Advancing Patient Engagement through Coalition Partnerships 2nd Annual Optimizing Patient Adherence Conference Wm. Ray Bullman, M.A.M., Executive Vice President N. Lee Rucker, MSPH, Senior Advisor National Council on Patient Information and Education Rockville, MD www.talkaboutrx.org January 15, 2014 -- Raleigh, NC
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Advancing Patient Engagement through Coalition Partnerships 2nd Annual Optimizing Patient Adherence Conference Wm. Ray Bullman, M.A.M., Executive Vice.
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Advancing Patient Engagement through Coalition Partnerships
1. Overview: the National Council on Patient Information and Education (NCPIE)
2. Case Studies of Current NCPIE Initiatives
3. Future Public / Private Partnerships
Introduction to the National Council on Patient Information & Education
Decades before
patient safety, medication adherence, or patient empowerment became part of our lexicon, they informed the heart and soul of NCPIE’s mission:
To stimulate and improve communication of information on the appropriate use of medicines to
consumers and health care professionals.
Since 1982, NCPIE has:• Brought together public and
private stakeholders who are committed to improving communication about the safe, appropriate use of medicines;
• Empowered and engaged consumers, patients and caregivers so they can have informed dialogue with clinicians (and other trusted sources) about their medicines, to optimize outcomes;
• Created and implemented programs to ensure that medicine information is useful, timely, and scientifically accurate in whatever form – and for whichever audience – it is delivered.
NCPIE’s Campaigns
Serving as:• Catalyst• Convener• Collaborator
Case Study #1: Adherence Action Agenda -- A3
• Why NCPIE?• History as respected
catalyst on Rx adherence (authored reports in 1995, 2007)
• NCPIE surveyed key stakeholders to determine and validate A3 focus areas
• Facilitator-led: – stakeholder discussion– decision-making process – consensus development during multiple Project
Advisory Team meetings
Identification of Adherence Focus Areas
• Chronic conditions & co-morbidities:
where we know taking meds safely and appropriately will make a difference in outcomes;
• Patient-related factors;
• Provider-related factors.
Identification of “Macro” Factors
• Current drivers impacting or reshaping medical care configuration, access, delivery, payment:
• Practice patterns and configurations• Policy change efforts • Payment / Incentives • Pharma innovation – including packaging• Technology innovations & adoption • Health Literacy
Priorities of Adherence Action Structure
• Zeroed in on persons with the two most common, or with three most common, chronic conditions.
• Also considered how adherence challenges may differ for persons with just one chronic condition, versus those with several; and if multiple prescribers are involved.
• Patients’ Medicine Journey encompasses many similarities / many differences depending on life stage: – Older adults with multiple chronic conditions – Aging boomers with family caregiving responsibilities – Working age adults (who also manage meds in the home)– Retirees– Youth
• Patient Factors, such as:– Low health literacy– Misunderstanding/ need for educational interventions– Economic challenges, esp. inability to pay for needed
meds– Cultural beliefs that might affect adherence– Depression or other behavioral changes– Transportation, other challenges to accessing med-
related services? There and Home Again, Safely: 5 Responsibilities of Ambulatory Practices in High Quality Care Transitions, American Medical
Case Study #3: Communicating Medication Risk and Safety Information
• Why NCPIE? 30+ years of collaboratively-developed general and specific messages on safe use of medicines. FDA, industry, health care professionals and consumers at the NCPIE Board table from Day One
• Timing: 2012-2015• Funding:
Communicating Medication Risk and Safety Information
• Assess consumers’ and health care professionals’ knowledge, attitudes, use and preferences of medication risk and safety information.
• Project is engaging multiple stakeholders in design, implementation of national educational initiative.
Future Public / Private Partnerships with NCPIE
• Adherence: breaking down barriers, building incentives
• Accountability for the Rx value proposition
• Motivating patients and caregivers to optimize medication outcomes
• Why NCPIE?• Efficient• Experienced:
– Catalyst– Convener– Collaborator
• Effective – Join Us!
For More Information:
National Council on Patient Information and Education
www.talkaboutrx.org
200-A Monroe Street, Suite 212Rockville, MD 20850 Ph: (301) 340-3940