C ORPORATE A NNUAL R EPORT Alzheimer’s Community Care 2014 “We place a safety net around patients and caregivers every day.” ™
C o r p o r a t e a n n u a l r e p o r t
Alzheimer’s Community Care
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“We place a safety net around patients and caregivers every day.” ™
Alzheimer’s Community Care was founded in 1996, when a group of local donors, caregivers and community
leaders came together in response to the growing number of local residents diagnosed with Alzheimer’s
disease. Many of these individuals had family members who were being affected by Alzheimer’s. They
established a local dementia-specific service organization exclusively dedicated to the needs of patients
and caregivers living with the daily challenges of Alzheimer’s disease and related neurocognitive disorders.
The organization’s mission has always included a dual focus on helping both the patient and the caregiver.
All funds raised are committed to supporting its community-based programs and services.
Alzheimer’s Community Care’s first programs included two Family Nurse Consultants and three dementia-
specific Care Centers located in Boca Raton, Delray Beach and Pahokee. Through its 18 years of service the
organization has grown to include a comprehensive safety net of community-based services and resources
for Alzheimer’s patients, caregivers, and the Palm Beach, Martin and St. Lucie communities. Programs and
services now include nine (soon to be 11) Specialized Alzheimer’s Care and Service Centers, seven Family
Nurse Consultants, 24-hour Alzheimer’s Crisis Line, ten Caregiver Support Groups, Case Management,
Professional and Community Education and Specialized Disaster Preparedness.
48.5 %growth in formal training hours
379,472hours of compassionate care provided
1,532patients & caregivers served by our FNCs
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Alzheimer’s Community Care is recognized as a leader in providing dementia-specific,
community-based services. The organization is the only community-based organization in
the State of Florida addressing the needs of both Alzheimer’s patients and family caregivers.
As stated in our strategic vision, “We place a safety net around patients and caregivers
every day.” ™
ALZHEIMER’S COMMUNITY CARE IS A TAX-EXEMPT 501 (C) 3 NOT-FOR-PROFIT ORGANIZATION. REGISTRATION #CH7588. A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE (800) 435-7352 WITHIN THE STATE. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE.
© 2015, Alzheimer's Community Care, Inc.
The mission of Alzheimer’s Community Care is to promote and provide specialized, quality and compassionate
care within a community-based environment for patients and caregivers living with Alzheimer’s disease and
related disorders.
Quick Facts
90 Cents of Every Dollar goes to Services and Resources
Florida based 501(c)(3) non-profit organization founded in 1996 to provide specialized care to patients and
caregivers living with Alzheimer’s disease and related disorders.
Alzheimer’s Community Care’s team of professionals is educated, skilled and trained in dementia-specific care.
Services include Specialized Adult Day Service Centers, Family Nurse Consultants, 24-hour Alzheimer’s Crisis
Line, Support Groups, Case Management, Education, Training and Advocacy.
The organization ensures the well-being of patients and caregivers while preserving their dignity within a
community-based environment.
Alzheimer’s Community Care serves as an innovative model of care by providing services and resources that
are accessible, affordable, and individualized.
Proudly serving Palm Beach, Martin and St. Lucie Counties.
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To our Supporters and Friends, The 2013-14 Annual Report reflects our commitment to provide the highest quality of dementia-specific care within an efficient and cost effective model-of-care. We are so proud of our numerous accomplishments during this past fiscal year, as listed below:
The first achievement was opening the newly renovated Phyllis and Julius Siegel Alzheimer’s Care and Service Center in Boca Raton. For over 18 years, our Specialized Alzheimer Care and Service Center was housed within Advent Lutheran Church’s fellowship hall. Now, it is located in its own free-standing building thanks to the partnership with the church and the philanthropic generosity of Ron Siegel. We now operate nine community based centers and all are licensed Specialized Alzheimer’s Day Care and Service Centers.
The second achievement is becoming accredited by the Joint Commission under Behavioral Health. Being accredited is a major accomplishment, and one that was a complete organizational effort. Everyone at Alzheimer’s Community Care contributed to this process and we all deserve to take credit for this hallmark accomplishment.
The third accomplishment was the establishment of our Education and Quality Assurance Department, led by Vice President Karen Gilbert. Paula Menigoz, previously the Family Nurse Consultant for Palm Beach County’s southern area, has become the new project manager for the ID Locator Bracelet Program.
There are other achievements that are too numerous to mention. However, we are indeed proud of our ability to maximize our resources, as evidenced by the fact that 90 cents of each donated dollar is used for direct services and resources. We also encourage you to subscribe to our quarterly magazine and follow us on Facebook and Twitter so you can stay up-to-date with everything going on in the organization.
