AN EVALUATION OF THE IMPACT OF THE NATIONAL DISABILITY RIGHTS NETWORKPARTICIPATION IN THE KATRINA AID TODAY PROJECT Submitted by Laura M. Stough, Ph.D. Amy N. Sharp, Ph.D. The Center on Disability and Development Texas A&M University to The National Disability Rights NetworkWashington, DC March 2008 1 of 82
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An Evaluation of the Impact of the National Disability Rights Network Participation in the Katrina and Today Project (Stough)
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8/6/2019 An Evaluation of the Impact of the National Disability Rights Network Participation in the Katrina and Today Project …
Introduction................................................................................................................................3Purpose of Evaluation.............................................................................................................3Design of Evaluation...............................................................................................................3
Evaluation Questions ..................................................................................................................5Primary Questions of Interest..................................................................................................6Secondary Questions of Interest.............................................................................................. 7
Evaluation Procedure..................................................................................................................8Participants.............................................................................................................................8Analysis of Evaluation Data....................................................................................................9Timeline of Evaluation..........................................................................................................12
Results from Surveys of Case Managers ...............................................................................31Results from Interviews of P&A and NDRN Administrators................................................. 39Results from Focus Groups...................................................................................................48
Summary of Focus Groups................................................................................................ 68
Summary of Evaluation ............................................................................................................70Primary Questions.................................................................................................................70Secondary Questions of Interest............................................................................................ 75
Appendix..................................................................................................................................78Open-Ended Telephone Case Manager Questions .................................................................78Survey Questions for Case Managers....................................................................................79Questions for Focus Group....................................................................................................81P&A Administrator Interview Questions...............................................................................82
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Katrina survivors. Of all the cases managed by these case managers, 1,046 had been closed with
a high of 100 closed cases for one case manager and a low of zero for another.
Case managers were asked a series of questions about their experiences with NDRN-
KAT clients and the factors that affected their recovery following Hurricane Katrina. When case
managers were asked about what made some cases successful in recovering following the storm,
the responses generally centered around the ability of the case manager to find appropriate
resources for the clients, the awareness of the disability-related systems in place, the ability to
coordinate amongst agencies, and client motivation.
Identifying and accessing available resources was the category of concern expressed most
often throughout the interviews: “Being disabled you are limited to when and where you can go
so if you aren’t there at a particular time you miss out.”17
The client then goes to the doctor and
to the store occasionally, and so has limited access to resources. The CM believed that providing
case management made the client aware of services available that otherwise would go
overlooked.
Several case managers mentioned that timing sometimes played a large role in how
successful they were as accessing resources––the timeliness of contacting the client, cooperation
from the client, collaboration from other agencies, and accessing resources. Another example of
timing and being able to find the appropriate resources:
Everything just came together. It had to do with the particular needs of the clientsand what I could offer. These clients just needed furniture but had obtained their own mobile home. They are older and disabled. What their needs were and what Icould provide matched up.
17Throughout this evaluation report consistent effort was made to respect the voice and expression of the
participants. As a result, in some cases, quotes in this report will appear ungrammatical or to have syntax errors.Each transcript was checked twice in order to render as accurately as possible the words of the participant. Quotes areincluded as intact as possible and only edited when it increased readability. In these cases, the format “…” was usedto indicate deleted words except in the case of repeated words or verbal fillers. When words were included for readability, brackets were used.
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Yet another case manager illustrated that having knowledge of the system by both the
client and the case manager is helpful in achieving success. The coordination of services between
the social worker, the client and the CM made the case successful and led one case manager to
remark, “It helps when the client is more interested in their recovery than you are.” The client
put a lot of effort into their recovery plan. The client followed up on paperwork, was patient, was
aware that some services are not given, and gave the CM the necessary paperwork to get the
additional funding and the services that they needed.
Case managers were also asked about challenges in providing case management. Lack of
resources was the primary response on this query. Many case managers communicated that their
ability to navigate the disability arena allowed them to access more services and resources for
their clients.
I had a client who was diabetic, he could not walk. Lived in a FEMA trailer andFEMA is closing the trailers soon. He found a place to live 300 miles away withfamily, but the local resources initially would not agree to support him if hemoved that far away.
The case manager was subsequently able to get the support needed to execute the move.
Knowledge of the disability system and knowledge of the needs of clients was also
identified as important by the case managers in being able to achieve success; not having this
knowledge was a perceived barrier.
An agency did not understand the needs of the clients and was very judgmentalabout the client’s situation. This agency has judged the client and made it difficultfor them to receive services. FEMA was not aware of the clients’ needs,especially the clients’ needs that had to do with the client’s disability status.
The CM had to help FEMA understand the client’s situation. This issue was with FEMA
in the housing department. It is an ongoing situation as the case is not yet closed.
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Another case manager gave an example of the limitation some people with disabilities
have when accessing social support services.
A young man was in a nursing home and needed to be moved to another city.
Medicaid, Medicare won’t pay for it because he isn’t going to hospital but to ahome to be closer to his family. Not a medical necessity, FEMA says it has beentoo long after the hurricane for them to assist. The ambulance service cut their costs but we still don’t have the means to pay $800 to move him. He is medicallyfragile.
The case managers interviewed perceived the biggest challenge faced by clients in their
area as housing. Other significant challenges include working through the system, transportation,
locating resources (both tangible and financial) and paperwork (amount of, literacy, and
organizational skills needed). One case manager summed it up by sharing that:
Everyday needs are more accessible in a small town such as food and clothing. Ina small town I can go to any Goodwill, Salvation Army, soup kitchen and in amatter of minutes get my daily needs met. In a place the size of Houston theyknow nothing about the lay of the land and it is so spread out, that getting your everyday needs getting met is an impossibility, you can’t go to your neighbor andget some soap or ramen noodles. The ability to advocate for their own selves isstunted when faced with a large city. Even with help it is kind of hard.
The focus on housing as the primary challenge was overwhelming supported by case
managers.
