Consumer Health - Consumer and Patient Health Information Services ...
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Consumer Health: Collection Development Services for
Public Libraries
Roxanne Cox
McGoogan Library of Medicine
University of Nebraska Medical Center
November 10, 2005
Introduction
Healthy People 2010
“The health of individuals and communities also depends greatly on access to quality health care. Expanding access to quality health care is important to eliminate health disparities and to increase the quality and years of healthy life for all people living in the United States. Health care in the broadest sense not only includes services received through health care providers but also health information and services received through other venues in the community.”
http://www.healthypeople.gov/Document/html/uih/uih_2.htm#deter
The Healthy People 2010 Library Initiative
www.healthlit.org 5 year project launched by American
Association for the Advancement of Science Designed to provide minority groups and
other consumers easy access to current reliable information on selected topics at their local public libray
Provide libraries with health booklets
Collection Development
Process of building collection based on needs of your customers
Recent article with good suggestions*Fuller, H. Consumer health collecting made easy. American Libraries. 2005; 36(5):47-48.
Barriers
Uncomfortable making decisions on medical resources due to:– How do you know if material is good or bad– Who are best vendors, publishers for health
material
First Steps: needs assessment
Library information and statistics
Community assessment
Consult local health care providers, patient educators, local support groups, and local health agencies
Focus groups
Resources
Performing a community needs assessment. In The Public Librarian’s Guide to Providing Consumer Health Information, Barbara Casini and Andrea Kenyon. Chicago: Public Library Association, 2002.
Starting a Consumer Health Information Service in a Public Library. Mary L. Gillaspy. Public Library Quarterly, 2000. 18(3/4): 5-19.
CAPHIS, section of Medical Library Association
Policy statement
Should be written Contains principles and policies by which
material; print or electronic will be selected Policy provides a rational basis for selection
and weeding
Collection Policy
Include– Mission of your organization– Identity of population served– Scope of collection– Statement of who is responsible– Criteria and guidelines for selection– Regulations concerning donations– Updating and weeding policy– Guidelines for controversial material
Selection Criteria
Who is the author/publisher Coverage balanced, any bias Currency Content Readability Reviews Physical quality Fits scope of your policy Cost Information accurate, scientifically based, evidence-based
Evidence-based information
"integration of best research evidence with clinical expertise and patient values."
– David Sackett, et al. Evidence-Based Medicine: How to Practice and Teach EBM (New York: Churchill Livingstone, 2000)
Avoid resources
Testimonials Reliance on philosophies supercede
scientifically proven theories Resources that push a commercial product Resources that advocate harmful treatment Resources that promote discrimination
A Word About Weeding
3-5 years old 1-2 years old Dependent on subject material
Building a consumer health collection: policies and evaluation guidelines. The Public Librarian’s Guide to Providing Consumer Health Information. 2002. 43-60.
Well-rounded collection
Includes all formats; books,videos,dvds, pamphlets,databases
Large print Culturally sensitive Other languages Accommodate different learning styles Appropriate reading levels
Reading level/literacy
Consumer health material written at level beyond general public
8th grade level is readability level of most material intended for general public
Most consumer material is at 10th grade level
Definitions
Health Information literacy“The degree to which individuals have the capacity to obtain, process, and
understand basic health information and services needed to make appropriate health decisions.[‘
http://www.healthypeople.gov/Document/HTML/Volume1/07Ed.htm
Core Print CollectionA Sampling
Medical Dictionary General home medical guide Alternative medicine source book Drug information Laboratory tests Procedures System, or best medicine Rees Books / Public Library Book
Print Collection
Don’t overlook what is already in the library’s collection, example: US New and World Reports Annual America’s Best Hospitals.
For the Librarian:Kenyon, Andrea and Casini, Barbara Palmer. The Public
Librarian’s Guide to Providing Consumer Health Information. Chicago, IL: Public Library Association, 2002.
Rees, Alan M. ed. Consumer Health Information Source Book.
Westport, CT: Greenwood Press, 2003.
CAPHIS links
Medical Dictionary
Title: Stedman's medical dictionary. Edition: 27th ed. Published: Philadelphia : Lippincott Williams & Wilkins, 2000. ISBN: 068340007X
Title: Dorland's illustrated medical dictionary. Edition: 30th ed. Published: London : W. B. Saunders, 2003.
ISBN:0721601464
Laboratory Tests & Procedures
Title:The Johns Hopkins complete guide to medical tests : everything you need to know about 170 common tests.Publication:Pleasantville, N.Y. : Reader's Digest Association,Year:2002 ISBN: 0762103639
Laboratory Tests Online brought to you by a collaboration of professional societies
Drugs & Medications
Title:USP DI.v. 2, Advice for the patient : drug information in lay language.Corp Author(s):United States Pharmacopeial Convention. Publication:Greenwood Village, CO : MICROMEDEX,Edition: 25rd ed.Year:2005 ISBN: 07406916 (v. 2)
Physician’s Desk Reference (PDR) frequently asked for, but not necessarily the best source
Alternative Medicine
The best alternative medicine / Kenneth R Pelletier
2002 1st Fireside ed. English New York : Simon & Schuster, ISBN: 0743200276 (pbk.)
Natural medicines comprehensive database 2004 6th ed.Stockton, CA: Therapeutic Research Faculty
For the Librarian: Rees, Alan M. ed. The Complementary and Alternative
Medicine Information Source Book. Westport, CT: Oryx Press, 2001
10 Best Web sites
MEDLINEPlus English/Spanish Lab Tests Online Cancer.gov Alternative Medicine Foundation Mayo Clinic Centers for Disease Control National Center for Health Statistics/FastStats NOAH New York Online Access to health MEDEM:an information partnership of over 45 medical societies healthfinder
MEDLINEplus National Library of Medicine
MEDLINEPlus (by Topic)
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