Further financial information is detailed in this report and can also be found at www.alzcare.org. We are proud of this report because it reflects our commitment to do more with less.
I would like to share with you some words of wisdom that we here at Alzheimer’s Community Care value:
“People will forget what you say, people will forget what you do, but people will never forget how you make them feel.”
I hope that when you think of the work we do, and the mission we execute that you feel good about what we do and you feel inspired to support Alzheimer’s Community Care, emotionally and financially for as long as we are relevant to our communities and families.
Warm regards,
Mary M. BarnesPresident and CEO
Judith B. Rappaport
Vice Chair, Since 2008
James F. Gregory
Treasurer/Founder, Since 1996
Randy K. Johnson, Sr.
Assistant Treasurer, Since 2000
Robert J. Gorman
Secretary, Since 2005
Thorton M. “Tim” Henry
Board Member, Since 2000
G. Mark Shalloway
Board Member, Since 1996
Tenna Wiles
Board Member, Since 2011
Kevin Wrenne
Board Member, Since 2012
Bonney A. Johnson
Board Member, Since 2013
Dr. Patrick Halperin
Board Member, Since 2013
William Armstead
Board Member, Since 2013
Mary M. Barnes
President & CEO, Since 1996
C O R P O R A T E A N N U A L R E P O R T | 5
Clark D. Bennett
Chairman of the Board, Since 2006
Our Board
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RevenueProgram Services $3,450,490 55%
United Way $161,600 3%
Government Grants $460,183 7%
Development $1,837,445 29%
Organizational Reserves $366,730 6%
Total: $6,276,448 100%
Statement of Activities
ExpendituresDaycare $4,100,624 65%
Case Management $289,358 4%
Other $34,202 2%
Family Nurse Consultants $916,001 14%
Education and Training $321,634 5%
Management and General $234,074 4%
Development $380,555 6%
Total: $6,276,448 100%
C O R P O R A T E A N N U A L R E P O R T | 7
Program Services
55%
United Way3%
Government Grants
7%
Development29%
Organizational Reserves
6%
Revenue
Daycare65%Case
Management4%
Other2%
Family Nurse Consultants
14%
Education and Training
5%
Management and General
4% Development6%
Expenditures
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Community Supporters
Addison Hines Charitable Trust
Allegany Franciscan Ministries
Always Best Care
Anna M. Moldrup Foundation
Arden Courts Memory Care
Barrington Terrace Assisted Living and Memory Care
BallenIsles Charities Foundation
The Batchelor Foundation
The Bay Branch Foundation
Bernard Egan Foundation
Ms. Beth Schatman
Brightstar Care
C. Kenneth & Laura Baxter Foundation
Chatsworth at PGA National
Christian Foundation
City of Boca Raton
ComForcare Home Care
Community Foundation for Palm Beach and Martin County-Kirkwood Fund
Cultural Council of Palm Beach County
E. Lafayette & Etienette A. Quirin Foundation
Ellen Williams & Associates
Family Caregiver Alliance
Feig Family Foundation
Fleming & Fleming
The Fortin Foundation of Florida
Frances Langford Foundation
Frenchman’s Creek Charities Foundation
George Wedgeworth
Gerald Berson
Google AdWords Grant
Gordana Uscumlic Foundation
Grand Villa Senior Living Community
Hobe Sound Community Chest
Hospice of Palm Beach County
Howard Hill Foundation
Hugh H. Branch, Inc.
International Society of Palm Beach
Jarden Consumer Solutions
JL Cares
J.M. Rubin Foundation
John & Nellie Bastien Memorial Foundation
Jr. League of Boca Raton
Kiwanis Club of Riviera Beach
Kroll Family Charitable Fund
Lawrence & Marjorie Stoll Foundation
Lee Millman Respite Fund
We would like to thank all of our Community Supporters whose generosity
allows Alzheimer’s Community Care to provide services and resources to
caregivers and patients who are suffering from Alzheimer’s disease and
related neurocognitive disorders. We are deeply grateful for your generosity.
