UCSF Developmental Disabilities Conference
A Bay Area Model Program:Family Centered Early Intervention
Jill Ellis, M.Ed.
Center for Early Intervention on Deafness
I have nothing to disclose.
What is CEID? The Hearing Society & First Congregational Church
NHS in the 1970’s & 1980’s
Average age of ID: 2.5 years No state NHS
50% unknown etiology
Body hearing aids
No Early Start
1035 Grayson Street West Berkeley
Services available at CEID Home Visits Parent‐Child Playgroups
Sign Language Deaf‐Blind Listening & Spoken Language
Down Syndrome Toddler & Preschool Classes
Deaf Mentors Family Support Activities Speech Therapy Occupational Therapy First 5 – Home Visit (3‐5)
Diagnostic and Dispensing Community Hearing Screenings
Pediatric Provider Training
Other Consulting Charter Schools Medical Providers Early Start Professionals
The CEID TeamToddler & Preschool
Pediatric Residency Training Sunshine Preschool & Childcare
First Step: California NHS Program: Legislation AB2780 (passed 1998 – December 2002 full implementation) NHSP: Assembly Bill 2780, Chapter 310, Statutes of 1998. Required: Establishment of a comprehensive hearing screening program for the early detection of hearing loss in newborns and infants, with access to diagnostic evaluations and follow‐up services, and provisions for data collection and reporting.
Department of Health Care Services (DHCS), specifically the Children's Medical Services (CMS), holds responsibility for the implementation and oversight of this program
1‐3‐6 Goals 70% of babies (400,000 of 520,000 births)
** 1993: Early Start implemented in California
Hearing Coordination Center Staff Director
Screen all infants FDA approved to screen hearing
Must be capable of detecting mild hearing loss (30‐40 dB)
Hearing Coordination Centers (HCCs)NHSP: 1‐877‐388‐5301
Bay Area/Northern Cal HCC (Region A & B yellow and white)
Southern California HCC
(Region D ‐ blue)
South Eastern California HCC‐ Loma Linda Medical Center (pink)
Referral and Eligibility Ages 0‐5 who are deaf or hard of hearing (DHH)
Any type or degree (including unilateral, mild, moderate, severe, profound, auditory neuropathy, conductive, sensorineural, mixed, or fluctuating)
A child who has a severe language delay and needs a visual language
A child who qualifies for IDS with ASL as their home language
A child who is High Risk
Faces at CEID
8 student faces
Family Support Home Visits
Hearing Support Early Special Education
Family Events Swimming at Silliman; Day at Crab Cove; Camping; Deaf Plus Family Picnic; Kindergym; Habitot
Parent Education Sign Classes; Support Groups; Speech and Language Topics Panels: High School Students, Parents, Deaf Adults Parenting Strategies; Storytelling; Importance of Play! Understanding IFSPs and IEPs
Parent‐Identified Essentials of Appropriate Early Intervention
Contact with other parents Unbiased information Time to process
information Skillful and supportive
Parents and Their Deaf Children: The Early YearsKathryn P. Meadow‐Orlans ‐Marilyn Sass‐Lehrer ‐ Donna M. Mertens –Gallaudet University Press ‐ 2003
DHH Specialized Instruction Topics Understanding hearing loss: cause, prognosis, and impact on the child and family
Reading an audiogram
Decision making regarding communication options
Language instruction services including: teaching American Sign Language (ASL), Signed Exact English (SEE), Cued Speech, and auditory/oral language (IDEA 303.13(b)(12)).
Visual technologies, including alerting systems, safety systems, and communication technologies
Adapting the home to make it a visual environment.
DHH Specialized Instruction Topics
Hearing aid care, maintenance, tolerance, monitoring, and troubleshooting
Cochlear implant decision making, candidacy process, preparation, use, care, maintenance, follow‐up
FM System use, care, decision making
Cognitive development issues related to hearing loss
Emergent literacy in deaf and hard of hearing children
Social–emotional development and identity issues.
