28 June 2013 Provider Information for BAD Specialised Services … Spec... · 2014. 9. 16. · GOSH: Mary Glover, Nerys Roberts, Anna Martinez (paediatrician), Veronica Kinsler (paediatric

28 June 2013 Provider Information for BAD Specialised Services Directory. DRAFT 9, 2013-06-28

Aims

This directory has been compiled for the following reasons:

1. To facilitate the development of national networks and improve patient pathways.

2. To inform referrers

3. Eventually, to identify specialised dermatology services commissioned by NHS England (formerly NHSCB).

NB This directory has not been validated objectively. Entry on this directory does not currently indicate specialised

commissioning.

Subspecialties included: those included in the NHS England service specification for specialized dermatology, direct link

http://www.england.nhs.uk/npc-crg/group-a/a12/ .

National experts are consultant dermatologists, receiving tertiary NHS referrals, who are widely consulted nationally by

peers and patient support groups, and contribute to education and research on this topic. All entries should include

name and centre, with an indication of whether they see Adults, Children or both (A+C).

National centres provide a full-time service, with a specific national expert and appropriate MDT, as described in the

service specification. All dermatologists contributing to this service at this centre should be listed. All entries should

include name and centre, with an indication of whether they see Adults, Children or both (A+C).

Children: children requiring specialised dermatology services should be referred initially to providers of Specialised

Paediatric Dermatology who will liaise with the appropriate disease-specific national expert (in some cases this will be

the same individual). Specialised centres seeing children with rare/complex dermatological conditions must comply with

the Service Specification for Specialised Paediatric Services which is embedded in the dermatology service specification

referenced above.

Other centres receive extra-regional referrals but fall-short of “national centre” for reasons stated.

Local champions. are consultant dermatologists , usually members of an appropriate special interest group, who receive

tertiary referrals within their region. All entries should include name and centre, with an indication of whether they see

Adults, Children or both (A+C).

Devolved nations: NHS England can commission services, but cannot fund patients, from devolved nations.

Consultation: a previous draft was circulated to the BAD membership on 3rd April 2013. Celia Moss has liaised with

subspecialty leads, co-ordinated the collection of information, and apologises for any errors and omissions.

Next steps:

1. Providers will be asked to clarify whether their service is commissioned by NHS England, (ie whether it meets the

requirements of the service specification) and this will be indicated in the directory.

2. More detailed information about providers will be included. David de Berker is developing a proforma for providers,

trialling it with members of the Hair and Nails group.

3. David is liaising with the BAD to include this directory on the web-site.

Feedback on this draft should be to the subspecialty leads (emails on next page) and to [email protected]

http://www.england.nhs.uk/npc-crg/group-a/a12/

mailto:[email protected]

28 June 2013

Index of specialised dermatology services

Specialised dermatology subspecialty as listed in SSNDS24 Section contributors You can navigate to any section by Ctrl/click on the title below

1.0 Specialised paediatric dermatology including neonatal [email protected] 4.1 Severe or complex psoriasis [email protected]

[email protected]

4.1 Severe or complex eczema [email protected] [email protected]

4.1 Severe or complex connective tissue disease [email protected] [email protected] [email protected]

4.1 Severe or complex immunobullous disease [email protected] 4.1 Severe or complex autoimmune skin disease including urticarias/mastocytosis

[email protected] [email protected]

4.1 Severe or complex autoimmune skin disease including vitiligo

4.2 Toxic Epidermal Necrolysis [email protected] [email protected]

4.2 Life threatening cutaneous vasculitis [email protected] 4.2 Severe pyoderma gangrenosum [email protected]

4.2 Severe Graft Versus Host Disease [email protected] 4.2 Severe Langerhans cell histiocytosis [email protected]

4.4 Difficult genital dermatology: male (excluding cancer) [email protected] 4.4 Difficult genital dermatology: female (excluding cancer) [email protected] 4.6 Non-malignant lymphoedema [email protected]

4.7 Hair disease that is difficult to diagnose or manage [email protected] [email protected]

4.7 Nail disease that is difficult to diagnose or manage [email protected] 4.8 Rare or complex inherited skin disease [email protected]

4.9 Complex Occupational dermatoses and contact dermatoses [email protected] 4.10 Photo-investigation and specialised photo-dermatology including porphyria

[email protected]

Psychodermatological disorder that is difficult to diagnose or manage [email protected]

Hidradenitis Suppurativa that is difficult to diagnose or manage [email protected]

Stoma dermatoses that are difficult to diagnose or manage. [email protected]

4.12 Laser treatment for birthmarks in children and for patients with rare or complex abnormalities

[email protected] [email protected]

4.12 Complex vascular anomalies involving skin [email protected] 4.13 Specialised dermatopathology [email protected]

4.15 Complex Ehlers Danlos Nationally commissioned service [email protected]

4.15 Epidermolysis bullosa Nationally commissioned service [email protected]

4.15 Xeroderma pigmentosum Nationally commissioned service [email protected]





































28 June 2013 Back to Index of specialised dermatology services

Specialised paediatric dermatology including neonatal Person collating response

Olivia Schofield, Chair of BSPD on behalf of BSPD Executive [email protected]

National experts

BSPD advises that MDTs are key in specialized paediatric dermatology, rather than specific individuals. National centres

GOSH: Mary Glover, Nerys Roberts, Anna Martinez (paediatrician), Veronica Kinsler (paediatric academic trainee), John Harper, Lindsay Shaw St Thomas’s (Evelina): Jemma Mellerio, Emma Wedgeworth, Carsten Flohr, Birmingham Children’s Hospital: Fiona Browne, Malobi Ogboli, Hossain Shahidullah, Celia Moss Other centres

Local champions.

