Anthony Cahill, Ph.D. Heidi Fredine, MPH Barbara Ibanez, MA Luciana Zilberman, MA Selected Findings From The 2010 Survey of Independent Living For New.

Anthony Cahill, Ph.D.

Heidi Fredine, MPH

Barbara Ibanez, MA

Luciana Zilberman, MA

Selected Findings From The 2010 Survey of Independent Living For New Mexicans

With Disabilities

This project, including project design, protocols and instruments used, was reviewed by the Human Research Review Committee (HRRC) of the Health Sciences Center of the University of New Mexico. The HRRC determined that the research is exempt from the requirements of Department of Health and Human Services (DHHS) regulations for the protection of human subjects as defined in 45CFR46.101(b) under category 2. The HRRC application number is 10-250.

Institutional Review Board

Funding for this study was provided by the New Mexico Human Services Department through the Behavioral Health Services Division.

Funding

Disclaimer

The opinions in this presentation are those of the authors, and do not represent the official positions of the Center for Development and Disability of the University of New Mexico, the New Mexico Human Services Department or the Behavioral Health Services Division.

Development of the Survey

Inter-agency working group: DDSD, HSD, Optum Health NM, DVR, ALTSD

Review of the literature

Multiple iterations of instrument

Institutional Review Board approval

On-line, hard copy and electronic versions of the instrument in English and Spanish were disseminated statewide through snowball sampling

Web site with instructions for facilitators in one-on-one and group settings

Overall ‘N”: 739

Domains Influencing Independent Living

Findings:

Comparing Survey

Respondents to

All New Mexicans

On Key Characteristics

The survey used snowball, not random, sampling: overall “N” of 739.

Thus, the results cannot be statistically generalized to the unknown population of New Mexicans with disabilities.

Survey respondents are generally representative of the population of the state on key demographic characteristics including gender, race and Hispanic identity.

This means the results are not from a skewed distribution unlike the state as a whole.

48.8%

51.2%

48.5%

50.5%

47.0%

47.5%

48.0%

48.5%

49.0%

49.5%

50.0%

50.5%

51.0%

51.5%

Male Female

Survey

New Mexico

Gender

N = 694

Figures for New Mexico are taken from the 2009 American Community Survey, Census Bureau, United States Department of Commerce

Hispanic Identity

43.7%

56.3%

45.6%

54.4%

0.0%

10.0%

20.0%

30.0%

40.0%

50.0%

60.0%

Yes No

Survey

New Mexico

N = 673


Race

77.3%

9.3%

3.6%0.8% 1.6%

7.4%

83.6%

9.7%

3.1%1.5%

0.2%1.9%

0.0%

10.0%

20.0%

30.0%

40.0%

50.0%

60.0%

70.0%

80.0%

90.0%

White/Caucasian American Indian Black/African American Asian Native Hawaiian/pacificIslander

Other

Sample

NM

N = 611


Age Category

5.4%

8.7%

15.8%

27.7%

16.0%

14.0%

35.7%

13.6%12.2%

13.7%

11.5%

13.1%

0.0%

5.0%

10.0%

15.0%

20.0%

25.0%

30.0%

35.0%

40.0%

<24 25-34 35-44 45-54 55-64 65+

Survey

New Mexico

N = 689


Respondents by Geographic Region

13.4%

16.4%

30.1%

23.2%

16.9%

N = 611

Findings:

Disability,

Services

And Supports

Type of Disability

41.3%

20.7%19.1%

12.6%

10.7%

6.6%

11.2%

0.0%

5.0%

10.0%

15.0%

20.0%

25.0%

30.0%

35.0%

40.0%

45.0%

Behavioral Health Physical Chronic HealthCondition

Learning Sensory Cognitive Other

What type of disability or health condition do you have?

N (Disability/Condition) = 961

Services and Financial Supports

Are you currently receiving services or financial support from any of these programs or organizations?

52.7%

36.3%

29.5%

20.6%

11.6%9.4% 8.4% 8.1% 8.0% 7.8%

6.1% 4.7% 3.4% 2.8% 1.7% 1.7%

0.0%

10.0%

20.0%

30.0%

40.0%

50.0%

60.0%

Socia

l Sec

urity

or Dis

abili

ty In

com

e (S

SI/SSDI)

Med

icai

d

Med

icar

e

SNAP (foo

d sta

mps

)

Privat

e Hea

lth In

sura

nce

Public

Hous

ing

Assis

tanc

e (S

ectio

n 8/

Public

Hou

sing)

Perso

nal C

are

Option

(PCO

)

DD Wai

ver (

Devel

opmen

tal D

isab

ilitie

s W

aive

r)

Comm

issi

on for t

he Blin

d

O

ther

Gener

al A

ssis

tance

for t

he Dis

able

d

Coord

inat

ed L

ong-Ter

m C

are

Servi

ces

(CoLTS)

Optum

Hea

lth N

M (T

rans

ition

al L

ivin

g Ser

vice

s)

Divis

ion o

f Voca

tional

Reh

abili

tatio

n (DVR)

Med

ical

ly F

ragile

Wai

ver

Mi V

ia W

aive

r

N (Services): 1,263

Most Frequent Combinations of Services and Financial Supports

SSI/SSDI Medicaid Medicare SNAP

SSI/SSDI 217 176 95

Medicaid 217 133 105

Medicare 176 133 55

SNAP 95 105 55

Findings:

Independence in Choosing Where to Live

Choice in Deciding Where to Live

Which best describes who chose where you live now?

