MAY 2016 6370 LBJ Freeway Suite 170 Dallas, TX 75240 (972) 620-7600 www.daps.us speaker bio 2 march refreshment thank you 2 march speaker recap: dr pavasia 3 appreciation plaques 4 executive director’s message 5 donations to non-event 5 memorials, honors, donations 6 group schedules 7 calendar of events 8 INSIDE MAY general membership meeting speaker: Karl Robb topic: A Soft Voice in a Noisy World Monday, May 9, 2016 1:00 p.m. As always, light refreshments will be available. We look forward to seeing you! University Park United Methodist Church 4024 Caruth Blvd (at Preston) Dallas, TX 75225 See page 2 for speaker bio. April’s Parkinson’s Awareness Luncheon Spotlights Services Offered by DAPS Picture a room full of people who have just finished eating a delicious Italian meal—thanks to Sean Duncan and Medtronic—all joining in with several seated dances and participating in exercises designed to move with intent. Those present were reminded of the importance of speech therapy in maintaining one’s voice and the ability to communicate clearly. There was also a very informative presentation about the DAPS Partners-in-Care groups and the support that is available for the caregivers. Last, but not least, was an inspiring video of Parkinsonians participating in Title Boxing’s non-contact boxing program that is available to DAPS members at a reduced cost. Not all DAPS members participate in the services and classes that DAPS has to offer and the leaders who presented were only representative of a few of those who work with DAPS. Seeing and hearing all that the talented group of class leaders do in speech therapy, exercise classes, Partners-in-Care support groups, Dance for PD ® , and non-contact boxing was quite impressive— especially to those who have never been to a class! Misty Owens leading a dance. From left to right are 4 of the 6 leaders who presented: Barb Mack, exercise instructor; Heidi Weimer, boxing; Lue Taff, Partners-in-Care; Michelle Currier, boxing. Presenters not pictured are Misty Owens (dance) and Pat Warner (speech). Luncheon continues on page 3
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MAY 2016
6370 LBJ Freeway
Suite 170
Dallas, TX 75240
(972) 620-7600
www.daps.us
speaker bio 2
march refreshment thank you 2
march speaker recap: dr pavasia 3
appreciation plaques 4
executive director’s message 5
donations to non-event 5
memorials, honors, donations 6
group schedules 7
calendar of events 8
INSIDE
MAY
general
membership
meeting
speaker:
Karl Robb
topic:
A Soft Voice in a
Noisy World
Monday, May 9, 2016
1:00 p.m.
As always, light refreshments
will be available.
We look forward to seeing you!
University Park
United Methodist Church
4024 Caruth Blvd (at Preston)
Dallas, TX 75225
See page 2 for speaker bio.
April’s Parkinson’s Awareness Luncheon
Spotlights Services Offered by DAPS
Picture a room full of people who
have just finished eating a delicious
Italian meal—thanks to Sean Duncan
and Medtronic—all joining in with
several seated dances and
participating in exercises designed
to move with intent. Those present
were reminded of the importance of
speech therapy in maintaining one’s
voice and the ability to communicate
clearly. There was also a very
informative presentation about the
DAPS Partners-in-Care groups and the support that is available for the
caregivers. Last, but not least, was an inspiring video of Parkinsonians
participating in Title Boxing’s non-contact boxing program that is available to
DAPS members at a reduced cost.
Not all DAPS members participate in the services and classes that DAPS has
to offer and the leaders who presented were only representative of a few of
those who work with DAPS. Seeing and hearing all that the talented group of
class leaders do in speech therapy, exercise classes, Partners-in-Care support
groups, Dance for PD®, and non-contact boxing was quite impressive—
especially to those who have never been to a class!
pathology in the brain can be found in the colon,” stated
Pavasia. Tests are being developed now for diagnosis
in the future using colon biopsy and salivary gland biopsy.
There are also new options coming soon that offer better
and more direct delivery of medication. These include
methods of administering medication through inhalation,
injection, and the PEG tube. In addition, medications are
being developed in extended release form. A transdermal
patch is in Phase II trial which will deliver levodopa directly
through the skin.
For “sudden off” symptoms, there is a rescue medication
called apomorphine that was approved by the FDA in 2004
for the ultrafast reversal of off time. It works within 10
minutes and has effects lasting more than 30 minutes.
Currently, it’s in Phase III research trials.
Other drugs approved by the FDA and undergoing
additional studies include:
Mirabergron – for the treatment of an overactive
bladder
Droxydopa – for the treatment of orthostatic
hypotension (dizzy spells when suddenly
standing up)
Pimavanserin – for the treatment of hallucinations
and psychosis in PD without worsening the effects
of motor symptoms
There are many good reasons for treating the non-motor
symptoms of PD. For example, excessive drooling is
caused by saliva pooling at the front of the mouth because
the patient isn’t swallowing automatically. This may lead to
aspiration (choking). Impulse control problems are another
form of non-motor symptoms of PD and are important to
treat because they may lead to over-shopping, gambling,
and overeating. Constipation is a non-motor symptom of
PD that prevents absorption of medications and nutrients in
food, and is therefore important to treat.
One of the best treatments for PD is physical therapy and exercise. “It delays the progression of the disease,” said Pavasia. “Build yourself up slowly until you can exercise for
one hour a day. The progression [of the disease] will be much slower and your meds will be much more effective,” he stated.
Deep Brain Stimulation (DBS) has been thought of as a last
resort in the treatment of PD but “that is not how it should be,” stated Pavasia. “Now the FDA is revising their criteria,” he said. “If you get it in the earlier stage of PD, the outcome is often quite a bit better. Yes, there are complications.
Yes, DBS makes motor symptoms better but it can also make cognitive symptoms worse.” A neurologist can test to see whether DBS is appropriate in the earlier stages of PD. New surgical options were released in 2015 that allow a Bluetooth wireless connection to the DBS inputs with
advanced security. “An iPod or iPad can be used to change the settings,” he stated. By the expression on Pavasia’s face, you could tell that he is very excited about this new development.
Other up and coming technologies include the Kinesia ONE
and the Kinesia 360. “You wear the Kinesia ONE device on
your finger and it generates a report that tells me exactly
what I need to work on in the DBS settings or the
medications,” Pavasia explained. The Kinesia 360 is a small
wrist bracelet that you wear all the time. It generates
a report containing objective measurements of tremor,
dyskinesia, and mobility. It connects to an app on an
Android tablet where users input medication and diary
information. Studies are showing a 51% improvement in
users’ rating of quality of life. “That is huge,” stated Pavasia.
Although much work is yet to be done in the prevention,
detection, and treatment of PD, we know that the National
Institutes of Health is investing in research that improves
the lives of people with Parkinson’s. DAPS would like to
thank Dr. Pavasia for taking the time to come out to our
monthly membership meeting for this presentation.
Members are encouraged to ask their movement disorders
specialist about these new and exciting treatment options.
Dr. Pavasia can be found online at
www.neurologydallas.com.
Continued from previous page
During Parkinson’s Awareness Month, DAPS was proud to
present plaques of appreciation at two locations where
No-Charge classes for local Parkinsonians are offered.
On the left, Mike Miles presents a plaque at Lakeside
Baptist Church in Garland. On the right, Larry Davis, pastor
of South Garland Baptist Church, passes their plaque to
Charlene Noe, the DAPS facilitator there, in recognition of
disclaimer: The contents or opinions expressed in this Newsletter are those of the individual writers or presenters and do not constitute an endorsement or approval by DAPS staff. Please consult your personal physician regarding your individual medical problems.
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