Newcastle: Aileen Taylor, Suzy Leech Middlesborough: Raj Natarajan, Sharmela Darne Liverpool: Richard Parslew, Grahame Sharpe, Julian Verbov Chester : Asad Salim Manchester: Tim Clayton, Mary Judge Sheffield: Mike Cork Leeds: Sheila Clark Nottingham: Jane Ravenscroft, Hywel Williams, Ruth Murphy Oxford: Tess McPherson Cambridge: Nigel Burrows, Julia Gass Norfolk & Norwich: Nick Levell, George Millington Bristol: Lindsay Shaw, Cameron Kennedy Barnet and Chase Farm: Virginia Hill, Ioulios Palamaras, Penny Thomson Windsor: Joey Lai Cheong Kent: Susannah Baron, Emilia Duarte-Williamson Luton and Dunstable: Bernie De Silva Gloucester: Bill Porter Dorchester: Saleem Taibjee Birmingham Heartlands: Annette Loffeld, Helen Goodyear (paediatrician) Birmingham Good Hope Hospital: Jai Bhat London Kings College Hospital : Elizabeth Higgins Barts and the London: David Paige Edel O’Toole, Sasha Dhoat, Tony Bewley Chelsea and Westminster: Nerys Roberts, Nilesh Morar, Bisola Laguda St Mary’s: Catherine Hardman Whittington: Wakeel Riad Woolwich: Anna Chapman

Devolved nations Edinburgh: Olivia Schofield, Mike Tidman, Glasgow RHSC: Catherine Jury, Paula Beattie Dundee: Sara Brown, Ross Hearn Bridgend: Jenny Hughes Newport: Caroline Mills, Richard Goodwin Cardiff: Manju Kalavala, Ru Katugampola Belfast: Susannah Hoey, Art O’Hagan

Consultation with patient groups

We have not consulted any patient groups regarding this list. Additional consultation with peers

We have e-mailed earlier drafts to the BSPD membership about this and include their responses.



Severe or complex psoriasis Person collating response

Celia Moss National experts

Jonathan Barker, Catherine Smith London, Guys & St Thomas’s Chris Griffiths, Manchester Nick Reynolds, Newcastle Ruth Murphy, Nottingham National centres for Adults/Children

London, Guys & St Thomas’s A+C: Jonathan Barker, Catherine Smith Manchester, Salford Royal Hospital A+C: Chris Griffiths, Richard Warren, Helen Young, Mary Judge, Newcastle Royal Victoria Infirmary A+C: Nick Reynolds, Phil Hampton Nottingham, Queens Medical Medical Centre A+C: Ruth Murphy

Additional national paediatric centres Great Ormond Street Hospital (No phototherapy) Birmingham Children’s Hospital (No phototherapy) Other centres

Local champions. NB children with these conditions should be referred first to a dermatologist listed under Specialised paediatric dermatology including neonatal.

Bristol Royal Infirmary Dunnill Giles Leeds Chapel Allerton Hospital Leeds Goodfield Mark London Chelsea & Westminster Roberts Nerys

London Royal Free Hospital McBride Sandy London, Barts Health Cerio Rino

London, UCLH Martyn-Simmons

Claire

Cambridge Norris Paul Portsmouth St Mary's hunt samantha

Southampton General Healy Eugene Surrey Frimley Park Hospital Antony Fiona

Woolwich Chapman Anna Norfolk&Norwich Levell Nick Orpington (A) Clement Michele

Orpington (A) Watson Karen Orpington (A) Gupta Shikha

Liverpool Broad Green (A) Parslew Richard Liverpool Broad Green (A) Alsharqi Ali Brighton General Topham Emma

Devolved nations

Gwent Anstey Alex

Cardiff Piguet Vincent Glasgow RHSC Yorkhill Mc Henry Pamela

Glasgow, Western Infirmary

Burden David

Glasgow, Western Infirmary

Leman Joyce


We have not consulted any patient groups regarding this list. Additional consultation with peers


Severe or complex eczema For national commissioning purposes, specialised contact dermatitis is included with severe and complex eczema. For directory purposes it is separate, (jump to Occupational dermatoses and contact dermatoses ) Person collating response Celia Moss

National experts Catherine Smith, London, Guys & St Thomas’s Carsten Flohr, London, Guys & St Thomas’s Malcolm Rustin, London, Royal Free: David Paige, London Barts Health Michael Ardern-Jones, Southampton: Simon Meggitt, Newcastle Nick Reynolds, Newcastle Hywel Williams, Nottingham C Ruth Murphy, Nottingham Mike Cork, Sheffield Graham Ogg, Oxford Mary Glover , GOSH Fiona Browne, Birmingham Children’s Hospital National centres for Adults/Children London, Guys & St Thomas’s A+C: Catherine Smith, Carsten Flohr London, Royal Free A+C: Malcolm Rustin London Barts Health A+C: David Paige, Rino Cerio, Portia Goldsmith Southampton A+C : Michael Ardern-Jones, Keith Godfrey, Birgit Pees Newcastle A+C: Nick Reynolds, Simon Meggitt, Suzy Leech, Aileen Taylor Nottingham A+C: Hywel Williams (C), Jane Ravenscroft (C), Ruth Murphy Sheffield A+C: Mike Cork Manchester A+C: Salford Royal: Jason Williams, Mary Judge Oxford A+C: Graham Ogg, John Reed, Tess McPherson Additional national paediatric centres

Great Ormond Street Hospital No phototherapy Birmingham Children’s Hospital No phototherapy

Other centres


Coventry: John Berth-Jones Exeter: Carolyn Charman (C) Liverpool: Richard Parslew Barnet: Virginia Hill Bristol: Lindsay Shaw, Cameron Kennedy, Jane Sansom Leeds:, Sheila Clarke Orpington (A): Michele Clement, Karen Watson, Shikha Gupta London Chelsea & Westminster: Nerys Roberts, Nilesh Morar (A)

