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1 The Chronic Care
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The Chronic Care

             

            

                    

     

                       

                                         

                

         

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Paradox:

We are still practicing acute care medicine in a world of chronic disease

19th century models at the dawn of the 21st century

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Some Ideas are Just Wrong

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No Chronic Conditions

55%

One or MoreChronic

Conditions45%

People with One or More Chronic Conditions Use:

72% of All Physician Visits

76% of All Hospital Admissions

80% of Total Hospital Days

88% of All Prescriptions

96% of All Home Care Visits

Chronic Care:A Universal 21st Century Challenge

WHO has developed a plan for worldwide attention to chronic care

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II. The Chronic Care Model

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Evidence-basedClinical Change

Concepts

A Recipe for Improving Outcomes

Learning Model

System ChangeConcepts

What are we trying toaccomplish?

How will we know that achange is an improvement?

What change can we make thatwill result in improvement?

Model for Improvement

Act Plan

Study Do

System change strategy

Select Topic

Planning Group

Identify Change

Concepts

Participants

Prework

LS 1

P

S

A D

P

S

A D

LS 3LS 2

Action Period Supports

E-mail Visits Web-site

Phone Assessments

Senior Leader Reports

Event

A D

P

S

(12 months time frame)

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System Change ConceptsWhy a Chronic Care Model?

• Emphasis on physician, not system, behavior.

• Characteristics of successful interventions weren’t being categorized usefully.

• Commonalities across chronic conditions unappreciated.

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Informed,Activated

Patient

ProductiveInteractions

Prepared,Proactive

Practice Team

DeliverySystemDesign

DecisionSupport

ClinicalInformation

SystemsSelf-

Management Support

Health System

Resources and Policies

Community

Health Care Organization

Chronic Care Model

Improved Outcomes

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Essential Element of Good Chronic Illness Care

Informed,Activated

Patient

ProductiveInteractions

PreparedPractice

Team

Productive means that the work of evidence-based chronic disease care gets done in a systematic way, and patient needs are met.

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What characterizes an “informed, activated patient”?

Informed,Activated

Patient

They have the motivation, information, skills, and confidence necessary to

effectively make decisions about their health and manage it.

sufficient information to become a wise decision-maker related to their

illness

understanding the importance of their role in managing the

illness.

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What characterizes a “prepared” practice team?

PreparedPractice

Team

At the time of the interaction they have the patient information, decision support, and

resources necessary to deliver high-quality care.

organized, trained, and equipped to

conduct productive interactions

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• Assessment of self-management skills and confidence as well as clinical status.

• Tailoring of clinical management by stepped protocol.• Collaborative goal-setting and problem-solving resulting

in a shared care plan.• Active, sustained follow-up.

Informed,Activated

Patient

ProductiveInteractions

PreparedPractice

Team

How would I recognize aproductive interaction?

productive interaction is one that assures that patient needs for evidence-based clinical and behavioral care information and support to become better self-managers, and monitoring over time are met.

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Productive Interactions

Informed, Activated

Patient and Caregiver

Prepared, Proactive

Practice Team

Health SystemHealth Care Organization

Self-Management Support

Delivery System Design

Decision Support

Clinical Information Systems

Community

Resources and Policies

Improved OutcomesWagner, 1996

Elements:1. Self-Management support: Empower and prepare patients to manage their health

and health care.2. Delivery system design: Assure the delivery of effective, efficient clinical care and

self-management support.3. Decision support: Promote clinical care that is consistent with scientific evidence

and patient preferences.4. Clinical information system: Organize patient and population data to facilitate

efficient and effective care.5. Community: Mobilize community resources to meet needs of patients.6. Health care organization: Create a culture, organization, and mechanisms that

promote safe, high-quality care.

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What Are Chronic Diseases?>A chronic disease persistent or recurring disease,

usually affecting a person for three months or longer.

• are non communicable illnesses that are prolonged in duration, do not resolve spontaneously, and are rarely cured completely.

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Chronic disease vs Chronic illness

• often used interchangeably in the clinical literature and in health services policy and organization, they convey different meanings;

• Chronic disease is defined on the basis of the biomedical disease classification, and includes diabetes, asthma, and depression.

• Chronic illness is the personal experience of living with the affliction that often accompanies chronic disease. It is often not recognized in health systems, because it does not fit into a biomedical or administrative classification.

