Community Development in Michigan March 4, 2005 EHDI Conference Yasmina Bouraoui, MPH, EHDI Program Coordinator Lorie Lang, MA, CCC-A and Debby Behringer,

Community Development in Michigan

March 4, 2005 EHDI Conference Yasmina Bouraoui, MPH, EHDI Program Coordinator

Lorie Lang, MA, CCC-A and Debby Behringer, RN, MSN

Community Development Model

Use National 1-3-6 goals as a framework Carry-over funds to finance projects Incorporate EHDI information into a

variety of venues for parents and professionals

Multiple community stakeholders as partners

Focus on the families

Community Development Model

Utilizing health behavior change model Applying educational techniques to change

behaviors of multiple stake holders to meet overall program goals

Utilizing a variety of venues for information delivery.(MI AAP article, hand outs, brochures, website, committees,educational CD Rom for physicians, other presentations to multiple stakeholders

Developing community advocates as messengers to improve outcomes

Community Development Model Continued

Assessment and evaluation of stakeholder needs through survey of physicians, audiologists, hospitals and focus groups with physicians and parents

Emphasize data and facts Utilize credible and respected sources:

medical journals and studies, other physicians and stakeholders

Chapter Champion Component Evaluate efforts

Community Development Activities

Prenatal Awareness –Use of EHDI brochures in prenatal programs and NCHAM videos to providers

Post-natal –Use crib card after screening(English, Spanish and under development- Arabic)

Community awareness and support -Delta Zeta Project - Physician groups, WIC,M/ISS, Public Health clinics

– Chapter Champion program- Physician packets

and MI AAP EHDI presentation, articles Culture awareness (Arab Chaldean Council, Native

American Tribes, Migrant Clinics) EHDI County Brochure Resources (Samples)

Community Development Activities Continued

Materials for: Parents- brochures, crib cards, parent notebook,

Web page Hospitals and providers-brochures, resource

guide, newborn screening video,Web page Physicians-CD-rom, hearing loss packets, web

link, AAP materials,Web page (2005), NCHAM Physician survey

Communities-EHDI County brochures, Audiology and Early Intervention/ Parent conferences

EHDI Resources and Literature

• Web page www.michigan.gov/ehdi

• Information Brochures on the EHDI process, Hands and Voices, Guide-By-Your-Side

• Resource guide (English and Spanish)

• Crib Cards

• Physician Education CD for grand rounds/residency/student trainings (50+ attendees)

• Early Intervention/Parent Conference- February 2004 and March 2005

•Audiology conference October 2003 and 2004

Parent Support in Michigan

Hands & Voices

Guide-By-Your-Side

Michigan Hands & Voices’ Mission Statement

We are an organization dedicated to Non-biased support to families who have children who are deaf or hard of hearing.

We will provide activities and information statewide to parents and professionals that may include outreach events, educational seminars, advocacy, parent-to-parent networking, and newsletters.

Michigan Hands & Voices’ Mission Statement

We believe that families will make the best choices for their child if they have access to good information and support.

Our organization represents people who use varying approaches to communication and assistive technology.

Our Values

Non-Bias Communication Philosophy Parent-to-Parent Support Meaningful Participation Effective Collaboration Setting High Standards in Education Accountability and Responsibility

A Balanced Partnership

Professionals

AndParents

Today inMichigan Hands & Voices

Parent to Parent Support Parent Workshop (March 2005) Newsletter Resource Guide Representation on Committees Educational Advocacy and Training Social and informational events

What’s New in Michigan

Developing a Web page for parents and interventionists

New Resources and Events-sent through the Hands & Voices listserv

Chat Room Tutoring for sign language

Michigan Hands & Voices 2929 Covington Court Suite 200 Lansing, MI 48912-4939 517-487-0066TTY/TTD 800-968-7327 TTY/TTD Michigan Director

– Amy Lester – Lestera@michigan.gov– www.handsandvoices.org

– Michigan Hands & Voices is partially funded by an MCHB grant through the Michigan Department Community Health