Devolved nations Cardiff: Vincent Piguet, Mabs Chowdhury Bridgend: Jenny Hughes Edinburgh: Olivia Schofield Glasgow RHSC: Pamela McHenry


Additional consultation with peers

28 June 2013 Comments

Back to Index of specialised dermatology services

Severe or complex connective tissue disease Person collating response

Simon Meggitt [email protected] National experts SimonMeggitt, Newcastle upon Tyne Mark Goodfield, Leeds Cate Orteu, London, Royal Free Hospital Chris Lovell, Royal Bath Hospital National centres for Adults/Children

Newcastle Royal Victoria infirmary A+C: Simon Meggitt Leeds Chapel Allerton Hospital,A+C : Mark Goodfield Royal Free Hospital, London A: Cate Orteu Bath A+C: Chris Lovell, Lindsay Shaw London, Guys & St Thomas’s A+C: Sean Whittaker Additional national paediatric centres

Great Ormond Street Hospital Birmingham Children’s Hospital

Other centres


Durham: Shyamal Wahie Bristol: Cameron Kennedy, Lindsay Shaw Manchester: Mary Judge, Monica Bhutan London, Chelsea &Westminster: Sarita Singh London, Barts Health, Richard Bull Norfolk & Norwich, George Millington C, Nick Levell, A West Sussex, Justine Hexthall Brighton: Claudia DeGiovanni

Devolved nations Cardiff, Vincent Piguet Dundee, Robert Dawe, Sally Ibbotson Glasgow Southern general: Angela Drummond

Consultation with patient groups Additional consultation with peers



Severe or complex immunobullous disease Person collating response

Richard Groves National experts

Richard Groves, London, Guy's & St Thomas’s Hospital Karen Harman, Leicester Royal Infirmary Vanessa Venning, Oxford Churchill Hospital Philip Hampton, Newcastle Upon Tyne National centres for Adults/Children

London, Guy's & St Thomas’s Hospital A+C: Richard Groves, Dr. Jane Setterfield, Jemma Mellerio Leicester Royal InfirmaryA+C: Karen Harman Oxford Churchill Hospital A+C: Vanessa Venning Newcastle Upon Tyne, Royal Victoria Infirmary A+C: Philip Hampton

Additional national paediatric centres Great Ormond Street Hospital Birmingham Children’s Hospital Other centres

Local champions. NB children with these conditions should be referred first to a dermatologist listed under Specialised paediatric dermatology including neonatal Mark Goodfield, Leeds Chapel Allerton Hospital Leeds Nerys Roberts, London& Chelsea and Westminster Hospital Jonathan Leonard, St. Mary’s Hospital London Kathy Taghipour, Whittington Hospital London Monika Saha, Queen Elizabeth Hospital Woolwich Claire Martyn-Simmonds, University College Hospitals, London Jenny Powell, Oxford and Basingstoke Brighton: Claudia DeGiovanni

Devolved nations


Pemphigus vulgaris Network is very supportive of the idea of a network of experts and clinical champions


Comments


Severe or complex autoimmune skin disease including urticarias/mastocytosis

Person collating response

[email protected] Sacha Marsland [email protected]

National experts Dr Sacha Marsland, Salford Royal Dr John Reed, Oxford Dr Ruth Sabroe (Sheffield) Professor M Greaves (Hon. London) Dr Frances Lawlor (Hon. London) Dr Clive Grattan (London, Norfolk & Norwich)

National centres for Adults/Children London Guys & St Thomas’s A+C: Malcolm Greaves, Sean Whittaker, Carsten Flohr, Frances Lawlor Norfolk & Norwich: Dr Clive Grattan Manchester, Salford Royal: Dr Sacha Marsland Additional national paediatric centres Great Ormond Street Hospital Birmingham Children’s Hospital

Other centres Local champions. NB children with these conditions should be referred first to a dermatologist listed under Specialised paediatric dermatology including neonatal.

Oxford Churchill Hospital Ogg Graham

Southampton Ardern-Jones Michael

Warwick Hospital Humphreys Frances

Devolved nations Dundee: Robert Dawe Glasgow RHSC: Pamela McHenry

Consultation with patient groups Clive Grattan is in contact with UK mastocytosis society, but has not reported any specific consultation on this. No known specific patient support group for urticaria. Additional consultation with peers No national forum for mastocytosis or urticaria. There is the European competence Network of mastocytosis (ECNM) that at least two UK centres are signed up to (including London). Comments




Severe or complex autoimmune skin disease including vitiligo

Person collating response


National centres for Adults/Children London Guys & St. Thomas': Bob Sarkany, Sean Whittaker, Carsten Flohr Additional national paediatric centres Great Ormond Street Hospital Birmingham Children’s Hospital


London Barts Health McGregor Jane

London Whittington Wakeel Riadh

Devolved nations



Comments


Toxic Epidermal Necrolysis Person collating response


Daniel Creamer, Sarah Walsh, King’s Healthcare Mike Arden-Jones , Southampton General Hospital Simon Meggitt, Newcastle, Chris Griffiths and G Wong, Manchester National centres for Adults/Children

London, King’s Healthcare Partners (Daniel Creamer, Sarah Walsh, A Verceuil) Southampton General Hospital (Mike Arden-Jones ) London, Chelsea & Westminster Hospital (Nilesh Morar, Nerys Roberts) Birmingham, Queen Elizabeth Hospital (Ratna Rajaratnam, Saj Rajpar) Newcastle, Royal Victoria Infirmary (Simon Meggitt) Manchester, Hope Hospital (Chris Griffiths, G Wong) London: Guys and St Thomas’s (Sean Whittaker) London: Barts and The London (Portia Goldsmith)


Local champions. NB children with these conditions should be referred first to a dermatologist listed under Specialised paediatric dermatology including neonatal. Anna Chapman, QEH Woolwich Devolved nations

Glasgow Southern General: Clare May


Comments

A joint meeting is planned with Burns CRG in January. Developments will be progressed jointly.


