2016 FSHD CONNECT - Treatment - FSHD Society€¦ · We invite you to sponsor the FSH Society’s 2016 FSHD Connect Conference. This year, for the first time, we have combined our

SPONSORSHIPKIT

Contact:JuneKinoshita,ExecutiveDirector,[email protected],450BedfordStreet,Lexington,MA02420USA(781)301-6649

2016FSHDCONNECT

ResearchConnectNovember10-11

PatientConnectNovember11-12

NationalGalaNovember11

WestinCopleyPlaceHotel10HuntingtonAvenueBoston,Massachusettswww.fshsociety.org

SPONSORSHIPKIT


3

“WebelievetherewillbeacureonedayforoursonNoah,andweknowtheFSHSocietywillplayahugeroleinfindingit.”—KristenandDanLinsky

Greetings!WeinviteyoutosponsortheFSHSociety’s2016FSHDConnectConference.Thisyear,forthefirsttime,wehavecombinedourtwosignaturemeetingsintoasingle,three-daysuper-conference.OureventsbeginonNovember10withResearchConnect(formerlytheInternationalResearchConsortiumWorkshop).Opentoactiveresearchprofessionalsfromaroundtheworld,theworkshopisthepremierannualplatformforclinicians,medicalresearchers,andbasicscientiststopresentanddiscussnewdevelopmentsinFSHmusculardystrophyresearch,reinforcecollaborativeefforts,andfacilitatenewinitiatives.ResearchConnectculminatesonthemorningofNovember11withamoderateddiscussiontoassessthecurrentstateofthefieldandsetprioritiesforthecomingyear.

OntheafternoonofNovember11,weseguetothePatientConnectconference,whichbringstogetherhundredsofpatientsandfamilymemberswithtopresearchers,doctors,andhealthexperts.ContinuingthroughNovember12,thisgatheringprovidesadayandahalfofimmersivelearningandcommunitybuilding.Thisyear’smeetingwillfeaturetalksbyleadersinthefieldofFSHD,includingreportsfrommajorclinicalandresearchcenters,industry,question-and-answerpanelsessions,andeducationalworkshops.

OrganizedtomarktheFSHSociety’s25thAnniversary,FSHDConnectisthefirsttimesomanyresearchers,clinicalexperts,patients,familymembers,caregivers,andadvocacygroupswillconveneinoneplace.Tocelebratethismilestone,theFSHSocietywillhostitsinauguralnational“CureFSHDGala”ontheeveningofFriday,November11.Youwon’twanttomissthisimaginativetributeto25yearsofbreakthroughresearch,withinspiringtributes,awardsandaperformancebyrenownedpianistStevenBlier.

Insponsoring2016FSHDConnect,yourorganizationwillgainrecognitionasaninvaluablecommunitypartnerbyaWho’sWhooftheFSHDfield—researchandclinicalleaders,risingstars,majordonors,internationalfundingagencies,patients,andfamilies.

Welookforwardtohavingyoujoinusasasponsoronthishistoricoccasion.Thankyou!

DanielP.Perez JuneKinoshitaPresident&CEO ExecutiveDirector

SPONSORSHIPKIT


4

FSHDConnectOverviewTheFSHSociety'sannualmeetingforFSHDPatients,Clinicians,andResearchers

ResearchConnectNovember10-11,2016

PatientConnectNovember11-12,2016

CureFSHDGalaEveningofNovember11,2016

TheFSHSociety’sannualinternationalresearchconferenceandpriority-settingworkshop.

Thursday,November108:00a.m.–6:00p.m.Scientifictalksandpostersessions.

Friday,November118:00a.m.–12:45p.m.Researchpriority-settingworkshop.

Organizers:DanielP.Perez,President&CEO,FSHSociety.Co-Chairs:StephenJ.Tapscott,MDPhD;SilvèrevanderMaarel,PhD;KathrynWagner,MDPhD.

Whoshouldattend:basic,translational,andclinicalresearchersfromacademiaandindustry;fundingagencies.

Expectedattendance:100-120

Ournetworkingconferencebringstogetherpatients,families,clinicians,andresearchers.

Friday,November111:00p.m.–5:00p.m.Aworld-classfacultypresentsthelatestinourunderstandingofgenetics,diagnosis,symptoms,progression,clinicaltrialreadiness,therapeutictargets,andongoingclinicaltrials.Q&Atolearnfrompatients.