Following are supporters with gifts of $500 or more
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Leo & Anne Albert Charitable Trust
Loblolly Community Foundation
Lottie French Lewis Fund
Louis Cassett Foundation
Martin County BOCC
Martin Health System
Mary Alice Fortin Foundation
Memory Disorder Center at St. Mary’s
MFuge
MGN Family Foundation
Millman Foundation
Nordstrom
Ocie V. Miller Memorial Foundation
Pacifica Senior Living
Palm Beach Country Club Foundation
Palm Healthcare Foundation
Parrot Heads for the Palm Beaches
PBC Sheriff’s Office
Pilot Club of Fort Pierce
Phyllis & Milton Berg Family Respite Care
Publix Super Markets Charities
Quantum Foundation
Raymond George and Ruth Bitner Fisher Foundation
Rosalinde & Arthur Gilbert FoundationRehab Home Health
Rhoda & David Chase Family Foundation
Ronald M. Siegel—Julius Siegel Living Trust
The Royal Foundation
Royal Poinciana Chapel
Sandy Hill Foundation
Schwartz Law Group
Season to Share—Palm Beach Post
Shalloway and Shalloway
Town of Palm Beach United Way
Treasure Coast Hospice
TrustBridge Health
Trusted Homecare Services
United Way of Martin County
United Way of St. Lucie County
VITAS Community Connection
W. Bradford Ingalls Charitable Foundation
Walter & Adi Blum Foundation
Walter & Barbara Bauke Foundation
Weiler Foundation
William & Helen Thomas Charitable Trust
1 0 | C O R P O R A T E A N N U A L R E P O R T
Family Nurse ConsultantsThe Family Nurse Consultant (FNC) Program serves as a life line for families in Palm Beach,
Martin and St. Lucie Counties who are living with Alzheimer’s disease and related disorders.
The program’s goal is to provide caregivers with the support, tools and resources needed
to continue providing home-based care for their loved ones.
The Family Nurse Consultant program incorporates
best practices for home-based dementia-specific care
as demonstrated through research by the Fisher Center
for Alzheimer’s disease. The best practices include
educating caregivers about the disease, counseling
and supporting the caregiver, and strengthening
social supports and family relationships. As a result,
caregivers are well informed, less isolated and better
equipped to provide care at home.
The results equate to improved quality of life and safety
for both the patient and the caregiver. In 2014, 92%
of patients served by our FNCs were able to continue
living at home with family members rather than be
admitted to nursing homes.
Seven Registered Nurses serve as our FNCs. They are
specially trained in treating dementia and provide
support 24/7, 365 days a year. Our FNCs provide inter-
ventions, home visits, needs assessments and care
plans designed to meet the needs of the patient and
family caregiver throughout all stages of the disease.
These interventions have proven to reduce caregiver
stress, and delay or eliminate the need for nursing
home placement. The FNC program helps reduce
physician office and emergency room visits. FNC
services are provided without charge to Alzheimer’s
patients and caregivers and are entirely supported
by donations and grants.
• Number of Patients and Caregivers served in
the 2014 Fiscal Year, broken down by counties
(Palm Beach, Martin, St. Lucie counties).
1. Palm Beach - 1,007
2. Martin - 221
3. St. Lucie - 304
• Number of patients living alone - 66
• Home visits completed - 209
• Total calls answered - 1597
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Specialized Alzheimer’s Care and Service CentersSpecialized Alzheimer’s Care and Service Centers are essential in intervening and providing
respite care for caregivers while simultaneously providing dementia-specific, community-
based services for patients.
Specialized Alzheimer’s Care and Service Centers are
designed to provide the tools for Alzheimer’s patients
and family caregivers to maintain their quality of life. In
order to accomplish this, patients receive comprehen-
sive dementia-specific care, which lessens the impact
of behaviors associated with Alzheimer’s disease.
Caregivers benefit with essential daily intervention
that results in improved personal health, stress
reduction and respite from the 24/7 burden of caring
for their loved one at home. Each Care and Service
Center provides a safe, supportive and individualized
environment for Alzheimer’s patients.
Physical exercise, socialization, cognitive stimulation
and medical monitoring are some of the benefits
patients receive. Alzheimer’s Community Care admin-
isters nine dementia-specific centers, seven in Palm
Beach County, one in Martin County and one in St.
Lucie County.
Assurance of quality control is provided by the Vice
President of Community Care Services, a registered
nurse with extensive knowledge and experience in
dementia-specific care. The Care and Service Centers
maintain a 5:1 patient-to-staff ratio and are licensed by
the Agency for Health Care Administration in accord-
ance with Chapter 400, Part V, Florida Statutes, and
Chapter 58 A-6, Florida Administrative Code.
• Total Patients served in the 2014 fiscal year
in day care, broken down by counties (Palm
Beach, Martin, St. Lucie)
1. Palm Beach - 347
2. Martin - 67
3. St. Lucie - 61
• Hours of care provided – 379,472
• 24-hour Alzheimer’s Crisis Line
1. Total – 157
2. Caregivers – 95
3. Law enforcement – 8
4. Other - 54
• Number of information and referral calls per
month - 30
Education & Quality Assurance
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Alzheimer’s Community Care’s Education and Quality Assurance Department provides dementia-
specific education and training, training in regulatory compliance, staff orientation and training,
policy and procedure development and maintenance, as well as oversight of special projects.