Life threatening cutaneous vasculitis Person collating response

Nick Levell [email protected] National experts

Nick Levell (Norfolk & Norwich) Richard Groves (Guys & St Thomas’s Daniel Creamer (Kings College) Simon Meggitt (Newcastle National centres for Adults/Children

Norwich: Norfolk and Norwich University Hospital A+C: Nick Levell London: Guys and St Thomas’s Hospital A+C: Richard Groves , Sean Whittaker London: Kings College: Daniel Creamer Newcastle: Royal Victoria Infirmary A+C: Simon Meggitt


Local champions. NB children with these conditions should be referred first to a dermatologist listed under Specialised paediatric dermatology including neonatal

Leeds Chapel Allerton Hospital Goodfield Mark

London Bartshealth Mile End Hospital Bull Richard

Devolved nations Cardiff: Vincent Piguet

Consultation with patient groups There is no patient group for cutaneous vasculitis

Additional consultation with peers All UK consultants have had the opportunity to put their names forward. Also a number of consultants who were

considered to be possible participants in this were approached directly and have declined or not replied at this stage. Comments

Severe vasculitis is a multi-system disorder so a network should involve specialists from rheumatology, neurology, renal medicine, gastroenterology and other specialties. In practice these cases are managed in combined clinics with dermatologists and other specialists. Paediatric cutaneous vasculitis is often managed in combined clinics with paediatric dermatologists and paediatricians with an interest in rheumatology (and other paediatricians) This may fall within the remit of the specialist paediatric dermatology service.



Severe pyoderma gangrenosum Person collating response

Tony Ormerod [email protected] National experts

Tony Omerod Aberdeen Calum Lyon, York Richard Groves, KCL Nemesha Desai, Guys & St Thomas’s Simon Meggit, Newcastle Chris Bower, Exeter Fiona Craig Grampian Agustin Martin-Clavijo, Birmingham Christopher Griffiths, Manchester Graham Johnston, Leicester National centres for Adults/Children KCL , Richard Groves Guys & St Thomas’s , Nemesha Desai Newcastle, Simon Meggit Exeter, Chris Bower Birmingham, Agustin Martin-Clavijo Manchester, Christopher Griffiths Leicester, Graham Johnston Leeds, Mark Goodfield Additional national paediatric centres


Other centres


Exeter Heavitree Hospital Bower Christopher London Bartshealth Mile End Hospital Bull Richard

Norfolk and Norwich University Hospital Levell Nick Birmingham Queen Elizabeth Hospital Rajpar Sajjad

Devolved nations Cardiff: Vincent Piguet, John Ingram Grampian: Fiona Craig

Consultation with patient groups There isn’t a PG support group Additional consultation with peers

Comments



Severe Graft Versus Host Disease Person collating response

Fiona Child National experts

Fiona Child, Guy’s and St Thomas’ Foundation Trust, London Julia Scarisbrick, Birmingham University Hospital Giles Dunnill, United Bristol Healthcare Trust

National centres for Adults/Children Guy’s and St Thomas’ NHS Trust: Fiona Child Birmingham University Hospital: Julia Scarisbrick United Bristol Healthcare Trust: Giles Dunnill, Cameron Kennedy Additional national paediatric centres Great Ormond Street Hospital Birmingham Children’s Hospital

Other centres Rotherham NHS Trust (lead Dr Peter Taylor, Haematology). No Dermatology but Tissue Viability team involved Nottingham (lead Dr Emma Das Gupta, Haematology). No Dermatology Local champions. NB children with these conditions should be referred first to a dermatologist listed under Specialised paediatric dermatology including neonatal. Catherine Harwood, Barts & the London Devolved nations

Consultation with patient groups No

Additional consultation with peers Informed by attendance at UK Photopheresis Society Biannual meetings.

Comments All Trusts with transplant units will have dermatologists who see GVHD and who may be Local champions. NB children with these conditions should be referred first to a dermatologist listed under Specialised paediatric dermatology including neonatal.


Severe Langerhans cell histiocytosis Person collating response

Tony Chu [email protected] National experts

Prof A C Chu National centres for Adults/Children

Hammersmith Hospital Which hospitals can provide the full range of services and MDT required for the full-time provision of this service for children?

Other than at Hammersmith these patients are managed by oncologists; a dermatologist should be a member of the MDT Additional national paediatric centres Great Ormond Street Hospital Birmingham Children’s Hospital

Other centres No Local champions. NB children with these conditions should be referred first to a dermatologist listed under Specialised paediatric dermatology including neonatal.. NB children with these conditions should be referred first to a dermatologist listed under Specialised paediatric dermatology including neonatal.

London Guys & St. Thomas' Hospitals Whittaker Sean

London Hammersmith Chu Anthony

Scunthorpe General Hospital Gowda Prakash

Newcastle RVI Haniffa Muz

Devolved nations



Comments



Difficult genital dermatology: male (excluding cancer) Person collating response

Chris Bunker [email protected] National experts

David Paige, Barts Health Tony Bewley, Barts Health Bill Porter, Gloucester Richard Turner, Oxford Manu Shah, Huddersfield Chris Bunker, C&W, UCLH National centres for Adults/Children London, UCLH


Oxford: Richard Turner Barts Health: Tony Bewley Whipps Cross: Gloucester: Bill Porter Huddersfield: Manu Shah Local champions. NB children with these conditions should be referred first to a dermatologist listed under Specialised paediatric dermatology including neonatal.

