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STATE OF THE STATE PENNSYLVANIA AUTISM CENSUS .STATE OF THE STATE: PENNSYLVANIA AUTISM CENSUS. Presented

Jul 28, 2018

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  • STATE OF THE STATE: PENNSYLVANIA AUTISM CENSUS

    Presented by:Lindsay Shea, MS, DrPHPJ Turcotte, MPH

    October 9th, 2015

  • PA Autism Census| 2

    DATA DRIVES PROJECTS: CENSUS, NEEDS ASSESSMENT, FOCUS GROUPS

    Census Data

    Needs Assessment Data

    Focus Group Findings

    ASERT Projects

  • PENNSYLVANIA AUTISM CENSUS PROJECT

    2009Pennsylvania

    Autism Census Project

    2014Pennsylvania

    Autism Census Update

    How manyPennsylvanians are living

    with autism? Where do they live? How old are they? Is the number increasing? Is this group changing over time?

  • PA Autism Census| 4

    SERVICE SYSTEMS ACCESS BY AGEPre-Elementary:

    EI services are available until age 5

    Elementary:Special Ed and BHRS services

    Middle/High School:Special Ed until age 22 and BHRS

    services until age 21

    Adults:~500+ slots for the Adult Autism Waiver and Adult

    Community Autism Program

  • PA Autism Census| 5

    PA Autism Census

    Department of Human

    Services (DHS)

    Pennsylvania Department of Education

    (PDE)

    2009 PENNSYLVANIA AUTISM CENSUS: DATA SOURCES

  • PA Autism Census| 6

    Office of Developmental

    Programs(ODP)

    Office of Children,

    Youth, and Families (OCYF)

    Office of Medical

    Assistance Programs (OMAP)

    2014 PENNSYLVANIA AUTISM CENSUS:DATA SOURCES

    PA Autism Census Update

    Office of Vocational

    Rehabilitation

    Department of Human Services

    (DHS)

    Pennsylvania Department of

    Education (PDE)

    Criminal

    Justice

    Pennsylvania Commission on

    Crime and Delinquency-

    Juvenile Justice

    Intellectual Disability Services

    Autism Services

  • PA AUTISM CENSUS: FINDINGS

  • PA Autism Census| 8

    2009 PENNSYLVANIA AUTISM CENSUS PROJECT

  • PA Autism Census| 9

    2014 PENNSYLVANIA AUTISM CENSUS PROJECT

  • PA Autism Census| 10

    DISTRIBUTION OF ASD IN PA

  • PA Autism Census| 11

    BUT WE ARE STILL UNDERCOUNTING

    55,830

    188,000 Who We FoundReceiving Public Services with ASD diagnosisi.e. School supports or Medicaid

    Where is everyone else? Private Insurance Undiagnosed Do not meet program eligibility because of

    functional skill/IQ requirements Not receiving services

    127,000

    Purple=Autism Census FindingRed=Assuming 1% ASD PrevalenceGray= Assuming 1.47% Prevalence

  • PA Autism Census| 12

    GROWTH OF AGES OF AUTISM POPULATION: PENNSYLVANIA

    13%

    56%

    20%

    4%7%8%

    49%

    25%

    7%11%

    4%

    26% 25%

    13%

    32%

    0%

    10%

    20%

    30%

    40%

    50%

    60%

    0-4 Years 5-12 Years 13-17 Years 18-20 Years 21+ Years

    Proportion of ASD by Age Group

    2005 2011 2020

    The population overall is growing each age group

    The proportions are shifting over time

    By 2020, the adult population will be the largest proportion as compared to the other age groups

    What does this mean?

  • PA Autism Census| 13

    RACE/ETHNICITY OF INDIVIDUALS WITH AUTISM

    Black/AA13%

    Hispanic7%

    Other4%

    Asian2%

    White74% White, 77.9

    Black/AA, 11.6

    Asian, 3.3

    Other, 0.6 Hispanic, 6.6

  • PA Autism Census| 14

    2014 PA AUTISM CENSUS: SERVICE SYSTEM PREVALENCE

    PA Department of Education (PDE)

    38,974

    Department of Human Services (DHS)

    35,713

    Office of Children, Youth and Family (OCYF)

    1,933

    Justice System 500

    Office of Vocational Rehabilitation (OVR)

    1,705

  • PA AUTISM CENSUS: JUSTICE SYSTEM

  • PA Autism Census| 16

    JUVENILE JUSTICE CHARGES: PENNSYLVANIA

    Simple Assault-Bodily InjuryHarassment-Strike, Shove, KickDisorderly Conduct-Engage in FightingSimple AssaultCrime of Violence-Intent to Terrorize

