STORYTELLING LEVERAGING PHILANTHROPY AND COMMUNITY … · BUILDING A CAMPAIGN –IMPACT GOALS •Gain mass and strategic recognition of ME as a debilitating illness suffered by millions

S TO RY T E L L I N G

L E V E R AG I N G P H I L A N T H RO P Y A N D C O M M U N I T Y TO

C R E AT E S O C I A L C H A N G E

M A RY M AC R A E , S H A R K I S L A N D I N S T I T U T E

• WHO WE ARE

• UNREST CASE STUDY (STORY OF ME, US, NOW)

• AUSTRALIAN CASE STUDY

• STORY AND PHILANTHROPY

• STORY TELLING FOR PHILANTHROPY

SHARK ISLAND INSTITUTE – STORY OF ME

SHARK ISLAND INSTITUTE

• INDEPENDENT DOCUMENTARY FILM COMPANY – NOT PHILANTHROPISTS!

• USING DOCUMENTARY FILM TO LEVERAGE CHANGE IN AUSTRALIAN COMMUNITIES

• A COALITION MODEL TO BUILD COMMUNITIES AROUND AN ISSUE

• INTERNATIONAL FILMS – PORTFOLIO – ONE OF UNREST EXECUTIVE PRODUCERS

• FILM EXAMPLES – THE OASIS (HOMELESSNESS), THAT SUGAR FILM (HIDDEN SUGARS), CONSTANCE ON THE EDGE (REFUGEE TRAUMA AND COMMUNITY INCLUSION), BLUE (OCEAN PLASTICS), THE HUNTING GROUND (SEXUAL VIOLENCE ON CAMPUS).

STORY OF US

• researchers

• health practitioners

• students

• carers

• people living with ME/CFS

• film maker

• administrators

• funders

• sponsors and supporters

STORY OF USUNREST - A CONVERSATION CHANGER

STORY: GETTING THE FILM MADE AND TO AN AUDIENCE

CAMPAIGN

LAUNCH

22 SEPT.

2017

LIMITED

CINEMA

RELEASE

US, UK

Sept - Oct

ONLINE

RELEASE

iTUNES

(OCT-NOV)

COMMUNITY AND TARGETED SCREENINGS

PBS BROADCAST

January 8

2018

FESTIVAL

RELEASE

JAN-OCT

2017

UNREST at FESTIVAL SCREENINGS

AROUND THE WORLD THROUGHOUT

2017/18

CO-FOUND

MEACTION

2015

SUNDANCE

JANUARY 2017

MELBOURNE

AUGUST

2017

KICKSTARTER

CAMPAIGN

2013

MAPPING THE

NETWORK

2016-17

RAISING

FUNDS

2013 - 2016#TIMEFOR

UNREST

GLOBAL GRASSROOTS ADVOCACY NETWORK:GROW AND MOBILISE A COMMUNITY OF PATIENTS AND ALLIES TO BE STRONG AND EFFECTIVE ADVOCATES FOR PEOPLE WITH ME AND RELATED CONDITIONS.

BUILDING A CAMPAIGN – IMPACT GOALS

• Gain mass and strategic recognition of ME as a debilitating illness suffered by millions by reaching wide audiences and bringing them into the conversation.

• Leverage public screenings, in physical and virtual events, to mobilise a community of ME patients and allies to action and generate significant media coverage to challenge existing conceptions of the disease.

• Leverage targeted screenings to promote knowledgeable and empathetic care for ME within the medical profession.

• Inspire new scientists and funders to join the field and concentrate new work around ME/CFS.

• https://www.unrest.film/tools/

ATTRIBUTABLE IMPACT

Time For Unrest

2017 Impact Campaign Highlights

Download the impact deck from the film website for

2017:

https://www.unrest.film/unrest-2017-impact-campaign/

STORY OF NOWAUSTRALIAN ACTION

advocate support

community screenings

international liaison with actions and impact

campaign

STORY OF NOWBUILDING A COALITION OF SUPPORT -

RESEARCH

• Australia Government MECFS research funding totals $1.6m over the last 16 years, or 53 cents per patient

per year

• Targeted call for Research (TCR) submitted - $3m-$5m over 3-5 years

• NHMRC has agreed to look at research and clinical guidance needs for ME/CFS. In order to do this, an

expert advisory committee was established in October 2017.

