2015 ANNUAL REPORT - Feeding Matters · 2015 ANNUAL REPORT. ... Bruce & Lynne Wright Armstrong Family Foundation ... The Charro Foundation CVS Health Delta Dental of Arizona Foundation

2015 ANNUAL REPORT

THE MISSION OF FEEDING MATTERS IS TO BRING PEDIATRIC FEEDING STRUGGLES TO THE FOREFRONT SO INFANTS AND CHILDREN ARE IDENTIFIED EARLY, FAMILIES’ VOICES ARE HEARD, AND MEDICAL PROFESSIONALS ARE EQUIPPED TO DELIVER COLLABORATIVE CARE.

TABLE OF CONTENTS LETTERS FROM LEADERSHIP 3

THE IMPACT OF OUR PROGRAMS 5

FOUNDATION OF FEEDING MATTERS 11

AUDITED FINANCIALS 13

2015 DONORS 14

LEADERS BEHIND FEEDING MATTERS 17

WE OVERCOME THE COMPLEX ISSUES OF PEDIATRIC FEEDING STRUGGLES THROUGH OUR FIVE MISSION PILLARS: EDUCATION, ADVOCACY, RESEARCH, TREATMENT, AND SUPPORT.

LETTERS FROM LEADERSHIP

FOURTEEN YEARS AGO, my family faced the unimaginable: three infants with pediatric feeding disorders. They spent the first eight years of their lives living in and out of hospitals across the country, searching for help and a diagnosis. Watching my children suffer in pain is what inspired me to establish Feeding Matters. It is important for me to do everything I can to end the suffering and fragmented care children currently receive.

I am honored to share that Feeding Matters is creating solutions by advocating for a unified diagnosis that will allow for comprehensive care. This groundbreaking work will lead to earlier identification, best practices, and ignite research and education in this field. Ultimately, this will eliminate the systemic barriers faced when providing the most comprehensive care. Thank you for believing in the work of Feeding Matters and your ongoing commitment to our mission.

THIS IS AN EXCITING TIME for the pediatric feeding disorders community. We have built partnerships, locally and globally, to create a voice for the over one million children who struggle to eat, across the United States.

With over two dozen experts on our medical professional council and countless families behind our cause, we have both the knowledge and passion to support the pediatric feeding community.

We know we achieved success this past year in no small part because of the partnerships and relationships we have established. This exceptionally generous community has made us the internationally recognized organization we are today. Without this community of support, we couldn’t lead the way for nourishing healthy futures.

SHANNON GOLDWATER, FOUNDER + BOARD CHAIR CHRIS LINN, EXECUTIVE DIRECTOR

“WE THINK VERY HIGHLY OF WHAT FEEDING MATTERS DOES FOR ALL CHILDREN AND THE MIRACLES THAT HAPPEN WHEN KIDS ARE ABLE TO RECEIVE THE NOURISHMENT THEY NEED.”

- Danny CalihanCEO, Thunderbirds Charities

IMPACT OF OUR PROGRAMS

LJ WAS HITTING ALL OF HIS MILESTONES until he suddenly stopped eating and talking around 18 months old. Then, at 4 years old, he was diagnosed with a speech impairment and sensory processing disorder. Now, he only drinks water and his diet consists of five foods. Despite all of this, my son’s doctor never thought LJ’s eating was an issue because he managed to maintain a normal weight.

What his doctor couldn’t see was the fear that comes over LJ whenever food is mentioned, along with the absolute panic that sets in when he’s offered new food. I’m afraid he isn’t getting the proper nutrition he needs to grow, and I’m frustrated his doctor never considered the possibility of LJ having a feeding disorder.

My fear and frustration led me to find Feeding Matters. Their passion for helping kids just like LJ is contagious. With their help, I am finding services my son needs to become healthy and strong.

first program year 2015 program year

people served by community

outreach

blog visitors

390

900

28,380

4,174

families supported26

12,827

visitors to the provider

directory931 4,572

virtual health resource

platform users9,162

2,461

- Rebecca J., Arizona

“THE BIGGEST BARRIER PROFESSIONALS FACE IS THE NEED FOR MORE EDUCATION, AS WHAT IS TAUGHT IN SCHOOLS ONLY BRUSHES THE SURFACE.”