Housing, housing and housing [laughed]. That is a loaded question, they face so manychallenges. Clients who were living in low-income housing find that there is none leftnow. Even finding an apartment is difficult.
Housing. Living in the area a lot of things have changed, clients have difficulttime adapting to the new area and the new ways. Housing is big problem, noaffordable housing. Used to be able to get a 1br for $400, now if is $800 if youcan find it.
The prompt regarding the perception of cultural differences amongst clients and case
managers elicited a balance of responses. Forty-one percent of case managers did perceive a
difference and 59% did not. The primary perceived difference was focused around cultural and
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regional differences. These differences encompass many things including the way the social
services systems operate and the language used within each system, perceived client dependency,
and the perception of Katrina survivors as “being lazy” and “taking advantage of the system.”
Statements from case managers illustrating these differences included:
There is a cultural difference in the standpoint of services offered in differentareas. Some are used to one type of service and when they relocate the servicesare different. People that didn’t experience the storm don’t understand the gravity.
Another case manager noticed that in “New Orleans case managers were like Mama’s,
they did everything for you.” She shared that, in her area, case managers give the client the
information and they do it for themselves. “Transportation was another issue here. Clients were
used to public transportation. They became stranded because they no longer had that public
transportation.”
When asked about what advice they would give the KAT, the case managers surveyed
responded that all agencies needed in-house monies to meet client needs. As the system is now,
agencies must scramble to obtain resources; as one case manger said,
We are going out and doing the bulk of the work to get resources. We don’t havea backup, we have to convince other agencies of the value of what we are doing.We should be able to show who we are and get resources from other agencies for our clients. I feel triple worked.
Another case manager shared that,
Empower the case management organizations with some funds. [Our agency] hasa contract to help broker information to people with disabilities. Immediate needscould be dealt with effectively if we had some money to help them get back ontheir feet. Empower case managers with some money to disperse for immediateneeds. Not a Walmart card but some money that the case manager could helpimmediate needs. We try to raise money for this purpose and it goes outimmediately.
Other advice to KAT was to provide more resources, streamline paperwork process, and
to refine CAN and then leave it alone and to “stop making changes mid-stream.”
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The paperwork, input, and project evaluation rigors that centered around KAT, which
was not perceived to be a fully functional database that was user-friendly, were perceived to need
some streamlining. KAT was reported to undergo changes on a fairly regular basis causing some
confusion amongst users.
It [KAT] is a wonderful project but the expectations have been out of control.They have expected us to keep accurate data on a program that is not accuratelyworking. They take their information from this system but it is not working. Wedo quarterly report and ours does not compare to their report. CAN has the potential to be an awesome system but there are many kinks and it is not the toolthey expect it to be.
Another case manager shared that “the supervisors need to be people who are down here and
more visible with us, there is a huge disconnect that leads to miscommunication,
misunderstanding, etc.”
When asked if the P&A had influenced other KAT agencies, the response was 86%
positive. The P&A agencies were perceived as experts on resources for people with disabilities
and a group with specialized knowledge. One case manger noted that she believed that they
provided a service to the CM in the other agencies, “It makes their job easier because we are
doing the footwork for people with disabilities.”
When asked if cases of people with disabilities differed from cases of people without
disabilities 83% of the case managers agreed with this statement. The reasons given were that
people with disabilities had more specialized needs, their clients required more guidance, and the
cases required more specialized knowledge on the part of the case manager. As one case
manager explained,
Yes. It is like driving a standard versus an automatic. They both go straight, andturn and back up. But to accomplish that you have to have a little moreinvolvement and a little more knowledge.
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Another case manger shared how it is sometimes difficult to obtain resources and support
due to the involved nature of the cases.
I think that our clients bring a lot less [tangible efforts] to the table to contribute.
At the LTRC tables when asked “What they have they come with. What have theydone for themselves?” they come with a lot less. You have to look a lot harder toget the resources that they need, you have to be a lot more creative with donationsand volunteer labor.
Recovery was also perceived by this group as being more difficult for someone with a
disability (86%). Again, the specialized services and the need for a case manager with this
knowledge was the primary challenge. One case manager shared that,
Somewhere along the way if they don’t plug into some agency that can addresstheir needs they will miss out on services that they are entitled to and need. Casemangers need to have some knowledge of what is available for [IDD].
Other challenges to a successful recovery included having the knowledge to know how to
function within the social service system, mental health complications and transportation.
A person with disabilities has to navigate with in the typical system so a typicalcase manager cannot imagine if it is already hard for a non-disabled person tonavigate a typical environment, it is enhanced when you have a disability. Thereis so much more to deal with.
Upon conclusion of the interview, case managers were asked if they had anything else
they would like to share. Many of the case managers wanted to emphasize that while the work
was challenging, it is also very rewarding.
It is the most stressful job I have ever had and the same time the most rewarding.Being able to help someone who has lost all hope it does something to you thatyou can’t describe in words.
Another primary issue was that the case managers felt that to do a good job they needed
to be backed up by financial resources that they could pull from to meet the needs of the client.
Most of the other Katrina Aid Today partners had financial resources and donations that they
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without disabilities. The multiplicity of issues of individuals with disabilities was seen as being
greater as was their knowledge about services that would meet those multiple needs. The end
goal, however, was the same in that the objective was to connect these individuals to needed
services.
Most people with disabilities have additional services that were disrupted to themin terms of what was required to live. The traditional case management model of putting people back into the same place they were does not understand theservices of people with disabilities.
Yes. That was our premise going and I have not been dissuaded since. There may be similarities, the loss or the lack of svc system is… no question that if you are
middle class you lose your roof, you put it back you go on. So many who wereliving in the community that are now in nursing homes, institutions, in morerestrictive settings. They don’t have the resources to get back to near where theywere. A huge reliance on social service systems is apparent. It is important for anorganization with disability awareness to be involved because they would haveknowledge of these factors.