N = 684

I Chose Where I Live Independently

50%I Chose Where I Live With Others Being

Involved35%

Someone Else Chose; I Wasn't Involved

15%

Satisfaction with Decision Making in Choosing Where to Live

How satisfied were you with the amount of decision-making you had in choosing where you live?

N = 419

I Had Just The Right Amount Of

Involvement70%

I Wish I Had Been More Involved And Had More

Say26%

I Didn't Want To Be As Involved As I Was

4%

Who Was Involved in the Decision of Where To Live?

You said that someone else was involved in choosing the place where you live. Who else was involved?

N = 411

45.3%

23.8%

19.1%

9.9%

20.3%

0.0%

5.0%

10.0%

15.0%

20.0%

25.0%

30.0%

35.0%

40.0%

45.0%

50.0%

Family Member Someone From An AgencyThat Provides Services To

Me

My Guardian or LegalRepresentative

A Friend or Friends Other

Findings:

What’s Important

In Deciding

Where To Live?

What’s Important in Deciding Where To Live?

How Important Is This in Deciding Where To Live?

N = 655

95.1% 93.1% 91.9% 91.4%87.5% 87.1%

83.8%

76.6% 76.2%73.2%

65.5% 64.6% 64.4%

0.0%

10.0%

20.0%

30.0%

40.0%

50.0%

60.0%

70.0%

80.0%

90.0%

100.0%

Feelin

g Saf

e

Privac

y

Afford

abili

ty o

f Hou

sing

Belin

g Clo

se to

Sto

res

Acces

s to

Ser

vice

s

Havin

g a

Backy

ard o

r Nea

rby

Place

to b

e O

utsi

de

Being

Close

to F

riend

s

Being

Close

to R

ecre

atio

nal A

ctiv

ities

Being

Close

to W

ork

Being

Close

to P

ublic

Tra

nsporta

tion

Partic

ipat

e in

Nei

ghborh

ood E

vents

Physi

cal A

cces

sibi

lity

Close

to a

Pla

ce o

f Wor

ship

Gaps In Importance and Satisfaction

How Important Is This in Deciding Where To Live?

How Satisfied Are You With This Where You Live Now?

95.1%93.1% 91.9% 91.4%

87.5% 87.1%83.8%

80.2%82.1%82.0%80.9%83.0%

68.8%

80.9%

0.0%

10.0%

20.0%

30.0%

40.0%

50.0%

60.0%

70.0%

80.0%

90.0%

100.0%

Feeling Safe Privacy Affordability ofHousing

Beling Closeto Stores

Access toServices

Having aBackyard orNearby Placeto be Outside

Being Close toFriends

(Percent saying "Very Importantor "A Little Important""

(Percent Saying "Satisfied" or"Very Satisfied")

14.2% 23.1%10.1% 10.5%

Findings:

Current and

Preferred

Living Situations

Current Living Situations

Which of the following best describes your current living situation?

N = 684

38.4%37.1%

13.2%

7.5%

3.7%

0.0%

5.0%

10.0%

15.0%

20.0%

25.0%

30.0%

35.0%

40.0%

45.0%

Live W/ One or MoreBiological Family Members

Live Alone Group or Congregate Home Friends/Roommates Family Living Situation

Satisfaction With Current Living Situation

Overall, how satisfied are you with your current living situation?

N=705

Very Satisfied50%

Satisfied30%

Dissastified12%

Very Dissatisfied8%

Gaps: Current and Ideal Living Situations

Which of the following best describes your current living situation?

Regardless of your current living situation, what would your ideal living situation be?

N= 684

38.4%37.1%

13.2%

7.5%

3.7%

24.9%

45.3%

20.2%

5.1% 4.5%

0.0%

5.0%

10.0%

15.0%

20.0%

25.0%

30.0%

35.0%

40.0%

45.0%

50.0%

Live W/ One or MoreBiological Family

Members

Live Alone Group or CongregateHome

Friends/Roommates Family Living Situation

Current Living Situation

Preferred Living Situation

Living With Biological Family as Preferred Living Situation by Type of Disability

Regardless of your current living situation, what would your ideal living situation be? Ideally, I would like to live with one or members of my own

family…

N (Disability Type) = 155

Cognitive Disability 11 (7%)

Sensory Disability 29 (19%)

Learning Disability 17 (11%)

Chronic Health Condition/Disability 31 (20%)

Physical Disability 20 (13%)

Behavioral Disability 47 (30%)

Living Alone as Preferred Living Situation by Type of Disability

Regardless of your current living situation, what would your ideal living situation be? Ideally, I would like to live alone…




Chronic Health Condition/Disability 71 (18%)




Congregate Housing as Preferred Living Situation by Type of Disability

Regardless of your current living situation, what would your ideal living situation be? Ideally, I would like to live in a group or congregate home…



Chronic Health Condition/Disability 38

(20%)





Next Steps

Additional analysis: question 6 (current and desired levels of assistance with activities of daily living) and statistical significance on key demographic variables

Full report

Executive Policy Summary

?

Dr. Anthony Cahill

Director, Division of Disability and Health Policy

Center for Development and Disability

2300 Menaul Boulevard NE

Albuquerque, NM 87107

(505) 272-2990

[email protected]

For More Information

To review or download a copy of this report, or to see other reports as they become available, please visit

http://cdd.unm.edu/dhpd/index.asp

Click on “Programs and Projects” and then on “Survey of Independent Living”

http://cdd.unm.edu/dhpd/index.asp

Anthony Cahill, Ph.D. Heidi Fredine, MPH Barbara Ibanez, MA Luciana Zilberman, MA Selected Findings From The 2010 Survey of Independent Living For New.

Documents

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university of new mexico

independent living slide

survey respondents

american community survey

race n

gender n

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