2013 ANNUAL REPORT
Apr 07, 2016
2013 ANNUAL REPORT
LeadershipJeffrey Keith • President, CEO, and Co-Founder
Bob Mazzone • Chief Operating Officer
Board of DirectorsJeffrey Keith George Richards Jonathan Slavin Evan Vosburgh, MD
John Ragland • Co-Founder Daniel Rose, MD Michael J. Smith Matthew Vossler
Program StaffTamara Deyle • Program Director, Center for Survivorship
Julia Pemberton • Director, Communications & Public Affairs
Sharyn Taymor • Director, Survivorship Network & Outreach
Honorary Board of AdvisorsJonathan Bass • Managing Director, Mizuho Bank
Mark Brostowski • Partner at Regiment Capital
Winston Holt • Partner at Maverick Capital
John G. Macfarlane III • Chairman, Zafferano Capital LP
James E. Walker III • Managing Partner at Fir Tree Partners
Michael Wamp • Managing Partner at Lake Water Capital
David “Tiger” Williams • Founder and Managing member of Williams Trading
Medical Advisory Board
Keith Bellizzi, PhD, MPH • University of Connecticut
D. Barry Boyd, MD • Greenwich Hospital
Mitch Golant, PhD • Cancer Support Community
Melinda Irwin, PhD, MPH • Yale School of Medicine
Nina Kadan-Lottick, MD • HEROS Clinic, Yale University
Susan Mayne, PhD, FACE • Yale School of Public Health
Mary McCabe, RN, MA • Memorial Sloan-Kettering Cancer Center
Kenneth Miller, MD • Sinai Hospital
Carrie Stricker, PhD, RN, AOCN • Abramson Cancer Center, UPENN
Doug Ulman • Livestrong Foundation
Evan Vosburgh, MD • Raymond and Beverly Sackler Foundation
250 Pequot Avenue • Southport, CT 06890 • 203-292-8722 • www.ctchallenge.org
OUR MISSIONThe CT Challenge empowers cancer survivors to live longer, happier
and healthier lives by creating and funding programs, offering credible
resources, and building a community of support.
OUR IMPACTThis year, with your support, we were once again able to help more cancer
survivors than ever before.
Over 50,000 cancer survivors were impacted directly by CT Challenge pro-
grams, at the Center for Survivorship, through our community programs and
through our hospital partners in the CT Challenge Survivorship Network.
42,047 visitors to CTChallenge.org sought information and resources.
3 Letter from the President
4 Survivorship Programs
4 Center for Survivorship
7 CTChallenge.org
8 Education and Research Grants
9 Young Adult & Children’s Program Grants
10 Survivorship Network
11 Spreading the Word
12 Support Groups
13 Funding our Programs
13 Bike Ride
14 Team CT Challenge
CT Challenge Zumbathon
15 Spin CTChallenge
Band Together Concert
16 Financial Summary
Kate, Breast Cancer
Survivor, and family
CONTENTS
Kate, Breast Cancer
Survivor, and familyIndoor cycling classes are popular at the Center for Survivorship.
On the Cover: NY Giants linebacker and cancer survivor, Mark Herzlich was greeted by young survivors at the Center for Survivorship in April.
2013 Annual Report 3
Dear Friends,
2013 was a huge year at CT Challenge! We expand-ed our Survivorship Network to 19 hospitals across Connecticut, celebrated the one-year anniversary of our new Center for Survivorship and completed our fi rst comprehensive research study on healthy behav-iors and outcomes for cancer survivors!
“Cancer is a daily fi ght. The Center for Survivorship has helped me fi nd the inspiration and motivation I need to get healthy again.” – Joni, pancreatic cancer survivor
“The CT Challenge has been my survivorship life raft, helping to keep my head above water when I have trouble doing it for myself. It’s an everyday commu-nity of support, resource and empowerment.” Amy, breast cancer survivor
We are completely dedicated to helping Joni, Amy and every single one of the 14 million cancer sur-vivors in America live longer, happier and healthier lives. On behalf of all of them and all of us at CT Challenge, we would like to thank our supporters. What we do, and the impact we have, would not be possible without you. Thank you for your ongoing support of our mission.
