AGENDA
9:30AM-LUNG CANCER TREATMENT UPDATES
10:15AM – BREAK/SURVIVOR GROUP PHOTO
10:30AM-IMMUNOTHEAPY: WATER OR HOLY WATER
11:15AM-OPPORTUNITIES TO ENGAGE IN NEW RESEARCH
11:45AM-LUNCH & KEYNOTE ADDRESS
12:45PM-BREAK/EXHIBITS
1:00PM-BREAKOUT SESSIONS
2:00PM-LEGISLATIVE UPDATE
2:30PM-HOW YOU CAN MAKE A DIFFERENCE
3:00PM-DOORPRIZES/ADJOURN
OF NOTE:
• Raffle Prizes (must be present to win!):• $200 to Ruth’s Chris• Starbucks• Seasons 52
• Post-it Notes:• Name, email address and/or phone• Place on the volunteer opportunities you are most
interested in
#2017AdvocacySummitNC
Lung Cancer Initiative Update
Build Hope. Take Action. End Lung Cancer.
Mission
Save lives and provide support to those affected by lung cancer through research,
awareness, education and access programs across North Carolina
Who We Are
• 501(c)(3)
• State’s leading non-profit organization supporting lung cancer research and education
• Specializing in connecting patients, survivors and loved ones with the medical and research community
• Dedicated to increasing lung cancer awareness and research funding
• Responsible stewards: In 2016, 78% spent on research, education, awareness and access
Paige Humble Executive Director
Our Staff
Lynne Hicks
Director of Finance
Khaki Stelten Director of Events
Jenni Danai Director of Programs
Parker ShieldsDevelopment Coordinator
Courtney Freeman Programs Coordinator
Megan Snowdowne,
Manager of Marketing
Our Board of Directors
Amy Cipau, MBA,
President
Advocate
Jennifer Garst, MD, Board
Chairman
Duke Cancer Institute at
Duke Raleigh Cancer Center
Jeremy Holden, Advocate
Chief Strategy Officer,
Clean Design
Liz Hynson, Advocate
Edward S. Kim, MD
Levine Cancer Institute
Carolinas Healthcare System
Hiren Mehta, MD
UNC REX Pulmonary
Specialists
Justin Brian Nicholson,
Survivor
Sterling Capital
Emily Parks, Advocate
Organize for Success,
LLC
Jared Weiss, MD
UNC Lineberger
Comprehensive
Cancer Center
Shirley Sulick,
Survivor
Jim Sheegog, Advocate
Rowhill Consulting
Group
Chris Rallis, JD
Pappas Ventures
Jennifer Garst, MDDuke Cancer Institute at
Duke Raleigh Cancer Center
Jared Weiss, MDUNC Lineberger Comprehensive Cancer Center
Ed Kim, MDLevine Cancer Institute
Jeff Petty, MDWake Forest Baptist Comprehensive
Cancer Center
Paul Walker, MDBrody School of Medicine at
East Carolina University
Amy Cipau, MBAPresident & Founder, LCI
Geoff Stroud, PharmD, BCOP, CPPBrody School of Medicine at East Carolina University
Patti Pozella, PhDPursuit-Solutions
Liling Warren, PhDOmicSoft Corporation and Acclarogen
Kathryn Mileham, MDLevine Cancer Institute
Jimmy Ruiz, MDWake Forest Baptist
Chad Pecot, MDUNC Lineberger Comprehensive Cancer Center
Jon GormanSurvivor
Scientific Advisory Committee
Lung Cancer: A Snapshot
American Cancer Society. Cancer Facts and Figures 2017. Atlanta:
American Cancer Society; 2017.
99%
90%
18%
0%
20%
40%
60%
80%
100%
ProstateCancer
Breast Cancer Lung Cancer
Five-Year Survival Rates
Prostate Cancer
Breast Cancer
Lung Cancer
US Cancer Deaths vs. Federal Funding
Source: https://report.nih.gov/categorical_spending.aspx
Not Just For Smokers!
20-25,000
people in the
U.S. get lung
cancer each
year, despite
never smoking.
Those who have
quit smoking
remain at risk.
Faces of Lung Cancer
• Research
• Awareness
• Education
• Access
What We Do
Research:
Fueling Medical Discovery
Our support has jump-started the careers of researchers who have gone on to receive further funding from the National Institute of Health, Department of
Defense and the American Cancer Society
The amount secured in lung cancer research for North Carolina in 2016.
The number of researchers being funded at five leading cancer centers across the state.
The total amount we have raised in lung cancer research.
$525,000 11 $1.1 Million
2017-18 Research Fellows
Jeffrey Clarke, MD at Duke Cancer Institute
Identification of Genetic Determinants for Disparities in African American Patients with Non-Small Cell Lung Cancer
V Foundation, Co-Funded Research
Chad Pecot, MD at the University of North Carolina at Chapel Hill
Targeting the Immune Microenvironment to Treat Squamous Cancers
We are committed to increasing public awareness about lung cancer, through:
• Events
• Education & Outreach Initiatives
• And other grassroots opportunities
Education & Awareness
Education:
Changing the Conversation
The number of providers and oncologists educated around the state
The number of free patient education materials given out around the state in 2016.
The number of people educated at our 2016 Expert Speaker Series with six cancer centers.
3,000+ 1,600 + 200+
Access:
Easing the Burden
Since we began the gas card program, we have funded $50,000 in transportation assistance to NC patients
Number of gas cards that have been given out to patients in treatment across NC since 2014.
$50,000 1,000
The goal is to lessen the financial burden for patients to receive appropriate lung cancer treatment
Patient Access to Care Gas Card Program:
Access Grants
Community Health Coalition, IncThe Relationship of Lung Cancer Information to Improved Access to Lung Cancer Screenings in African Americans
Vidant Medical CenterLow-Dose Screening Initiative
Cancer Services, IncCancer Treatment Support for Lung Cancer Patients
How You Can Help
• Become a sponsor
• Create a Corporate Team
• Participate in an event
• Make an in-kind tax deductible contribution
• Matching Gift Program
• Join our Advocate Speaker Program
• Host a fundraiser
• Volunteer at an event
• Join a planning team
• Publicity/Media Assistance
Together, there is always something we
can do.
Who is here?
16Survivors
22Cities
4States
61Participants
Build a Movement! Why?
• Too many affected cannot speak for themselves
• We cannot make progress without research, education and awareness about this disease
We need EVERYONE advocating for more research dollars and researchers in the field
• We cannot do it without you!
• There is strength in numbers!
• This has worked for other diseases!
• This is the first step…
Why are we here?
Lung Cancer Initiative Summit:
• Attend all sessions
• Listen effectively
• Contribute – your questions, ideas, perspective
• Respect others who may have different viewpoints from your own
What we expect of you