Im afraid!&dquo;) whileoccasional
pain was &dquo;normal (&dquo;It is normal to have a little
pain whileyou work.&dquo;).
Why does it hurt?-The meaning of the symptom For most
inform-ants (30/36), continuing pain was considered to be part of
an ongoingdestructive process. Frequently occurring expressions
were &dquo;the bonesin the spine are gnawing at each other;
&dquo;the bones are melting down&dquo;or &dquo;(what)
has tilted and cant be corrected&dquo; ( 19/36). Other
commonremarks were: &dquo;the back-bones are constantly
growing&dquo; or &dquo;the pain isspreading
around&dquo; (I1/36), or simply, &dquo;there is something
dangerousgoing on&dquo; (2/36). The only exceptions to this
pattern were two inter-viewees who had not thought much about their
own pain, but had vividideas about their relatives pain, and two
male controls who consid-ered the cause to be muscle strain.
Why have you got this pain?-Illness causation. The supposed
under-lying cause of pain was work of all kinds, but especially
cleaning (30/36). Cleaning was worse than work in factories, for
example, becausecleaning offices involves a lot of bending to pick
up papers or to emptythe waste paper baskets. When speaking of
this, a female patient, 45years old, made this association:
&dquo;Many of the villagers back home (inGreece) have backache,
because they bend their backs in the tobaccofields.&dquo;
Some interviewees (10/36), most of them women, believed that
per-sonal factors, like worries about the future and their
children, couldalso cause pain. Five of them also mentioned that
the cleaning compa-nies had increased the cleaners workload. A
total of five, especiallythose who did not think they had worked
hard, believed that coldweather could also have contributed to
their backache. Three of theolder interviewees had the same
thoughts about their childrens back-ache. The two men mentioned
above, who thought that they hadmuscle strain, considered their
back pain to be their own fault as theyhad not been careful
enough.
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326
y now?-Help-seeking pattern. A common opinion (29/36) wasthat
one could wait a week or two to see if the pain went away. If
itdidnt, then one should see a doctor. The longer one waited, the
worsethe pain would get and it would spread to, and ruin, the arms
and legs.Interviewees frequently considered the doctors
explanations insuffi-cient and, especially among the controls,
distrusted doctorsexplanation entirely (9/21). They suspected that
the doctors did notcarry out extensive enough examinations to find
out what was wrong,or perhaps they did not want to tell the
truth.
What will happen to you in thefuture?- The course of the
illness. Themost common thought was that the pain would probably
spread fromthe back to all over the body (24/36) and many patients
(9115), as wellas many of the young controls (6/21 ), were
convinced that their activelife would soon be over. A commonly
occurring thought was that theywould be confined to a wheelchair in
five to ten years time. Three ofthe middle-aged interviewees
thought that they would be dead fromthe pain in a year or two.
Pain associated feelings were fear, worry and sadness about the
lossof function. Thoughts and worries about the pain were further
con-sidered to make a person &dquo;mad&dquo; or
&dquo;melancholic.&dquo; Nine informantswere sure
melancholy would make future life unbearable, and threeyoung
controls stated that it was best never to think about the
pain,because if one did, it would certainly make that person crazy.
Notably,the informants usually explicitly separated feelings about
pain fromsocial or family conflicts.
Only eleven informants, five of whom were teenagers or in
theirtwenties, thought that they would be able to work for the next
ten years.None of the patients or the controls, irrespective of age
or education,thought that they would be able to work until
retirement at 65. Thereason given was that if one had pain, it was
almost always necessaryto stop working before that age, otherwise
the pain certainly wouldruin the rest of ones life. One middle aged
man among the controlsdeeply regretted not having given up work
years ago.
What are the likely effects on your fiamily and economy? All
inform-ants stated that their thoughts and fears about pain were
shared by allthe members of the family and, consequently, the
family as a unit wouldsuffer. Only five informants worried about
their financial situation. All
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327
informants pointed out that health is more important than
money.Many of the older participants also stressed the fact that
they hadalways been poor. One-third of informants, the women in
particular,expressed great faith in their children and emphasized
the importanceof keeping the family together. All second generation
interviewees werealso very eager to help their parents.