Robert Burd, Leicester Steven Jones, Wirral

Nilesh Morar, Chelsea & Westminster Ruth Murphy, Nottingham

Ien Chan, London St Mary’s Calum Lyon, York

Sabine Sommer, Leeds John Goulding, Solihull

Jan McLelland, Newcastle

Devolved nations Vincent Piguet

Glasgow Southern General: Mark Darling


No Additional consultation with peers Circulated to the MAGIC group.

Comments



Difficult genital dermatology: female (excluding cancer) Person collating response

Fiona Lewis [email protected] National experts

Shireen Velangi Sue Cooper Fiona Lewis Jennifer Yell Ruth Murphy National centres for Adults/Children

Churchill Hospital Oxford (Sue Cooper) City Hospital Birmingham (Shireen Velangi) A+C Salford Royal Hospitals A+C (Jennifer Yell) Guys & St Thomas’s (Fiona Lewis) A+C Heatherwood and Wexham Park (Fiona Lewis) Additional national paediatric centres


Other centres Liverpool (Hazel Bell) Bart’s/Whipps Cross (Karen Gibbon, Arucha Ekeowa- Anderson) Chelsea and Westminster (Clare Fuller) RVI Newcastle (Janet McLelland) Addenbrooke’s Hospital, Cambridge (Jane Stirling) Brighton General Hospital (Liz Derrick) St George’s (Julia Soo) Local champions. NB children with these conditions should be referred first to a dermatologist listed under Specialised paediatric dermatology including neonatal.

Liz Derrick – Brighton Julia Stainforth - York Gayle Taylor - Dewsbury Caroline Wilson - Leeds Jill Adams - Torbay Bronwen Hughes - Portsmouth Cari Aplin - Bath Kate London, Leeds Emma Edmonds (UCLH) Jenny Powell, Oxford and Basingstoke Caroline Owen, Royal Blackburn Hospital Alena Salim, Birmingham Solihull

Devolved nations


To be circulated to the British Society for the Study of Vulval Disease. Comments

The suggested centres are where there are consultants who are involved with vulval disease at a higher level eg. involvement in national societies, research, teaching as outlined in our original proposal. According to the survey, few of the others are seeing significant numbers of tertiary referrals.



Non-malignant lymphoedema Person collating response


Peter Mortimer, St George’s National centres for Adults/Children

St George’s A+C Additional national paediatric centres Great Ormond Street Hospital Birmingham Children’s Hospital


Richard Bull, Barts Health Norfolk & Norwich: Nick Levell

Devolved nations

Consultation with patient groups The Lymphoedema Support Network (patients’ lymphoedema charity) is fully supportive

Additional consultation with peers Comments


Hair disease that is difficult to diagnose or manage Person collating response

[email protected] [email protected] David de Berker is working with the Hair experts to develop standardized descriptions of expertise for future versions of the directory

National experts David Fenton, St Thomas’s Paul Farrant, Brighton Matthew Harries, Manchester Andrew Messenger, Sheffield David de Berker(hair microscopy services only and joint paediatric service with Lindsay Shaw), Bristol Iaisha Ali, London Charing Cross National centres for Adults/Children

Guys & St Thomas’s, London (David Fenton, Ophelia Dadzie) Brighton General Hospital and Royal Alexandra Children’s Hospital, Brighton A+C (Paul Farrant) Salford Royal Foundation Trust, Manchester (Matthew Harries) Gloucester Royal Infirmary (Anita Takwale, James Milne) Sheffield A+C (Andrew Messenger) Additional national paediatric centres

Great Ormond Street Hospital (Mary Glover, Anna Martinez, Nerys Roberts) Birmingham Children’s Hospital ( Fiona Browne) Other centres Bristol Royal Infirmary with Bristol Children’s Hospital for paediatric services and postal hair microscopy service

Local champions. NB children with these conditions should be referred first to a dermatologist listed under Specialised paediatric dermatology including neonatal. Anton Alexandroff, Leicester Mark Hudson Peacock, Canterbury Vicky Joliffe, Barts &The London Jennifer Jones, London Jonathan Bowling, Oxford Manjit Kaur, Birmingham Solihull Martin Wade King George Hospital, Ilford Philip Hampton, Newcastle Caroline Wilson, Leeds Sarita Singh, Chelsea & Westminster Neil Walker, Oxford

Devolved nations Megan Mowbray, Edinburgh Susan Holmes - Southern General Hosp Glasgow


I will email Jackie McKillop and see what she has to say from Alopecia UK Additional consultation with peers We have forwarded the request for information to all members of the British Hair and Nail Group and other colleagues who are prominent in the subspecialty of hair. They have had the opportunity to respond.

Comments




Nail disease that is difficult to diagnose or manage Person collating response

[email protected] National experts

David de Berker, Bristol David Fenton, St Johns

National centres for Adults/Children Bristol Royal Infirmary with Bristol Children’s Hospital, University Hospitals Bristol FT A+C (David de Berker) London Guys & St Thomas’s (David Fenton) Additional national paediatric centres

Great Ormond Street Hospital Birmingham Children’s Hospital Other centres

Local champions. NB children with these conditions should be referred first to a dermatologist listed under Specialised paediatric dermatology including neonatal. Anton Alexandroff , Leicester Katie Blasdale, Newcastle Chris Bower, Exeter Paul Farrant, Brighton Andrew Messenger, Sheffield Sabine Sommer, Leeds Anita Takwale, Gloucester Christopher Bower, Exeter Anshoo Sahota, Barts & the London Iaisha Ali, London Charing Cross Prakash Gowda, Scunthorpe

Devolved nations Megan Mowbray, Edinburgh



Comments



Rare or complex inherited skin disease Person collating response

Celia Moss [email protected] National experts

John McGrath, Guys & St Thomas’s Jemma Mellerio, St Thomas’s and Evelina Celia Moss, Birmingham Children’s Hospital Edel O’Toole, Barts & the London David Paige, Barts & the London Mary Glover , GOSH John Harper, GOSH Fiona Browne, Birmingham Children’s Hospital & University Hospital Birmingham