LETTER FROM THE PRESIDENT
Cancer is a daily fi ght. The Center for Survivorship has helped me fi nd the inspiration and motivation I need to get healthy again.”– Joni, pancreatic cancer survivor
Jeffrey KeithPresident & CEO
Sincerely,
4 Connecticut Challenge
SURVIVORSHIP PROGRAMS
CENTER FOR SURVIVORSHIP
2013 was the fi rst full year of operation for the CT Challenge Center for Survivorship. It is the fi rst standalone survivorship program in the country, offering fi tness, nutrition and psycho-social support programming to cancer survivors and their supporters, to help them live longer, happier, and healthier lives.
The Center made it possible for us to complete a comprehensive study on healthy behaviors and outcomes. The study was designed to advance what is known about the impact of healthy activities on the health and wellness of cancer survivors so we can improve survivorship care for everyone.
Center programs are subsidized by donations to the CT Challenge bike ride so we can proudly say that no one is turned away because of an inability to pay. In 2013, the Center saw 6,644 visitors and 8,421 unique visits (including all ex-ternal events). The Center conducted 829 per-sonal training sessions and 322 introductory personal training sessions. We are very encour-aged because these fi gures far exceeded our expectations.
A PROGRAM OF THE CT CHALLENGE
PSYCHOSOCIAL SUPPORT FOR UNDERSERVED WOMEN
Helping Survivors in Need through Support GroupsGenerous supporters made it possible for us to ex-pand psychosocial support programs to meet the growing needs of the cancer survivors we serve. We offer two weekly Walk & Talk groups for survivors and two monthly support groups for post-treatment sur-vivors at the Center.
(at right) David Tisdale (2nd from right)
leads the Monday walking group.
2013 Annual Report 5
SURVIVORSHIP PROGRAMS: CENTER FOR SURVIVORSHIP
Mammograms are free for those who do not have health insurance, have fi nancial limitations and/or qualify for assistance. In 2013, the mobile unit
performed over 500 mammography screenings.”
(middle) Certifi ed trainer, Dan Root, works with a
center member in the personal training room.
(bottom) Center Exercise Class.
PREVENTIONPrevention is an important pillar of CT Challenge sur-vivorship programming. According to the Institute for Cancer Research, one-third of the cases involving the 12 most common cancers in the U.S. are preventable through healthy lifestyle and by maintaining a healthy weight.
Mobile Mammography ServicesSince 2010, CTC has been funding the St. Vincent’s/ CT Challenge Mobile Mammography Coach vehicle. This mobile unit with its digital mammography equip-ment travels throughout the state, screening patients at three different public locations per month, plus cor-porate screenings. Mammograms are free for those who do not have health insurance or have fi nancial limitations. In 2013, the mobile unit performed over 500 mammography screenings.
Prevention MembershipCTC offers prevention memberships to the state-of-the-art Center For Survivorship allowing universal access to health and wellness, exercise and nutrition resources at a subsidized rate.
EXERCISEThe body of research supporting the importance of healthy lifestyle practices on quality of life for can-cer survivors continues to grow. Studies show that healthy lifestyle choices reduce the risk of cancer re-currence, secondary cancers and other chronic dis-eases in the cancer survivor population.
At the Center for Survivorship, we offer exercise & nutri-tion programs, backed by research, to help cancer survi-vors adopt and maintain healthy lifestyle practices.
Please visit our website at CTChallenge.org for a complete schedule of classes
6 Connecticut Challenge
SURVIVOR EDUCATION & RESOURCES
Website & Video Library The CT Challenge online video library provides a com-prehensive educational resource on a wide range of key survivorship issues. This year, new additions to the library included the topics of:
Nutrition
Pilates
Cancer rehab
Physical therapy
We have also begun to share personal stories of survi-vorship as a resource and inspiration for others.
Speaker SeriesIn March, the CT Challenge hosted Mark Herzlich: “Take that cancer!”
Mark Herzlich Inspires Survivors
“They said I’d never walk again,” said the NY Giant and Super Bowl Champ. “Take That Cancer!”
Mark Herzlich, cancer survivor, NY Giant and Super Bowl Champion visited the Center for Survivorship in March to meet with young cancer survivors. He then spoke to a packed auditorium at Fairfi eld’s Roger Lud-lowe Middle School.
“Two years ago, I was told I might never walk again,” Mark typed to his loyal followers on Twitter.