What can be done to cure or to relieve the pa in?-Strategies for
treat-ing the pain. Rest and massage were clearly stated as the
treatments ofchoice (28/36); a few informants (8/36) believed that
activity, e.g.,walks or active exercises, could relieve the pain.
There was minimalconfidence in medication. Only five of the
controls and two among thepatients relied on analgesics. Nor was
there much confidence in physi-otherapy or in other pain relieving
therapies such as transcutaneousnerve stimulation or acupuncture
due to frequent adverse effects suchas dizziness, nausea or
increased pain (14/36). A few patients evenstated that everything
made the pain worse. One man and one womanprayed for help each
night.
DISCUSSION
Since the early 1980s, an extremely high prevalence of long-term
sick-leave and disability pension among young Greek immigrants in
Swedenhas been noted. According to recent official statistics, only
a few abovethe age of fifty are not on long-term sick-leave
(Sundquist, 1994).
The striking finding in this study was the great consistency of
thenotions concerning backache among all interviewees, both
patientsand controls, regardless of differences in age, sex,
education or occu-pation and independent of whether they were on
sick-leave or not.Continuing pain was regarded as being due to a
deteriorating, spread-ing or growing process in the back with
disastrous consequences forthe sufferers future health and
function. This process was almost
unanimously thought to be worsened by any physical activity
increas-ing pain. Persistent pain was also linked to thoughts and
worries aboutillness, as well as, mourning over loss of function.
These thoughts wereconsidered to be able to obsess a person and
eventually make him ill.This somatopsychic process resembles the
concern among Greekimmigrants in Montreal that worry and melancholy
will lead to mad-ness, as reported by Lock (1990) and Dunk
(1989).
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Migration from one culture to another is a stressful experience.
InNorth America, immigrants from poor countries not uncommonly
livedisrupted family lives and feel nostalgia, hopelessness or
helplessnessdue to unemployment and poor finances, discrimination
and poorhousing (Dunk, 1989; Dunkas &Nikelly, 1972; Lock,
1990). In Sweden,the socioeconomic situation for immigrants is
considerably better. Allthe same, the stress of migration and
social difficulties could be a causeof the Greek immigrants
illness-behaviour.
Somatization is the presentation of unpleasant emotional states
ina language of distress of mainly physical symptoms (Kirmayer,
1989).In the USA, somatization is reported more commonly among
blue-collar workers (Kleinman & Good, 1985). However, in this
and ourprevious studies concerning Greek immigrants, we had no
impressionthat Greek immigrants backaches should be viewed as a
somatizationdisorder. Anxiety caused by somatic illness was often
observed as aseparate phenomenon (L6fvander & Papastavrou,
1990, 1993). Asrelated above, there may be gender differences,
since worries over chil-dren were sometimes reported as an
additional cause of backache. Suchdescriptions resemble the kind of
backache associated with &dquo;nevrca&dquo;(Dunk, 1989;
Lock, 1990).
The phenomenon of disabling backache in immigrants from
south-ern Europe is known as the &dquo;Mediterranean
back&dquo; (Keel & Calanchini,1989; Parker, 1977;
Rubenstein, 1982). This syndrome has mostly beenattributed to
socio-economic factors or to litigation. However, wefound no
indication in the present material that malingering or
com-pensation claims were the main etiology. Instead, the great
consistencyin the conception of pain among the Greek immigrants
interviewed inthe present study points to the possibility that
cultural factors play animportant role in the development of
disabling backache. Greek fam-ily structure may contribute to the
consistency and intensity of culturalillness beliefs. Strong family
bonds are a cornerstone of Greek life allover the world (Bottomley,
1976; du Boulay,1974b). In this family sys-tem, informal
consultations tend to be extensive (Bottomley, 1976). Inthis way,
ideas about illnesses are preserved. The tight family bondsalso may
facilitate the maintenance of sick-roles (Bottomley, 1976). Aswell,
the family system ensures the economic survival of all membersof
the family which could explain the lack of worry about their
finan-cial future shown by both patients and controls in the
study.
