Alzheimer’s Tennessee, Inc. 26 th Annual Alzheimer’s Disease Research Symposium June 14 - 15, 2012.

Alzheimer’s Tennessee, Inc.

26th Annual Alzheimer’s Disease Research Symposium

June 14 - 15, 2012

Implementing Tennessee’s State Plan for Alzheimer’s Disease

Janice Wade-Whitehead Executive Director

Alzheimer’s Tennessee, [email protected]

Alzheimer's Tennessee, Inc. | 2270 Sutherland Avenue, Suite 202 | Knoxville, TN 37919 | 865-544-6288 | www.alztennessee.org

mailto:[email protected]

Implementing Tennessean’s State Plan on Alzheimer’s

Alzheimer’s Tennessee, Inc.2270 Sutherland Ave., Ste. 202Knoxville, TN 37919

Howard Circle of FriendsAdult Day Services Program1807 Dandridge AvenueKnoxville, TN 37915

Cumberland Plateau Office1459 Interstate Drive, Ste. 211Cookeville, TN 38501Alzheimer's Tennessee, Inc. | 2270 Sutherland Avenue, Suite 202 | Knoxville, TN 37919 | 865-544-6288 | www.alztennessee.org


• History– The Tennessee Alzheimer’s Disease Task Force was created by

state legislation effective July 1, 2007.

– The Task Force’s membership included:

– State Legislators, Rep. Joe Armstrong, Rep. Mike Harrison, Sen. Rusty Crowe and Sen. Roy Herron

– Representation from the medical community, long term care, adult day care, residential communities, community services organizations, families and individuals with Alzheimer’s disease



• Purpose

– To access the current and future impact of Alzheimer’s disease on Tennesseans

– To examine the existing industries, services and resources addressing the needs of persons with Alzheimer’s, their families, and caregivers

– And to develop a strategy to mobilize a state response to this public health crises



• The recommendations contained in the state plan are the result of the knowledge and insight gained through the personal and professional expertise brought to the Task Force by its members; input and presentations provided by individuals and groups with knowledge of the disease and its impact, such as:


Implementing Tennessee State Plan for Alzheimer’s Disease

• Tennessee Commission on Aging & Disabilities• Area Agencies on Aging & Disabilities• TN Department of Health• TN Department of Mental Health &

Developmental Disabilities• TennCare



• Testimonials provided by the citizens of Tennessee through Public Forums held throughout the State



• State Plan for Alzheimer’s Disease was submitted to the Governor’s Office and the Tennessee General Assembly on February 15, 2009.



The State Plan includes strategies to be undertaken with the following timeline:Phase 1 (within 3 years)Phase 2 (within 4-7 years)Phase 3 (within 8-10 years)



• Phase 1– Develop a comprehensive infrastructure for

Alzheimer’s disease through the Tennessee Commission on Aging and Disabilities

– Improve access to adult day care programs, respite and homemaker services, assisted living, transportation and other community-based services. (Resolution passed this year)



• Phase 1– Establish an effective, coordinated and comprehensive

surveillance system to include Alzheimer’s disease. Behavior Risk Factor Surveillance System (CDC) The first year’s date (2010) was presented in August 2011– Strengthen dementia training in geriatrics for all health

professionals including physicians, nurses, other allied professionals and members of the medical community.

Annual Research Symposium



• Phase 1– Increase and enhance training on Alzheimer’s

disease for various stakeholders. Opportunities for law enforcement training– Educate caregivers, provide support and possibly

refer to community agencies and increase awareness of the caregivers mental status during office visits.

Caregiver training sessions, training professionals, pilot program includes a social worker in a primary care physicians’ office - Innovation Grant



• Phase 1Increase and improve support, counseling and education for family and informal caregivers to provide information on available support services and importance of maintaining their own health.

Caregiver training sessions, Innovation Grant Program and the Caring Connections Program



• Phase 1– Ensure access to affordable health coverage for

Alzheimer’s disease and related dementia and mental health issues from the private sector and those not eligible for government funding

– Ensure that Adult Protective Services and Guardianship services are adequately funded to meet the needs of vulnerable adults.

Meeting with APS to understand the agency’s procedures and challenges.



• Phase 2 (4-7 years)– Provide access to affordable transportation

options in all areas of the State – including both urban and rural

– Develop driving guidelines for persons with dementia



• Phase 2– Enhance and strengthen the infrastructure to

provide a continuum of care for persons with Alzheimer’s disease and their caregivers to address the progression of the disease from mild to severe to allow flexibility to move within the care system depending on the needs of the person with Alzheimer’s disease and their families.



