Autism in Utah: Our Pieces of the Puzzle Rebecca Giles, MPH, CHES Utah Department of Health Autism Project Coordinator December 8, 2008.

Autism in Utah: Our Pieces of the Puzzle

Rebecca Giles, MPH, CHESUtah Department of HealthAutism Project Coordinator

December 8, 2008

Autism Spectrum Disorder (ASD) Activities in Utah

Combating Autism Act Initiative FundingLeadership Education in Neurodevelopmental

DisabilitiesRegional Planning SummitASD Systems Development Project

Overview

Utah

Autism Activities in Utah

Coordination and advocacy activities Utah Family Voices Autism Council of Utah Utah Autism Initiative Utah Framework – state plan Utah Registry of Autism and

Developmental Disabilities

Services Health: Baby Watch Early

Intervention (Part C) Schools (Part B) Utah State University: Center

for Persons with Disabilities Human Services: Division of

Services for People with Disabilities

Special schools and programs Private Providers

Lots of gaps!!

State Framework InfrastructureEarly Identification and DiagnosisServicesAdult TransitionResearch

Autism Activities in Utah

Combating Autism Act Initiative

Utah Regional Leadership Education in Neurodevelopmental Disabilities (URLEND) – Autism EnhancementFunding In–state collaborationsRegional partnershipAdds 10 additional trainees per yearFamily involvement

“Act Early” Regional SummitSpring 2009Forum for enhancing state-wide ASD service

provision and coordination for familiesState teams: UT, WY, CO, MT, ND, SD

Combating Autism Act Initiative

Utah ASD Systems Development ProjectMedical Home Training Information ResourcesEarly DiagnosisFamily Support

Combating Autism Act Initiative

Utah ASD Systems Development Project

Medical Home TrainingLearning Collaboratives for Medical Teams

Central learning session approach In-office approach Distance learning approach

Learning Collaborative for Dental

Teams

Utah ASD Systems Development Project

Information Resourceswww.medhomeportal.orgExpand informationMarket

Utah ASD Systems Development Project

Early DiagnosisChild find projectPreschool special education teachers

Utah ASD Systems Development Project

Family Support“Autism ABCs: Education Program for

Caregivers of Children with Newly Diagnosed ASD”

Family NavigatorsFamily Conference

Utah ASD Systems Development Project

The (medical) professionals of the future will work with members of the public, empowering them to make choices through high-quality information, open discussion and genuine partnership.”

Julia Neuberger—King’s Fund (UK)

Autism in Utah: slowly the pieces come together

Rebecca Gilesrgiles@utah.gov