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In ancient Greece, pathology was considered to be due to an
imbal-ance of mind and body according to the humoral tradition.
Incontemporary rural Greece, men (especially young, unmarried
men)(ta pallikaria), should ideally be tall, slender, vigorous,
brave and with-out any physical deformities. A woman should never
be ill. Health, i.e.freedom from ill-health, is regarded as
extremely important (Campbell,1964). Given the emphasis on health
as a perfect balance, and the ruralarchetype of the faultless
physical body, even small indications of pos-sible disturbances,
such as pain and the side-effects of physiotherapy,may be regarded
as a threat.
To blame work as the source of pain is an example of the
externali-zation of the etiology of an illness, which assigns
causality to forces orindividuals outside oneself (Clark, 1989).
There are parallels to thebelief in the evil eye (Gr. Matiasma)
(Tripp-Reimer, 1983). Interest-ingly, there was a small shift
towards more internal etiologic agents inthe younger interviewees
notions of the cause of back pain illustratedby their mention of
&dquo;stress: However small, this shift in notions
mightdemonstrate that culturally patterned ideas are subjected to
constanttransformations (du Boulay,1974a).
In Sweden, backache, especially long-term backache, is not
consid-ered a serious symptom and is seldom the cause for further
examinationor sickness certification (Spitzer, Le Blanc &
Dupuis, 1987). The treat-ment of choice for backache in Sweden is
physiotherapy where thepatients active participation in physical
exercises is often required, atherapy that may be painful in the
beginning. These conceptions standin contrast to the Greek
interviewees ideas of the meaning of back-ache, their distrust in
medications and physiotherapy and perhaps totheir view of doctors
as an Asclepian or magic healer of disorders(Marketos,
Diamandopoulos, Bartsocas, Poulakou-Rebelakou
&Koutras,1996).
Similar disparities between Western medical practice and
immi-grant patients beliefs could be part of the explanation of
thenon-response to treatment for other immigrant groups as well: a
dis-crepancy that may be maintained by strong reliance on the
family forwelfare and support (Grunfeld & Noreik,1991;
Holtedahl, 1991; Keel& Calanchini, 1989; Kinebanian &
Stomph, 1992; Lee et al, 1989;Lbfvander & Papastavrou, 1993;
Parker, 1977).
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Although exploratory, this study has important limitations. The
waypeople present their symptoms varies not only with the
individual butalso with social and cultural factors including the
interview context. Inthis study, both patients and controls knew
the profession of the inter-viewer. However, the shift in location,
from the surgery to theinterviewees home, resulted in a shift in
the balance of power in favourof the informant. It also facilitated
the necessary shift of the interview-ers perspective, from a doctor
to that of an observer and investigator.
Due to a sometimes limited knowledge of Swedish, the
answersgiven by the informants could not always be elaborated.
However,descriptions of symptoms and illnesses were generally
explicit and col-ourful. When an interpreter was used, the content
of the accounts ofpain did not differ from that in the other
interviews, which suggeststhat the language barrier did not
constrain the stories to any consider-able extent.
Although our sample was small, and we cannot exclude the
possi-bility that there may be other concepts regarding pain in
this group ofimmigrants, the uniformity of response suggests our
results are repre-sentative. While some Swedish patients or those
from other immigrantgroups may have ideas similar to those
presented here, there is noindication, either in the literature or
in our own experience as clini-cians, that such concepts are as
consistent or as disabling as thosereported by our informants.
In conclusion, the cause of medically unexplained disabling
back-ache in working-class immigrants with poor education need not
besomaticised psychosocial distress. On the contrary, these
intervieweesexpressed marked anxiety about the meaning of backache
and this anxi-ety could well be the reason that their pain
behaviour involvedrestriction of activity (Kirmayer, 1989).
Considering the disabling courseof benign pain in some cultural
groups, these considerations seem to beas important as any
treatment of more well-defined disease entities.Whether greater
clinical attention to the dimensions of symptom mean-
ing and illness behaviour discussed in the article will also
lead toimproved treatment compliance and better outcomes in the
case of thetreatment of backache among Greek immigrants, remains to
be investi-gated.
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