“Break down the barriers and stand up for epilepsy” www.epilepsyandsociety.org 2013-02-2281-13thECES-Announcement Booklet-A5-INNER AND COVER-5.pdf 1 5/17/2013 5:57:07 PM
Mar 11, 2016
“Break down the barriers and stand up for epilepsy”
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ORGANISING COMMITTEE Chair: Athanasios Covanis (Greece)
Committee : Michael Alexa (Austria) Victoria Dimech (Malta) Matevž Kržan (Slovenia) Janet Mifsud (Malta)Igor Ravnik (Slovenia) Seppo Sarkkula (Finland) Ljubica Vrba (Slovenia)
LETTER FROM THE CHAIR
Dear Friends,
On behalf of the Organising Committee, we are pleased to invite you to Ljubljana to attend the 13th European Conference on Epilepsy & Society, taking place from 28th-30th of August 2013.
The conference aims to inform people with epilepsy and their families, as well as those working in the field of epilepsy, about new developments in epilepsy treatment, associated cognitive dysfunction related to epilepsies and the psychosocial implications that derive from this common brain disorder and, of course, to provide solutions. The theme for this conference is “Break down the barriers and stand up for epilepsy”. Above all, this meeting will facilitate communication and exchange of ideas among people with epilepsy and professionals in the field, right across Europe. The programme includes morning plenary sessions and afternoon discussion groups with as much participation as possible by delegates. Special emphasis is being placed on Posters, so we would encourage you to prepare your latest work for submission.
We look forward to welcoming you to the beautiful city of Ljubljana for what is going to be an excellent gathering of wonderful people. In this way we believe we will not only increase our knowledge and understanding of epilepsy but we will also fulfil the goals of the International Bureau for Epilepsy.
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Yours sincerely,
Athanasios CovanisChair IBE European Regional Executive CommitteeIBE President-elect
Organising Committee
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Programme at a Glance
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Wednesday28th August 2013
Friday30th August 2013
Advocates for epilepsy workshop:
09:00 - 17:00
Opening Ceremony
19.00-20.00
Welcome Reception
19.00-20.00
Workshop: Making the most of
European Epilepsy Day
16:15-17:00
Closing of conference
17:00
Coffee Break : 15:00-15:30
Lunch : 13:30-15:00
Panel Discussion: Epilepsy care in Europe;
where are we after the European Written Declaration?
14:00-15:45
Lunch & Poster Presentations : 13:00-14:00
Coffee Break : 10:25-10:55
Lunch : 12:30-13:30
Beyond seizures and medication
13:30-15:00
Conference Opening 08:45-08:50
DEBATE: Representations of epilepsy in popular culture break down stereotypes
08:50-09:35
What are the alternatives when drugs don’t work?
09:35-10:25
What are the alternatives whendrugs don’t work? (continued)
10:55-12:30
Coffee Break : 11:00-11:30
Social media
08:00-09:00
Women and epilepsy
09:00-10:00
Coffee Break : 10:00-10:30
Switching brands: what are the issues?
10:30-11:45
Epilepsy care in Europe
11:45-13:00
Introduction by Chair- Epilepsy networks
- Epilepsy seizures and syndromes- Seizure observation
- Case reports
09:00-11:00
- Acute management of seizures- Risk of seizures and safety measures
- Comprehensive epilepsy care
11:30-13:30
- Epilepsy & everyday activities (sports, driving, work place and travel)
- Risk factors for the development of cognitive problems in
persons with epilepsy- Raising awareness and contributing
to better epilepsy research- Conclusion – How can I be a better
advocate?