(left) CT Challenge videos were viewed by people in all 50 states through
CTChallenge.org. (below) Mark Herzlich explains the effects of his cancer
to young survivors at the Center for Survivorship.
SURVIVORSHIP PROGRAMS: CENTER FOR SURVIVORSHIP
“Just walked off the plane in Indy to play in the Super Bowl. Take that cancer!” One week later, Mark Herzlich found himself celebrating at midfi eld with his team-mates as part of the 2011 Super Bowl champion New York Giants.
Against the odds, Mark took the toughness learned on the football fi eld and turned it against the powerful en-emy within his own body. Winner of the ESPY award for Best Comeback by an Athlete, Mark inspires others to fi ght their own diseases and achieve their dreams in the face of harsh obstacles. The CT Challenge Speaker Series event was made possible by Presenting Sponsor; The Colony Grill.
Car
oly
n T
aylo
r
“They said I’d never walk again,” said the NY Giant and Super Bowl Champ. “Take That Cancer!” – Mark Herzlich
2013 Annual Report 7
CT Challenge provides a comprehen-sive online resource for survivors and their families at CTChallenge.org, where they can learn about the issues cancer survivors face and fi nd resourc-es that can help.
We also share personal stories of survi-vorship as a resource and inspiration for others.
SURVIVORSHIP PROGRAMS
CTCHALLENGE.ORG
SITE STATISTICS
23,174 (+17%)Unique Visits (10 Countries)
42,047 (+23%)Visits
105,758 (+21%)Page Views
Over 23,000 people in ten countries received help from CTChallenge.org in 2013.”– Source: Google Analytics
8 Connecticut Challenge
The CT Challenge’s mission is to empower cancer sur-vivors. In 2013 the organization focused its efforts on understanding how to achieve that mission most effectively. A groundbreaking research study and an unprecedented educational partnership showed a new commitment to moving the fi eld of cancer survivorship forward.
EDUCATIONAL OUTREACHCT Challenge is committed to raising awareness and advancing the skill sets needed to move survivors from the acute stage of their treatment back to the life they had before cancer.
Curriculum SupportCTC provides fi nancial support to St. Vincent’s Col-lege for survivorship education in the nursing school curriculum. St. Vincent’s has created an online elective course that provides an overview of cancer survivorship for nursing students. All online materials are accredited for CNE and CME.
SURVIVORSHIP PROGRAMS
GRANTS
RESEARCHAs part of our commitment to advancing the fi eld of cancer survivorship and driving improved services for survivorship care in the medical community, CT Chal-lenge continues to prioritize evidence-based research that can quantify the benefi ts of survivorship services to patients transitioning from active treatment to a post-treatment phase in the continuum of care.
In January, we piloted our fi rst research project at the Center, a 12-week wellness program designed by ex-perts from UCONN and Yale to help advance the fi eld of survivorship and to learn how adopting healthy lifestyle practices can affect the long-term health and wellness of survivors.
Results included a decrease in anxiety and depression, a decrease in fatigue, a decrease in limitations on daily activities, an increase in social support and an increase in intent to exercise and eat a healthy diet among par-ticipants in the study.
Our next study is scheduled to begin Jan 2015.
This past year, programs directly funded by the CT Challenge impacted the lives of 50,000+ cancer survivors!
2013 Annual Report 9
PROGRAMS FOR CHILDREN
Our littlest survivors often claim the largest part of our heart and we continue to seek the best ways to support them as they move through and beyond their cancer diagnoses. Some children fi nd the Center For Survivorship and arrive just wanting to ride a bike again. Others discover our community programs, like the kids who’ve come to our Speaker Series events, and leave inspired by the larger-than-life survivors they meet. Still others benefi t from the dedicated efforts we’ve put in place to support them.
Tommy FundCTC provides grant support to the Tommy Fund, a non-profi t organization that offers emotional, edu-cational, medical and fi nancial assistance to children with cancer and their families.
Camp ScholarshipsCTC provides grant support to Camp Rising Sun, a not-for-profi t organization dedicated to providing a safe, nurturing week-long camp experience for kids who have faced the diagnosis of cancer. The goal is for the campers to grow and learn from what they have been through to become the best they can be. Camp Rising Sun serves more than 150 pediatric can-cer survivors each year, giving these young children hope and inspiration. Many campers grow up to be-come the volunteer counselors who help lead camp activities.
cer survivors each year, giving these young children hope and inspiration. Many campers grow up to be-come the volunteer counselors who help lead camp activities.