The Department monitors and maintains ongoing compliance with the organization’s quality,
performance, and state and regulatory standards, and performs evaluation and analysis of
planned objectives and outcomes.
In this past year, Education and Quality Assurance has
standardized the orientation of Alzheimer’s Community
Care’s clinical staff. These staff include: Family Nurse
Consultants, Program Managers, Program Nurses,
Program Assistants and Activity Coordinators. New staff
members are also required to demonstrate education
and competency in their first days of employment,
and in compliance with the latest, high standards of
our accrediting body, The Joint Commission.
Alzheimer’s Community Care also developed a plan for
enhancing the education of local Registered Nursing
students by establishing procedures for providing
clinical experiences for these future nurses.
This plan included structured orientation and formal-
ized agendas for active student participation in the
activities of our Specialized Alzheimer’s Care and
Service Centers, with the goal of orienting future
nurses to our community-based model of care and
demonstrating effective interventions for patients
with Alzheimer’s disease and related neurocognitive
disorders.
The initial plan provided for clinical rotations for
students of the Palm Beach Atlantic University Bachelor
of Science in Nursing Program. Future plans include
extending the program to additional area universities.
The Education and Quality Assurance Department
also expanded education in the community, providing
numerous disease-specific educational programs to
community groups, law enforcement, emergency first
responders, and related health care providers, such
as skilled nursing facilities, assisted living facilities
and adult day centers.
Toward the end of the fiscal year, the Department
C O R P O R A T E A N N U A L R E P O R T | 1 3
began to frame goals and objectives for achieving
Disease-Specific Care Certification from The Joint
Commission, a level of recognition that goes beyond
our Accreditation in measurably demonstrating the
effectiveness of Alzheimer’s Community Care’s various
programs and services, and validating the outcomes
that we help our patients and caregivers achieve.
Education
• Total number of formal training hour, broken down as follows: ACC Staff, Family Caregivers,
Professional Caregivers, Government, First Responders, Other (Service Organizations, etc.):
ACC Staff - 98
Family Caregivers - 116
Professional Caregivers - 93
Law Enforcement/First Responders - 147
Adult Protective Services - 40
Professional Guardians - 41
Community Organizations - 57
Total - 592
Support Group Attendance
• Caregiver Support groups:
Eleven support groups – Palm Beach, Martin and St. Lucie Counties
Total attending support groups in 2013-14 Fiscal Year - 517
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24-Hour Alzheimer’s Crisis LineThe 24-Hour Crisis Line provides the caregiver with a lifeline of understanding and
guidance that helps them survive the many stages of Alzheimer’s disease and other
related neurocognitive disorders.
The 24-hour Alzheimer’s Crisis Line serves Palm Beach, Martin and St. Lucie counties. Family Nurse Consultants
(FNC), on-call 24/7, answer calls that include crisis calls, responding to questions and relieving caregiver anxiety.
A nurse will arrange for emergency respite care when needed. Since 60% of Alzheimer’s patients are at risk for
wandering, the Crisis Line connects our on-duty nurse to law enforcement for assistance during search and
rescues. The Crisis Line is also an excellent crisis management resource for caregivers.
In 2013-2014, our FNCs received 4,441 calls for assitance and referrals from family caregivers. In all cases, the
on-call FNC responded to the inquiry, followed-up as appropriate, and linked the family to essential services
and resources.
• 24-hour Alzheimer’s Crisis Line, broken down
as follows: Number of caregivers who called,
number of law enforcement who called, and
other.
1. Caregivers - 95
2. Law Enforcement - 8
3. Other - 54
Total - 157
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ID Locator Bracelet The Alzheimer’s Community Care ID Locator Bracelet program provides an additional safety net
tool for patients with dementia who may wander away from safe and supervised settings. This
program partners with SafetyNet by LoJack and local law enforcement to assist the wandering
patient and their family. Our pilot project is working with 75 patients. An additional 75 bracelets
will be added to this project in 2015 thanks to generous support from The Jim Moran Foundation.
This is a vital program, as 125,000 persons with Alzheimer’s disease or related neurocognitive disorders wander
away from safety each year. Prompt location of the patient is essential because 80 percent of those lost for more
than 72 hours will not survive the event.