15:00-17:00
Thursday29th August 2013
Group Session(Group A)
Joining Forces
15:30-16:15
Group Session(Group B)
Employment and Epilepsy
15:30-16:15Group Session
(Group B)Joining Forces
16:15-17:00
Group Session(Group A)
Employment and Epilepsy
16:15-17:00
Coffee Break : 15:45-16:15
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www.epilepsyandsociety.org
WEDNESDAY 28th AUGUST 2013
THURSDAY 29th AUGUST 2013
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dDEBATE: Representations of epilepsy in popular culturebreak down stereotypes. Moderator: Athanasios Covanis (Greece) For the motion: Philip Lee (UK)Against the motion: Rick O’Shea (Ireland)
What are the alternatives when drugs don’t work? Chair: Matevž Kržan (Slovenia)
Ketogenic diet Helen Cross (UK)
Vagal nerve stimulation and deep brain stimulation Christian Elger (Germany)
Problems of drug compliance and adherence in epilepsy Martin Brodie (Scotland)
Is everyone with epilepsy suitable for surgery? Natalija Krajnc (Slovenia) and Bogdan Lorber (Slovenia)
The future of drug development Meir Bialer (Israel)
Beyond seizures and medication Co-chairs: Ivan Bielen (Croatia) and Svetlana Simic Klobucaric (Slovenia)
Epilepsy: science and superstition Peter Wolf (Denmark) Epilepsy and cognition Does epilepsy affect memory and cognition? Reetta Kälviäinen (Finland)
What is the role of epilepsy support groups? Marietta Remoundos (Greece)
Panagiota Nasiopoulou (Greece)
Building networks - Working with other organisations Michael Alexa (Austria)
Henrik Peersen (Norway)
Employment and Epilepsy Co-chairs: Athanasios Covanis (Greece) and Sari Tervonen (Finland)
Employment in the open labour market Sari Tervonen (Finland) Dare Troha (Slovenia)
Programme
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DEBATE: Representations of epilepsy in popular culturebreak down stereotypes. Moderator: Athanasios Covanis (Greece) For the motion: Philip Lee (UK)Against the motion: Rick O’Shea (Ireland)
What are the alternatives when drugs don’t work? Chair: Matevž Kržan (Slovenia)
Ketogenic diet Helen Cross (UK)
Vagal nerve stimulation and deep brain stimulation Christian Elger (Germany)
Problems of drug compliance and adherence in epilepsy Martin Brodie (Scotland)
Is everyone with epilepsy suitable for surgery? Natalija Krajnc (Slovenia) and Bogdan Lorber (Slovenia)
The future of drug development Meir Bialer (Israel)
Beyond seizures and medication Co-chairs: Ivan Bielen (Croatia) and Svetlana Simic Klobucaric (Slovenia)
Epilepsy: science and superstition Peter Wolf (Denmark) Epilepsy and cognition Does epilepsy affect memory and cognition? Reetta Kälviäinen (Finland)
What is the role of epilepsy support groups? Marietta Remoundos (Greece)
Panagiota Nasiopoulou (Greece)
Building networks - Working with other organisations Michael Alexa (Austria)
Henrik Peersen (Norway)
Employment and Epilepsy Co-chairs: Athanasios Covanis (Greece) and Sari Tervonen (Finland)
Employment in the open labour market Sari Tervonen (Finland) Dare Troha (Slovenia)
FRIDAY 30th AUGUST 2013Early Morning Session – Day 2
Social Media Case Study Mark Morton (Epilepsy Action UK)
How to apply Social Media with effect and affection Ruud Janssen (Switzerland)
Case Study Isabella Platon (International Diabetes Federation)
Women and Epilepsy Chair: Athanasios Covanis (Greece)
Torbjörn Tomson (Sweden) Person With Epilepsy (name to be confirmed)
Switching Brands: what are the issues? Co-chairs: Martin Brodie (Scotland) and Victoria Dimech (Malta)
Giuseppe Capovilla (Italy) and Person With Epilepsy (name to be confirmed)
Epilepsy Care in Europe Co-chairs: Athanasios Covanis (Greece) and Igor Ravnik (Slovenia)
Speakers: Ivan Bielen (Croatia), Alla Guekht (Russian Federation), Igor Ravnik (Slovenia), Cristina Stuiver (Portugal), Torbjörn Tomson (Sweden), Person With Epilepsy (name to be confirmed)
Poster Presentations Posters will be presented during the lunch break
Workshops
Panel Discussion: Epilepsy care in Europe: where are we after the European Written Declaration Co-chairs: Athanasios Covanis (Greece) and Igor Ravnik (Slovenia)
Panel: Ivan Bielen (Croatia), Mike Glynn (Ireland), Alla Guekht (Russian Federation), Janet Mifsud (Malta), Cristina Stuiver (Portugal), Torbjörn Tomson (Sweden), Person With Epilepsy (name to be confirmed)
Making the most of European Epilepsy Day Co-chairs: Ann Little (Ireland) and Sonia Martial (France) Reetta Kälviäinen (Finland) Jelko Kacin MEP (Slovenia)
Close of conference: Athanasios Covanis (Greece)
Programme
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ADVOCATES FOR EPILEPSY WORKSHOP
Advocates for Epilepsy is an exciting new workshop concept, designed to raise awareness and improve patient care through collaborative practice. This workshop, which is supported by the ILAE Commission on European Affairs and the International Bureau for Epilepsy, will take place on the 28th of August, prior to the 13th European Conference on Epilepsy & Society. The workshop is planned to be highly interactive and will be an excellent learning experience for all participants. Due to limited space, attendees are encouraged to register early.