YOUNG ADULT PROGRAMSYoung adult survivors often fall through the cracks that exist between pediatric and adult post-cancer care. Compounding the gap is the reluctance among young adult survivors to reach out for conventional support. CT Challenge is working hard to fi ll the void by identi-fying and partnering with established resources, where they exist, bringing together best practices to expand support to a larger group of survivors.
Academic Scholarships CTC provides grants to the Susan Fund, a non-profi t organization dedicated to awarding college schol-arships to young cancer survivors, allowing them to attend the college of their choice and pursue their dreams. Susan Fund scholarship recipients currently attend Dartmouth, MIT, UConn, Union, Pepperdine, Tufts, Ithaca, Villanova, Georgetown, University of Michigan, Yale, Marist, the University of New Hamp-shire and many more great schools.
Susan Fund scholarship recipients, 2013
(below) Fun at Camp Rising Sun in August.
10 Connecticut Challenge
Members of the Network served the needs of more than 50,000 cancer survivors in 2013.
In 2009 the Survivorship Network was formed with a mission to improve the lives of the estimated 171,850 cancer survivors in Connecticut, by making quality sur-vivorship care accessible to all. Just four years later, the CT Challenge Survivorship Network has grown from a handful of programs into a robust network of survi-vorship programs at 16 hospitals! That is over 50% of the leading hospitals and cancer centers in the state.
SURVIVORSHIP PROGRAMS
SURVIVORSHIP NETWORK
Network Members Connecticut Challenge Survivorship Clinic at Yale Cancer Center
Danbury Hospital’s Praxair Cancer Center
HEROS Clinic at Yale University
Stamford Hospital’s Bennett Cancer Center
Connecticut Children’s Medical Center
Hartford Hospital’s Helen & Harry Gray Cancer Center
Bridgeport Hospital’s Norma F. Pfreim Cancer Institute
MidState Medical Center’s Palladino Family Cancer Care Center
Middlesex Hospital Cancer Center
New Milford Hospital Regional Cancer Center’s PEACE Survivorship Program
Norwalk Hospital’s Whittingham Cancer Center
Eastern Connecticut Cancer Institute at Eastern CT Health Network
Harold Leever Regional Cancer Center – Stepping Forward
Charlotte Hungerford Hospital and the Center for Cancer Care
Day Kimball Healthcare
SWIM Integrative Survivorship Center at St. Vincent’s Medical Center
Bristol Hospital
Griffi n Hospital
Greenwich Hospital Breast Center
Team Sprockets, above, earned a
Team Challenge Grant to support
Norwalk Hospital’s surivorship
program.
Team Leever, below, representing
Leever Cancer Center in
Waterbury, CT.
2013 Annual Report 11
CT Challenge was honored when Jeff Keith was in-cluded in a segment on CBS during their broadcast of the 2013 NCAA Final Four Basketball tournament. He was featured in the Buick Human Highlight Reel, which honors former NCAA athletes who have had im-measurable impact on their communities through their charitable organizations. Millions heard his story and all about our mission at CT Challenge!
SURVIVORSHIP PROGRAMS
SPREADING THE WORD Jeff was also honored at the NCAA Men’s Final Four La-crosse Championships on Saturday, May 25 at Lincoln Financial Field in Philadelphia, PA! Buick hosted Keith and his guests and made an on-fi eld presentation at halftime of the second semifi nal game in special rec-ognition of the positive impact CT Challenge has had on the lives of cancer survivors throughout the country.
COMMUNITY OUTREACHCT Challenge allocates funds to expand the reach of its programming to a broader audience of survivors. Through the responsible investment of resources in community-centered initiatives, it is able to partner with aligned organizations and programs to target the underserved, raise and address neglected survivorship issues, and impact people in personal, meaningful ways
Om for LifeThe American Society of Clinical Oncologists (ASCO) reports that gentle stretching, breathing and other ex-ercises in a regular yoga program may ease sleep and fatigue problems common among cancer survivors as well as increase relaxation and quality of life while com-plementing physical fi tness routines.