- Lori Sletten, OTR/L, OTD2015 Conference Attendee

IMPACT OF OUR PROGRAMS CONTINUEDfirst program year

feeding questionnaires

completed

18

10,102

conference attendees120 608medical

professionals supported

4

2,252

2,742

volunteers 169

countries represented at

conference101

DURING MY MASTER’S PROGRAM, pediatric feeding was only discussed in one 3-hour class, but it intrigued me enough to supplement my education with additional training and workshops. A client introduced me to Feeding Matters’ resources, and I was excited to learn I was living in the same state as this ground-breaking international organization. I even began devoting my time as a volunteer Community Ambassador.

Feeding Matters is fantastic because of its tight-knit community dedicated to supporting a medical issue that is not always addressed. Through community outreach, I advocate for families and inform several healthcare specialties about pediatric feeding disorders.

Feeding is a crucial part of a child’s development, and I’m excited Feeding Matters promotes collaborative care amongst different specialties. Many specialists want additional resources to help better treat pediatric feeding disorders, and I’m appreciative that Feeding Matters is encouraging experts from around the world to look at the child as a whole.

- Amanda Herrmann, MS, CCC-SLP

2015 program year

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“FEEDING MATTERS POSITIVELY IMPACTS LIVES ON A DAILY BASIS AND IS LEADING THE CHARGE FOR CHILDREN, PARENTS, AND HEALTHCARE PROFESSIONALS.”

- Judy Schubert Philanthropist &

Feeding Matters Community Advisor

“FEEDING MATTERS IS SHIFTING THE PARADIGM FOR CHILDREN WORLDWIDE WHO SUFFER FROM PEDIATRIC FEEDING DISORDERS, AND WE ARE PROUD TO INVEST IN THEIR FUTURE.”

- Annette Musa Arizona Market President, Comerica Bank

SUPPORTOur entire community has a vested interest in ensuring that families with children facing pediatric feeding disorders have the hope and help they need to thrive now and throughout their lifetime.

TREATMENTFeeding Matters promotes a model of coordinated care, which evaluates the complexities of a child’s feeding disorder and encourages collaborative approaches to care. Each child deserves individualized and appropriate treatment.

RESEARCH The Infant and Child Feeding Questionnaire© is being researched in hopes of it becoming a screening tool. Currently, it fosters communication between parents and healthcare professionals to discuss red flags that may be indicative of feeding disorders.

ADVOCACYFeeding Matters partners with the public and private sectors to invest in a child’s well-being through insurance reform, proactive public health policy, and early intervention legislation. It is critical for children in need to be identified as early as possible.

EDUCATION Through facilitating opportunities for continuing education, we are committed to providing families and healthcare professionals with the expert knowledge required to deliver collaborative approaches to care.

FOUNDATION OF FEEDING MATTERSWe are conveners, thought leaders who facilitate change through our five mission pillars:

DONATE

“I FOUND FEEDING MATTERS AND DISCOVERED A WHOLE WORLD OF PASSIONATE PEOPLE WHO ARE MAKING A GREAT EFFORT TO MANAGE COMPLEX CLINICAL SITUATIONS.”

- Linda Digregorio, SLPVolunteer of Feeding Matters

2015 AUDITED FINANCIALS

$876,741total expenses:

programs$656,330 75%

17%fundraising $151,221

8%general administrative $69,190

$741,850total revenue:

45% grants$334,155

17% fundraising events $125,180

15% in-kind$115,458

7% contributions $49,471

16% programs$116,288

other$1,298>1%

total revenue: $741,850total expenses: $876,741net assets: $399,433

The great strides we make on a daily basis would not be possible without our community’s continued investments. Feeding Matters is grateful for the support and endorsement of our generous corporate, foundation, and individual partners.

2015 DONORS

AnonymousArizona Community FoundationArizona Coyotes FoundationArizona Department of Health ServicesBDL FoundationThe Board of VisitorsCarefree Trading, Inc.CoBiz Cares FoundationColten Cowell FoundationComerica BankCoramDolores Miller Charitable EndowmentThe Employees Community Fund of Boeing - ArizonaBob & Shannon Goldwater

Jaburg & Wilk Foundation, Inc.Lerner & Rowe, PCLeRoy Thon & Ruth V. Thon Advised Fund

Mercy Care PlanThe Molly Lawson Foundation, Inc.

