A Community Centered Approach to the Development of a Comparative Effectiveness Research Question
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A Community Centered Approach to the Development of a Comparative Effectiveness
Research Question
Bryan Gibson, DPT, PhDElisa Amador
Ana Sanchez Birkhead, PhDNancy Allen, APRN, PhD
BackgroundComparative effectiveness research – the direct comparison of existing healthcare interventions
to determine which works best for which patients and which pose the greatest benefits
and harms
Which treatment works best, for whom, under what circumstances
PCORI – Pipeline to proposal
Tier I - seed money to individuals and groups who have healthcare research ideas and who believe
in the promise of patient-centered research-- community-building and engagement projects.
Tier II -develop research capacity, create new partnerships, and build the infrastructure
needed to conduct research.
Tier 1- creation of CABCreation of a community advisory board (CAB)
U of U researchers
community representatives
community members
Tier 1- creation of CABseveral meetings :
What is patient centered outcomes research ?
What is comparative effectiveness research ?
What are the specific goals of this project ?
Development of potential questions
CAB members/community members affected by type 2 diabetes first told their “Diabetes stories”
Group reviewed each story to distill out the problems faced
collaborative brainstorming session of potential solutions
Based on interests/expertise focused on technology to support
Self management
Community SurveyUsed table of problems - potential solutions to
develop conjoint survey (marketing type survey to look at desired features)
Survey completed by 135 community members on iPad delivered by community health workers
Next stepsPilot testing of different technologies
IPad with appsActivity monitorContinuous glucose monitor
What works well? What is missing? What should be integrated together into a comprehensive intervention we can test?
Lessons learnedMeeting time- evenings only for community
members, day for non profit representatives
Education- continuous reorientation to what is PCOR/CER?
Keeping people engaged- combine support meeting with research meeting
Community organizations critical to success
AcknolwedgementsThis project is supported by the patient centered
oucomes research institute Tier I and Tier 2 funding (7737210)
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