The CT Challenge Om for Life program offers health clubs and yoga centers the opportunity to host yoga classes for cancer survivors in their facilities, with all expenses paid by CTC. The program also includes an instructor certifi cation workshop.
12 Connecticut Challenge
Music & Healing Workshops
The CT Challenge Music & Healing Workshops are the brainchild of local musician Rob Fried, founder and musical director of Band Together, the Fairfi eld-based non-profi t whose concerts have attracted music indus-try headliners to perform in ensembles covering a wide range of music genres. He ran the fi rst workshops at the Center last fall. The workshops are designed to put the healing properties of music to work for local cancer survivors, all are welcome and there is no charge to attend. The music workshops are an extension of the mind-body health, exercise, nutrition and community-building support programs that constitute the core of CTC programming.
Support Groups for The Under ResourcedOur support groups for under resourced cancer sur-vivors continued in partnership with Norma Pfriem Urban Outreach Initiatives at The United Congressional Church in Bridgeport. The groups provide much need-ed ongoing support for women living with cancer and their children.
National Cancer Survivor DayThe Center for Survivorship hosted its fi rst Survivor Day on June 1st. 75 members of the community, survivors and supporters alike, attended the event. Participants enjoyed yoga, indoor cycling, walk & talk, and enjoyed healthy refreshments thanks to support from SBC.
SURVIVORSHIP PROGRAMS
SUPPORT
Kate Lieder, MFT, (2nd row, 4th from left), leads our support group
for women living with cancer.
(above) Rob Fried and Nicole Frechette lead cancer survivors in a
music workshop at the Center. (below) Cancer Survivor Day, 2013
2013 Annual Report 13
July 26-27, 2013This was our third year at the Fairfi eld County Hunt Club in Westport, CT and the fi rst year we offered a two-day ride option for our riders. The two-day ride started in Lakeville, CT and ended at the Hunt Club (85 miles!) where they joined up with all the one-day riders for a pasta party. Day two kicked off bright and early at the Hunt Club where riders set off to complete their choice of 10, 25, 50, 75 or 100-mile rides.
The bike ride continues to be the engine that fuels our mission and thanks to the overwhelming support of riders, volunteers and donors, it was another record setting year! Cancer survivors throughout New Eng-land benefi t from programs funded by the bike ride.
.
FUNDING OUR PROGRAMS
9TH ANNUAL CT CHALLENGE BIKE RIDE
A record $1.6 million raised!
BIKE RIDE FACTS
1,028Riders
97Teams
367Volunteers
151Cancer Survivors
12,157Donors
$1,400Avg. Raised/Rider
14 Connecticut Challenge
November 8, 2013Zumba instructor Hector Rosa led the Zumbathon at the Westport Women’s Club. Thank you to organizer Nina Levine and all who danced so enthusiastically and philanthropically to the beat of cancer survivorship!
FUNDING OUR PROGRAMS
TEAM CT CHALLENGE RUNS THE NYC MARATHON.
CT CHALLENGE ZUMBATHON
$20,589 raised!
$1,700 raised!
November 3, 2013Special thanks to John Fallon, Nikkie Fuller, Karin Keith, Jennifer Kirchhof, Lexie Maruszewski, Robin Nye and Ginny O’Brien who went the distance in the NY Mara-thon for CT Challenge!
2013 Annual Report 15
December 8, 2013 & February 2, 2014100 spinners took part in the 3rd Annual Spin CT Chal-lenge, hosted by The Edge Fitness Clubs in Fairfi eld and Norwalk. together, spinners in both events raised $42,000 to benefi t the CT Challenge Center for Sur-vivorship.
November 8, 2013Band Together did it again at the Fairfi eld Theatre Company with their “Connecticut Country” concert! It was their fourth benefi t concert for CT Challenge and we are grateful to be the benefi ciaries of this extremely talented group! Performing were Beehive Queen Christine Ohlman, Cover Girl Laura Mer-rill, Singer Songwriter PJ Pacifi co, Country Rocker Eric Bleile, Violinist Extraordinaire Christian Howes, Scott White, Drew McKeon, Jerry Vigorito and Rob Fried.
FUNDING OUR PROGRAMS
4TH ANNUAL SPIN CT CHALLENGE
4TH ANNUAL BAND TOGETHER CONCERT
$42,000 raised!
$9,383 raised!