Administrators also believed that individuals with disabilities as a group had
characteristics that made management more challenging. For example, as a group, individuals
with disabilities are less likely to be homeowners. This meant that some of the FEMA programs
were not of use to them or, in the case of FEMA trailers, were not accessible to them. Individuals
with disabilities were also seen as less likely to be employed, which affected their ability to pay
utility bills or to purchase furniture. It also impacted their ability to relocate after the storm as
they may not have the resources or transportation needed to relocate. Individuals with disabilities
were more likely to have medical needs and in some cases assistive devices or durable medical
equipment needed to be replaced. Most administrators mentioned that case management for
people with disabilities necessitated knowledge of how to communicate with the disability
community. Some administrators believed that the skill of working with people with disabilities
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Clients have reliance on so many federal programs and the long term nature of thesystemic presence does affect how they access support. Special education, evenhousing requires access to federal programs. There is a broader array of servicesand systems for people with disabilities. It is not a question of getting roof repaired and sending them on their way, there are stiff bureaucracies to deal with.
In the beginning money is donated, people are helping; people with disabilitiesdon’t recover that quickly.
Finally, it was reported that case workers needed to be able to aware of the attitudes and
biases that society have against individuals with disabilities and be prepared to deal with those
attitudes when seeking resources for their clients.
Question 4: In our conversations and interviews with P&A staff we have heard stories
about the influence that the KAT-NDRN staff and case managers have had on the case
management and administrative practices of their colleagues in the other KAT agencies.
Do you think that the participation of your P&A as part of the KAT consortium within the
state had an influence on other KAT agencies? If so, how?
The response to this question was a guarded “yes.” The reservation of most of the
respondents was that they had yet to see the results of their advocacy and education activities-
which made the respondents unsure about the extent to which the P&As had concretely and
definitively influenced their partners. The respondents did believe that the partner agencies were
more aware of their services and that their participation in KAT had heightened their profile
among agencies, but that there was still some misunderstanding about what was the role of the
P&A. Partner agencies were likely to call the P&As when they needed disability-related
information, and appreciated that the P&As had disability-related expertise, but this did not
necessarily translate to the transfer of cases to the P&As. The involvement of the P&As was seen
as elevating awareness of disability-related issues among the partner agencies. In most cases, the
P&As took leadership among the KAT partners in hosting meetings at their offices,
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narratives of their disaster or recovery experiences as part of their response to this question.
These brief narratives were then coded to identify categories of barriers that the participant
mentioned.
The first overarching category, one that was easily identified by the participants,
concerned the lack of the concrete resources they believed would help them recover. Participants
returned repeatedly to this theme during the focus groups, even in response to other questions.
They cited assistance that they had received soon after the storm had occurred but were aware
that resources had become substantially reduced by the time the focus groups were held, almost
two full years following the disaster.
With regard to the specific supports needed, the largest majority of respondents reported
housing or home repair as the primary need preventing their recovery. Most respondents had
received FEMA housing assistance at some time during the previous two years. However,
responses indicated that ongoing FEMA assistance was fraught with uncertainties, required
complicated and excessive recordkeeping, and was maintained only through repeated and
sometimes stressful interactions. One participant commented:
That’s like that’s how they do ya, they find all kinds of loopholes not to give youthe money, you know “You didn’t cross your T’s you didn’t dot your I…”…Youknow I’m in need––forget about that––give me what I need. “I need it,” that’swhat I say but they don’t see it like that. (New Orleans Focus Group)
Most participants expressed uncertainty and anxiety about the future of their housing and
over 90% were living in rental properties or with other families. Additionally, many participants
stated that rental properties that were affordable for them before Katrina were now much too
expensive. Further complicating their housing challenges was that most participants’ income
significantly decreased after Katrina. One participant stated:
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And then all of sudden apartment buildings I would see that were one bedroomthat might have been say $400 dollars [before Katrina] now its $700 dollars.(Mississippi Focus Group)
Another participant said:
In a two bedroom, one bathroom house. Six adults, five children. And that is because we are not making it, we just are not making it. We are paying twice therent and we not making half the money we was making (Georgia Focus Group)
In some cases, the housing provided to them was not appropriately accessible or was
located where there was limited or no public transportation. One participant remarked:
Praise God for [name of case worker]! And, um, they tore my house down justabout three weeks ago and she is going to use my insurance money to help get me
a handicap accessible home not the trailer I am in…You know, I have a trailer,and…I am uncomfortable in a way because the sofa is old. I am sleeping on top of a pillow because the back bedroom the bed is so high I cannot get into it. Andthey got one air conditioning unit in there and it does not cover the whole trailer.Certain parts of the day it gets hot.... (Mississippi Focus Group)
Anther participant related a similar experience:
I got a telephone call, “Oh…we have a trailer for you, you have to come on homeso you can inspect the trailer” and all this. I’m handicapped, she gives me a trailer as big as this room here, it’s not handicapped equipped. Ok, she promised mefaithfully, oh…that you’re here now, we gonna take care of this. Just give meabout two weeks and we’re gonna put you in a handicapped. So we spent twomonths, six months, eight months…now I’m getting ready to be kicked out of mytrailer, ok. (New Orleans Focus Group)
Employment was another primary category of need for these participants, most of whom
had been employed before the disaster. Some of the jobs that the participants had had pre-
disaster did not exist in their new location:
You know there is no professional doorman where you can just go and get another doorman job and then it is not going to pay as much as it did in New Orleans. Youknow what I mean, he was making $200–$300 dollars cash sometimes. You justcan’t replace that. And then I had my hustle. I had my little sewing businesswhere everyone in the school system wore uniforms so everyone needed their uniform altered and I had my little business going. Everything was just goingswell and lovely and…you’re back down to the bottom again. (Georgia FocusGroup)
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Transportation was another service need consistently identified by the participants.
Without transportation respondents were unable to seek employment, obtain medical services or
to search for more appropriate housing.
