Use of social networks for innovation in health

Use of social networks for innovationin health

Vicente Traver vtraver@itaca.upv.es

Gwangju, 22th November 2014

Are you in a social network?

Social networks

Evolutive process in continuous change

+ FAR

+ FAST

+ INFOSocial networks + ICT

Are we using properly thetools we already have?

In addition to it works … what are theother questions we have to keep in mind?

Do we know choosing the

right tool?

Which criteriaare we following

to select theproper tool?

How do we convince our

colleagues that new tools are

better than the currently used

ones?

EVIDENCE

What is innovation?

Invention + commercialization

Something different –create, grow, change

Privilege rights to information access

1994 – Mr. Murphy’s case - EnglewoodHospital

2004 – Marian Sandmeier - Washington Post journalist. First use epatient term

Health or medicine ?

Hospital

Pharmacy

Specialist centre

General Practice

Home

Restaurant

Supermarket

Museum

Sports centre

Farm

Work

Car

Loop 1

Loop 2Regulated Health Market Unregulated Health Market

Data Information Knowledge

Take the right decision at the right time

Patients Citizens Patient’sassociations

Medical staff

Key decisionmakers

Social networks interact with the wholeecosystem

EMPOWERMENT is the process through which people gain greater control over decisions and actions affecting their health. Empowerment may be a social, cultural, psychological or political process through which individuals and social groups are able to express their needs, present their concerns, devise strategies for involvement in decision-making, and achieve political, social and cultural action to meet those needs. (WHO. Health promotion glossary, 1998)

awareness

freedom

Empowered patient

Doubts about social media?

Let’s destroy some myths ….

An analysis of the ACOR mailing list showed that erroneouscontent was very rare and most of the times quickly corrected by the community• Esquivel, A, F. Meric-Bernstam, et al. Accuracy and self correction of information received from an

internet breast cancer list: content analysis. BMJ 2006 332(7547):939-42.

Only 3% US citizens can state that they or somebody known havesuffered a problem derived from content or medical advice found onInternet. This rate is stable since 2006.

• Susannah Fox, Sidney Jones. The Social Life of Health Information. Pew Research Center’s Internet & American Life Project. URL:http://www.pewinternet.org/Reports/2009/8-The-Social-Life-of-Health-Information.aspx.

The excess of information in Internet does not diminish confidence in the physician, but it is even increased.

• Hesse B, Moser R, Rutten L. Surveys of Physicians and Electronic Health Information. NEJM 2010 Mar 4;362(9):859-60.

77% doctors interviewed said that the consultation is of better quality when the patient has been previously informed through Internet. Despite an obvious bias (online survey), many physicians are happy with the patient empowerment.• Analysis of 9th HON Survey of Health and Medical Internet Users. Health On The Net

Foundation. URL: http://www.hon.ch/Survey/Survey2005/res.html.

83% doctors trust more than what is documented in the network that their past experiences.

• Connecting with Physicians Online: Searching for Answers. Hall & Partners, Nov 2009. Cited and accesible Pamela Lewis Dolan. 86% Of Physicians Use Internet To Access HealthInformation. American Medical News. URL:http://www.ama-assn.org/amednews/2010/01/04/bisc0104.htm.

Key factors for innovation

Make the healthiest the easiest option

Be known – broadcast the message

Customise the message

Include gamification techniques

Citizen’s behaviour and the health impact

Health status determinants

Health system (10%)

Environment(5%)Behavioral

(40%)

Social(15%)

Genetic (30%)

McGinnis et al., Health Affairs 21(2), 2002

Make the healthiest the easiest option

Who takes care of our Internet searches ?

Who makes useasy?

You Tube – 321.000 videos

Google - 93.000.000 Links

82.000 apps (iTunes, Google Play)

ARTHRITIS

Make the healthiest the easiest option

Who likeshurling?

NOBODY likesunknown

issues

Be known – broadcast the message

Communication strategy

Why? For what? How do wemeasure?

It’s not justa matter of

buyingTwitter or

FB followers

Be known – broadcast the message

Customise the message

Juegos serios vs Ludificación

GAMIFICATION is the use of game thinking and game mechanics in non-game contexts to engage users in solving problems and

increase users' self contributions. Gamification has been studied and applied in several domains, with some of the main purposes being to engage, teach, entertain, measure, and to improve the

perceived ease of use of information systems

Include gamification techniques

Through gamification desired behaviors are encouraged, using psychological

predisposition of humans to play games.

