Developing the BCS / DH Guidance Geraldine Mynors Project Director HC2013 – Birmingham 16 April 2013.
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Developing the BCS / DH Guidance
Geraldine MynorsProject Director
HC2013 – Birmingham16 April 2013
• Context
• Project overview
• Launch of the final guidance – version 1
Topics
• Context
• Project overview
• Launch of the final guidance – version 1
Topics
Record access is high on the policy agenda
By March 2015:• Everyone who wants will have
access to their GP records online• Everyone to be able to book GP
appointments and order repeat prescriptions online
• Everyone will be able to have secure electronic communication with their GP practice
• E consultations more widely available
• All health and care settings to work towards records integration.
Enabling reviews complete
• RCGP Patient Online Roadmap published March 2013
• Caldicott Review on the balance between sharing information and protecting individuals’ confidentiality – due for publication April 2013.
Take up increasing… patchilyExamples include:• Renal Patient View•E-Red Book• Patients Know Best
pilots • Brains Trust pilot • Health Foundation
‘My Record’ Projectwww.pifonline.org.uk
With uptake comes the potential for confusion and risk
• Records being hacked and login information being ‘phished’ for
• Desire to share, but share safely• Coercion from family members and others• Requests from external agencies for
records access• Potential for inadvertent sharing
• Context
• Project overview
• Launch of the final guidance – version 1
Topics
Overview of project
• To produce comprehensive guidance on how to use shared and patient-controlled records safely and securely
• Department of Health and BCS Health • Steering Committee and Project Board• Mynors Suppiah awarded contract through
competitive selection process• Started May 2012; launched February 2013
The Journey
Idea
ProjectManager Invitation to tender
Funding approved byHM Treasury
DeadlineSelection
1st SteeringCommittee
BCS-DH Contract
Power of Information
2011 2012 2013
CopyCrystal Marked
LayoutApproved
PrintReady
LAUNCH!
The Project Team
Geraldine Mynors
Emily Newsom-Davis
Sarah Smith
Aspirations for the guidance
• Booklet and summary guide• Clear, straightforward, simple and directive• Give people skills and confidence• Focus on safe behaviour• Help people make informed choices• Relevant and personal• Pragmatic – given limitations of systems and
rapidly evolving processes
Patient Representative
Independents
Steering Committee | Project Board
Methodology | ScopingSteering Committee
• Face to Face• Online
Stakeholders
• 25 Respondents
• Low response rate from suppliers – interviews supplemented
Scope and audience
• Electronic records only (not paper)• Primary, secondary and social care• England • Adults, including nominating others to access, but
excluding vulnerable adults/children without capacity• For dissemination in both paper and web form.
Scope and audienceNot about:• ‘Selling’ benefits of record access, although
should be encouraging, reassuring, positive• ‘Sealed envelopes’ – covered by RCGP work• Complaints, or altering records• Secondary uses of data (e.g. research)• Making technology safe• Professional standards – covered in Care
Record Guarantee
X
Myths and Concerns uncovered in scoping focus groups
Everyone will have to sign up to get full access to NHS services in future.
Signing up for online access means the creation of an electronic health record.
Signing up for online access makes your electronic health record inherently less secure.
If I had access, my mum would immediately want to be able to read my record.
Methodology | User TestingOne to One Interviews
• Polished Draft
• Information Challenges
• MHRA/ EMA
Stakeholders
• Steering Committee
• Crystal mark application
• Context
• Project overview
• Launch of the final guidance – version 1
Topics
http://www.nhs.uk/records
Launch event – February 2013
Wai Keong Wong* Isabel ChevisNeil Churchill Ewan Davis* Alan Doyle Toto Gronlund*Sue Hawkswell Mike Haynes Penny Hill Peter ShortKeith Simpson Pauline Smith* Ben TothJean Waters Justin Whatling*
Marlene Winfield*
BCS Health (Chair of the Steering Group and Project Board)CEO, IHRIMCEO, Asthma UKHealth IT Consultant, BCS; Woodcote ConsultingDirector, National Information Governance BoardDirector Patient and Public Relations, DHIDManaging Director, CSE Healthcare; IntellectBCS; Independent ConsultantNIGB; Mortimore Hill Associates (Social Care)National Clinical Lead, GPs, DHID, RCGPNephrologist; Renal Patient ViewProgramme Manager, DHIDInformation Manager, National Institute for Social Care and Health Research
Patient RepresentativeSenior Director Strategic Consulting in Europe, Cerner;
Chair, BCS HealthIndependent Consultant
* Project Board Members
Thanks to our Steering Group
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