All about the Glu (myglu.org) online community

with Glu you can

support empowereducate

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The Exchange Model

PATIENT PUSH/PULLCLINICAL

REGISTRY 26,000+ patients

BIOREPOSITORY

Access to 100,000+ T1D

patients across 65+ U.S.

clinics

5,000+ membersOnline registryOnline surveys

IRB

Open to all T1Ds and caregivers

An Integrated Model For Research

Clinic Netwo

rk

Clinic Regist

ry

Biobank

Glu

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• 69 clinics• 100K+ Type 1s• 100+ clinicians • Adults & Peds• Leading KOLs• Ethnically diverse

• 26,000+ patients• 150 parameters

tracked• Longitudinal study • Coordinated IRB• Annual updates• Specialty Modules

• 5,000+ Members• Real world data• HIPAA • On-line research

• 1,000 C-peptide study

• 6,000 samples• Well

characterized • Protocol

development

Glu Team

Glu Community Manager • Diagnosed with T1D at 8 years

old• 70,000+ finger sticks• 65,000+ insulin injections• 4 insulin pumps• In 2007 made his first video on

living with diabetes• His positive and inspirational

videos have received over 1 million views

• Founder of 1HappyDiabetic.com

• Top 1% most endorsed in the US for Diabetes on LinkedIn

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Glu Team

Glu Outreach Manager • Diagnosed with T1D at 6 years old

• 8 different Medic-alerts bracelets

• My first glucose meter took 120 seconds for a result

• Already pricked my finger 4 times today

• Diabetes Camper & Counselor for life!

• MSW from WashU in 2009• Belize and Bermuda via AYUDA• Created Youth Leader Program

at ADA New England in 2009

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Question of the Day

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Question of the Day

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Question of the Day

Education & Study Recruitment 9

Glu Research Studies10

Diabetes News & Articles11

Real Life Discussions12

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Glu User Experience

“It’s the little things that matter with diabetes-and Glu gives you the best knowledge right at your finger tips.”

“I rely on my Glu family. The daily questions make me feel like someone is actually thinking about my diabetes.”

“Glu is very friendly and very supportive, I enjoy posting, responding, and learning from everyone on here.”

“For first time in 64 yearsI can communicate with people who also have type 1 diabetes, and discuss issues I’ve always wondered about but never had anyone to ask.”

“I've had Glu for nine

months now. I'm much happier.”

“Glu has changed my life.”

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Your Colleagues Are Saying…

“Glu helps me discuss diabetes in a more professional way.”

“It’s great for newly diagnosed patients and ones with diabetes burnout. It helps keep them engaged.”

“Glu helps give my patients purpose.”

“I just love the range of questions and options on Glu.”

“It’s accurate information in real-time. No misinformation on Glu.”

“It’s practical, there are no right or wrong answers, no guilt or shame.”

“Glu is made up of real people. Once you enter into a clinical study you are a number, not here.”

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I Feel Understood

Always Available

Coping with Diabetes

“I don’t know anyone else who has type 1 diabetes so the discussions are really useful information, to vent our frustrations, to make you feel like you are not alone.”

“Sometimes having type 1 diabetes fills your cup right up to the brim and one more drop it will over flow. This site is the saucer to catch the over flow.”

Benefits to Online Communities

“I see my Endo every 6 months or so. This site is there all the times in between when I don’t need a medical opinion.”

Dodson, S., Gilbert, K., Gill, M., et al. Online Communities Are Valued by People With Type 1 Diabetes for Peer Support: How Well Do Health Professionals Understand This? 2012 , 25 (3) 180-191.

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Feel Supported

Connection and Interaction with

Peers

Self-reflection

“I get general support during the tough times such as pregnancy when the guilt and fear levels are high, or when I just need to grumble about diabetes in general.”

“I spend a lot of time whether consciously or unconsciously thinking about diabetes…which I find to be a chore and a bore. This site makes it more enjoyable for me.”

“I like to read other people’s experiences. It helps to confirm that others are in the same boat as me.”



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Sense of Community

Active Community and

Diverse Perspectives

“The sense of belonging is really important, it helps in all aspects of your life. You all have the same thing in common, one common link that brings you together.”