• Badges• Scores• Comparison among

peers, ratings• Levels• Feedback

Gametechniques

Include gamification techniques

Gamificacion

• Read webpages• Follow a diet• Do physical exercise• Take drugs

Help forboringtasks

• Learn in a new context• Increase engagement• Social capital (identity and status)

Extra motivation

Include gamification techniques

Include gamification techniques

Serious games vs gamification

Foto libro

InnovationPatient –

Health careprovider

PatientOpinion

InnovationPatient –

Health careprovider

PatientOpinion

Innovation Citizen –Friends Stickk

Innovation Citizen –Friends Stickk

Innovation Citizen –Society

The ALS Ice bucket

challenge

ALS Ice Bucket Challenge, is an activity involving dumping a bucket of ice water on someone's head to

promote awareness of the disease amyotrophic lateral sclerosis (ALS) and encourage donations to research

Innovation Citizen –Society

The ALS Ice bucket

challenge

ALS Ice Bucket Challenge, is an activity involving dumping a bucket of ice water on someone's head to

promote awareness of the disease amyotrophic lateral sclerosis (ALS) and encourage donations to research

The ALS association informed the donations number - “as of monday 25 of august 2014, $79.7 million in donations compared to $2.5 million during the same time period last year (July 29 to August 25).” This is a +3,000% rise

Innovation Citizen –Society

The ALS Ice bucket

challenge

ALS Ice Bucket Challenge, is an activity involving dumping a bucket of ice water on someone's head to

promote awareness of the disease amyotrophic lateral sclerosis (ALS) and encourage donations to research

The ALS association informed the donations number - “as of monday 25 of august 2014, $79.7 million in donations compared to $2.5 million during the same time period last year (July 29 to August 25).” This is a +3,000% rise

$2M in 1month

Innovation CDC –Medical staff

H1N1 flu(swine flue)

2009 Contestamong

medical staff to explain

swine flu and how to prevent

> 250 related videos produced for free with a viral effect for $2.500

Innovation CDC – Young people

Emergencies– Zombie

attack

Viral campaignoriented to Young people based onthe ‘The Walking

Dead’

Participants need to show in 60’ that they

know how to be prepared for an

emergency (zombis, hurricanes, floodings,…)

InnovationPatient –Patients’

community

Blog SixUntilMe

A diabetic bloggersexplains how to hide the

insulin pump in thewedding dress

Innovation Public Health– Citizens

Tweets aboutEbola in the

affected area

BMJ 2014; 349 doi: http://dx.doi.org/10.1136/bmj.g5975 (Published 02 October 2014)

Innovation Public Health– Citizens

Tweets aboutEbola in the

affected area

BMJ 2014; 349 doi: http://dx.doi.org/10.1136/bmj.g5975 (Published 02 October 2014)

Technological advancements do not guarantee that the disseminated information is correct

Only 36% included correct medical information

Major mistakes: wrong information ( Ewedu, blood transfusion, salted water) or not updated information

Erroneous tweets were retweeted more than the right ones.

Innovation Public Health– Citizens

Tweets aboutEbola in the

affected area

BMJ 2014; 349 doi: http://dx.doi.org/10.1136/bmj.g5975 (Published 02 October 2014)

Technological advancements do not guarantee that the disseminated information is correct

Only 36% included correct medical information

Major mistakes: wrong information ( Ewedu, blood transfusion, salted water) or not updated information

Erroneous tweets were retweeted more than the right ones.

InnovationPatient –Pharma –

Health Ministry

App -mepedigree

App in Ghana – mpedigree to check with a code whetherthe drug is valid or a fake

And you?Which is the message you want to transmit?

Messages to take home

Social networks are a means, not an end. They are a very powerful tool but only a tool.

Innovation= invention + commercialization. Any innovation mustproduce a return ( not necessarily financial).

Key factors for the innovation in health: customisation, ease of use, broadcast and gamification.

Why? For what? Need of an strategy for presence in social media with clever metrics for further evaluation and improvement.

Useful mentioned references (I)

http://emergency.cdc.gov/socialmedia/zombies_blog.asp CDC Ataque Zombi

http://www.walkonproject.org/blog/ WOP Project

http://www.patientslikeme.com/ PatientsLikeMe

http://www.mpharma.org/mpedigree/index.php mpedigree

http://observatics.com/ OBSERVATICS

https://www.patientopinion.org.uk/ Patient Opinion

Useful mentioned references (II)

http://av.conferencearchives.com/pdfs/091105/604.2.pdf CDC - Swine flucampaign

http://www.stickk.com/ Stickk

http://sixuntilme.com/wp/ SixUntilMe

http://www.hsjdbcn.org/ Hospital Sant Joan de Dèu

http://www.salupedia.org Salupedia

http://www.slideshare.net/vtraver This presentation

Vicente Traver vtraver@itaca.upv.es @vtraver

Use of social networks for innovation in health