Most of the thing that I am really looking for right now is to get me sometransportation, some better transportation than what I got. Basically from there, Ithink I can make from there, but I know it is going to be a little rough up the road, but basically I just need transportation. (Mississippi Focus Group)
If I could just get a place, get my house fixed and get some transportation so mydaughter can carry me to where I need to go then I … She can drive, but I can’t soif I had some transportation where she could take me… (Mississippi FocusGroup)
Medical supports, including the need for durable medical equipment such as wheelchairs,
and prescriptions, were another category of need in this group.
…my baby needs medicine right now, but CVS will not take his Medicaid cardand he catch pneumonia. He has a respiratory disease, and he catch pneumonialike three times a year. And I got a prescription right now and they are like “weare not taking that” you know and it is just I am scared to transfer and then I amscared not to. (Georgia Focus Group)
Despite the desired concrete service needs, most of the participants agreed that most of
the needs identified above could be fulfilled by adequate financial support, either in the form of
compensation for employment or from some form of public assistance, which might include
support from FEMA, Social Security, disability benefits, or insurance payments.
Well, like with me I am just staying in an old trailer that was there. I had no helpto fix it, I am on low income, I am on disability. But I just don’t have money tofix it. But I have not had any help from nobody so I am just doing the best I can,what can I do about it? (Mississippi Focus Group)
Another participant said:
…so we came to, it’ll be a year next week, to Houston and we’ve been reallyliving on my social security, which has been very difficult to make it and, um,FEMA just got to the point where I didn’t even know how to talk to them becauseI had a lot of medical issues as a result of Katrina…so we just do what we have todo to survive. (Houston Focus Group)
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The second overarching category that connected the narrative responses to this first
question was that of the difficulty in obtaining services. This category was exemplified by
participants’ comments about “getting the runaround,” gate-keeping in different forms, and
competition for resources.
…it is the most frustrating thing is to call a number and they tell you they’regoing to be able to help you but then when you call that number, “Right, but letme give you another number you can call” and then you call that number “Here’sanother number you can call,” and you’re sittin’ there with a list of numbers andyou call that whole page [but] you still have nothing. (Georgia Focus Group)
Another participant said:
Nobody knows what’s going on and you’re right there in the middle of this…you’re already in all the confusion. You go there and guess what? They arelike “Oh, well, here’s the birth certificate, here that…” then they still need moreso I tell you what I’m out of here… (New Orleans Focus Group)
Paperwork and lack of information about services were other barriers to obtaining needed
resources. One woman, whose husband died during the storm, commented:
My husband was a 100% disabled veteran and his income is greatly missed. Andthe VA they denied me his benefits and now it is on appeal. The doctor said, “seeif you could have his file sent back to New Orleans.” So the VA here finallydecided to send the file back because at first it seemed like they didn’t want to doit for whatever reason. So the file is back in New Orleans and as far as I knowthey are looking into it. (Georgia Focus Group)
Some participants were quite candid about the psychological effects of the disaster and
how these had affected their ability to persist in seeking out services. In each group there were at
least two participants who self-identified that they were experiencing depression. In response to
the question about his biggest barrier, one participant replied;
…mentally, I guess. [Name of case manager] has helped a lot with getting a down payment of the mobile home and getting furniture, but you have got to deal withthe mental stuff. And you see all this stuff in the paper every day that Katrina isgone, get over it, and all this stuff. But it ain’t gone for everybody. (MississippiFocus Group)
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I don’t sleep. That was the first thing I have had to eat [referring to the lunch provided at the focus group] since yesterday. I don’t really have an appetite, I eatonce a day. I don’t know why, I guess the stress has got me gaining weight,
maybe the lupis is acting up, but I’m swelling. I don’t have no help whatsoever.But yet they say I want a handout. All I want to do is go to work. All I want to dois pay my bills, put food on my table, put gas in my car. I want to be able to comeand go like a human being. (Georgia Focus Group)
The reason for the experienced depression was not directly linked to a loss of resources
rather it was usually connected conversationally in the focus group to an increasingly limited
pool of options and the bureaucracy of applying for aid:
It is like we have lost our hope. No one answers our phone calls, no one calls us back, you know. We have been left out. By asking certain questions or asking for something that we need, desperately need, and it just “Call this number, well, callthis number, call this number.” I had six in one day, different ones to call andnobody had any answers for me. So that has been a very long drawn out thing.Getting the answers as to who do we talk to. (Mississippi Focus Group)
In some cases, depression became in of itself a barrier to the recovery of some individuals:
…see it’s not just a better job for me…I don’t know how to explain it but I havelike a sadness in me that comes out every night and I get really, really depressed, Ireally do. Sometimes I be like that for weeks on. And the other people they won’tknow that I just get in a rut and I just can’t get past it and… come home fromwork just go to sleep. (Houston Focus Group)
Another participant said:
I was talking to a social worker because I was having a whole lot of issues as far as my thoughts were concerned, and at one point I was even thinking aboutsuicide. I was thinking that if I would take myself out then people wouldn’t haveto worry. (Georgia Focus Group)
When asked about the biggest barrier to recovery another participant replied,
The frustration of it all. I had quit smoking years ago, I started smoking again. I’mtaking pills for depression. Her hair’s falling out. I mean it’s, it’s… I don’t knowyou… I don’t know how to deal with it. (Mississippi Focus Group)
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Resources were seen as being unequally distributed or more available in other states. The
focus group in New Orleans consisted of participants who had lived in New Orleans before the
storm and who had returned. Several of the participants had been displaced and had returned
after living for several months in temporary housing in other states. The group believed that the
services that they had received in other states had been superior to those that they were being
provided in Louisiana and that financial delays and corruption in the state affected the aid that
they were receiving. The researcher then asked, “You know, I don’t get this though because you
guys are all glad to be back home.” The participants, as a group, replied, “There’s no place like
home” and one woman remarked,
We [are] like abused children. But still…you got that block that say, “I love mymom, I hate my momma, I love my mom” but you do get abused. (New OrleansFocus Group)
Question 2: What has helped you recover from Hurricane Katrina?