Saturday,November128:00a.m.–5:00p.m.Patient-focusedworkshopsonavarietyoftopicsonmanagingFSHD-relatedhealthconditions,livingandthrivingwithFSHD,becominganempoweredpatient.

Whoshouldattend:FSHDpatients,familymembers,clinicians,researchersfromacademia,andindustry;advocacyorganizations.


TheFSHSociety’sinauguralnationalgala.Cocktailreception,banquet,musicalperformance.

Friday,November116:30p.m.–10:00p.m.

Animaginative,science-themedeveningtocelebratethescientificachievementsoftheFSHSocietyandhonortheresearchers,clinicians,majordonors,andpatientswhoaretransformingthelandscapeforFSHDpatientsaroundtheworld.

ConcertperformancebyrenownedpianistStevenBlierandguestvocalist.

Whoshouldattend:patients,families,friends,researchers,clinicians;leadersinresearch,medicine,biotech,andphilanthropy.


EarlyBirdRegistration*byFriday,September30:Academic,nonprofit,government,$180;graduatestudent,postdoctoralresearcher,$90;corporate,$300.

Registration*byFriday,November4:Academic,nonprofit,government,$250;graduatestudent,postdoctoralresearcher,$150;corporate,$400.

* Registrationfeewaivedforpresenters.

Registeratwww.fshsociety.org/fsh-events/2016-international-research-consortium-workshop/

EarlyBirdRegistrationbyFriday,September30:Peradult,$190(member);$245(non-member);peryoungadult,$115(age12–18);andnochargeforchildrenunder12.Familyratefor3+attendees,$495(member);$560(non-member).

RegistrationbyFriday,November4:Peradult,$245(member);$300(non-member);peryoungadult,$175(age12–18);andnochargeforchildrenunder12.Familyratefor3+attendees,$595(member);$660(non-member).

Membership:$50

Registeratwww.fshsociety.org/fsh-events/2016-fshd-connect-conference/

EarlyBirdRegistrationbyFriday,September30:Galaticket,$150;VIPticket,$350.

RegistrationbyFriday,November4:Galaticket,$200;VIPticket,$400.

Tablehostsandsponsordeadlineforinclusionineventinvitation:August26.

DeadlineforinclusioninGalaprogram:October20.

Registeratwww.fshsociety.org/fsh-events/fsh-society-national-gala/

SPONSORSHIPKIT


4

SponsorshipPackagesforAllThreeEvents:ResearchConnect(IRC),PatientConnect,andGala

SPONSORSHIPLEVELS

SPONSORSHIPBENEFITS

$25,000Platinum

8IRCpasses,8PatientConnectpasses,and3VIPtables(seatingfor24)Keynotespeakersponsor:Logoonprogramcovers;mentioninkeynotespeechintroduction,pressreleases,website,socialmedia;logoprojectedateventandtablehostattheGala.Opportunitytoprovidegiveawayattheevents.

$15,000Gold

6IRCpasses,6PatientConnectpasses,and2VIPtables(seatingfor16)OptionA:Musicalperformancesponsor:Logooninsideprogramcovers;mentioninperformanceintro,pressreleases,website,socialmedia;logoprojectedateventandtablehostattheGala.

6IRCpasses,6PatientConnectpasses,and2VIPtables(seatingfor16)OptionB:Accesssponsor:(financialaidfor10individualstoattendPatientConnect)Logooninsideprogramcover,pressreleases,website,socialmedia;logoprojectedateventandtablehostattheGala.

$10,000Silver

4IRCpasses,4PatientConnectpasses,and1VIPtable(seatingfor8)25thanniversaryfilmsponsor:Logooninsideprogramcover;mentioninpressreleases,website,filmcredit,socialmedia;logoprojectedateventandtablehostattheGala.

$5,000Bronze

2IRCpasses,2PatientConnectpasses,andVIPseatingfor4OptionA:"CelebratingScience”CureFSHD Galadécorsponsor:Logoinprogrambookandonbanquettables,mentioninpressreleases,website,socialmedia.

2IRCpasses,2PatientConnectpasses,andVIPseatingfor4OptionB:PortraitProjectsponsor:Sponsorprofessionalportraitphotosofpatientstoraiseawareness.Logoinprogrambook;mentioninpressreleases,website,andonselectedpatientportraits;non-exclusivelicensetouseselectedportraits.

$2,500Supporter

1IRCpass,1PatientConnectpass,andVIPseatingfor2OptionA:CoffeeBreaksponsor:Logoinprogramandatcoffeebreaktables;mentioninpressreleases,website,socialmedia.