• The following patient totals were served from 7/1/2013-6/30/14 by the ID Locator Service:
1. Palm Beach County - 79
2. Martin County - 16
3. St. Lucie County - 30
Total - 125
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Volunteer ServicesOur volunteers are the organization’s community ambassadors; they work diligently to help
the organization make a difference.
• Current Volunteers - 207
• Hours Served - 6,517.89 volunteer hours
• Total Value Wage - $139,222.14
Digital FootprintThere are over 3 billion internet users in the world according to Statista. Approximately
40% of the world population has an internet connection. As caregivers become younger it
is vital to provide a credible and easily accessible resource. We pride ourselves on always
providing the most up-to-date information, and our registered nurses are always vetting
new techniques that may be of help to caregivers. Alzheimer’s Community Care has also
created a mobile-specific website that is tailored to your mobile phone. As the digital age
continues to evolve we are very proud of the following 2013 – 2014 accomplishments:
Website
• 74,650 unique page views. That’s over 6,220 page views per month!
• Average time spent on website: Three minutes and twenty seconds
• Average amount of pages visited per session: 2.71
Google AdWords
Google Ad Grants is the nonprofit edition of AdWords, Google’s online advertising tool. Google
Ad Grants empowers nonprofit organizations, through $10,000 per month in in-kind AdWords™
advertising, to promote their missions and initiatives on Google search result pages. This equals
$120,000 over a calendar year. Google AdWords allows us to create ads for Google’s search engine
and increase the visitors coming to our website.
• Alzheimer’s Community Care had 1,300 visits to our website via Google AdWords during
the 2014 Fiscal Year.
alzheimerscommunitycare @alzcareorg AlzCare
Social Media
Follow us on Facebook, Twitter and Pinterest to stay up-to-date with the organization.
CO R P O R AT E A N N UA L R E P O R T | 1 7
Center Locations1 8 | CO R P O R AT E A N N UA L R E P O R T
Boca Raton
Phyllis & Julius Siegel Alzheimer’s Care & Service Center
Location: Advent Lutheran Church
4680 North Dixie Highway
Boca Raton, FL 33431
License #: 9252
Monday - Friday, 7:30am - 5:30pm
Phone: (561) 391-6955
Fax: (561) 392-7967
Delray Beach
Betty Kroll Specialized Alzheimer’s Care & Service Center
Location: Seacrest Presbyterian Church
2703 N. Seacrest Blvd.
Delray Beach, FL 33444
License #: 9128
Monday - Friday, 7:30am - 5:30pm
Phone: (561) 330-3541
Fax: (561) 330-3621
Lake Worth
Location: Our Savior Lutheran Church
1615 Lake Avenue
Lake Worth, FL 33460
License #: 8852
Monday - Friday, 7:30am - 5:30pm
Phone: (561) 585-7781
Fax: (561) 585-7317
West Lake Worth
Se Habla Español
Location: 3680 Lake Worth Road
Lake Worth, FL 33461
License #: 8998
Monday - Friday, 7:30am - 5:30pm
Phone: (561) 432-0668
Fax: (561) 432-9640
West Palm Beach
Location: Baxter Complex
800 Northpoint Pkwy, Suite 101-A
West Palm Beach, FL 33407
License #: 8837
Monday - Friday, 7:00am - 6:00pm
Phone: (561) 683-2700
Fax: (561) 683-7600
Palm Beach Gardens
Location: Nativity Lutheran Church
4075 Holly Drive
Palm Beach Gardens, FL 33410
License #: 8940
Monday - Friday, 7:30am - 5:30pm
Phone: (561) 630-4724
Fax: (561) 630-8959
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Pahokee
Leo and Anne Albert Alzheimer’s Care and Service Center
Location: 470 Barack Obama Boulevard (Formerly East
First Street)
Pahokee, FL 33476
License #: 9032
Monday - Friday, 7:30am - 5:00pm
Phone: (561) 924-7283
Fax: (561) 924-6295
North Stuart
Location: Prince of Peace Lutheran Church
2200 N Federal Hwy.
Stuart, FL 34994
License #: 8928
Monday - Friday, 7:30am - 5:30pm
Phone: (772) 692-6981
Fax: (772) 692-7023
Ft. Pierce
Location: St. Peter’s Lutheran Church
2900 South Jenkins Road
Fort Pierce, FL 34981
License #: 9046
Monday - Friday, 7:30am - 5:30pm
Phone: (772) 466-3261
Fax: (772) 466-9266
Thank You for taking the time to read our
2014 Annual Report. For more information
on Alzheimer’s Community Care, including
how you can help support the organization,
please call (561) 683-2700, or visit us online
at www.alzcare.org.
“We place a safety net around patients and caregivers every day.” ™