hp:// /2016/12/06/magazine/life-in-obamacares … · 2016-12-06 · High Level Goals • All research proposals should include appropriate methods design and engagement methods in

h"p://www.ny*mes.com/2016/12/06/magazine/life-in-obamacares-dead-zone.html?hp&ac*on=click&pgtype=Homepage&clickSource=story-heading&module=b-lede-package-region&region=top-news&WT.nav=top-news&_r=1

PrimarySource:h"p://ajph.aphapublica*ons.org/doi/abs/10.2105/AJPH.2016.303515?url_ver=Z39.88-2003&rfr_id=ori%3Arid%3Acrossref.org&rfr_dat=cr_pub%3Dpubmed&SecondarySource:h"p://www.etsu.edu/news/2016/11_nov/nr_poorestcoun*es.aspx

PrimarySource:h"p://ajph.aphapublica*ons.org/doi/abs/10.2105/AJPH.2016.303515?url_ver=Z39.88-2003&rfr_id=ori%3Arid%3Acrossref.org&rfr_dat=cr_pub%3Dpubmed&SecondarySource:h"p://www.etsu.edu/news/2016/11_nov/nr_poorestcoun*es.aspx

[IntheUS]…comparedtothewealthiestcoun*esinthena*on,thepoorestcoun*esseesmokingratesthataretwiceashigh,a50percenthigherrateofobesityandalifeexpectancy7to10yearsshorter

HealthDispari*es

Unequalaccesstohealthcare

•  LowSES•  LowResource•  Women•  LGBTQI•  MenwhohavesexwithMen•  PhysicalandCogni*veandSensoryImpairments•  Olderadults•  BehavioralHealth

–  E.g.,drugaddic*on•  MentalHealth•  Veterans•  Incarcerated

ResearchDispari*es

•  Weneedtoconnect•  Gobeyondwhoiscorrect

•  Differentsyntax,sameseman*cs

ImprovingSmartandPervasiveHealth

Proac*velyworktoreduce

dispari*es

Image:h"ps://en.wikipedia.org/wiki/Yin_and_yang

CreateInnova*veTechnologiesDon’tleaveoutpopula*ons

Workswithspecificpopula*onsCommunity-basedresearch

–  Approaches,sharing,reciprocity,value

AdaptabilitytoDifferentContexts

Flexible–  researchdesigns

•  Pilo*ngideas–  technologysystems–  adap*ngtoresources&expecta*ons–  overtheproject*meline

•  [Agency]Howdowedocumentchangesappropriatelytoensurescience

AdaptabilitytoDifferentContexts

Flexible–  researchdesigns

•  Pilo*ngideas–  technologysystems–  adap*ngtoresources&expecta*ons–  overtheproject*meline

•  [Agency]Howdowedocumentchangesappropriatelytoensurescience

Exci=ngResearch•  Createnovelmethodstounderstand

allstakeholders•  PublicHealthmethods•  EmpoweringLayLeadership

•  Iden*fymissingdata/gaps–  Whatdatatypesdoweneed?–  Whatassump*onscanwemake?

•  What,ifany,healthcareprovidersdotheyvisit?

•  Iden*fyandaddresspersonalandalgorithmicbiasesandimpact

HighLevelGoals

•  AllresearchproposalsshouldincludeappropriatemethodsdesignandengagementmethodsinIntellectualMerit(aspartoftheresearch)fortheintendedtargetpopula2on–  SimilartoSmartCommuni*es–  E.g.,ifyourproposalisaboutstrokepar*cipants,

thenyoushouldbeworkingwithstrokepa*ents

ItisIntellectualMeritbecauseimpactsthegeneralizability,usability,andimpactoftheScience

HighLevelGoals

•  Proposalstocalloutresearchaddressingdispari*esinrela*onto–  Access–  Iden*fyInequi*es–  Interven*ons–  Methods(howtodocommunity-basedreasarch;

engagewithallstakeholdersandinfrastructure,interdisciplinarycollabora*ons)

–  TechnicalApproachesItisIntellectualMeritbecauseimpactsthegeneralizability,usability,andimpactoftheScience

RaisetheFloor;LowertheBar

Howdowedothis?-Resources-Exper*se-DesignMethods

•  Howdowefindcollaborators?

•  Howdowefundgoodcollabora*ons?

HighLevelGoals

•  Encouragingproposalsthatmeetporpoliogoalsrelatedtohealthdispari*es–  [Agencyside]

ExampleHealthDisparity/MarginalizedGroups

•  LowSES•  LowResource•  Women•  LGBTQI•  MenwhohavesexwithMen•  PhysicalandCogni*veandSensoryImpairments•  Olderadults•  BehavioralHealth–  E.g.,drugaddic*on

•  MentalHealth•  Veterans•  Incarcerated

HealthDispari*es•  Createnovelmethodstounderstandit– Understandingwhytheapproachesexist

•  AndreaGrimes-Parker– Howtowiththepopula*onstodesignsystems

•  Iden*fymissingdata–  Beingmoreflexibleaboutwhatdatatypesweneed– Assumingtheygettohealthcareproviders

•  CommunityHealthcareworkers–  LowSESpopula*onsmaynotgototradi*onalhealthcarefacili*es–theygotominuteclinics,ERs,communityhealth

•  PublicHealthmethods•  EmpoweringLayLeadership