Changed by my child - WordPress.com · Lois, Leah & Karly. 5/17/2017 2 Karly& Pokito Karly, 5-6 years old Amy & Karly. 5/17/2017 3 “That song changed my life... I was a composer!

5/17/2017

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Changed By My Child

Lessons on

Caring, Living,

and Dying Well

by Lois Swope

Creative Health

Care Management

Symposium

June 21, 2017

“Just because I’m silent doesn’t

mean I’m ignorant.”

Lois, Leah & Karly

5/17/2017

2

Karly & Pokito

Karly,

5-6 years old

Amy & Karly

5/17/2017

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“That song changed my life... I was a

composer! I was a musician.

I had a voice that others could

hear.” - Karly

Karly & Karen Bohnert,

music therapist

Everyone is more than their symptoms:See the whole person, not just their diagnosis

Lesson 1

5/17/2017

4

“Don’t let

Rett Syndrome be

the only thing

said of me.” - Karly

Karly &

Elizabeth

“Assume Intellect”:Trust the experience of the patient and their family

Lesson 2

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“Just

because I’m silent

doesn’t mean

I’m ignorant.”

– Karly

“My brain is intelligent,my body struggles.” – Karly

5/17/2017

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“Many of my

memories of going to

doctors and therapy visits

are painful to

remember.”– Karly

5/17/2017

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“I am more than my body. I am.” - Karly

“My Pony, My Beau”

Every patient has a backstory:Be curious and compassionate

Lesson 3

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“The Cruel Stare”

Karly & Gregg

Death is part of life:Accept that mortality is not failure

Lesson 4

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“Just because I’m silent doesn’t

mean I’m ignorant.”“I’ve said yes to everything I was

supposed to do here.” - Karly

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“My favorite place on Earth

is on the back

of a horse.”

- Karly

Last ride on Chester

5/17/2017

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Thank you.

Special thanks to Creative Health Care Management,

Barbara McAfee, Chris Bjork for Tech Support, Gregg, Leah, and friends who believe our story needs to be shared.

Contact:

loisswope1@gmail.com

loisswope.com