Who should attend: This workshop will appeal to nurses, people with epilepsy, allied health professionals, carers, psychologists,neuropsychologists, physiotherapists, social workers and teachers.
Why attend: Participants will learn how to develop strategies to help them better understand and support the individual living with epilepsy, using a person-centred approach. Topics will be presented by a range of experts in the field, and participants will be actively involved through question-and-answer sessions and group discussions. Learning objectives: This workshop will address several important areas of epilepsy research, highlighting problems and concerns, and proposing methods to overcome them, with a view to raising awareness and promoting epilepsy research. Participants will gain a practical knowledge of how to become better advocates for people with epilepsy.
Topics for discussion:
• Epilepsy networks• Epilepsy seizures and syndromes• Seizure observation• Case reports• Acute management of seizures• Risk of seizures and safety measures• Comprehensive epilepsy care• Epilepsy everyday activities (sports, driving, work place and travel)• Risk factors for the development of cognitive problems in persons with epilepsy• Raising awareness and contributing to better epilepsy research• How can I be a better advocate?
Workshop registrationAll delegates under 35 years of age and delegates from Albania, Estonia, Georgia, Macedonia, Serbia, Russian Federation, Moldova, Ukraine and Bulgaria are entitled to free registration. As space is limited, please register via the registration system to ensure your place is reserved. The registration fee for all other attendees is 25 euro.
To register to attend the “Advocates for Epilepsy workshop” please visit:www.epilepsyandsociety.org/registration
6www.epilepsyandsociety.org
Advocates for epilepsy workshop
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ADVOCATES FOR EPILEPSY WORKSHOP
Advocates for Epilepsy is an exciting new workshop concept, designed to raise awareness and improve patient care through collaborative practice. This workshop, which is supported by the ILAE Commission on European Affairs and the International Bureau for Epilepsy, will take place on the 28th of August, prior to the 13th European Conference on Epilepsy & Society. The workshop is planned to be highly interactive and will be an excellent learning experience for all participants. Due to limited space, attendees are encouraged to register early.
Who should attend: This workshop will appeal to nurses, people with epilepsy, allied health professionals, carers, psychologists,neuropsychologists, physiotherapists, social workers and teachers.
Why attend: Participants will learn how to develop strategies to help them better understand and support the individual living with epilepsy, using a person-centred approach. Topics will be presented by a range of experts in the field, and participants will be actively involved through question-and-answer sessions and group discussions. Learning objectives: This workshop will address several important areas of epilepsy research, highlighting problems and concerns, and proposing methods to overcome them, with a view to raising awareness and promoting epilepsy research. Participants will gain a practical knowledge of how to become better advocates for people with epilepsy.
Topics for discussion:
• Epilepsy networks• Epilepsy seizures and syndromes• Seizure observation• Case reports• Acute management of seizures• Risk of seizures and safety measures• Comprehensive epilepsy care• Epilepsy everyday activities (sports, driving, work place and travel)• Risk factors for the development of cognitive problems in persons with epilepsy• Raising awareness and contributing to better epilepsy research• How can I be a better advocate?
Workshop registrationAll delegates under 35 years of age and delegates from Albania, Estonia, Georgia, Macedonia, Serbia, Russian Federation, Moldova, Ukraine and Bulgaria are entitled to free registration. As space is limited, please register via the registration system to ensure your place is reserved. The registration fee for all other attendees is 25 euro.
To register to attend the “Advocates for Epilepsy workshop” please visit:www.epilepsyandsociety.org/registration
www.epilepsyandsociety.org
EARLYOn or before the 31st May 2013 200 EUR
LATE1st June – 16th August 2013 250 EUR
ON-SITE at the Conference 260 EUR
NOTE: The on-line pre registration system will close on Friday 16th August 2013.