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Components of Chronic Disease Care

• Patient experience of care• Care delivery teams• Organizations within which

delivery teams and patients interact

• Regulatory and payment environment

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Some Ideas Need More Thought

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Characteristics of Chronic Disease:

• Last a lifetime• Accumulate with age• Generally progressive• Life-shaping • Different meaning in different cultures

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Goals of Chronic Disease Care

1. Manage the disease to reduce exacerbations.2. Prevent the transition from impairment to disability, and

from disability to handicap.3. Encourage patient to play an active role in managing

his/her disease but avoid allowing the disease to dominate the person’s life.

4. Provide care in a culturally sensitive manner.5. Integrate medical care with other aspects of life without

medicalizing those aspects.

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Case Study

• Terri Schiavo CaseReflection:a. If you were Terri Schiavo’s husband what will be your decision on the case of

your wife?b. Is the family of Terri Schiavo selfish ?c. Did the US supreme court made the right decision?d. Discuss the case of Terri Schiavo using the CCM (Chronic Care Model)

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A Lot Depends on Interpretation

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What is involved

• New definitions– Prevention– Patients’ roles– Time– Place

• New approaches– Professional roles– Expectations– Information technology– Management

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Definitions: Prevention

• Prevent exacerbations

• Reduce expensive utilization

• Prevent dysfunction

• Avoid iatrogenic effects

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Definitions: Patients’ Roles

• 365/24/7– Shared responsibility– Shared risk

• Ongoing communication

• Shared decision making– Need better information– Need time

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Definitions: Time

• Episode vs. Encounter• Pay-off horizon

– Up-front investment recovered over time• Manage by change, not routine

– Scheduling appointments– Length of appointments

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Definitions: Place

• Chronic care occurs across locations• The same care can be provided in different settings

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What is involved

• New definitions– Prevention– Patients’ roles– Time– Place

• New approaches– Professional roles– Expectations– Information technology– Management

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New Approaches: Professional Roles

• Downward delegation– non-physicians– non-professionals

• Primary care– simple cases– complex cases

• New teams– Specialists, nutritionist & therapist

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New Approaches: Expectations

• Cure vs. Management

• Measuring success– actual vs. expected

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Observed

Expected

Outcome

Time

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New Approaches: Management

Case Management Variations• Eligibility management – not all health practitioner

not all patient• Care coordination – all areas are involved• Utilization management – proper resources

proper patient• Disease management

– Often independent– Targeted

• Chronic care management -

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New Approaches: Management

• Patient self-care – Education– Motivation– Attitudinal change

• Nurse-patient partnerships– Information based– Patient empowering

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New Approaches: Information Technology

Problems with too much as well as too little information.Need to focus provider & patient attention on salient data

• Just in time information

• Structured information– Clinical glidepaths

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Need Relevant Information

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Clinical Glidepath• A CLINICAL GLIDEPATH is a way to observe one or more

parameters of a patient’s condition on a regular basis to be able to compare the observed state with the expected state.

• It is a tool to improve communication between patients and primary care providers.

• If the patients stays within the expected course, nothing need be done.

• But if the patient’s clinical course deviates, this change should trigger immediate closer attention to ward off a problem while it is early.

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o

o

o

X

Clinical Glidepath

Expected Course

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Strategies for Improving Chronic Disease Care

• Interdisciplinary team care• Group care – nurses or doctors• Information systems

– Electronic medical record– Computerized physician order entry– Clinical tracking systems

• Mobile computing

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Evidence of Success

• Some encouraging signs but no clear trend• Increased clinic visits and reorganization associated with

fewer hospitalizations and urgent care visits in;

COPD DiabetesPneumonia Chronic renal failureCHF DepressionAngina

Ashton, NEJM, 2003

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Quality care related to better survival among vulnerable older patients

Higashi, Ann Int Med, 2005

Self-management programs for diabetes and hypertension improve outcomes

Chodosh, Ann Int Med, 2005

Medication adherence reduces hospitalizations for diabetes, hypertension, hypercholesterolemia and CHF

Sokol, Med. Care, 2005

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“The prevailing evidence appears to be that while disease management programs improve adherence to practice guidelines and lead to better control of the disease, their net effects on health care costs are not clear.”

CBO, 2004

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Payment Issues• Providers expect to be paid for what they do• Who will invest in primary care• Medicare (PHILHEALTH)

– Expand coverage to include new services• Monitoring• Counseling

– Share savings from decreased inpatient/ER utilization– Pay more per visit for fewer visits– Pay for episodes instead of incidents– Pay for outcomes

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Conclusions

• Chronic disease is here to stay• More must be done to bring the health care system into

alignment• There is good scientific evidence to show better care is

possible• Managed care does not seem to be the magic carpet

– If managed care is to have any success, need better case mix payment system

• Changing the payment system is necessary but not sufficient

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How You Implement Is Important