National centres for Adults/Children London Guys & St. Thomas' Hospitals (John McGrath, Jemma Mellerio) A+C London Barts Health/ Royal London (Edel O’Toole, David Paige) A+C University Hospital Birmingham (Fiona Browne) A Birmingham Childrens Hospital London (Celia Moss, Fiona Browne) C Great Ormond Street Hospital ( Mary Glover, John Harper, Anna Martinez, Veronica Kinsler) C

Other centres Local champions. (NB experts in genetic disorders included elsewhere are listed in relevant section (eg hair, photo, EB, EDS, XP)

Local champions. NB children with these conditions should be referred first to a dermatologist listed under Specialised paediatric dermatology including neonatal. Sara Brown, Dundee Nigel Burrows, Cambridge Sheila Clark, Leeds Adrian Heagerty, Birmingham Solihull Mary Judge, Manchester Cameron Kennedy, Bristol Lindsay Shaw, Bristol Suzy Leech, Newcastle Michael Pope, Northwick Park Jane Ravenscroft, Nottingham Nerys Roberts, Chelsea&Westminster Glenda Sobey, Sheffield Aileen Taylor, Newcastle Georger Millington, Norfolk & Norwich Joey Lai-Cheong, Windsor Saleem Taibjee, Dorchester

National disease-specific experts Catherine Harwood (Barts) EDV Neil Rajan, (Newcastle) cancer syndromes Veronica Kinsler (GOSH) giant CMN Julia Newton-Bishop (Leeds) Melanoma and CMN Sara Browne (Dundee) fillagrin Mohzeh Zamiri (Glasgow) ichthyoses


Drivers to developing the original RGSD proposal included reports from Rare Disease UK and Specialised Healthcare Alliance, and opinions expressed by the Ichthyosis Support Group. The above list includes members of the medical advisory boards of the following support groups: Ichthyosis (Judge, Moss, O’Toole, Paige), Ectodermal Dysplasia Support Group (Browne, McGrath), Hypomelanosis of Ito support Group (Moss, Taibjee), Pachyonychia Congenita Project (McGrath, O’Toole). Additional consultation with peers

Circulated to BSPD. Discussed with collaborators in the Dundee/Wellcome “Dermatology & Genetic Medicine” project Comments


28 June 2013

Back to Index of specialised dermatology services

Occupational dermatoses and contact dermatoses For national commissioning purposes, specialised contact dermatitis is included with severe and complex eczema. For directory purposes it is separate, (jump to Severe or complex eczema) Person collating response

David Orton [email protected] National experts

Mark Wilkinson, Chapel Allerton Hospital Leeds, John English, Nottingham NHS Treatment Centre John McFadden, Ian White, Jonathan White, London, Guys & St Thomas' Hospital David Orton, Department of Dermatology, Hillingdon Hospital Jason Williams, Salford Royal Hospital, Manchester MabsChowdhury, Cardiff National centres for Adults/Children Leeds, Chapel Allerton Hospital: Mark Wilkinson Nottingham: John English Guys & St Thomas’s: John McFadden, Ian White, Jonathan White Hillingdon Hospital: David Orton Manchester, Salford Royal Hospital: Jason Williams Sheffield: following David Gawkrodger’s retirement, Ruth Sabroe/Catherine Holden (Associate Specialist)

Other centres


Deidre Buckley, Royal United Hospital, Bath Sue Cooper, Oxford Helen Horne, Middlesbrough Graham Johnston, Leicester Jane Sansom, Bristol Donna Thomson, City Hospital, Birmingham Tracey Finch, Birmingham Solihull Sarah Wakelin, London, St Mary’s Hospital, Portia Goldsmith, Barts Health

Devolved nations Felicity Campbell, Glasgow Southern General Cathy Green, Dundee Natalie Stone, Wales



Circulated to British Society for Cutaneous Allergy Comments



Photo-investigation and specialised photo-dermatology including porphyria Person collating response

Bob Sarkany [email protected] National experts

Robert Sarkany, Guys and St Thomas' Hospital, London Peter Farr, Newcastle Sheru George, Oxford Lesley Rhodes, Salford Royal Manchester Dr Tsui Ling, Salford Royal Manchester Hiva Fassihi, Guys and St Thomas' Hospital, London Victoria Goulden, Chapel Allerton Hospital, Leeds, Paul Norris, Addenbrookes Hospital, Cambridge Devolved nations Alex Anstey, University Hospital, Cardiff James Ferguson, Dundee Sally Ibbotson, Dundee Robert Dawe, Dundee

National centres for Adults/Children Guys and St Thomas' Hospital, London A+C, Robert Sarkany, Hiva Fassihi Chapel Allerton Hospital, Leeds A+C, Victoria Goulden Manchester Academic Dermatology Centre A+C , Lesley Rhodes, Dr Tsui Ling Addenbrookes Hospital, Cambridge A+C, Paul Norris Royal Victoria Infirmary, Newcastle A+C, Peter Farr Churchill Hospital, Oxford A+C, Sheru George

Devolved nations Ninewells hospital, Dundee A+C University Hospital, Cardiff A+C

Additional national paediatric centres (limited management only; no photo-investigation or phototherapy)


Other centres Southampton (Dr Michelle Oakford) are planning to set up a phototesting Unit in due course.


Jane McGregor, Barts Health Consultation with patient groups

We have consulted the British Porphyria Association (patient support group) who are very supportive of the application and stress the need for developing porphyria services in this way.

