NURSE TRANSPORT CO-ORDINATOR FOR CONGENITAL HEART DISEASE.

NURSE TRANSPORT CO-ORDINATOR FOR CONGENITAL HEART DISEASE

o 12 Years as a Nurse o 11 of which I worked in Adult Cardiac

Surgeryo Interest in Congenital Heart Disease

• Support for parents who are leaving NI with their child for surgery

• Getting them prepared for what they may find in other centres

• Helping getting families financial assistance• Communicating admission dates for families

and consultants• Co- ordinating travel and accommodation

The easiest way I can explain my role to talk about a casestudy.

o The Baby was born in Royal Maternity on 14th August,2013

o He was born with Hypo-plastic Left Heart Syndrome

o He was only 2 days old when he was transferred to Birmingham Children's Hospital

• Provided Information pack about Birmingham Children’s Hospital

• Flights (so as parents didn’t have any upfront costs)

• Accommodation (so as parents didn’t have any upfront costs)

• Text messages • Phone calls to check that accommodation

was ok and they were ok• Arranging transfer back to BELFAST

o Updating information booklets which, Sarah has been helping with

o Providing a tablet which I am developing informal presentation of other hospital to show parents

o I would value any input parent have that were both positive and negative about experiences they have had

o Booking flight and accommodation

ANY QUESTION?????

Or you can contact me on:

07823778016Or

[email protected]

you can contact me on:

[email protected]

o Jan Gordon (Adult Congenital Nurse Specialist and

rheartz)

07775598258

o Catherine Michaelides(Paediatric Congenital Nurse Specialist) 07810432732