Deaf/Hard of Hearing Specialized Instruction Topics
Deaf culture and communities
Advocacy and empowerment issues related to hearing loss
Current research in deaf education
Special concerns related to mild, unilateral, and conductive hearing losses
The synergistic effect of hearing loss and other disabilities, including visual, motor, social, or cognitive impairments
Listening and Spoken Language
American Sign Language (ASL)
Signing Exact English (SEE)
Conceptually Accurate Signed English
Sign Supported Speech
Total Communication (TC)
Toddler Class Music Time: Parents and Children in Action Video
Deaf Plus & SENSORY INTEGRATION
The ability to take in sensory information from one’s body and the environment, to organize this information, and to use it to function in daily life
A Sensory Diet incorporates:
Tactile:Light Touch: Deep Touch:
Bouncing a big ball on a child 2 students with different
Accommodations in Classroom and Therapy SessionsSalient Considerations for a child who is Deaf Plus:
** Positioning/Motor Control
Peer Lead Speech Therapy‐ Preschool
Video with Ron and Izzy
Audiology Services • Hearing Screenings
– For infants under 3 months old who have been referred from an initial screening or who have never received a screening
– Preschool students (HeadStart, Private Preschools)
• Diagnostic Hearing Evaluations
– For children and adults
• Hearing Aid Dispensing
–Hearing aids and devices, ear molds, hearing aid accessories
Butte (158 miles/2hrs 39 mins) San Francisco
Calaveras (118 miles/2hrs 3 mins) San Joaquin
Contra Costa San Mateo
El Dorado (115 miles/1hr 51 mins) Shasta (213 miles/3hrs 8 mins)
Fresno (181 miles/2hrs 47mins) Solano
Kern (291 miles/4hrs 32mins) Sonoma
Lake (133 miles/2hrs 26mins) Stanislaus (89.6 miles/1hr 31mins)
Mendocino (155 miles/2hrs 53 mins) Sutter (112 miles/1hr 55mins)
Monterey Yolo (77.6 miles/1hr 14mins)
Napa Yuba (109 miles/1hr 51mins)
& Rising Harte Wellness CenterA Collaborative Model for Alameda County
School‐linked health center and collaboration serving students at Bret Harte Middle School and Transition Age Youth (young adults, ages 16‐25)
Almost 50% of BHMS students and 87% of transition age youth report experiencing barriers to accessing adequate, affordable, and competent health care.
Screening for key risk factors Provision of treatment and services Preventative services and dental
examinations Health education, recreation and social
programs Case management and linkage
CEID Fundraising Activities Annual Walk‐A‐Thon Benefit Golf Tournament
Add photo Add photo
Ron’s Message on Behalf of CEID Ron’s personal Bio and video clip
CEID Publications Pediatric Resource Guide to Infant and Childhood Hearing Loss
Home Visit Kit Photo of GUIDE cover
Photo of 3
References from: Jill Ellis, M.Ed.
1035 Grayson Street, Berkeley, CA www.ceid.org 510‐848‐4800
Akinpelu, O. V., Peleva, E., Funnell, W. R., & Daniel, S. J. (2014). Otoacoustic emissions in newborn hearing screening: A systematic review of the effects of different protocols on test outcomes. International Journal of Pediatric Otorhinolaryngology, 78(5), 711-717. doi:10.1016/j.ijporl.2014.01.021 [doi]
Alford, R. L., Arnos, K. S., Fox, M., Lin, J. W., Palmer, C. G., Pandya, A., et al. (2014). American college of medical genetics and genomics guideline for the clinical evaluation and etiologic diagnosis of hearing loss. Genetics in Medicine: Official Journal of the American College of Medical Genetics, 16(4), 347-355. doi:10.1038/gim.2014.2 [doi]
American Academy of Audiology Clinical Practice Guidelines. (2011). Childhood Hearing Screening Guidelines. [Guidelines]. Retrieved from
American Academy of Pediatrics, Joint Committee on Infant Hearing. (2007). Year 2007 position statement: Principles and guidelines for early hearing detection and intervention programs. Pediatrics, 120(4), 898-921. doi:120/4/898 [pii]
American Academy of Pediatrics. (1995). Joint Committee of Infant Hearing 1994 Position Statement. Pediatrics, 95 (1), 152-156.
American Academy of Pediatrics. (1996). Committee on Genetics, Newborn Screening Fact Sheets. Pediatrics, 98(3), 473-501.