    Top 5 Charges

    10 11 12 13 14 15 16 17 18 19 20 21

    PA

    Ages with Highest Number of Charges

  • JUVENILE JUSTICE BY CHARGE FREQUENCY

    0

    50

    100

    150

    200

    250

    300

    10 11 12 13 14 15 16 17 18 19 20 21

    Num

    ber o

    f Cha

    rges

    AgePerson Property Other

    *Numbers reflect the number of pre-adjudicated charges, not the number of individuals. Multiple charges could be committed by a single offender. These trends are being investigated further to gain a clearer understanding

    of these relationships.

  • PA AUTISM CENSUS: OFFICE OF CHILDREN, YOUTH, AND FAMILIES

  • PA Autism Census| 19

    OCYF: RACE/ETHNICITY AND GENDER

    43%

    1%

    50%

    6%

    Black/African American Hispanic Asian White Other/Missing

    26%

    1%

    70%

    3%

    Black/African American Hispanic Asian White Other/Missing

    Non-ASD Population ASD Population

    54% Male 74% Male

  • PA Autism Census| 20

    OCYF: DISABILITY STATUSPROPORTION WITH ANY DISABILITY

    18.1

    52.1

    29.9

    50.1

    36.4

    13.5

    0

    10

    20

    30

    40

    50

    60

    Disability Present No Disability Not Yet Determined

    Perc

    ent

    Non-ASD

    ASD

  • PA AUTISM CENSUS: OFFICE OF VOCATIONAL REHABILITATION

  • PA Autism Census| 22

    OFFICE OF VOCATIONAL REHABILITATION

    ~20.3% increase in 1 year

    2012: 2,051

    people served

    2011: 1,705

    people served

    Mean age served = 22 years old

    Served= Number of Individuals with ASD served statewide in the

    Office of Vocational Rehabilitation

  • PA Autism Census| 23

    OVR: PLAN STATUS

    1705

    131 15662 46

    0

    200

    400

    600

    800

    1000

    1200

    1400

    1600

    1800

    Number served Closed employed Closed after plan foremployment was

    initiated

    Closed before planwas initiated

    Closed atApplication

    Number Served and Plan Status

  • PA Autism Census| 24

    OVR: JOB PLACEMENT

    28.2%

    3.1%

    10.7%

    23.7%

    22.9%

    11.5%

    Occupations of Individuals with Autism Receiving Services from the Office of Vocational Rehabilitation

    Training/Education, Management orSales

    Computer, Math or Science

    Health or Personal Care

    Food Prep/Service

    Construction, Maintenance orProduction

    Transportation/Logistics

  • PA AUTISM NEEDS ASSESSMENT

  • PA Autism Census| 26

    NEEDS ASSESSMENT FINDINGSExpert from the Summary Report

    Service Needs

    Barriers toServiceAccess

    Unwanted Outcomes

    Employment

    Getting a Diagnosis

    Family Impact

  • WRAP-UP

  • PAautism.org/censusPAautism.org/needsassessment

  • PA Autism Census| 29

    ASERT is funded by the Bureau of Autism Services, PA Department of Human Services

    Website: www.PAautism.orgEmail: info@PAautism.org

    ASERT@drexel.edu

    http://www.paautism.org/mailto:info@PAautism.org

    State of the State: Pennsylvania Autism CensusData Drives Projects: Census, Needs Assessment, Focus Groups Pennsylvania Autism Census ProjectService Systems Access by Age 2009 Pennsylvania Autism Census: Data Sources2014 Pennsylvania Autism Census: Data Sources PA Autism Census: Findings2009 Pennsylvania Autism Census Project2014 Pennsylvania Autism Census ProjectDistribution of ASD in PASlide Number 11Growth of Ages of Autism Population: PennsylvaniaRace/Ethnicity of Individuals with Autism2014 PA Autism Census: Service System Prevalence PA Autism Census: Justice SystemJuvenile Justice Charges: PennsylvaniaJuvenile Justice by Charge FrequencyPA Autism Census: Office of Children, Youth, and FamiliesOCYF: Race/Ethnicity and GenderOCYF: Disability Status Proportion with Any Disability PA Autism Census: Office of Vocational Rehabilitation Office of Vocational RehabilitationOVR: Plan StatusOVR: Job Placement PA Autism Needs AssessmentNeeds Assessment FindingsWrap-UpSlide Number 28Slide Number 29