When this question was asked as the leading question to the first focus group in Houston,
participants quickly changed the topic from “what has helped” to “what things have prevented
your recovery.” Participants across all groups consistently reverted to talking about barriers to
recovery even when asked directly about factors supportive of their recovery. What became
apparent after interviewing all of the groups was that, without exception, every participant in
each of the focus groups was still recovering from the disaster––none saw themselves as having
“recovered.” Recovery was seen as an ongoing process in the midst of which the participants still
found themselves. As all of the participants in the focus groups were still receiving case
management, it is perhaps not surprising that these individuals presented themselves as still in
the recovery process, however, their responses emphasized that they were not satisfied with the
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conditions within they were now living and that they believed that their lives had been better
“before.” For example, when asked about recovery, one participant said:
It’s not really a recovery moment you can’t really say that you have actually
recovered. It’s not easy so it’s like your not there yet your still not there. (HoustonFocus Group)
When asked what had helped them during their recovery process, the groups
overwhelming responded, in order of importance, family, friends, and prayer/spiritual support. In
the cases that the participant was living apart from their family or friend before the storm, they
emphasized the support that they had received from their church or from their spiritual practice:
My family’s not here––I’m alone here and I went through a great deal. I had aheart attach and triple bypass surgery two weeks after the storm and it was just meand God. (Houston Focus Group)
Where you all have destruction [referring to others in the group] I had devastationand I did a lot of praying. My church kind of like stepped in a little…we stilltrying to rebuild that but, really and truthfully the prayers helped me. (NewOrleans Focus Group)
Um, I guess mainly the support from people here, from my church. Just fromfamily and friends…So basically it has been relationships that have been thestrongest piece, I think. Cause even with working with persons with some of theother agencies there have been relationships that have been developed from thatcommunication and that contact with persons from other agencies. That is basically what it has been, relationships. (Georgia Focus Group)
But its like you gotta help you know you got to reach out and help one another because if the, if the system kick in and try to help you its gonna take you a reallong time to get any help you know and they need help. (New Orleans FocusGroup)
Prayer and my people. My son and my sister. Out of thirteen of us I only have twoleft. So like, if I need something I call my sister. She needs something, if I got it Icall her. My mother and my father always teached us…nothin’ like your own.(Baton Rouge Focus Group)
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Question 3: What help or services have helped you get the things you need?
Responses to this question were closely linked to that of Question 2. In all of the focus
groups, however, participants had to be prompted to identify the formal supports or agencies that
had provided them with support. Most respondents reported getting assistance from FEMA or
Red Cross immediately or soon after the storm:
I didn’t get housing assistance until I got to Texas. When I was in Omaha Nebraska there was this church, I can’t recall the name of the church, but theywas a affiliated with the Red Cross as well they put me up in a hotel for a coupleof months. (New Orleans Focus Group)
Almost half of the participants identified, after prompting, a faith-based recovery group
such as Catholic Charities or Lutheran Social Services as helpful in connecting them to needed
resources. Some participants listed the P&A as an important support:
Disabilitylink has helped me tremendously and [KAT] has helped metremendously because I didn’t have any transportation even when Disablitylink got me into [a] Section 8 program I had no way to find a house because I had notransportation. So when I did get in touch with [KAT] they took me to look athouses, they took me for the inspection of the houses and just helpedme…Without them I don’t know what I would have done. The Disability Link
and [the P&A case worker]––she has been putting me in touch with CatholicCharities who assisted me in some other ways. So, it was like a network, I guessthey had between each other, and they found out what would best suit me and she[the case worker] referred me to them…They have been tremendous in helpingme, especially since I had my stroke, I don’t remember so good all the time.(Georgia Focus Group)
Although this question was designed to elicit naming of agencies and organizations that
had provided supports, participants commented that reliance upon these formal supports had not
been part of their life pre-disaster. Most reported relying on family and friends for needs in their
communities:
…you could make a phone call, you could call an aunt or an uncle, a cousin, aniece, a nephew, someone you grew up with, you know, a childhood friend, but just that connection you could that could be a last resort you say “well, look, I’m
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in need, can you, I’m stuck in traffic, can you pick up the kids for me, can youmake sure and that… (Georgia Focus Group)
…there’s a place here in New Orleans it’s the Ninth Ward it’s like a country, acountry, and I think it deals up from there because those people were country and
country people like they believe in really gellin together…you can’t depend onthe system. (New Orleans Focus Group)
…my neighbor’s really my big support system because like I said…he cut grassand if I need something I could, you know, I try to get with him and cut grass and,you know, get things situated. (Baton Rouge Focus Group)
Among the formal support agencies mentioned, Red Cross, Catholic Charities, St.
Vincent de Paul, Salvation Army, and Lutheran Social Services were mentioned most often, as
were local churches where the focus group members were attending. One participant had
financial support to rebuild his home but believed that compassion was also needed in supporting
him as a disaster survivor:
If I could have one or two maybe three or four workers that are hanging there with[me] and [being] very humanistic with [me]. But then you got this other peoplethat come along and they like, they just doing their job. You have to do your job but you have to have that compassion. You have to relate to what’s going on. No,you may not have been in that situation, but [it’s] kinda like step back and seewhat’s going on––put yourself in [my] shoes or something… (New Orleans FocusGroup)
In the Mississippi Focus Group participants talked about groups assisting them with
obtaining a new wheelchair, prescriptions, and presenting their case at the long-term recovery
table.
I did get a wheelchair through Medicaid. But what happened when I got it, it wasin my daddy van, in the back of the van, and he open it up and it fell…Medicaidcome back and picked it up and they tried to get it fixed and they couldn’t get itfixed and they told me that I can’t get another chair for five more years. And thischair is [broke] and I need another chair but I am dealing with this one here, youknow. (Mississippi Focus Group)
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Question 4: How has Katrina Aid Today (this Advocacy Center) helped you?
