Establishing and Evaluating a PD Support Network Gillian Carey (1) and Beverly Castleton (1) Dick Curry (2) (1) North Surrey Primary Care Trust (2) The.
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Establishing and Evaluating a PD Support Network
Gillian Carey (1) and Beverly Castleton (1) Dick Curry (2)
(1) North Surrey Primary Care Trust(2) The Tanaka Business School, Imperial
College London
Address for correspondence
Gillian.carey@nsurreypct.nhs.uk
Objectives
Patient access to information and
assistance
Patient links to their healthcare
professionals
To link healthcare professionals to one
another
Features of the Website
Bulletin Board (Local events, service update, PD in the news)
Discussion forum (topic specific discussion between patients)
Health enquiries (general health questions from patients)
My PD Nurse (secure area for personal communication between patient and professional)
Professionals Site (secure communication between PD specialists)
Pilot Phase
Launched September 2004 One year duration 50 patients and carers registered as users 20 health professionals registered as users
User comments“A faster service for personal questions and
general enquiries”“Useful to compare problems and ideas with
others”
Evaluation
Impact on:
– Patients and carers
– Health professionals
– PD Society policy implementation
– NHS Policy implementation
Website Address
Patient site
http://www.supportingparkinsons.com
Health professional’s site
http://experts.pds.medixine.com
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