STATE OF THE STATE: PENNSYLVANIA AUTISM CENSUS Presented by: Lindsay Shea, MS, DrPH PJ Turcotte, MPH October 9 th , 2015
STATE OF THE STATE: PENNSYLVANIA AUTISM CENSUS
Presented by:Lindsay Shea, MS, DrPHPJ Turcotte, MPH
October 9th, 2015
PA Autism Census| 2
DATA DRIVES PROJECTS: CENSUS, NEEDS ASSESSMENT, FOCUS GROUPS
Census Data
Needs Assessment Data
Focus Group Findings
ASERT Projects
PENNSYLVANIA AUTISM CENSUS PROJECT
2009Pennsylvania
Autism Census Project
2014Pennsylvania
Autism Census Update
“How manyPennsylvanians are living
with autism?”• Where do they live?• How old are they?• Is the number increasing?• Is this group changing over time?
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SERVICE SYSTEMS ACCESS BY AGEPre-Elementary:
EI services are available until age 5
Elementary:Special Ed and BHRS services
Middle/High School:Special Ed until age 22 and BHRS
services until age 21
Adults:~500+ slots for the Adult Autism Waiver and Adult
Community Autism Program
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PA Autism Census
Department of Human
Services (DHS)
Pennsylvania Department of Education
(PDE)
2009 PENNSYLVANIA AUTISM CENSUS: DATA SOURCES
PA Autism Census| 6
Office of Developmental
Programs(ODP)
Office of Children,
Youth, and Families (OCYF)
Office of Medical
Assistance Programs (OMAP)
2014 PENNSYLVANIA AUTISM CENSUS:DATA SOURCES
PA Autism Census Update
Office of Vocational
Rehabilitation
Department of Human Services
(DHS)
Pennsylvania Department of
Education (PDE)
Criminal
Justice
Pennsylvania Commission on
Crime and Delinquency-
Juvenile Justice
Intellectual Disability Services
Autism Services
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BUT WE ARE STILL UNDERCOUNTING…
55,830
188,000 Who We FoundReceiving Public Services with ASD diagnosisi.e. School supports or Medicaid
Where is everyone else?• Private Insurance• Undiagnosed• Do not meet program eligibility because of
functional skill/IQ requirements• Not receiving services
127,000
Purple=Autism Census FindingRed=Assuming 1% ASD PrevalenceGray= Assuming 1.47% Prevalence
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GROWTH OF AGES OF AUTISM POPULATION: PENNSYLVANIA
13%
56%
20%
4%7%8%
49%
25%
7%11%
4%
26% 25%
13%
32%
0%
10%
20%
30%
40%
50%
60%
0-4 Years 5-12 Years 13-17 Years 18-20 Years 21+ Years
Proportion of ASD by Age Group
2005 2011 2020
• The population overall is growing each age group
• The proportions are shifting over time
• By 2020, the adult population will be the largest proportion as compared to the other age groups
What does this mean?
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RACE/ETHNICITY OF INDIVIDUALS WITH AUTISM
Black/AA13%
Hispanic7%
Other4%
Asian2%
White74% White, 77.9
Black/AA, 11.6
Asian, 3.3
Other, 0.6 Hispanic, 6.6
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2014 PA AUTISM CENSUS: SERVICE SYSTEM PREVALENCE
PA Department of Education (PDE)
38,974
Department of Human Services (DHS)
35,713
Office of Children, Youth and Family (OCYF)
1,933
Justice System≈ 500
Office of Vocational Rehabilitation (OVR)
1,705
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JUVENILE JUSTICE CHARGES: PENNSYLVANIA
Simple Assault-Bodily InjuryHarassment-Strike, Shove, KickDisorderly Conduct-Engage in FightingSimple AssaultCrime of Violence-Intent to Terrorize
Top 5 Charges
10 11 12 13 14 15 16 17 18 19 20 21
PA
Ages with Highest Number of Charges
JUVENILE JUSTICE BY CHARGE FREQUENCY
0
50
100
150
200
250
300
10 11 12 13 14 15 16 17 18 19 20 21
Num
ber o
f Cha
rges
AgePerson Property Other
*Numbers reflect the number of pre-adjudicated charges, not the number of individuals. Multiple charges could be committed by a single offender. These trends are being investigated further to gain a clearer understanding
of these relationships.
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OCYF: RACE/ETHNICITY AND GENDER
43%
1%
50%
6%
Black/African American Hispanic Asian White Other/Missing
26%
1%
70%
3%
Black/African American Hispanic Asian White Other/Missing
Non-ASD Population ASD Population
54% Male 74% Male
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OCYF: DISABILITY STATUS
PROPORTION WITH ANY DISABILITY
18.1
52.1
29.9
50.1
36.4
13.5
0
10
20
30
40
50
60
Disability Present No Disability Not Yet Determined
Perc
ent
Non-ASD
ASD
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OFFICE OF VOCATIONAL REHABILITATION
~20.3% increase in 1 year
2012: 2,051
people served
2011: 1,705
people served
Mean age served = 22 years old
Served= Number of Individuals with ASD served statewide in the
Office of Vocational Rehabilitation
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OVR: PLAN STATUS
1705
131 15662 46
0
200
400
600
800
1000
1200
1400
1600
1800
Number served Closed employed Closed after plan foremployment was
initiated
Closed before planwas initiated
Closed atApplication
Number Served and Plan Status
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OVR: JOB PLACEMENT
28.2%
3.1%
10.7%
23.7%
22.9%
11.5%
Occupations of Individuals with Autism Receiving Services from the Office of Vocational Rehabilitation
Training/Education, Management orSales
Computer, Math or Science
Health or Personal Care
Food Prep/Service
Construction, Maintenance orProduction
Transportation/Logistics
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NEEDS ASSESSMENT FINDINGSExpert from the Summary Report
Service Needs
Barriers toServiceAccess
Unwanted Outcomes
Employment
Getting a Diagnosis
Family Impact
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ASERT is funded by the Bureau of Autism Services, PA Department of Human Services
Website: www.PAautism.orgEmail: [email protected]