1. Legal and Ethical Issues in Human Genetics 2. Confidentiality Tufts OpenCourseWare © 2007 Tufts University Legal and Ethical Issues in Genetics OCW: Genetics (L. Demmer) Page - 1
Welcome message from author
This document is posted to help you gain knowledge. Please leave a comment to let me know what you think about it! Share it to your friends and learn new things together.
Transcript
1. Legal and Ethical Issues in Human Genetics
2. Confidentiality
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 1
3. Malpractice Law
4. Genetic Discrimination
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 2
5. Genetic Discrimination
6. Regulation of Human Genome Research
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 3
7. Gene Patents
8. Ethical Challenges in Genetic Testing
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 4
9. Views on Genetic Testing
10. Autonomy
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 5
11. Beneficence / Nonmaleficence
12. Legal Responsibilities of Health Care Providers
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 6
13. Case 3: Familial Adenomatous Polyposis
14. Familial Adenomatous Polyposis
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 7
15. Genetic testing for FAP
16. Case 3: Familial Adenomatous Polyposis
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 8
17. Ethical Principles of Concern:
18. Duty to Warn Third Parties Safer v. Pack (1996)
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 9
19. Duty to Warn Third PartiesSafer v. Pack (1996)
20. Duty to warn third parties, cont.
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 10
21. Duty to warn third parties, cont.
22. Duty to warn third parties, cont.
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 11
23. Ethical Issues to Consider:
24. Genetic Testing in Minors
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 12
25. Genetic Testing in Minors
26. Friedreich Ataxia Case 1
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 13
27. Freidreich Ataxia Case
28. Issues to consider:
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 14
29. Case: Hemophilia in the family?
30. Case: Hemophilia in the family?
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 15
31. Ethical Principles to Consider:
32. Case 1: CF Newborn Screening
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 16
33. Case 1: CF Newborn Screen
34. Case 1: CF Newborn Screening
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 17
35. Possible Explanations for Discrepancy:
36. How to proceed…
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 18
37. Ethical Principles of Concern:
38. Case: Known but unknowing patients with Factor V LeidenDefic...
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 19
39. Case: Known but unknowing patients with Factor V LeidenDefic...
40. Ethical Principles to consider:
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 20
41. Case 2: 14 year old female with lack of pubertal development...
42. Past Medical History
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 21
43. Physical Exam
44. Physical Exam, cont.
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 22
45. Work-up:
46. Follow-up
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 23
47. Ethical Principles of Concern:
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 24
Related Documents