CANCELLATION FEES:
On or before 14th June 2013 Registration fees refunded less 10%
On or before 28th June 2013 Registration fees refunded less 40%
On or before 26th July 2013 Registration fees refunded less 60%
On or before 16th August 2013 Registration fees refunded less 80%
From 17th August 2013 No refunds
REGISTRATION INFORMATIONOnline registration is now available on the official conference website www.epilepsyandsociety.org Reduced registration fees are available until Friday 31st May 2013. Please contact [email protected] with any registration enquiries.
Registration to the conference includes the following:• Access to the conference sessions on Thursday 29th August, and Friday, 30th August 2013. • Access to the exhibition area during the conference.• Coffee breaks and lunches on Thursday 29th August, and Friday, 30th August 2013.• 13th ECES Opening Ceremony on 28th August 2013.
REGISTRATION FEES :
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Registration Information
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BURSARIES
The conference will provide assistance towards travel, accommodation and registration for a limited number of lay delegates from local organisations or working with people with epilepsy (PWE). Bursaries will be granted on the basis of a short written statement, which may be submitted by post, e-mail or fax to the Conference Secretariat. Following the 13th European Conference on Epilepsy & Society, successful applicants will be required to provide a brief written report about their experiences of and opinions on the conference.
The deadline for applications is Monday 8th July 2013. For further details and to download the application form please go to www.epilepsyandsociety.org.
POSTER PRESENTATIONS
Submissions are now invited for posters to be displayed during the conference. Posters discussing social aspects of epilepsy or detailing the work of national member associations are welcome. The deadline for receipt of poster submissions is Monday 8th July 2013.
Guidelines for the presentation of posters are available on the conference website.www.epilepsyandsociety.org.
IMPORTANT DATES FOR YOUR DIARY
Date Event
31st May 2013 Early Registration deadline
8th July 2013 Bursary Applications deadline
8th July 2013 Poster Submission deadline
16th August 2013 Late Registration deadline
28th August 2013 Onsite Registration open
28th – 30th August 2013 13th European Conference on Epilepsy & Society
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General Information
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www.epilepsyandsociety.org
ABOUT LJUBLJANA
Besides having everything that all other modern capitals have, Ljubljana succeeds in maintaining the relaxed atmosphere of a small city. This picturesque and very vibrant city is full of surprises. Though it is classified as a mid-sized European city, Ljubljana has preserved its small-town friendliness and relaxed atmosphere while providing all the facilities of a modern capital. The official language of Slovenia is Slovene, however English is widely spoken in Ljubljana. Other languages spoken in Ljubljana are Serbo-Croatian, German, French, Hungarian, Italian and Spanish.
The official language of the conference is English.
VENUEThe venue for the 13th European Conference on Epilepsy & Society is the Cankarjev Dom in Ljubljana, Slovenia.
Cankarjev dom, Kulturni in kongresni center, Prešernova cesta 10, SI-1000 Ljubljana
ACCOMMODATION Accommodation in Ljubljana can be booked via hotel e-mails (found on www.epilepsyandsociety.org) and should have the notification “Epilepsy 2013”. Bookings should be made no later than 28th July 2013. As the number of rooms available for the Conference is limited, your choice of hotel cannot be guaranteed after that date.
For a full list of hotels, please log on to www.epilepsyandsociety.org/accommodation
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General Information
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EXHIBITION
A trade exhibition will run in conjunction with the conference offering delegates the chance to learn the latest developments in products and services. Companies interested in exhibiting at the conference are kindly requested to contact the Exhibition Manager as soon as possible at the address below:
Exhibition Manager13th European Conference on Epilepsy & SocietyIBE/ILAE Congress Secretariat7 Priory Hall, Blackrock, Co. Dublin, IrelandE-mail: [email protected].: +353 1 2056720Fax: +353 1 2056156
ACCESSIBILITY
Airlines
Star Alliance has been appointed as the official airline network for the 13th European Conference on Epilepsy & Society. For more information on how to avail of discounted rates please visit www.epilepsyandsociety.org/general-information/transport/
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General Information
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EUROPEAN EPILEPSY DAY
Monday 10th February 2014
A date for
next year’s diary!
eedEUROPEAN EPILEPSY DAY
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Organised by the ILAE/IBE Epilepsy Advocacy Europe Task Force Celebrated by national epilepsy associations across Europe
Supported by European Advocates for Epilepsy MEP special interest group
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