American Speech-Language-Hearing Association. (2008). Guidelines for audiologists providing informational and adjustment counseling to families of infants and young children with hearing loss birth to 5 years of age [Guidelines]. Retrieved from www.asha.org/policy/GL2008-00289/
American Speech-Language-Hearing Association. (2015). Expert panel recommendations on Newborn Hearing Screening. Retrieved from www.asha.org/Topics/Expert-Panel-Recommendations-on-Newborn-Hearing-Screening/#3
Beck, R. (December, 2014). Etiology of Single Sided Deafness in Children with Congenital and Acquired Unilateral Deafness. Presentation at American Cochlear Implant Alliance. Nashville, Tennessee.
Berg, A. L., Prieve, B. A., Serpanos, Y. C., & Wheaton, M. A. (2011). Hearing screening in a well-infant nursery: Profile of automated ABR-fail/OAE-pass. Pediatrics, 127(2), 269-275.
Berlin, C., Hood, L., Morlet, T., Wilensky, D., Li, L., Mattingly, K. R., & Frisch, S. A. (2010). Multi-site diagnosis and management of 260 patients with Auditory Neuropathy/Dys-synchrony (Auditory Neuropathy Spectrum Disorder*). International Journal of Audiology, 49 (1): 30-43.
Bielecki, I., Horbulewicz, A., & Wolan, T. (2012). Prevalence and risk factors for auditory neuropathy spectrum disorder in a screened newborn population at risk for hearing loss. International Journal of Pediatric Otorhinolaryngology, 76(11), 1668-1670. doi:10.1016/j.ijporl.2012.08.001 [doi]
Center for Disease Control and Prevention (2014). Summary of 2012 national CDC EHDI data. Retrieved from http://www.cdc.gov/ncbddd/hearingloss/2012data/2012_ehdi_hsfs_summary_b.pdf
Centers for Disease Control and Prevention (2015). Risk of Bacterial Meningitis in Children with Cochlear Implants. Retrieved from http://www.cdc.gov/ncbddd/hearingloss/meningitis.html
Centers for Disease Control and Prevention. (2011). Cytomegalovirus (CMV) infection. Retrieved from www.cdc.gov/cmv/index.html .
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Centers for Disease Control and Prevention. (2015). Recommendations and Guidelines. Retrieved from http://www.cdc.gov/ncbddd/hearingloss/recommendations.html
Cincinnati Children’s (n.d.) Genetic Testing for Hearing Loss. Retrieved April 20, 2015 from http://www.cincinnatichildrens.org/service/g/genetic-hearing-loss/tests/
deVries, J. J. C., Vossen, A. C. T. M., Kroes, A. C. M., & van der Zeijst, B. A. M. (2011). Implementing neonatal screening for congenital cytomegalovirus: Addressing the deafness of policy makers. Reviews in Medical Virology, 21, 54-61.
Ferm, I., Lightfoot, G., & Stevens, J. (2013). Comparison of ABR response amplitude, test time, and estimation of hearing threshold using frequency specific chirp and tone pip stimuli in newborns. International Journal of Audiology,52(6), 419-423.
Flexer, C. (2011, March 14). The Auditory Brain: Conversations for Pediatric Audiologists [Webinar]. In Pediatric Audiology - Raising the Bar. Retrieved from http://www.audiologyonline.com/articles/auditory-brain-conversations-for-pediatric-817
Fligor, B. J., Neault, M. W., Mullen, C. H., Feldman, H. A., & Jones, D. T. (2005). Factors associated with sensorineural hearing loss among survivors of extracorporeal membrane oxygenation therapy. Pediatrics, 115(6), 1519-1528. doi:10.1542/peds.2004-0247
Foust, T., Eiserman, W., Shisler, L., & Geroso, A. (2013). Using otoacoustic emissions to screen young children for hearing loss in primary care settings. Pediatrics, 132(1), 118-123. doi:10.1542/peds.2012-3868 [doi]
Fowler, K. B. (2013). Congenital cytomegalovirus infection: Audiologic outcome. Clinical Infectious Diseases: An Official Publication of the Infectious Diseases Society of America, 57 Suppl 4, S182-4. doi:10.1093/cid/cit609 [doi]
Gallegos, (1997-98) California Assembly Bill 2780, Section 21. Retrieved from http://www.leginfo.ca.gov/pub/97-98/bill/asm/ab_2751-2800/ab_2780_bill_19980819_chaptered.pdf
Gravel, J. (June 2004). Mild and Unilateral Hearing Loss. Presentation at 2nd International Conference on Newborn Hearing Screening. Como, Italy.