Additional consultation with peers We have consulted quite widely within this small subspecialty and I am satisfied that no-one has been left out who has a genuine interest. Comments



Psychodermatological disorder that is difficult to diagnose or manage Person collating response

National experts

Tony Bewley, Barts & The London, and Whipps Cross

National centres for Adults/Children

Barts and the London Whipps Cross

Additional national paediatric centres

Great Ormond Street Hospital Birmingham Children’s Hospital Evelina/St Thomas’s Hospital

Other centres

?

Local champions. NB children with these conditions can alternatively be referred to specialised paediatric dermatology.

Elisabeth Higgins, Kings College Hospital Sandy McBride, Royal Free Hospital

Devolved nations Andrew Affleck, Dundee


?


?


Hidradenitis Suppurativa Person collating response

Dr Nemesha Desai National experts

Dr Nemesha Desai, Dr Simon Meggitt National centres for Adults/Children

1. Dr Nemesha Desai, Dr Emma Benton, Dr Catherine Smith, Professor Jonathan Barker St. John’s Institute of Dermatology (A) Guy’s & St Thomas’ NHS Trust, London

2. Dr Simon Meggitt, Professor Nick Reynolds, Professor Peter Farr, Dr Phil Hampton, Dr Suzy Leech Royal Victoria Infirmary (A&C) Newcastle Upon Tyne Hospital NHS Trust

Devolved nations



Other centres


1. Dr Jan von der Werth, Conquest Hospital, East Sussex Healthcare NHS Trust (A&C) 2. Dr Anthony Bewley, Whipps Cross Hospital, Barts Health NHS Trust, London (A) 3. Dr Anton Alexandroff , Leicester Royal Infirmary, University Hospital Of Leicester

NHS Trust (service in development , A&C)

Devolved nations 1.Dr John Ingram, Dr Ru Katugampola, University Hospital of Wales, Cardiff (service in development A&C)




Stoma dermatoses that are difficult to diagnose or manage. Person collating response

Calum Lyon

National experts

Calum Lyon, York and Salford Royal

National centres for Adults/Children

York Teaching Hospitals Foundation trust Salford Royal Hospitals Foundation trust


Great Ormond Street Hospital Birmingham Children’s Hospital Evelina/St Thomas’s Hospital

Other centres

?

Local champions. NB children with these conditions can alternatively be referred to specialised paediatric dermatology.

Devolved nations


We have on-going dialogue with the ileostomy association as well as acting as dermatology advisor.


No additional consultation so far with dermatologists but we run an annual nurse masterclass that is beginning to Promote joint clinics in other centres such as ours


Laser treatment for birthmarks in children and for patients with rare or complex abnormalities Person collating response


Rob Sheehan-Dare, Leeds Raj Mallipeddi, Guys & St Thomas’s Neil Walker, Oxford

National centres for Adults/Children Leeds (Rob Sheehan-Dare) Guys & St Thomas’s, London Oxford Newcastle Nottingham (William Perkins) Birmingham Skin Hospital (Tony Abdullah) Bedford (Barry Monk) Bristol Salisbury

Additional national paediatric centres Great Ormond Street Hospital (Mary Glover) Birmingham Children’s Hospital (Ratna Rajaratnam) Other centres


Brighton General Hospital Shergill Bav

Leicester Royal Infirmary Burd Robert

London Hammersmith Chu Anthony

Manchester Salford Royal FERGUSON JANICE

Manchester Salford Royal JUDGE Mary

Manchester RMCH Clayton Tim

Middlesborough James Cook University Hospital

Seukeran Daron

Surrey St Helier Hospital Harland Christopher

East Kent: Hudson-Peacock Mark

Exeter (C) Charman Carolyn

Exeter Downs Tony

Dorchester Taibjee Saleem

Devolved nations Bridgend: Alun Evans Belfast: Julian Handley



Comments At this stage we have included only NHS providers, but it is possible that NHSCB will consider alternative providers


Complex vascular anomalies involving skin Person collating response

Hossain Shahidullah National experts

Mary Glover , [Samera Syed, Associate Specialist] GOSH Carsten Flohr, Guys & St Thomas’s Hospital Hossain Shahidullah, Birmingham Mary Judge, Tim Clayton, Manchester: National centres for Adults/Children

GOSH: Mary Glover , Samera Syed, Associate Specialist, C Guys & St Thomas’s Hospital: Carsten Flohr, Rajeev Mallipeddi A+C Birmingham Children’s Hospital: Hossain Shahidullah, Fiona Browne, C Salford Royal Hospital Manchester Tim Clayton, Mary Judge A+C Royal Victoria Infirmary, Newcastle (Aileen Taylor, Suzy Leech) A+C At the following centres plastic surgeons and/or interventional radiologists provide a national service Queen Elizabeth Hospital, Birmingham(Ian McCafferty, Radiology) Liverpool (Mr S Liew, Plastics) Middlesborough (Plastic Surgeon Mr Tobian Muir, Plastics) Bristol Royal Infirmary Other centres

Local champions. NB children with these conditions should be referred first to a dermatologist listed under Specialised paediatric dermatology including neonatal Middlesborough: Sivakumar Natarajan Liverpool: Richard Parslew, Grahame Sharpe Leeds: Sheila Clark, Rob Sheehan-Dare Nottingham: Jane Ravenscroft, Hywel Williams, Ruth Murphy, William Perkins Cambridge: Nigel Burrows Bristol: Lindsay Shaw, Cameron Kennedy Barts and the London: David Paige, EdelO’Toole, Sasha Dhoat Barnet and Chase Farm: Virginia Hill, Ioulios Palamaras, Penny Thomson Sheffield: Mike Cork Surrey, St Helier: Christopher Harland Chelsea and Westminster: Nerys Roberts, BisolaLaguda

Devolved nations Bridgend: Jenny Hughes Edinburgh: Olivia Schofield Glasgow RHSC: Pamela McHenry


