Anne Reilly RGN, RCN, MSc. Margaret Naughton RGN, RCN. Saundra Nolan RCN, RGN, BNS. Community Liaison Nurses The Jack & Jill Children’s Foundation Dr Honor Nicholl School of Nursing and Midwifery, Trinity College, Dublin Children With Neurodevelopmental Delay And End Of Life Care Needs *** A review of specialist community service in Ireland November 2012
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Anne Reilly RGN, RCN, MSc. Margaret Naughton RGN, RCN. Saundra Nolan RCN, RGN, BNS. Community Liaison Nurses The Jack & Jill Childrens Foundation Dr Honor.
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Anne Reilly RGN, RCN, MSc.
Margaret Naughton RGN, RCN.
Saundra Nolan RCN, RGN, BNS.Community Liaison NursesThe Jack & Jill Children’s Foundation
Dr Honor NichollSchool of Nursing and Midwifery,Trinity College, Dublin
Children With NeurodevelopmentalDelay And End Of Life Care Needs
***
A review of specialist community service in Ireland
November 2012
The aim of this presentation is to overview the
services provided by the Jack & Jill Children’s
Foundation to children in Ireland who have
neurodevelopmental disabilities.
Aim
The Jack & Jill Foundation established in 1997 by Jonathan Irwin and Mary Ann O’Brien
Registered charity in Ireland
Based in Naas, County Kildare
The Jack & Jill Children’s Foundation
CEO
Board Of Trustees
Administration team ( 9 plus CEO)
11 Registered Children’s Nurses
3 volunteers
Organisational Structure
Organisational Structure
11 Registered children’s Nurses
All RCN’s with other qualifications
All have 1-16 years of experience in children’s community care with the Foundation
Nursing Team
Nursing Team
Cover all 26 counties
Liaison nurse covering 1- 6 counties each
Where Do We Provide Care?
Anne Reilly
Cathy Keighery
Caroline Thomas
Eilin Ni Mhurchu
Marie Bowen
Joanne Doyle
Mags Naughton
Rhona Kett-Sheridan
Saundra Nolan
Sinead Moran
Mary Joe Guilfoyle
CriteriaWe provide home respite care to families of children with severe developmental and non oncology palliative care needs up the age of 4 years
1579 families to date 294 children currently receiving service
Who Do We Provide Care For?
Referral
Assess a need
Fund home services
Provide direct care
Liaison function
Ongoing support
How Do We Provide Our Service?
Annual ‘Family day’
Advocacy
Strategic developments
Remembrance day
Family support
Fund raise
Other Things We Do?
Analysis of Organisational statistics from our database