Alzheimers Innovation 2013

© 2013 Griswold International, LLC© 2013 Griswold International, LLC

A National Plan to Fight Back

Alzheimer’s Disease Innovation 2013

© 2013 Griswold International, LLC

November isNationalAlzheimer’sDiseaseAwarenessMonth

“During National Alzheimer's Disease Awareness Month, we

stand united in our commitment to improve care for Alzheimer's patients, identify new therapies for the disease,

and support all those whose lives have been touched by this

tragic ailment.”

Excerpt from President Obama’s Proclaimation

November isNationalFamilyCaregiversMonth

“Family members, friends, and neighbors devote

countless hours to providing care to their relatives or loved ones.

During National Family Caregivers Month, we recognize and thank the

humble heroes who do so much to keep our families and communities strong.”

Excerpt from President Obama’s Proclaimation



Goals for Today• Review the National Alzheimer’s Plan 2013 and share tools for

reaching key goals and overcoming challenges

• Share innovative non-medical Alzheimer’s treatment approaches

• Empower clients and their family/professional caregivers to fight Alzheimer’s Disease through quality care, advocacy, education and support

Presented by:

Linda BarbaFamily Caregiver, Advocate and Support Group Facilitator

Chris Kelly, MEd Director of Learning and DevelopmentGriswold Home Care


Thank you for your courage, energy, and dedication!

Professional CaregiversHealthcare Providers

Family Caregivers Clients Living with Alzheimer’s


Brainwriting is…• a fun, engaging way to brainstorm• sharing as many ideas as possible within a short timeframe Brainwriting Process• Listen for our questions• When prompted, enter your solutions using the webinar chat function• Don’t overthink or agonize…There are no right or wrong answers Brainwriting Outcomes• Peer-to-peer learning and sharing• A publication that benefits others who are living with Alzheimer’s Important• Avoid sharing any information that you would not want others to see

BRAIN WRITINGSolutions

Orange Arrow Button: Minimizes or expands the GoToWebinar control panel.


Lit Review

Social Media

Advocacy

Solutions Webinar & Toolkit



Memory loss that disrupts life

Problems with planning andproblem-solving

Struggle to completefamiliar tasks

Confusion with person,place and time

New problems withreading, writing or speaking

Misplacing things inunusual places

Decreased or poor judgment

Changes in mood or personality

Changes in movement/coordination

Agitation and/or aggression

Sundowning

Wandering

Inability to eat or swallow

Challenging Symptoms


“I feel like I have been hearing about ‘plaques’ and

‘tangles’ for 15 years. Isn’t there anything new that would generate hope and excitement for people living with this horrible disease? All you hear is the negative. You can’t help but develop a sense of

helplessness. Helplessness can be paralyzing.”

Family caregiver quote


A National Planto Address

Alzheimer's Disease

Source: http://aspe.hhs.gov/daltcp/napa/NatlPlan2013.pdf


USDHHS Identifies 5 Key Priorities

Prevent and Effectively Treat Alzheimer’sDisease by 2025

Enhance Care Quality and Efficiency

Expand Support for People with Alzheimer’sDisease and Their Families

Enhance Public Awareness and Engagement

Improve Data to Track Progress


Alzheimer’s Association 10 Core Challenges

A lack of public awareness

Insufficientresearch funding

Difficulties with diagnosis

Poor dementia care

Inadequate treatments

Specific challenges facing those with younger-onset Alzheimer’s

Unprepared caregivers

Ill-equipped communities

Mounting costs

Specific challenges facingdiverse communities

Alzheimer’s Association Top Challenges: http://www.alz.org/documents_custom/napareport.pdf

- Lou Gehrig


Real Stories



Prevent & Effectively Treat Alzheimer's DiseaseA Focus on Non-Medical Treatment Approaches


"If you say Alzheimer's, everyone immediately thinks

that it's the plaques that actually cause the disease. That couldn't

be further from the truth…the data actually suggests these plaques are a form of

protection that the body tries to put on.”

Andrew Dillin, of the Salk Institute in California and the Howard Hughes Medical Institute

“While research on AD has made

steady progress, there are no pharmacological or other interventions to definitively prevent,

treat, or cure the disease.” National Alzheimer’s

Plan excerpt


“NPTs emerge as a useful, versatile and potentially cost-effective approach to

improve outcomes and quality of life for both the

person with dementia and caregivers.”

