Open Data & Health: food for thoughts

O P E N D ATA & H E A LT HF O O D F O R T H O U G H T S

M A T T E O B R U N A T I E P S I P L A T F O R M C O R R E S P O N D A N T F O R I TA LY

#ePSI #opendataitaly

W H AT I S E P S I P L AT F O R M ?

Funded by the European Commission Europe's One-Stop Shop on PSI Re-use

• News, happenings • Best practices • Engaging the community

European Public Sector Information Platform

E P S I P L AT F O R M . E U

H E A LT H A N D D ATA : A L O N G S T O R Y

H T T P : / / V I S U A L O O P. C O M / 1 7 8 0 8 / D ATA - V I Z - N E W S - 4 3

S O M E E U I N S I G H T S

G 8 O P E N D ATA C H A R T E R

H T T P : / / L ATA . O R G . LV / W P - C O N T E N T / C O N F / AT V E R T I E D AT I / O P E N % 2 0 D ATA% 2 0 P O L I C Y % 2 0 - % 2 0 L ATA % 2 0 - % 2 0 D R I Z Z I . P D F

O P E N D ATA B A R O M E T E R O C T O B E R 2 0 1 3

H T T P : / / W W W. O P E N D ATA R E S E A R C H . O R G / D L / O D B 2 0 1 3 / O P E N - D ATA -B A R O M E T E R - 2 0 1 3 - G L O B A L - R E P O R T. P D F

I TA LY & H E A LT H A S O P E N D ATA

H T T P : / / T H E O D I . G I T H U B . I O / O P E N - D ATA - B A R O M E T E R - V I Z /

O P E N D ATA & E C O N O M I C VA L U E M C K I N S E Y

E N D O F 2 0 1 3

H T T P : / / W W W. M C K I N S E Y. C O M / I N S I G H T S / B U S I N E S S _ T E C H N O L O G Y /O P E N _ D ATA _ U N L O C K I N G _ I N N O VAT I O N _ A N D _ P E R F O R M A N C E _ W I T H _ L I Q U I D _ I N F O R M AT I O N

W H AT ’ S G O I N G O N

H T T P : / / E C . E U R O PA . E U / H E A LT H / S T R AT E G Y / D O C S /I N V E S T I N G _ I N _ H E A LT H _ I N F O G R A P H _ E N . P D F

S O M E A C T I O N S F R O M T H E T O P

epSOS (European Patient Summary Open Services)

W W W. E P S I P L AT F O R M . E U / C O N T E N T / O P E N - H E A LT H - C A R E - D ATA

Patient Summary

individual’s ePrescription

W H AT ’ S H E A LT H D ATA ?

- Public spending and public policy on health care - Performance indicators of individual health care

providers - General, anonymised information on population

health statistics - Specific information about individuals (e.g.

patient records)

W W W. E P S I P L AT F O R M . E U / C O N T E N T / O P E N - H E A LT H - C A R E - D ATA

- Public spending and public policy on health care - Performance indicators of individual health care

providers - General, anonymised information on population

health statistics - Specific information about individuals (e.g.

patient records)

I T ’ S A N E C O S Y S T E M O F D ATA

H T T P : / / I M A G E S . T H E G O V L A B . O R G / W O R D P R E S S / W P - C O N T E N T / U P L O A D S /2 0 1 4 / 0 6 / N H S - F U L L - R E P O R T. P D F

A V E R Y B I G E C O S Y S T E M : N O T O N LY O P E N G O V E R N M E N T D ATA

D ATA E C O S Y S T E M - > D ATA M A S H U P

health data (e.g. occurrence of certain diseases) +

environmental data (e.g. measurement of air quality) +

location data

=

R E D U C E P U B L I C H E A LT H R I S K

U K E X P E R I E N C E O N O P E N H E A LT H

A G O O D S TA R T

H T T P : / / I M A G E S . T H E G O V L A B . O R G / W O R D P R E S S / W P - C O N T E N T / U P L O A D S / 2 0 1 4 / 0 6 / N H S - F U L L -R E P O R T. P D F

N H S R O A D M A P O N O P E N D ATA

2005 2007 2011 2012 2013 2014

NHS Information

Centre

NHS Choice

Open Data

White Paper Open Data

Health and Social Care Act

The Power of Information 10 year plan - IT Strategy

CareConnect Pilot ( feedback )

Memorandum of Understanding with US

N H S O P E N D ATA

N H S O P E N D ATA

N H S O P E N D ATA

6 VA L U E P R O P O S I T I O N S

I T ’ S A P R O C E S S

A C O N C E P T U A L F R A M E W O R K

I T ’ S N O T S O S I M P L E

S O M E T I M E S H A P P E N S

H T T P : / / W W W. T H E G U A R D I A N . C O M / C O M M E N T I S F R E E / 2 0 1 4 / F E B / 2 8 / C A R E - D ATA -I S - I N - C H A O S

H T T P : / / W W W. C D E . O R G . U K /

S O M E T I M E S H A P P E N S

F R A N C E E X P E R I E N C E O N O P E N H E A LT H

H T T P : / / W W W. S C O P E S A N T E . F R / # /

H T T P : / / D ATAV E Y E S . C O M / # ! / E N / P R O J E C T S / S C O P E - S A N T E

D E M A N D D R I V E N P R O C E S S

W W W. E P S I P L AT F O R M . E U / C O N T E N T / E TA L A B - P U B L I S H E S - F R E N C H - D I R E C T O R Y-P U B L I C - H E A LT H - D ATA - A N D - L A U N C H E S - P U B L I C - O N L I N E - C O N S U LTAT I O N

O P E N D ATA E N G A G E M E N T

http://www.opendataimpacts.net/engagement/

P O R T U G A L

H E A LT H D A S H B O A R D

http://www.dgs.pt/dashboard/

I TA LY N E X T S T E P S , F R O M T H E T O P

S O M E P R O B L E M S

H T T P : / / W W W. A G E N D A D I G I TA L E . E U / E G O V / 9 0 2 _ A L - V I A - I - P I A N I - R E G I O N A L I - P E R -I L - FA S C I C O L O - S A N I TA R I O - E L E T T R O N I C O . H T M

G O V E R N A N C E ?