• Phase 2– Educate physicians and other health care

professionals to improve accurate diagnosis and appropriate treatment and referrals as early in the disease as possible.

Supported by both TCAD / AOA Innovation Grant and Caring Connections Grant



• Phase 2Establish or enhance policies, procedures and incentives to incorporate evidence-based practices into training, service and program activities. Supported by the Innovation Grant and Evidence Based Grant, Caring Connections



• Phase 2– Develop a multi-disciplinary approach in

partnerships with the Tennessee Hospital Association and Tennessee Medical Association to address Alzheimer’s disease in the hospital setting to enhance the well-being and safety of the individual.

ER Personnel training and Discharge Planners Training – Innovation Grant



• Phase 2– Partner with the TN Department of Health and the

Division of Health Care Facilities to review current dementia related regulations such as full disclosure regulation and how these regulations are being implemented and enforced.



• Phase 2– Encourage the State to explore alternative

programs of care, especially for the elderly with dementia.

– Provide support and assistance to the rapidly increasing numbers of Tennesseans and their families with Alzheimer’s disease who are above the poverty level by providing a wide array of home and community based services based on a sliding fee scale.



• Phase 2– Provide access to basic evaluations including help

for families and informal caregivers, in relation to ongoing case management.

– Provide options to increase insurance coverage for persons with Alzheimer’s and related dementias.

– Develop a plan to provide funding to individuals and /or facilities that are engaged in research on Alzheimer’s and the related dementias.



• Phase 3 (8 -10 years)– Enhance and strengthen the infrastructure to

provide a continuum of care for persons with Alzheimer’s disease and their caregivers to address the progression of the disease from mild to severe and to allow flexibility to move within the care system depending on the needs of the persons with Alzheimer’s disease and related dementias and their families.


House Joint Resolution 734

A resolution urging the Tennessee Commission on Aging and Disability to coordinate a state communication plan, including a public service announcement that will inform the public about the Tennessee Aging and Disability Resource Center’s toll-free number (1-866-836-6678) for information and assistance to older persons, adults with physical disabilities, caregivers and professionals looking for services or programs available in Tennessee – effective May 1, 2012


2012 Federal Priorities

SPRINT (Spending Reductions through Innovations in Therapies Agenda Act of 2012)

(Senate- B.Mikulski, S. Collins, R. Blumenthal, J. Kerry House- E. Markey, C. Smith)

Accelerates public and private research funding and streamline the regulatory review of treatment for Alzheimer’s and other life-threatening diseases.

Aims to slash federal spending on long-term healthcare costs by stimulating research that helps prevent or treat expensive, chronic diseases that have no cure, such as Alzheimer’s, diabetes and cardiovascular diseases. If passed, the bill would simultaneously provide seed money to stimulate development of promising new

therapies, require a 2:1 ratio of private to federal funding, and help speed review of potential therapies by the Food and

Drug Administration (FDA).



HOPE for Alzheimer’s Act (Health Outcomes, Planning, and Education for

Alzheimer’s Act) (S.738/HR 1386) (Senate- D. Stabenow and S. Collins House- E. Markey and C. Smith)

Hope for Alzheimer's Act will improve diagnosis of Alzheimer’s disease and increase access to information, care and support for newly diagnosed individuals and their families – providing essential support for those

facing this disease.Alzheimer's Tennessee, Inc. | 2270 Sutherland Avenue, Suite 202 | Knoxville, TN 37919 | 865-544-6288 | www.alztennessee.org


STAMP TO HELP FUND ALZHEIMER’S RESEARCH(H 351/S 176) (Senate- B. Mikulski / House- E. Markey)

Proceeds from the sales of the Alzheimer’s Stamp would help fund Alzheimer's research at

the NIH.



Become An Advocate!

• Advocacy is a major component of Alzheimer’s Tennessee mission.

• Advocates are people with Alzheimer’s and related dementias – along with caregivers, friends, families and professionals whose voice together are a powerful tool for change and hope for a future without Alzheimer’s

• Together we can make a difference on a local, state and federal level. Sign up today!

Alzheimer’s Tennessee, Inc.2270 Sutherland Ave., Suite 202

Knoxville, TN 37919www.alztennessee.org


Alzheimer’s Tennessee, Inc. 26 th Annual Alzheimer’s Disease Research Symposium June 14 - 15, 2012.

Documents

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