1 Presentation by Mrs Janet Jacob Psychiatric nurse & former homes manager for Pilgrims Friend Society
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Presentation by Mrs Janet Jacob Psychiatric nurse & former homes manager for
Pilgrims Friend Society
Presentation by Mrs Janet Jacob Psychiatric nurse & former homes manager for
Pilgrims Friend Society
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Pilgrims Friend Society is 204 years old
Exists solely to serve older Christians
Began by providing pensions – long before the Welfare State (1807)
Offers residential, nursing, dementia care, sheltered housing, including ECH Shares experience and information with publications, seminars and conferences.
Pilgrims Friend Society is 204 years old
Exists solely to serve older Christians
Began by providing pensions – long before the Welfare State (1807)
Offers residential, nursing, dementia care, sheltered housing, including ECH Shares experience and information with publications, seminars and conferences.
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Person Centred CarePerson Centred Care
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Person Centred CarePerson Centred Care
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Person Centred CarePerson Centred Care
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Person Centred CarePerson Centred Care
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Person Centred CarePerson Centred Care
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‘It is important to see the person first rather than the dementia’ – Tom Kirkwood
‘It is important to see the person first rather than the dementia’ – Tom Kirkwood
Each human face is unique, and so is each
human brain. Each person with Dementia is unique,
with very different experiences of life, with
their own needs and feelings, likes and dislikes.
Each human face is unique, and so is each
human brain. Each person with Dementia is unique,
with very different experiences of life, with
their own needs and feelings, likes and dislikes.
Caring for the person with dementiaCaring for the person with dementia
Person Centred CarePerson Centred Care
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Caring for the person with dementiaCaring for the person with dementia
Discover the personGive respect
Focus on their abilitiesEncourage expressions
Create community and trust
Discover the personGive respect
Focus on their abilitiesEncourage expressions
Create community and trust
Remember:-•The person is still the same.•Focus on the person not the dementia.•Good care depends on understanding and knowing.•Carers relationship is therapeutic in itself.
Caring for the care-giverCaring for the care-giver
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Despite our welfare system, the major role in care-giving
is still taken on by family members, very often an elderly spouse.
Despite our welfare system, the major role in care-giving
is still taken on by family members, very often an elderly spouse.
The person with dementia is not on this journey alone, the caregiver is walking beside
them.
Caring for the care-giverCaring for the care-giver
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Caring for a person with dementia is different to other types of care giving, and is one of the most difficult
situations encountered by caregivers.
Caring for a person with dementia is different to other types of care giving, and is one of the most difficult
situations encountered by caregivers.
Usually 24/7
May involve 3 to 15 years of caring
2/3rds of people with dementia are cared for in their
own homes by a relative
At present there are 540,000 care givers
A new case is diagnosed every 3.2 minutes
Usually 24/7
May involve 3 to 15 years of caring
2/3rds of people with dementia are cared for in their
own homes by a relative
At present there are 540,000 care givers
A new case is diagnosed every 3.2 minutes
Caring for the care-giverCaring for the care-giver
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Care givers experienceCare givers experience
Continuing losses
Anticipatory grief
Role captivity
Emotional
reactions
Continuing losses
Anticipatory grief
Role captivity
Emotional
reactions
Caring for the care-giverCaring for the care-giver
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Importance of relationshipsImportance of relationships
•Avoid isolation
• Share the diagnoses
• Let the church family know
• Prepare for the future
• Anticipate your feelings
•Avoid isolation
• Share the diagnoses
• Let the church family know
• Prepare for the future
• Anticipate your feelings
Caring for the care-giverCaring for the care-giver
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Care givers needsCare givers needs
•Empathy•Re-assurance•Time for self•Share the responsibility•Assessment of needs•Talk to others•Human contact•Spiritual encouragement
•Empathy•Re-assurance•Time for self•Share the responsibility•Assessment of needs•Talk to others•Human contact•Spiritual encouragement
The Spiritual JourneyThe Spiritual Journey
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‘I believe that people with dementia are making an important journey from cognition, through emotion, into spirit.
I’ve begun to realise what really remains through this journey is what is really important.
I think that if society could appreciate this, then people with dementia would be treasured and accepted’.
‘I believe that people with dementia are making an important journey from cognition, through emotion, into spirit.
I’ve begun to realise what really remains through this journey is what is really important.
I think that if society could appreciate this, then people with dementia would be treasured and accepted’.
Christine Bryden
The Spiritual JourneyThe Spiritual Journey
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The Spiritual JourneyThe Spiritual Journey
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When you pass through the waters, I will be with you;
and when you pass through the rivers, they will not sweep over you.
When you walk through the fire, you will not be burned;
the flames will not set you ablaze. For I am the LORD your God,
the Holy One of Israel, your Saviour. Isaiah 43:2-3
When you pass through the waters, I will be with you;
and when you pass through the rivers, they will not sweep over you.
When you walk through the fire, you will not be burned;
the flames will not set you ablaze. For I am the LORD your God,
the Holy One of Israel, your Saviour. Isaiah 43:2-3
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Blessed are they who
understand
My faltering steps and
shaking hand.
Blessed, they who know my
ears today
Must strain to catch the
words they say.
Blessed are they with a
cheery smile
Who stop to chat for a while.
Blessed are they who never
say‘You’ve told us that story
twice today’.
Blessed are they who make
it known
That I am loved, respected
and not alone.
Blessed are they who
understand
My faltering steps and
shaking hand.
Blessed, they who know my
ears today
Must strain to catch the
words they say.
Blessed are they with a
cheery smile
Who stop to chat for a while.
Blessed are they who never
say‘You’ve told us that story
twice today’.
Blessed are they who make
it known
That I am loved, respected
and not alone.