1IRCpass,1PatientConnectpass,andVIPseatingfor2OptionB:PatientConnectBreakoutsessionsponsor:Logoinprogramsandinbreakoutsessionroomsandhandouts;mentioninpressreleases,website,socialmedia.

PageTotal:

SPONSORSHIPKIT


5

LunchSymposiumSponsorships

SPONSORSHIPLEVELS SPONSORSHIPBENEFITS

$5,000LunchSymposiumSponsorNovember10

2IRCpassesandVIPseatingfor2attheGalaSponsoralunchpanel*onNovember10gearedtoanaudienceofacademicandindustryresearchers,andadvocacyorganizations.Logooninsideprogramcoverandonboxedlunches.


2IRCpassesandVIPseatingfor2attheGalaSponsoralunchpanel*onNovember11gearedtoanaudienceofacademicandindustryresearchers,andadvocacyorganizations.Logooninsideprogramcoverandonboxedlunches.


2PatientConnectpassesandVIPseatingfor2attheGalaSponsoralunchpanel*onNovember12gearedtoanaudienceofpatientsandfamilies,andFSHDadvocacyorganizations.Logooninsideprogramcoverandonboxedlunches.

* Subjecttoapprovalbyconferenceorganizingcommittee.

PageTotal:

SPONSORSHIPKIT


6

IndividualEventSponsorships

SPONSORSHIPLEVELS

SPONSORSHIPBENEFITS

$5,000LevelResearchConnectSponsor

6IRCpassesNameorlogooneventpodiumandinsideprogramcover;mentioninpressreleases,website,socialmedia.

$5,000LevelPatientConnectSponsor

6PatientConnectpassesNameorlogooneventpodiumandinsideprogramcover;mentioninpressreleases,website,socialmedia.

$5,000LevelGalaSponsor 1VIPtable(seatingfor8)Nameorlogooneventpodiumandinsideprogramcover;mentioninpressreleases,website,socialmedia.


4IRCpassesNameorlogoinsideprogram,mentioninpressreleases,website,socialmedia.


4PatientConnectpassesNameorlogoinsideprogram,mentioninpressreleases,website,socialmedia.

$2,500LevelGalaSponsor VIPseatingfor4NameorlogoinsideGalaprogram,mentioninpressreleases,website,socialmedia.


2IRCpassesNameorcompanylistinginsideprogram.


2PatientConnectpassesNameorcompanylistinginsideprogram.

$1,500LevelGalaSponsor VIPseatingfor2Nameorcompanylistinginsideprogram.

PageTotal:

SPONSORSHIPKIT


7

SponsorApplicationDEADLINES:August26forinclusioninGalainvitation.October20forinclusioninprogrambook.

Toreserveyoursponsorship,COMPLETEPAGES4-7ofthisdocumentandreturnthemvia:

• Mailto:Attn:FSHDConnect,FSHSociety,450BedfordStreet,Lexington,MA02420.

• Emailto:[email protected]

OrcalltheFSHSocietydirectlyat:(781)301-6042tohavethepaymentprocessedonyourbehalf.

YourOrganization:____________________________________________________________________________

YourName:________________________________________________Title:_____________________________

Address: ____________________________________________________________________________________

City,State,Zip:_______________________________________________________________________________

Phone:_____________________________Email:__________________________________________________

I/Wewillattend____#ofpeople.Ourpartywillrequire____wheelchair/scooterseatingspaces.

SUBTOTALPP4-6:

Iwouldlike____additionalGalatickets@$150,totaling

Iwouldlike____additionalVIPtickets@$350,totaling

Pleaselistthenamesofyouradditionalguests:_____________________________

____________________________________________________________________

____________________________________________________________________

I/Wewouldliketomakeagiftintheamountof:

Mygiftisinhonorof:__________________________________________________

TOTAL:

EnclosedismycheckpayabletotheFSHSociety.

Pleasecharge: Visa MasterCard AMEX

Card#:______________________________________________ExpirationDate:________SecurityCode:________

Questions?Pleasecontactjune.kinoshita@fshsociety.orgTheFSHSocietyisa501(c)(3)non-profitorganization.

2016 FSHD CONNECT - Treatment - FSHD Society€¦ · We invite you to sponsor the FSH Society’s 2016 FSHD Connect Conference. This year, for the first time, we have combined our

Documents