16 Connecticut Challenge
87 cents of every dollar spent was allocated to Program Services& Grants.
CT CHALLENGE 2013
SELECTED FINANCIAL INFORMATIONTotal Expenses$2,071,556
8% Fundraising$171,821
5% General & Administrative$100,964
87% Program Services
& Grants$1,798,771EX
PEN
SES
REVE
NU
EPR
OG
RAM
EXP
ENSE
DET
AIL
Total Program Services & Grants$2,071,556
8% Education & Program Development$142,039
36% Center For Survivorship$644,710
56% Programs & Grants$1,012,022
3% In Kind Donations$75,592
Total Revenue$2,222,898
2% Corporate Sponshorships
$50,000
6% Donor Restricted
Contributions$234,915
7% Other Revenue*$142,518
70% Riders & General
Donations$1,544,973
*Membership Fee, Regular Fees, Interest & Dividend Income, Loss on Investments
2013 Annual Report 17
STATEMENT OF FINANCIAL POSITION As of December 31, 2012 and 2013 2012 2013
Current Assets Cash and Cash Equivalents $ 685,869 1,070,531Contributions Receivable 116,801 16,437Pre-paid Expenses 15,526 17,553Security Deposit 14,250 11,750Other Receivables 791 2,969
Total Current Assets 833,237 1,119,240
Intangible Assets, Net 6,760 280Capital Leases 26,934 22,835Computer Equipment, Net 15,164 9,471Leasehold Improvements 1,640,396 1,535,184Machinery & Equipment 86,452 67,040Furniture & Fixtures 50,924 44,522
Total Assets 2,659,867 2,798,572
Current LiabilitiesAccounts Payable and Accrued Expenses 113,373 111,887Grants Payable 88,179 106,745Deferred Revenue – 9,281Line of Credit 99,591 99,591Current Portion of Note Payable 46,929 48,771Note Payable 184,158 135,387Deferred Rent Liability 143,509 160,527Capital Lease Obligations 15,925 6,034Current Portion of Capital Lease Obligations 9,087 9,891 Total Liabilities 700,751 688,114
Total Net Assets 1,959,116 2,110,458
Total Liabilities and Net Assets 2,659,867 2,798,572
STATEMENT OF ACTIVITIESAs of December 31, 2012 and 2013 2012 2013
Public Support and RevenueContributionsRiders and General Donations $ 1,544,973 1,816,847Foundation Contributions 15,000 –Corporate Sponsorships 70,000 50,000Donor Restricted Contributions 155,700 137,941In-Kind Donations 234,915 73,592State Grant 100,000 –
Total Contributions 2,120,588 2,080,380
OtherRider Registration Fees 76,115 79,895Membership Fee Income – 61,870Interest Income 563 834Loss on Investments (42) (81)
Total Other Revenue 76,636 142,518
Total Public Support 2,197,224 2,222,898
ExpensesProgram Services & Grants 1,470,985 1,798,771Fundraising 78,880 171,821General & Administrative 120,809 100,964
Total Expenses 1,670,674 2,071,556 Change in Unrestricted Net Assets 526,550 151,342Unrestricted Net Assets, Beginning of Year 1,432,566 1,959,116Unrestricted Net Assets, End of Year 1,959,116 2,110,458
Muskus & Wilemski, LLC performed the 2012 and 2013 audits for the Connecticut Challenge. Audited fi nancial statements are available on request.
The CT Challenge is committed to making a real difference in the lives of cancer sur-vivors. As a part of our commitment, we continue to monitor costs, dedicating as much money as we can to program servic-es. By relying on a team of volunteers and keeping administrative and fundraising expenses low, the CT Challenge invested in grants and program services related to cancer survivorship through public health, education and research.
Our marquee program is the Center for Survi-vorship, which opened its doors in 2012!
For the fi scal year ending December 31, 2013 the CT Challenge recognized $2,222,898 in revenues to support cancer survivors! This could not have been possible without the un-believable dedication of riders, volunteers and staff who helped raise these funds through our marquee bike event, other fundraisers and the numerous individual donors who sup-port us.
Because of the hard work of all our friends and family, 87 cents of every dollar spent was allocated to program services and grants.
WWW.CTCHALLENGE.ORG
Connecticut Challenge • 250 Pequot Avenue • Southport, CT 06890 • 203-292-8722