Sharing our consumer participation experience

Sharing our consumer participation experience

Matt Gleeson,

Consumer Participation Working Group Co-ordinator

ACT Consumer Participation Forum 2013

Acknowledgements

Donna Ribton–TurnerJames Beckford SaundersVenetia BrissendenBrandon JonesPaul AikenShannon BellLaurence AlvisUnitingCare ReGen Board

Overview

1. Development of Consumer Participation model and role

2. Practical strategies

Committed to engagement

Rationale

• Human Rights

• Improving treatment outcomes

• Organisational & strategic drivers

What’s it all about?

“The process of involving health consumers in decision making about health service planning, policy development, priority setting and quality in the delivery of health services.”

Commonwealth Department of Health and Aged Care (1998) Consumer Focus Collaboration Canberra, Australia

Simple but complex

Key Resources

AIVL - Treatment Service Users Project Phases 1 and 2http://bit.ly/ZANfKe

APSU – Straight from the source: A practical guide to consumer participation in the Victorian AOD sectorhttp://bit.ly/YNvQ1I

Level & Scope of Participation

Consumers

Service Users

Clients

Control

Partnership

Consultation

Information

Clarke and Brindle (2010)

Into the future…

Structures ApproachConsumer Participation

Leadership Group All of organisation

Consumer Participation Facilitator Capacity building

Consumer Representatives Mentorship

Evaluated & disseminated

Consumer Participation Facilitator

Consumers

StaffCP

Leadership Group

• Guidance• Mentoring• Support• Advocacy• Capacity Building

• Guidance• Mentoring• Support• Capacity

Building

• Guidance• Advocacy

Some unexpected outcomes

1. Staff are seeking consumer experience

2. Staff are questioning workplace/sector culture

The practice of consumer participation in ATOD treatment agencies

Make rights tacit

http://www.regen.org.au/images/ReGen/ReGen_Client_Charter.pdf

Use technology to support participation

Address stigma

Report to all of your stakeholders

Position PaperAdvocacy in ActionConsumer Participation Position Paper & Supporting Evidence

http://bit.ly/YWJTQf

www.regen.org.au/advocacy

References

Association of Participating Service Users (2010), Straight from the Source: A practical guide to consumer participation in the Victorian alcohol and other drug sector, Carnegie, Victoria

Australian Injecting and Illicit Drug Users League (2008) Treatment Service Users Project: Final Report, Canberra, Australia

Australian Injecting and Illicit Drug Users League (2011) Treatment Service Users Project: Phase Two Final Report, Canberra, Australia

Commonwealth Department of Health and Aged Care (1998) Consumer Focus Collaboration Canberra, Australia