Javier OlazaránNeurologist and NPT Researcher


Cognitive training and rehab(individual and group)

Reminiscence

Personalized music

Creative expression(writing, scrapbooking)

Physical activity/Staying active

Support groups

Yoga/Tai Chi/Meditation

Combining all of the above

Improve Cognitive Symptoms

Source: http://www.nptherapies.org/pdf/Non-pharmacological%20Therapies%20in%20AD,%20a%20Systematic%20Review%20of%20Efficacy.pdf


Improve Activities of Daily Living (ADLs)

Yoga/Tai ChiADL training

Physical activity/Staying activeGuided performance


Improve Mood and Peace of Mind

Adult day care

Memory care center

Meditation/Yoga/Tai Chi

Validation therapy

Support

Cognitive BehavioralTherapy (CBT)

Meaningful diversion

Personalized music


Improve Quality of Life forFamily Caregivers

In-home counseling sessions

Cognitive BehavioralTherapy (CBT)

Ongoing telephonesupport/coordination

Online connectionwith peers/HCPs

Education:- Coping skills- Problem solving

Support groups (with and w/o client)


Alzheimer’s Disease Treatment Toolkit

http://bit.ly/1cOTZiY

Latest Treatment Optionshttp://bit.ly/1fx7kK8

NICE.org.uk

http://bit.ly/1isrbga

The Society for Cognitive Rehabilitationhttp://bit.ly/1aGi5rZ

Recollection Connection


Enhance Care Quality & EfficiencyA Focus on Care Coordination, Empowerment & Recognition


Effective Care Coordination Practices

Develop a single point of contact for clients/families

Form a multi-disciplinary care team that communicates effectively

Develop a personalized action plan for clients/families

Offer ongoing, dynamic Learning/Development opportunitiesfor dementia care professionals

Learn from best practice dementia care models:


A Dynamic Dementia Care Team

Social Worker/Geriatric

Care Manager

MassageTherapist

FacilityProfessionals

Home careProfessional

Adult Day CareProfessional

Nurse

Geriatric PsychiatristNeurologist/Geriatrician

RehabProfessionals:OT/PT/Speech

PCP/NP/PA

CognitiveBehavioral

Therapist (CBT)

DieticianCognitive

RehabilitativeTherapist (CRT)

RecreationalTherapist


Real Stories



Care Coordination Toolkit

http://bit.ly/17lKTT2

Alzheimer’s Quality of Carehttp://bit.ly/1aR0IHw

CDPH.ca.govhttp://bit.ly/1a0Nq9f

Working With Providers


Quality Care Toolkit

http://1.usa.gov/1e1fQAE

AD Research Centershttp://bit.ly/1fT52W4

IPCed Professional Training

http://bit.ly/17JB2qq

Alzheimer’s Association Professional Training


Expand Support for People with Alzheimer’s Disease

& Their Families


Improving the Experience

Widespread lack of knowledge/understanding aboutAlzheimer’s Disease

High level of public/professional stigma

Negative experiences for people living with AD

Poor understanding of the scope of Alzheimer’s Disease

Isolation for clients and caregivers

Lack of targeted services and support for those living withYounger-Onset AD

Core challenges:


http://bit.ly/1aCBXIT

Overcoming Stigmahttp://bit.ly/1hCSeHI

Confronting Ageism and Stigma

Expanding Support Toolkit

http://bit.ly/16YR1mY

AD Support GroupsAD Support Groupshttp://bit.ly/1hIafBU

Early Onset AD Info


Real Stories


Enhance PublicAwareness & Engagement



Understand the Scope

http://to.pbs.org/1cjMpI7

PBS: The Forgettinghttp://1.usa.gov/1a10RWQ

Alzheimer’s Basics

http://bit.ly/HPpewl

What is Alzheimer’s?http://bit.ly/1bzGLBJ

About Alzheimer’sWhat is Alzheimer’s?


Enhance Engagement

http://bit.ly/HV5zKU

Alz. Foundation of Americahttp://bit.ly/17ROVbJ

Fisher Center for AD

http://bit.ly/HS1KXK

Alz Assoc Advocacy: Join The Cause


Real Stories



Key Takeaways

Review the National Alzheimer’s Plan and get involved

Effective care coordination is critical

Let’s work together to “improve the experience” for thosewho are living with AD

Non-medical treatment approaches DO offer promise andhope today


Open Q&A

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2. Type questions here


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