Holte, L., Walker, E., Oleson, J., Spratford, M., Moeller, M. P., Roush, P., Tomblin, J. B. (2012). Factors influencing follow-up to newborn hearing screening for infants who are hard of hearing. American Journal of Audiology, 21, 163-174.
Hyde, M. (2010). Principles and methods of population hearing screening in EDHI. In R. Seewald & A. M. Tharpe (Eds.), Comprehensive handbook of pediatric audiology (pp. 283-338). San Diego, CA: Plural.
Jackson, C., Wegner, J. R., Turnbull, A. P., (2010) Family Quality of Life Following Early Identification of Deafness. Language Speech Hearing Services in Schools. 41(2):194-205.
Johnson, K., Lloyd-Puryear, M. A., Mann, M. Y., & Ramos, L. R. (2006). Financing state newborn screening programs: Sources and uses of funds. Pediatrics, 117(Suppl. 3), S270-S279.
Joint Committee on Infant Hearing, American Academy of Audiology, American Academy of Pediatrics, American Speech-Language-Hearing Association, & Directors of Speech and Hearing Programs in State Health and Welfare Agencies. (2000). Year 2000 position statement: Principles and guidelines for early hearing detection and intervention programs. Pediatrics, 106(4), 798-817.
Joint Committee on Infant Hearing, Muse, C., Harrison, J., Yoshinaga-Itano, C., Grimes, A., Brookhouser, P. E., et al. (2013). Supplement to the JCIH 2007 position statement: Principles and guidelines for early intervention after confirmation that a child is deaf or hard of hearing. Pediatrics, 131(4), e1324-e1349. doi:10.1542/peds.2013-0008
Joint Committee on Infant Hearing. (2007). Year 2007 position statement: Principles and guidelines for early hearing detection and intervention programs. Pediatrics, 120(4), 898- 921.
Joint Committee on Infant Hearing: www.jcih.org
Model Universal Newborn/Infant Hearing Screening, Tracking, and Intervention Bill. American Speech-Language-Hearing Association, Retrieved from http://www.asha.org/advocacy/federal/ehdi/model_bill/
Moeller, M. P. (2000). Early intervention and language development in children who are deaf and hard of hearing. Pediatrics, 106(3), E43.
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National Center for Hearing Assessment & Management. (2015). Enacted universal newborn hearing screening legislation. Retrieved from www.infanthearing.org/legislative/mandates.html
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Pipp-Siegel, S., Sedey, A.L., Yoshinaga-Itano, C., (2002). Predictors of Parental Stress in Mothers of Young Children with Hearing Loss. Journal of Deaf Studies and Deaf Education, 7(1);1-17.
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American Society for Deaf Children: www.deafchildren.org
The National Dissemination Center for Children with Disabilities (NICHCY)
1825 Connecticut Ave NW,
Washington, DC 20009 Phone: 1‐800‐695‐0285 (V/TTY). E‐mail: firstname.lastname@example.org Web site in
English: www.nichcy.org. Website in Spanish: nichcy.org/espanol/
California Newborn Hearing Screening (NHSP)
Toll Free: 1‐877‐388‐5301
Regions A & B
Bay Area/Northern California Hearing Coordination Center (BA/NCHCC)
1501 Industrial Road San Carlos, CA 94070
Phone: 800-645-3616, Press #3 Fax Number: 800-866-1074
South Eastern California Hearing Coordination Center (SECHCC)
1200 California St. Suite 108 Redlands, CA 92374
Phone: 909-793-1291 Fax: (909) 498-7982
Toll Free: 1-877-388-5301 Email: HCCRegionC@natus.com
Southern California Hearing Coordination Center (SCHCC)
1 Centerpointe Drive, Suite 410 La Palma, CA 90623
Phone: (661) 591-4300 Fax: (661) 244-2865
Toll Free: (866) 609-5439 E-mail: HCCRegionD@natus.com