Most participants had not been in contact with the P&A before the disaster and had
contacted the agency to seek services during the recovery period:
I found out about this program here through a friend of mine…and she said TheAdvocacy. I had never heard of this program––I’m not going to lie––I had never heard of it before but I called... I wasn’t gonna call because I know the situationthat everybody’s going through and I said “Lord, I can’t go through this” butwhen I called it was a whole different thing, you know. (New Orleans FocusGroup)
Few participants spontaneously mentioned the case management services that they were being
provided through Katrina Aid Today as an important source of services as part of their responses.
Those that did were appreciative of the efforts of their case manager but some saw limitations in
what their case manager had provided to them.
I haven’t received anything from the agency––we just got all this process.(Houston Focus Group)
Another participant said:
I think that I have given my case manager more resources than she’s given me
because I look for them. And I call so much with the resources that I got off theInternet, I called them so much they said, “Miss [name] you are already in thesystem, you need to wait. You have a case manager and if you would just let her do her job…” and I’m still waiting. (Houston Focus Group)
Another Houston Focus Group member said that the search for available resources from all the
different organizations “…was like going from having one pimp to having four or five pimps,
you just have to work extra hard.”
Most did not separate the services that Katrina Aid Today provided from the services that
their case manager had provided.
… you know how they have those FEMA meetings and I went there and I’d justgotten to Houston and everything they were telling me didn’t apply and it seemedlike only those people who received services was if it was for welfare were able toget help. So I stared crying cause I just couldn’t stand it and I was standing in the
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middle of the floor and this lady walked up to me…so they had a table for KatrinaAid. [Name of case manager] was there so he started talking to FEMA on my behalf…and Red Cross. (Houston Focus Group)
Another participant stated:
…I’m always been on my own since seventeen and I don’t believe in dependin’on charities and I wouldn’t have went there at that time if my checks would havecame on time but that’s the reason I went there and the reason I got a socialworker and I just got her and I been here two years. That’s the first time I ever asked her was last month and I don’t ask for nothin’ I don’t believe in askin’ for nothing because I say it like this, they got a lot of poor people out that really needit, I prefer them to get it…I only been here two years and I used her last month for the first time in two years and that’s it. (Baton Rouge Focus Group)
Other participants related these experiences:
So you know uh so now we down to eatin peanut butter and jelly you know fromtime to time just so so you can make it but I don’t know where there’s anyresources for anything. (Houston Focus Group)
Red Cross only gave three hundred and sixty dollars but this is what they did theygave me a voucher for medication for one hundred and eight dollars, they gaveme a voucher for clothes for I think for one hundred and thirty something dollarsand when they gave the checks for the cash they deducted the medicine and theclothes voucher from that so I got a grand total of one hundred and twenty twodollars that was tangible you understand (Houston Focus Group).
There are so many people devastated by this storm and there are not enough casemanagers to go around. They have got so many people. They are trying to help somany people. (Houston Focus Group)
Question 5: How has your case manager helped you?
When this question was asked, the overwhelming majority of the respondents agreed that
their case manager had been attentive and supportive during their recovery process. Three
categories of support were consistent across the focus groups; assistance with paperwork,
listening and emotional support, and information and referral services. A participant stated:
Housing. You know, just if [name of case worker] had not come along we probably would still be struggling, but she helped us along the way and weappreciate that. It is like I said, its hard to get…help…They forgot about theelderly and the poor. (Mississippi Focus Group)
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She assisted me to get furniture for my home and so I have furniture. I appreciatethat, that was going to be a big hurdle to jump if I didn’t get no furniture. She got
that for me so I appreciate that very much. At least I have a bed to sleep in and acouch to sit on and a dining room table. That was nice. (Mississippi Focus Group)
Some participants talked about the importance of having a personal relationship with
their case management that blurred the boundaries of the service provider-case dynamic. One
woman commented:
…She even went to church with me on Sunday and I really appreciate that and…Ithink that I knew that’s what a lot of people need because then when you have
somebody that’s in this program and know what’s going on and…you can getthem to understand what you need… (New Orleans Focus Group)
Another participant said:
If it weren’t for [name of case worker] I would not be where I am at now, but shestill gave me the motivation. Because I felt like someone was still trying to helpme so I got up and tried to help myself. But before [name of case worker] I didn’tknow what to do. I just sit and just sit there until she came along. She gave mehope. (Mississippi Focus Group)
Another participant responded:
…it’s like a glass of cold, cold water when you deal with somebody who is therefor you and just…says “Well, look, let me go to my supervisor and get back toyou,” and get back to you even if they got to say “No” they have gotten back toyou. (New Orleans Focus Group)
Another participant stated:
…she helped me a lot, she was pointing out a lot of things to me about, you know,about getting myself situated back in, you know, working stuff, like that, and shealso pointed out things that helped me get around and she was kinda showing meabout the system how I take the bus so I can, you know, be from point A to pointB. (Baton Rouge Focus Group)
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I’ve had a good experience thus far and, like I said, he’s been, he listens. He’sgiven me a list of other resource to use so I have no complaint. (Houston FocusGroup)
Even when the resources were not forthcoming, the participants felt that they benefited
from their relationship with their case manager:
Mr. ____ he’s very helpful to me because even though I got to keep more papersmore papers…he calls me, he even calls me Sunday to let me know…how I getthrough this…Like I said, he also intervened between FEMA and I, because I hadgiven up with FEMA…I couldn’t emotionally I couldn’t deal with them…(Houston Focus Group)
Some clients did not have good responses from case workers, although when questioned
further these were usually not the P&A case managers that they were referring to:
No because they’re too busy to contact you. You have to contact them and thenwhen you try to contact them you gettin voice mails and you get this and that andthe other or you know it just ain’t happenin. (Houston Focus Group)
One participant from Houston who had been in a high-ranking human resources job
before the hurricane observed that many of the agencies and positions formed as a result of
emergency funding had limited experience in the human services arena:
In most cases what Katrina did it created a lot of jobs a lot of these agencies andyou got people working in these agencies who got crash courses on how to dohuman services have never worked in human services. [They] do not know how tocommunicate or relate to people and some are just there for the dollar and theycould care less how they talk to you and…just here to get this dollar and when the program ends “We’re gone.”