“Guide-By-Your-Side”

Tag Team Approach to System Enhancement

(adapted from WI GBYS)

In Michigan

We have 83 counties Over 130,000 live

births a year 2/1000 children

will be diagnosed with a hearing loss

Average ID is now 2.4 months

Michigan Statistics

100% of Michigan birthing hospitals screening without a legislative mandate

Screening-92% of infants screened,to date

Diagnostics-46% reported outcomes for bilateral and unilateral refers, (2002 data)

Early Intervention-57% of infants enrolled in services as reported by Department of Education (2002, data)

The Challenge

Many Early Intervention Providers have had little to no experience working with very young children who were deaf or hard of hearing; MI EHDI is housed in Department of Health; Early Intervention housed in Department of Education

The Challenge

Lost to follow up rates are a concern

Difficulty accessing follow up information from stakeholders

Missing link from diagnosis to intervention

Parent desire to meet another parent who has been there

The Mission

To develop a community advocate model of service delivery

Parent Guides….Goals

Goal 1: Provide parents with the opportunity to establish a supportive relationship with an experienced parent of a child who is d/hh soon after they learn of their child’s hearing loss

Parent Guides will contact the family within 24 hours of receiving a referral.

Parent Guides will meet with the family within 10 days to guide and support the family.

Goal 2: Provide an understanding of the unique needs of infants who are deaf or hard of hearing.

Parent Guides will help the families that they meet to learn about the unique needs of d/hh children– Providing books and materials that

highlight family stories – By highlighting the impact of hearing

loss on a child’s access to communication and demonstrating early communication techniques (i.e. Promoting eye contact)

Goal 3: Provide unbiased information regarding communication options

Parent Guides– New “Parent

Notebook”– Received training

in the sharing of communication options, and presentation styles that may indicate bias

Goal 4: Link families to resources available locally, regionally and statewide

Parent Guides have received training – In the art of listening– Assessing and addressing the question

behind the comment– To be ready to answer some of the first

questions families might have– And to know how to find appropriate

resources for families– Confidentiality and HIPAA Issues

Goal 5: Ensure that families are linked to their county’s interventionists

Established rapport eases the introduction of the family to the Early On® program (EI)

Goal 6: Ensure that families are connected to other parent to parent resources

Parent guides are NOT advocates. Parent Guides can connect families with Michigan Hands & Voices for advocacy or on-going parent to parent support

Training

Initial Training for Parent Guides– October 8-9 2004– Founders of Guide-By-Your-Side from

Wisconsin provided the training – Ongoing training- Conference calls– Attending Early Intervention/Parent

conference- March 2005– 1st referral January 2005

Nuts and Bolts

The process Audiology/medical referral form Guide-By-Your-Side Brochure/self

referral Guide handbook/policy manual Tracking in house

MI EHDI Contact Information

Michigan Department of Community Health Division of Family and Community Health -EHDI Program

3423 N. Martin Luther King, Jr. Blvd. Room #203 Lansing, Michigan 48909 Web www.michigan.gov/ehdi Yasmina Bouraoui, MPH, Program Coordinator (517)

335-9398 bouraouiy@michigan.gov Lorie Lang, MA,CCC-A Audiology Consultant (517) 335-

9125 langlo@michigan.gov Amy Lester, BA, Parent Consultant (517) 335-8273

lestera@michigan.gov

MI EHDI Contact Information

Anne Jarrett, MA, CCC-A Follow-up Consultant (517)335-8878 jarretta@michigan.gov

Debby Behringer, RN, MSN Community Development Consultant (517) 335-8875 behringerd@michigan.gov

Paul Kramer, BA, Data Analyst Consultant (517) 335-9720 kramerp@michigan.gov

Erin Estrada, BA, Data Maintenance Consultant (517) 335-8916 estradae@michigan.gov

Ebone Thomas, General Office Assistance (517) 335-8955 thomase@michigan.gov

Community Development

Questions???