S T R AT E G Y ?

H T T P S : / / G R O U P S . G O O G L E . C O M / D / M S G / S PA G H E T T I O P E N D ATA / M S D N S P J P 9 Q G /G J M J R 9 K A 5 _ G J

“Dati Ospedali ... ma in CC-ND-NC” - march 2014

S T R AT E G Y ?

dati.salute.gov.it

S T O R Y T E L L I N G O N R E C O R D ?

H T T P : / / W W W. S T O R E P R O J E C T. E U /

H A C K I N G T H E S T O R Y T E L L I N G , P U B L I S H I N G A L L Y O U R D ATA A S O P E N D ATA

H T T P : / / W W W. A R T I S O P E N S O U R C E . N E T / N E T W O R K / A R T I S O P E N S O U R C E /2 0 1 3 / 0 4 / 1 3 / L A - C U R A - A N - O P E N - S O U R C E - C U R E - F O R - C A N C E R - AT- T E D M E D /

T O M A K E U S M O R E H U M A N , W E A R E A L L C O N N E C T E D

S O M E T I P S F R O M T H E S O C I E T Y

M AY 2 0 1 4 : A P P L E H E A LT H K I T

H T T P S : / / D E V E L O P E R . A P P L E . C O M / H E A LT H K I T /

J U N E 2 0 1 4 : G O O G L E F I T

H T T P : / / W W W. F O R B E S . C O M / S I T E S / PA R M Y O L S O N / 2 0 1 4 / 0 6 / 1 2 / E X C L U S I V E -G O O G L E - T O - L A U N C H - H E A LT H - S E R V I C E - G O O G L E - F I T- AT- D E V E L O P E R S -

C O N F E R E N C E /

W H O H A S T H E D ATA ?

Public sector actor

Single person on its own

device

Private sector actor

A new online service as

intermediator

I G N O R E D ATA , F O C U S O N P O W E R

H T T P : / / M AT H B A B E . O R G / 2 0 1 4 / 0 5 / 2 0 / I G N O R E - D ATA - F O C U S - O N - P O W E R /

T H E P O W E R I S W H E R E T H E D ATA I S N ’ T

H T T P : / / M AT H B A B E . O R G / 2 0 1 4 / 0 5 / 2 0 / I G N O R E - D ATA - F O C U S - O N - P O W E R /

2010

H T T P : / / W E B L O G S K Y. C O M / 2 0 1 0 / 0 5 / 0 2 / P R O J E C T- V R M - A N D - E - PAT I E N T S /

P R O V I D E R - C E N T E R E D V S

PAT I E N T - C E N T E R E D

H T T P S : / / B L O G S . L AW. H A R VA R D . E D U / V R M / 2 0 1 1 / 0 4 / 2 2 / PAT I E N T- D R I V E N - H E A LT H -C A R E /

T H E N E T I S A E N A B L E R P L AT F O R M F O R PA R T I C I PAT I O N A N D C O L L A B O R AT I O N

T O W A R D S A K N O W L E D G E C O M M O N S I N H E A LT H ?

H T T P : / / W W W. N E S TA . O R G . U K / S I T E S / D E FA U LT / F I L E S /D O C T O R _ K N O W _ A _ K N O W L E D G E _ C O M M O N S _ I N _ H E A LT H . P D F

PAT I E N T I S N O T A T H I R D P E R S O N W O R D

E PAT I E N T D AV E . C O M / 2 0 1 1 / 0 4 / 1 2 / L E T- PAT I E N T S - H E L P - R O C K I N - T H E - E - PAT I E N T-W O R L D - AT- T E D X - M A A S T R I C H T /

T H E Y E A R O F PAT I E N T S R I S I N G

W E A R E B U I L D I N G O U R

S O C I E T Y T O G E T H E R ,

W I T H O U T P E R M I S S I O N

#ePSI #opendataitaly #hackingsociety

W E A R E N O T O N LY PA , C I T I Z E N S , A N D C O M PA N I E S

F E E D B A C K / C R O W D S O U R C I N G

H T T P : / / M A K E . O P E N D ATA . C H / W I K I / P R O J E C T: O P E N M E D S E N S O R

W E H AV E S TA R T E D …

N H S + C O M M U N I T Y, + C I T I Z E N S , = W E

H T T P : / / N H S H A C K D AY. C O M /

7 0 P E R C E N T O F Y O U R H E A LT H H A S N O T H I N G T O D O W I T H Y O U R G E N E T I C S O R P E R S O N A L P R O F I L E . !

I T H A S T O D O W I T H C O N T E X T

H T T P : / / W W W. W I R E D . C O . U K / N E W S / A R C H I V E / 2 0 1 4 - 0 6 / 1 4 / F O U N D E R S - F O R U M -H E A LT H

I N T E R E S T I N G E V E N T I N U K

H T T P : / / W W W. E V E N T B R I T E . C O . U K / E /H E A LT H - I N - N U M B E R S - J U LY- 3 - O P E N - D ATA -

I N - H E A LT H C A R E - T I C K E T S - 1 1 8 1 6 4 6 8 3 7 5

T H A N K S

#ePSI #opendataitaly

#opensanità #opendata

http://www.slideshare.net/EugeneBorukhovich/open-health-data-qualitative-overview

M O R E R E S O U R C E S