Context
Contextual categories provide the backdrop against which the other categories interact. In
other words, a contextual category does not fall within the overarching categories outlined above
but influences how these other categories were manifested or influenced each other. In the focus
group part of this study the context that influenced the results reported above was that of a sense
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of displacement. All of the participants from Houston, Baton Rouge, and Atlanta had been living
in the greater New Orleans area at the time of the disaster while the participants in Mississippi
had been living along the affected coast. Following the disaster, all had to shelter in different
locations. One participant did stay in his home during the storm, but then relocated to other states
for several months following the storm. The four participants in the New Orleans group had
returned to the city, however, they returned to a city and to neighborhoods that were unfamiliar
and irrevocably changed in its composition. The two participants who returned to their homes in
Mississippi were similarly unsettled and still waiting for assistance in repairing their homes.
What was striking was that not one of the focus group participants felt as if their current
living situation was settled or permanent, even those who had employment or who had returned
to their homes. One focus group participant stated:
I think it’s more then money––it’s you know where you live, the ground that youwalk on and when you wake up you know where you are and, you know, it’s justyour whole live has changed and I don’t think you’ll ever really recover becauseyou’ll never get back what you had. Everybody’s lost friends and family scatteredall around the country…
Another participant shared:
…it is like a record scratching, you feel like you keep jumping back to the same point. Wherever you was at in New Orleans once that happened it just puteverything on the halt, just stuck… (Houston Focus Group)
This group repeatedly expressed that they were unsure about the future, frustrated by the length
of time their recovery was taking, and unfavorably compared their current living situation with
that before the disaster. This context of uncertainty permeated their comments about recovery
and was reported as its own source of stress for these individuals. As one focus member in
Houston said, “I don’t know what recovery means––I don’t know if I’ll ever recover.” One
participant said,
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Having doubts for two years, just having doubts. And then our case worker comealong and she finally gave us a little bit of hope, you know. She has been the onlyhope we have had since the hurricane. (Mississippi Focus Group)
Another similar salient expression of displacement was the feeling of being cut off from
home and family. This separation was strongly expressed by a member of the Georgia Focus
Group; “I can relate to slaves (they were my ancestors) but all my family is like scattered.” Other
participants shared:
You had family there [New Orleans], you know and people don’t understand thatall of that is just gone, it is taken from you, it is jerked from you. We was pluckedout of that situation and put just anywhere. The first year that we were apart fromeach other I can’t listen to holiday songs, look at TV and commercials with the
family, I could not do none of that, I just couldn’t, it was just too emotional.(Georgia Focus Group)
I will say another barrier is not just FEMA, it is our resources like family. I havenone. They are from New York to Jersey to Texas to West Coast so no moregoing to big mama’s house on Sunday. We were very close. It is like I have noculture anymore it is like, I feel like, what did they call us? A refugee, yeah.(Georgia Focus Group).
Even when participants were able to return to their home, they were disturbed by the
damages to their homes and frustrated by the lack of resources to help them rebuild. These
factors contributed to make them feel unsettled even when living at home. One participant
reported,
I don’t have a home anymore. I mean, that’s the way I look at it. I mean, eventhough we just got a home you don’t feel like you’re home. I don’t know if thatmakes sense to anybody, but that is the way I feel. It’s lost. (Mississippi FocusGroup)
A participant from the New Orleans Focus Group said:
You know when that storm hit, my home is the only two story in that area. I had,what, thirteen, fifteen neighbors … over there at my house. Didn’t know them,didn’t know their names. Didn’t know they stayed around the corner, but I knowthat I was the only shelter that they had and I took them all in...About three dayslater, Coast Guard came and got everybody and I stayed…in that house over threeweeks.
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I been around the world at least six to seven times. Red Ocean, Pacific Ocean,Gulf War, Atlantic…I been around the world to Egypt––and they always trainedus for when the ship [might] sink. And since 1987 we never had one experience
where…I had to worry about ships sinking in the middle of the ocean…but here Iam in my own home, and I’m seeing water rise above me, trying to knock a ventout on the roof thinking I’m going to drown right there in my own home. (NewOrleans Focus Group)
These expressed feelings of displacement were heightened by the view that receiving
resources was seen negatively by others. Many participants that had been displaced to other
cities remarked on what they saw as unwelcoming attitudes in their new location and the
perception that they were undeserving of the level of support that they were receiving. Several
participants commented on how others in their new environments seemed to view them:
…as far as the money, when they start dishing out the money then people look atthat that “he got more than what I have” you know that when…that animositycomes in… (New Orleans Focus Group)
…it’s like a bunch of crabs in a basket––once you get to the top there’s alwayssomebody to pull you back down” (New Orleans Focus Group)
Everybody thought just because you came from New Orleans you didn’t work or you weren’t educated or whatever. That wasn’t the case they had like what sevenor eight universities out there that everybody came from all over the place youknow so people didn’t realize yeah we go to work a lot of people wereentrepreneurs. (Houston Focus Group)
…I go places sometimes and people see that I am from Louisiana and I havegetting a lot of nasty things said to me while I am driving. I just feel scared here, Idon’t feel secure or welcome… (Georgia Focus Group)
…even like in the barber shop seems like they angry at us for gettin’ certainthings but…they don’t realize that we lost practically everything... But they arelooking at 18 months free rent and they like “How did they get that?” and theylike “They get more than I get”, and I am like “What do you mean we get morethan you? We trying to get up to the ground level where everybody at!”… Whenyou have a group of people who are not used to that, when they see one person getthrowed the bone it is hard for them to sit there without salivating. But that is aracial thing, that is a cultural thing. (Houston Focus Group)
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Well, she’s really mainly just being really kind, honestly. She’s just been kind andunderstanding, she’s kind of …”You know I hate to call and let you know but thefunds have been exhausted and this is what we can do…” I guess she’s just kinda just been supportive just with overall. But as far as actually getting anything ithasn’t come yet. (Houston Focus Group)
In many cases, the case manager themselves was used as a resource by clients and we
heard a number of examples of case managers who provided transportation to their clients or
who served as a compassionate listener for clients who were distraught or depressed.