Yes for Great Ormond Street Additional consultation with peers

Comments This subspecialty requires joint working between Dermatology, Plastics and Interventional Radiology


Specialised dermatopathology Person collating response

Saleem Taibjee National experts (only those participating in the National Specialised Dermatopathology EQA scheme are included)

Hospital Dermatologists Histopathologists

St James University Hospital, Leeds

Sara Edward DipRCPath

Will Merchant DipRCPath

Royal Hallamshire Hospital Sheffield

D Slater (Previous Chair of

DipRCPath Dermpath Examiners)

R Ali DipRCPath, N Tiffin

Oxford Kevi Hollowood (DipRCPath examiner), Olivia

Espinosa DipRCPath

Ruth Asher ?DipRCPath

University Hospitals of Leicester Mark Bamford DipRCPath

Gerald Saldanha

Salford Royal Hospital, Manchester

Lynne A Jamieson DipRCPath

L Motta DipRCPath

Manchester Royal Infirmary Iskander Chaudhry + second colleague

imminent

University Hospital of North Durham

Paul Barrett, Kakinder Sidhu

Newcastle Royal Victoria Infirmary

Akhtar Husain, Nigel Kirkham, Frazer Charlton

Southampton Jeffrey Theaker (previous examiner for

DipRCPath)

Victoria Elliot, Vipul Foria

Hull Anu Roy, Bipin Mathew DipRCPath

Bristol Royal Infirmary Paul Craig DipRCPath, Jon Oxley DipRCPath

Addenbrookes, Cambridge Ed Rytina, George Meligonis, Vicky Bardsley,

Rebecca Brais

Norfolk & Norwich NHS Foundation Trust

Laszlo Igali, Joseph Murphy, Arjun Ramayia,

Geoffrey Waters

Royal Liverpool University Hospital

Arti Bakshi, Dr Khirwadkar

Warwickshire & Coventry, Birmingham Children's Hospital

Saleem Taibjee DipRCPath Richard Carr DipRCPath examiner

Heart of England NHS Trust Peter Colloby DipRCPath examiner

Ronald Muc DipRCPath

Sandwell and West Birmingham Hospitals NHS Trust

Madhavi Maheshwari DipRCPath

Parveen Abdullah, Suhail Muzaffar

St John’s Institute of Dermatology, Guys & St Thomas

Eduardo Calonje DipRCPath examiner, Alistair

Robson, Catherine Stefanato

Imperial College Healthcare NHS Trust

Nick Francis, James Carton, Rathi Ramakrishnan,

E M Thompson, Marjorie Walker, Justin Weir

Barts & the London Rino Cerio DipRCPath

Mohsin Khorshid

Colleagues of Rino Cerio

28 June 2013 Guildford Martin Cook, Izhar Bagwan, Silvana Di Palma

Royal Belfast Hospital Maureen Walsh (DipRCPath examiner) &

colleagues

National centres for Adults/Children All the above see material from adults and children apart from Birmingham Children’s Hospital (children only) Other centres

See below Local champions.

As above Consultation with patient groups I suspect patient groups would not have a particular opinion

Additional consultation with peers The Dermatopathology community has been widely consulted and invited to submit via the National Specialist Dermatopathology EQA Scheme The following responded to the BAD survey, but not the initial survey of dermatopathologists participating in the NSD EQA scheme. We are uncertain if they would meet the minimum requirements of a Specialist Service, specifically being participants of the NSD EQA scheme, and having more than one colleague per centre to allow for covering the service. Ravi Ratnavel, Aylesbury Stoke Mandeville Fiona Antony, Surrey Frimley Park Hospital Mary Glover (?on behalf of Dr Malone), Great Ormond Street Hospital (paediatric only) Comments


Complex Ehlers Danlos Nationally commissioned service *elements that are currently nationally commissioned Person collating response

Celia Moss National experts *Mike Pope (Northwick Park) A+C *Glenda Sobey (Sheffield) (Service lead) A+C Nigel Burrows (Cambridge) A+C National centres for Adults/Children

*Northwick Park *Sheffield Cambridge


Local champions. NB children with these conditions should be referred first to a dermatologist listed under Specialised paediatric dermatology including neonatal All listed in Rare Genetic Skin Disease section, page 17 Nemesha Desai, Guys and St Thomas’s


Comments


Epidermolysis bullosa Nationally commissioned service *elements that are currently nationally commissioned Person collating response Celia Moss National experts *Jemma Mellerio (service lead) *John McGrath *Anna Martinez (service lead) *Fiona Browne (service lead) Celia Moss *Adrian Heagerty (service lead) National centres for Adults/Children

*St Thomas’s *Solihull Which hospitals can provide the full range of services and MDT required for the full-time provision of this service for children? *GOSH St Thomas’s (Evelina) *Birmingham Children’s Hospital Other centres

Local champions. Tim Clayton, Manchester + All those listed in Rare Genetic Skin Disease section, page 17

Devolved nations Catherine Jury, Southern General Hosp Glasgow Olivia Scofield and Mike Tidman, Edinburgh


DebRA is closely involved with the service Additional consultation with peers

Comments


Xeroderma pigmentosum Nationally commissioned service *elements that are currently nationally commissioned Person collating response

Celia Moss National experts *Bob Sarkany *Hiva Fassihi (service lead) *James Ferguson *Sally Ibbotson National centres for Adults/Children

*Guys & St Thomas’s A+C *Ninewells Dundee A+C


Local champions.

All listed in Rare Genetic Skin Disease section, page 17 Consultation with patient groups XP Support Group is closely involved with the service


Comments

28 June 2013

28 June 2013 Provider Information for BAD Specialised Services … Spec... · 2014. 9. 16. · GOSH: Mary Glover, Nerys Roberts, Anna Martinez (paediatrician), Veronica Kinsler (paediatric

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