Once Upon a Time…The Pakis Family Foundation

Paul Rudolph Bill & Judy SchubertSocial Venture Partners ArizonaSouthwest Human Development

Thunderbirds Charities Treon and Shook, PLLCBruce & Lynne Wright

Armstrong Family FoundationDorrance Family Foundation Geneva Fund Ibis Foundation of Arizona

The Ingebritson Family FoundationThe Kemper and Ethel Marley Foundation

$25,000+

$5,000 - $24,999

Arizona LotteryBanner HealthBlue Cross Blue Shield of ArizonaThe Charro FoundationCVS HealthDelta Dental of Arizona FoundationDiane & John EcksteinExecutive Council CharitiesFiesta Bowl CharitiesRobert J. GordonGruber Family Donor Advised Fund of the Jewish Community Foundation

Lynn HoffmanHoneywell International Charity MatchingJim & Marcia HughesJRM Environmental, Inc.Bill & Linda LangerMednax/Phoenix Perinatal AssociatesMiller, Weber, Kory, LLPMiracle Mile DeliSam & Jenny MoellerNussbaum Gillis & Dinner, PC Phoenix Suns Charities

Sprouts Farmers MarketVirginia G. Piper Charitable TrustJohn WalkerWestern RefiningCharles & Stephanie WhetstineLarry & Sue WilkWilliam L. and Ruth T. Pendleton Memorial Fund

Carey & Debbie Williams

Bill & Helene AlberPatrick & Amy ArmstrongCharles Balkin & Jill DiMauroEdward Banas & Priscilla CopelandHarley & Lisa BarnesMark & Rebecca BogardRobyn & Philip Calihan IIIOlivia CamposJennifer CarrollWally & Susan ChesterChildren’s Hospital of WisconsinCommunity Health CharitiesElite Flight TrainingKristen ElnickyEZ PZDavid & Mechelle Freeman

David & Kristen FrenchFunctional FormulariesErika GiselMary Lea Hahn & David GorisLutz & Margarita HendricksJeff & Lisa HuffBrian & Ann JordanDr. Daniel & Jill KesslerMary KostrivasBrad & Hallie LakinMark & Chris LinnDavid & Heather LoiselJoan LowellBrad & Christi LundeenNick & Judy MawrenkoDavid & Judy McCarville

Terry McDonnellMGA Home HealthcareP. Anthony NissleyDanica O’Leary & Rick WilesRobert & Gabrielle RifeThomas & Sophann SchleiferDr. Ronald & Dawn SerbinSputnik Moment, LLCValley Heritage FoundationWells FargoTrevor & Meghan WildeCraig WillisRobin & Michele Yount

$1,000 - $4,999

$500 - $999

BOARD OF DIRECTORSShannon K. Goldwater Founder + Board ChairJoan P. LowellVice PresidentCharles W. WhetstineSecretaryOctavio PadillaTreasurerLora GolkeDaniel B. Kessler, MD, FAAPHeather LoiselNick MawrenkoBruce Wright

MEDICAL PROFESSIONAL COUNCILMatthew E. Abrams, MD, FAAPJoan C. Arvedson, PhD, CCC-SLP, BCS-S, ASHA FellowJulie Barkmeier-Kraemer, PhD, CCC-SLPJoy V. Browne, PhD, PCNS-BC, IMH-EJohn Chappel, MA, PTElizabeth Clawson, MS, PhD, LCP, HSPPAmy L. Delaney, PhD, CCC-SLPPamela Dodrill, PhD, CCC-SLPCarol Elliott, BS, OTR/LElaine Ellis, MDMary Beth Feuling, MS, RD, CSP, CDElizabeth Fischer, PhDRon Fischler, MDErika Gisel, PhD, OTR, ergDaniel B. Kessler, MD, FAAP

Marsha Dunn Klein, OTR/L, MEd, FAOTASuzanne Evans Morris, PhDRichard J. Noel, MD, PhDTrudi Norman-Murch, PhD, CCC-SLPDaniel Openden, PhD, BCBA-DJames A. Phalen, MD, FAAPErin Sundseth Ross, PhD, CCC-SLPColin Rudolph, MDRonald M. Serbin, MDAlan Silverman, PhDDenise Stats-Caldwell, MA, CCC-SLPKay Ann Toomey, PhDMichelle Trumpy, MPH, RD, LDLisa Vickers, MSEd, CCC-SLPDana Williams, MD

COMMUNITY ADVISORSJacquelynn DorranceDianne GoldwaterAshley Dorrance KaplanFred PakisDenise D. ResnikJudy SchubertJudy ShannonDebbie SimonsMarge SmithGinger Ward

PARENT COUNCILCathy HumphreyHeather Joy MagdelanoRobyn NeidererHayley RothblumRenee Uzelac

STAFFChris Linn Executive DirectorMaggie DennisNicoletta FasanoJalenna FrancoisJaclyn Goris, MHIKate JacobsenKristie Leshinskie, MPHHeidi Van der Molen

LEADERS BEHIND FEEDING MATTERS

2015 ANNUAL REPORTfeedingmatters.org