“Being able to offer support that is appreciated is really valuable. It makes you feel that your journey and the choices you’ve made are worthwhile and purposeful.”


“It’s great because the community has a large scope of diabetics. I feel as though I can identify with many here.”

Sense of Purpose


Frequently Asked Questions

Who can be a member of Glu?

A. Anyone living with T1D

B. Medical professionals

C. T1D Exchange clinical registry participants

D. Parents of people affected by T1D

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Answer: A,C, & D

Glu is for all who are living with type 1 diabetes, LADA, and

caregivers (parents) of people with type 1.

In the future, we hope to expand the community to include other family members and healthcare

providers.

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Is Glu free to use?

A. Yes, Glu is completely free

B. No, the 30-day free trial period is followed by an annual fee of $9.99

C. No, Glu’s website is free but you have to pay $1.99 to use the mobile app

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Answer: A

Glu is a free site and does not charge members any fees for use.

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Who monitors the content on Glu?

A. Glu is not monitored

B. Glu is monitored 7 days a week by medical professionals

C. Glu is monitored by T1D Exchange staff 7 days a week

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Answer: C

Glu is monitored by the T1D Exchange staff 7 days a week.

Glu has a self-reporting feature for members to report site abuse.

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Glu Member Self-Reporting24


What type of content am I not allowed to share on Glu?

A. Medical advice

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B. Promotional and/or marketing materials for T1D treatments

C. My personal experience with T1DD. My personal opinions on T1D

treatments


Answer: A & BWhat content is NOT allowed• Anything that appears to

disrespect or place judgment on an individual, their opinions, views, or management.

• Anything that could be construed as medical advice.

• Anything that appears to promote, advertise or solicit.

• Anything that is rude or could be considered offensive.

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What information can you find on Glu?

A. The latest diabetes news

B. Articles written by people in the diabetes community and KOLs

C. Research opportunities, surveys, polls, and questions of the day

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Frequently Asked Questions28


Who can respond to Glu surveys?

A. There is no age requirement

B. You must be 18 years of age or older

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Answer: B

• You must be 18 years of age or older to respond to Glu

surveys.

• Children 13 to 17 years of age may also respond to Glu surveys; however, the

appropriate consent and/or assent forms must be

completed.

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Can Glu be contacted for Medical Support?

A. Yes

B. No

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Answer: B

Glu and T1D First, Inc. are not healthcare providers and we

cannot provide information to be used as a substitute for

professional medical advice, diagnosis, or treatment.

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Can Glu share my personal information?

A. Glu can share your data without de-identifying your personal information

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B. Glu can share your data, but only if it has been de-identified


Answer: B

For those members who participate in research, your data is shared anonymously, thus no

one can link the data to you. This ensures complete privacy of your

information.

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Can I choose not to participate in research but still use Glu?

A. Participation in research is required

C. On Glu you are automatically enrolled in research and you need to opt out if you are not interested

B.Participation in research is notrequired

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Answer: B

Participation in research is not required to gain access to Glu; however, certain functions may

not be available if you choose not to participate in research. You can choose to participate in research

or withdraw your consent to participate at any time.

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What Can You Do?37

• Glu information at your check-in desk

• Glu information in waiting rooms

• Have you added Glu to your diabetes resource list?

• Do your CDEs and physicians know about Glu?

• Who is your office Glu ambassador?

• Make a habit of asking your patients where they are talking about diabetes?

Office Champions For Glu

• Glu 2 page materials• Glucose tablet key chains

I Was Told To Tell You…38

“Remind them that diabetes impacts EVERY aspect of our lives and Glu is a great way to connect & discover that we are not alone in our triumphs and tragedies. While medical treatment is unquestionably important, it is incomplete without acknowledging the mental, emotional & social aspects.” “Please explain that Glu is a great online

diabetes community that helps people affected by diabetes come together in one online location to talk about daily life, support each other in this fight, educate, and advocate.”

“I've found it to be a great source of support that I haven't found any where else. It's comforting to find so many people that really relate to what you go through every day.”

For questions or follow-up, contact:

Anna FloreenCommunity Outreach [email protected]

Bill WoodsCommunity [email protected]

Thank You

All about the Glu (myglu.org) online community

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