Supported by Bon Voyage! Travelling with a bleeding disorder.
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Bon Voyage!Travelling with a bleeding disorder
PURPOSE
Travelling is often an adventure filled with challenges, especially for people with bleeding disorders.
With the right planning these challenges can usually be overcome. The goal of this module is to help people with bleeding disorders reduce the risks of travel so they can enjoy their adventure to its fullest.
1. Travel CHALLENGES
2. Travel INSURANCE
3. INFORMATION to carry
4. PREPARATIONS with your treatment team
5. TRANSPORTING clotting factor CONCENTRATES
6. SPECIAL NEEDS
7. INFUSING EN ROUTE
8. Top 10 travelling TIPS
BON VOYAGE!TRAVELLING WITH A BLEEDING DISORDER
TRAVEL CHALLENGES
CHALLENGES
CHALLENGES FOR TRAVELLERS CHALLENGES FOR TRAVELLERS WITH BLEEDING DISORDERSWITH BLEEDING DISORDERS
Getting through airport security and border crossings with factor products, needles and syringes.
Packing bulky clotting factor concentrates.
Ensuring you carry medical information.
Knowing where to find medical care.
Arranging for special travel needs.
Obtaining travel insurance.
TRAVEL INSURANCE
BENEFITS…INSURANCE…
Strongly recommended outside Canada!
Pre-existing conditions may be covered unless, in the last 3 to 6 months, you…
− consulted a physician (other than for a regular checkup);
− were hospitalized;
− were prescribed or received a new treatment or medication;
− were prescribed a change to an existing treatment or medication.
TRAVEL INSURANCE
BENEFITS…
When applying for insurance,
always tell the truth about your
bleeding disorder.
Failure to provide all health
information will void any claim.
INSURANCE
INFORMATION TO CARRY
BENEFITS…INFORMATION TO CARRY…
FactorFirst or TreatFirst cards
MedicAlert bracelet or necklace
Letter of authorization from HTC to carry concentrates, needles and syringes, contact information for HTC. The letter, written in English, should include:− Name of patient− Description of medical disorder− Contact information for HTC− Name of physician− Type of medication− Types of supplies− Types of implants that might setoff security alarms
MEDICAL MEDICAL INFORMATIONINFORMATION
BENEFITS…
It is essential to have a list of all the hemophilia treatment centres (HTCs) on your itinerary.
The World Federation of Hemophilia publishes an annual list of the HTCs in over 100 countries.
INFORMATION TO CARRY
INFORMATION TO CARRY…
HTCHTCss AROUND THE WORLD AROUND THE WORLD
www.wfh.org
BENEFITS…
Emergency contacts at home
Your treatment centre contact information
Contact information for treatment centres on your route
Travel insurance provider information
Health insurance provider information
Use the CHS Travel Card!
INFORMATION TO CARRY
INFORMATION TO CARRY
EMERGENCY CONTACT EMERGENCY CONTACT INFORMATIONINFORMATION
PREPARATIONS WITH TREATMENT TEAM
BENEFITS…PREPARATIONS…
1. Should I take a dose of factor before boarding the plane?
2. Should I change my prophylaxis schedule or temporarily adopt a prophylaxis regime?
3. How many doses of my treatment (factor concentrate, desmopressin or antifibrinolytic) should I take?
4. How should I pack and store my medications?
5. How should I keep my infusion records while travelling?
6. Do I need to carry prescriptions for these medications?
SOME OF THE QUESTIONS YOU NEED TO SOME OF THE QUESTIONS YOU NEED TO ASK:ASK:
PREPARATIONS WITH TREATMENT TEAM
BENEFITS…
7. Should I bring analgesics with me and, if so, which ones?
8. Should I bring a First Aid kit with me and, if so, what should I put in it?
9. Do I need to see a travel clinic for vaccinations?
10. Should I contact the HTC at my destination before leaving home?
11. Should I sign a Release of Medical Records form at my HTC so my records can be forwarded to another health care facility if needed?
12. What should I do in an emergency?
PREPARATIONS…
PREPARATIONS WITH TREATMENT TEAM
BENEFITS…
The Canadian Association of Nurses in Hemophilia Care (CANHC) has published a booklet called
Planning Travel:Planning Travel:A Guide for People with Bleeding DisordersA Guide for People with Bleeding Disorders
PREPARATIONS…
TRANSPORTING CLOTTING FACTOR CONCENTRATES
BENEFITS…
Check the package insert (or product monograph) for precise temperature storage instructions.
