7.35 PHTS Business DCC Update/QI D. Naftel Database Committee R. Gajarski (W. Mahle) Foundation Update A. Dipchand Financial Roadmap W. Mahle 8:15 Hard to Forget: The Challenge of Desensitization in Heart Transplant Candidates Jon Kobashigawa, MD 8:45 PHTS Scientific Committee Report W. Mahle 8:50 Total Artificial Heart in Children Timothy Baldwin, PhD 9:20 Maintenance Steroids S. Auerbach 9:25 PVR M. Richmond (W. Mahle)
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7.35PHTS Business DCC Update/QID. Naftel Database CommitteeR. Gajarski (W. Mahle) Foundation UpdateA. Dipchand Financial RoadmapW. Mahle 8:15 Hard to Forget:
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7.35 PHTS Business
DCC Update/QI D. Naftel
Database Committee R. Gajarski (W. Mahle)
Foundation Update A. Dipchand
Financial Roadmap W. Mahle
8:15Hard to Forget: The Challenge of Desensitization in Heart Transplant Candidates
Jon Kobashigawa, MD
8:45 PHTS Scientific Committee Report W. Mahle
8:50 Total Artificial Heart in Children Timothy Baldwin, PhD
9:20 Maintenance Steroids S. Auerbach
9:25 PVR M. Richmond (W. Mahle)
9:30 Adjourn W. Mahle
Goals
• PHTS is dedicated to the advancement of the science and treatment of children during listing for and following heart transplantation.
• The purposes of the group are to establish and maintain an international, prospective, event driven database for heart transplantation, to use the database to encourage and stimulate basic and clinical research in the field of pediatric heart transplantation and to promote new therapeutic strategies.
Charges For Pediatric Heart Transplantation
Registry Database FeesInitiation Annual Fee
IMPACT $1000 $3790
INTERMACS $10,000
VPS $10,000
STS $4,000 + volume fee
CHSS $6000
Costs for Registry Participation
• Data entry costs typically far exceed annual fees
• For most registries including PHTS annual fees probably only comprise 5-15% true participation costs– Bad economics
• Weeks of work for transplant coordinator entering data into a registry without adequate infrastructue
Model for PHTS
Historical
2013
Beyond
Proposal
• 2012 fees= $2500 per center• 2013 proposal*
– $5000 per center
How To Approach Administrators/Leadership
• PHTS fees consistent with other registries• Services have expanded QA report• Plan to move toward web-based entry in 2014
– Infrastructure costs– More flexible data retrieval and center reports
2013 PHTS Projection
Current Dues Structure
Budget $227,618.00
Revenue and Other Support
Hospital Dues $107,500.00
Donations $20,000.00
Sponsorship Revenue $20,000.00
Meeting Fees $7,500.00
UAB Contribution $62,500.00
Revenue Subtotal $217,500.00
Ending Balance (10,118.00)
2013 PHTS Projection
Current Dues Structure Revised Dues Structure
Budget $227,618.00 $227,618.00
Revenue and Other Support
Hospital Dues $107,500.00 $215,000.00
Donations $20,000.00 $20,000.00
Sponsorship Revenue $20,000.00 $20,000.00
Meeting Fees $7,500.00 $7,500.00
UAB Contribution $62,500.00 $62,500.00
Revenue Subtotal $217,500.00 $325,000.00
Ending Balance (10,118.00) $97,382.00
• Starting position budget neutral (expenses covered)
• Fundraising plans:• 20th Anniversary Gala• Family Outreach
• Brochures• Educational Materials
• Targeted Fundraising• Electronic Data Entry $20,000 by 2014• YIA
2013 is PHTS’s 20th Anniversary of Data Collection!
Sunday, November 3rd, 2013
Dallas, Texas
An evening of fun, friends, reminiscing and celebration!!