Were P&A case managers rated as knowledgeable or more knowledgeable about the
recovery process and resources available as compared to other Katrina Aid case
managers?
A premise of the Katrina Aid Today consortium, and an argument for using the
Coordinated Assistance Network (CAN) database was that this network would better provide for
the coordination of services and decrease the amount of paperwork required of the client.
However, direct reports from clients who participated in the focus groups included numerous
examples of how paperwork and a seemingly endless circle of referrals functioned as barriers to
recovery. The P&A case managers assisted their clients in negotiating these barriers and clients
overwhelmingly appreciated the efforts of their P&A case managers. However, in light of the
lack of resources previously discussed, it is questionable the extent to which continuing to apply
for disaster recovery resources was contributing to the client’s recovery.
How were P&A case managers rated with regards to providing information and services
that met the client’s needs as compared to other Katrina Aid case managers?
In response to the client satisfaction survey, clients reported on their level of satisfaction
with services that they had received. Responses for both NDRN-KAT and the other agencies
were almost uniformly positive with the exception of the response to the statement “I am
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Interviewer: Hello, this is [name of interviewer ], from the Center on Disability and Development atTexas A&M University. It is our understanding that you are a case manager with Katrina Aid Today. TheCenter on Disability and Development, in collaboration with Katrina Aid Today National Case
Management Consortium and the National Disability Rights Network, is conducting research on casemanagement services for survivors of Hurricane Katrina.
We are interviewing over 50 case managers employed by the National Disability Rights Network.
Consent
Interviewer: Hello, this is [name of interviewer ], from the Center on Disability and Development at
Texas A&M University. It is our understanding that you are a case manager with Katrina Aid Today. TheCenter on Disability and Development, in collaboration with Katrina Aid Today National Case
Management Consortium and the National Disability Rights Network, is conducting research on casemanagement services for survivors of Hurricane Katrina.
We are interviewing over 50 case managers employed by the National Disability Rights Network.
Consent
Interviewer: The interview should take approximately _30-40_ minutes to complete. Your participationis voluntary. If you do not wish to participate, you may stop at any time. Information from this interviewwill be coded so that no personally identifying information is attached to it. Should the data resulting from
your participation be made available to other researchers in the future, the data will contain no identifyinginformation that could associate you with it, or with your participation in any study.
There are no personal benefits or compensation for participating in this study; however, the informationcollected in these interviews and from the online survey will lead to the development of a report designedto support future disaster planning.
If you have any questions or problems regarding the research, the names and contact information for theappropriate person to speak with is Amy Sharp at [email protected] OR 979-845-4612.
Do you have any questions about the purpose of this interview?
[if yes, answer them at this time.]
Are you willing to participate?Yes
No
[If no] Thanks for your time. Goodbye.
[If yes] Great, then we can begin.
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These first questions are to get some basic information about your job and your previous experience.
1. What is your job title?
Are you an employee, intern or volunteer?
2. How long have you been at your current job? (in months)
3. What is the name of the agency where you are currently working?
4. What city and state is this agency located in?
5. Can you tell me a little bit about your previous work experience? (Probe for three most recent jobs. Ask about their job titles, basic job tasks, and how long they were employed in that
position.)
a. b. c.
6. Do you work for NDRN?
o Yeso No
The following questions have to do with your experience with Hurricane Katrina.
7. Are you working in an area damaged by Hurricane Katrina?
Yes
No .
8. Do you think of yourself as a survivor of Hurricane Katrina?
Yes .
No .Other (specify)
9. Did you volunteer with any organizations during the Katrina evacuation?Yes (go to 9b)
No (go to 10)
9b. If so, can you tell me a little bit about that experience?
10. How many Katrina survivor clients are you actively serving in your caseload?
11. What proportion of your case load is made up of Hurricane Katrina survivors?
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12. How many Katrina Aid Today (KAT) cases have you closed?
Examples from your experience can help us understand what your day-to-day work is like . . .
13. I’d like for you to think of a relatively recent case that you would consider a success. What do
you think made this case successful?
14. Now I’d like for you to think of a particularly challenging case. What do you think made this caseso challenging?
15. In your opinion, what are the three biggest challenges clients face in your area?
a.
b.
c.
16. Case managers working with Katrina survivors we have interviewed in other research have talked
about [cultural] differences they experience between themselves and their clients. Were theresituations where you have felt such differences? If so, can you tell me about them?
17. What advice would you give to Katrina Aid Today (KAT) in improving services for the nextdisaster?
18. In our conversations and interviews with P&A staff we have heard stories about the influence that
the KAT-NDRN staff and case managers have had on that case management and administrative practices of their colleagues in the other KAT agencies. Do you think that the participation of your P&A as part of the KAT consortium within the state had an influence on other KAT
agencies? If so, how?
19. Some case managers and administrators have expressed that the management of cases of evacuees with disabilities differs from the management of cases of evacuees without disabilities.Do you agree with this statement? Why or why not?
20. Some case managers report that recovery from disaster is more difficult for individuals withdisabilities and requires knowledge of disability services in order for a successful recovery plan to
be designed. Do you agree with this statement? Why or why not?
21. Is there anything else that you would like to tell us about your experience as a case manager?
Thank you so much for your participation. This has been very useful.
The results will be made available once the study is complete.
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