NEVER leave factor in the car in the hot sun!
NEVER put factor in your checked baggage!
If bulky, re-package vials,needles and syringes inspecial carrying case.
NEVER let the security agenttouch your supplies withoutclean gloves.
PREPARATIONS…TRANSPORTING FACTOR…
BENEFITS…
Carry a personalized letter.
Know the latest airport security rules.
Ensure the medication is properly labelled.
Declare medication separately from other liquids.
TRANSPORTING CLOTTING FACTOR CONCENTRATES
AIRPORT SECURITYAIRPORT SECURITY
TRANSPORTING FACTOR
SPECIAL NEEDS
BENEFITS…
If you expect to need assistance at any airport on your itinerary, contact your airline, when possible at least 24 hours in advance.
Beware! Quality of service varies.
SPECIAL NEEDS…
MOBILITY MOBILITY ASSISTANCEASSISTANCE
BENEFITS…
By contacting your airline, it is possible to request a seat:
with movable armrests
close to the washrooms and exits
with extra legroom
See www.seatguru.com
SPECIAL NEEDS
SPECIAL NEEDS
SPECIAL SEATING ON PLANESSPECIAL SEATING ON PLANES
EXPRESS/PRIORITY EXPRESS/PRIORITY LINESLINESAirport security and even some tourist attractions have express/priority lines for
people with mobility limitations. Just ask!
INFUSING EN ROUTE
BENEFITS…
If you need to infuse on a train or plane, ask for a place where you have sufficient room and can concentrate.
In an airport, if you cannot find a quiet, suitable location to infuse, ask for help in finding a First Aid station.
If none of these suggestions work, find a table (as secluded as possible), lay out your supplies and give your infusion. There is no reason to be shy!
INFUSING EN ROUTE…
INFUSING EN ROUTE
It is critical that “sharps”, that is, needles, be disposed of safely after use.
If you don’t have a “sharps” container, carefully replace the plastic guards on the needles and store them together inside another secure container. If your trip is short, bring them home to dispose of.
If your trip is longer, find a medical facility that will accept to dispose of them for you. Some airports have “sharps” containers in washrooms.
INFUSING EN ROUTE…
WHAT TO DO WITH “SHARPS”WHAT TO DO WITH “SHARPS”
Vials and syringes can be discarded in the regular waste disposal.
INFUSING EN ROUTE
BENEFITS…
If you use a paper-based infusion record, take your forms along with you.
If you use an electronic or Web-based device, and can’t take it with you, make your own paper log. Record:
− Date and time of infusion
− Lot number
− Number of units infused
− Reason for infusion: Bleed (indicate site), prophylaxis or immune tolerance induction therapy.
INFUSING EN ROUTE
KEEPING INFUSION KEEPING INFUSION RECORDSRECORDS
IT IS JUST AS IMPORTANT TO KEEP GOOD INFUSION RECORDSWHILE TRAVELLING AS WHEN AT HOME.
TOP 10 TRAVELLING TIPS
BENEFITS…
1. Discuss your travel plans with your treatment team.
2. Carry a personalized letter from your treatment centre describing what supplies you have and why you must carry them with you.
3. Carry an up-to-date FactorFirst or TreatFirst card.
4. Wear a MedicAlert necklace or bracelet.
5. Have a list of all the hemophilia treatment centres on your itinerary.
6. Carry several copies of your emergency contact information.
7. Obtain travel insurance, if possible.
8. Check the package insert (or product monograph) for precise instructions on the storage conditions of the product you use.
9. Never keep your medication in your checked luggage!Always keep it with you.
10. Keep good infusion records while travelling.TRAVELLING TIPS
ACKNOWLEDGEMENTS
The CHS would like to acknowledge those people who contributedto the development of Navigating the emergency department.
CLARE CECCHININational Program Manager, Canadian Hemophilia Society (retired)
MYLENE D’FANAVice-President, Canadian Hemophilia Society
DEB GUE, RNNurse Coordinator, Hemophilia Program, Adult Division, St. Paul’s Hospital, Vancouver, BC
ALEX LITTLECalgary, AB
DAVID PAGENational Executive Director, Canadian Hemophilia Society
NORA SCHWETZ, RNNurse Coordinator, Bleeding Disorders Program, Health Sciences Centre, Winnipeg, MB (retired)
Supported by
Navigating the emergency department
Charting your course
Home care: The road to independence
Destination fitness
Roadmap for managing pain
Bon Voyage!Travelling with a bleeding disorder
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