• We need allies and influencers to encourage the Minister for Health to commit to providing

appropriate research funding alongside philanthropic partnerships in place

STORY OF NOWBUILDING A COALITION OF SUPPORT -

MEDICAL

• Patients and carers are often misunderstood and/or ignored by the mainstream health system. GP

bewilderment and patient anxiety about diagnosis and treatment are common.

• Very few specialist ME/CFS physicians exist and there are very few public day care clinics.

• GP’s and patients usually face very long waiting lists for specialist care.

• ME/CFS patients are not eligible for the National Disability Insurance Scheme (NDIS)

• We need allies and Influencers to encourage the NHMRC to commit to providing appropriate guidelines to GPs

“The Committee is in the process of synthesising the views of members prior to drafting a

report to NHMRC’s Chief Executive Officer (CEO) on the research and clinical guidance

needs of ME/CFS in Australia. The draft report to CEO will be released for public

consultation later this year to provide an opportunity for the general public as well as the

ME/CFS sector to contribute to the proposed recommendations in the report and ensure

that the views of researchers and those with ME/CFS and their clinicians/carers have

been captured and considered. ”

NHMRC ME/CFS Advisory Committee website

STORY OF NOW DECISION MAKERS

STORY OF ME, US, NOWKETRA WOODING

• https://ketrawooding.com

• https://www.youtube.com/watch?v=yKoheNZlqXg

image courier mail

STORY AND PHILANTHROPY

STORY OF NOW PHILANTHROPY

• KNOW YOUR PURPOSE – are you seeking funds, network or influence

STORY OF NOW PHILANTHROPY

• KNOW YOUR PURPOSE – are you seeking funds, network or influence

• KNOW YOUR TARGET – ask for a meeting – start a personal relationship

STORY OF NOW PHILANTHROPY

• KNOW YOUR PURPOSE – are you seeking funds, network or influence

• KNOW YOUR TARGET – ask for a meeting – start a personal relationship

• CREATE YOUR PITCH FOR YOUR AUDIENCE – what emotion do you want to elicit

STORY OF NOW PHILANTHROPY

• KNOW YOUR PURPOSE – are you seeking funds, network or influence

• KNOW YOUR TARGET – ask for a meeting – start a personal relationship

• CREATE YOUR PITCH FOR YOUR AUDIENCE – what emotion do you want to elicit

• REVIEW – DISTILL DON’T DUMB DOWN – Elevator Pitch

STORY OF NOW PHILANTHROPY

• KNOW YOUR PURPOSE – are you seeking funds, network or influence

• KNOW YOUR TARGET – ask for a meeting – start a personal relationship

• CREATE YOUR PITCH FOR YOUR AUDIENCE – what emotion do you want to elicit

• REVIEW – DISTILL DON’T DUMB DOWN – Elevator Pitch

• TIMING – don’t cut and paste to a deadline – get a timeline for response and follow up

STORY OF NOW PHILANTHROPY

• KNOW YOUR PURPOSE – are you seeking funds, network or influence

• KNOW YOUR TARGET – ask for a meeting – start a personal relationship

• CREATE YOUR PITCH FOR YOUR AUDIENCE – what emotion do you want to elicit

• REVIEW – DISTILL DON’T DUMB DOWN – Elevator Pitch

• TIMING – don’t cut and paste to a deadline – get a timeline for response and follow up

• RELATIONSHIP – engage and APPLY AGAIN

SUPPORTSUPPORTSUPPORT

BUILD COMMUNITY AND COLLABORATION

READ AND WATCH MORE AT:

WWW.UNREST.F I LM

WWW.MEACTION.NET

KETRAWOODING.COM

EMERGE .ORG.AU