MS Connection spring 2010

MOVING TOWARD A WORLD FREE OF MS | spring • 2010

INSIDE THis issUE

sOUTHErn CALiFOrniA CHApTEr

programs pAgE 4

Advocacy pAgE 8

special Events pAgE 12

Volunteers pAgE 24

ORAL MEDS FOR MS ARE COMING

In January, the FDA approved the marketing of Ampyra™ (dalfampridine, formerly known as fampridine SR, from Acorda Therapeutics) for its ability to improve walking in people with any type of MS. This is the first therapy specifically approved to treat a symptom of MS, and it represents a big step forward for the many people who may benefit.

Ampyra is a tablet containing a sustained-release formula of 4-aminopyridine, which blocks tiny pores, or potassium channels, on the surface of nerve fibers. This blocking ability may improve the conduction of nerve signals in nerve fibers whose insulating myelin coating has been damaged by MS. The first studies of this potassium-blocking approach in people with MS were supported by the National MS Society.

CONTINUED ON PAGE 20

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2440 s. sepulveda Blvd., suite 115Los Angeles, CA 90064

Southern California Chapter 2440 S. Sepulveda Boulevard, Suite 115 Los Angeles, CA 90064 310.479.4456, 800.344.4867

Channel Islands Office 14 West Valerio Street Santa Barbara, CA 93101 805.682.8783 San Luis Obispo Office 805.772.2046

Inland Empire Office 869 E. Foothill Boulevard, Suite I Upland, CA 91786 909.949.1363

Coachella Valley Office 73-710 Fred Waring Drive, Suite 103 Palm Desert, CA 92260 760.776.5740

Antelope & Santa Clarita Valley Office 1669 West Avenue J, Suite 309 Lancaster, CA 93534 661.945.9111

Kern County Office 1800 30th Street, Suite 105 Bakersfield, CA 93301 661.321.9512

San Joaquin Valley Office 7472 N. Fresno Street, Suite 210 Fresno, CA 93720 559.439.2154

How will you move it?nationalMSsociety.org/cal

paul M. Mahoney, Esq.,

Chair

Byron Allen

rhona Bader

Arturo Barquet

John V. Bock Jr.

Tevia Celli

richard Corgel

Bruce C. Corwin

Barry Engelman

Brian D. Fox

Dr. Barbara giesser

Dr. Wendy gilmore

roy glickman

Kevin goetz

David M. goldstein

David E. gooding

John Hall

robert E. Harper

Bruce Hecker

Lisa Karpe

ray Karpe

Julie Kaufer, Esq.

Annis Kishner

Leon LeBuffe, ph.D.

Jason Len

simpson C. Leonard, Jr.

robert Mancini

stanley E. Maron

Larry McEwen

roland Mesa

John. F. Murphy

Chris Ojakian

James D. power

David perren

scott perren

Kim phillips

Karen randall

sheri safan

Joan sanders

Arthur E. schramm, Jr.

Britta schramm

sue schroeder

Fern seizer

Madeleine sherak, ph.D.

Thomas sherak

Eric small

Jon strum

Henry Taylor

Dina Tecimer, Esq.

Timur Tecimer

Bill Todman, Jr.

rené Webb

David Weise

gwen Weise

Chet Widom

stacy Wilder

Larry Winter

Honorary TrusteesAmy Alcott

Walter F. Bauer, ph.D.

Edith Furst

steve garvey

Yale gieszl

Edith grady

Harland n. green, Esq.

Alan H. Lederman

Fred Lukas

sue Meltzer

Merlin Olsen

Lawrence pressman

Hon. richard J. riordan

Loren E. sanchez, Ed.D.

David serrano sewell

Dennis H. Vaughn, Esq.

Congressman Henry A.

Waxman & Janet Waxman

Charles C. Wolf, Esq.

Dear Friends,

2009, such a hard year in so many ways, witnessed one great step forward in the movement toward a world free of multiple sclerosis — the flowering of our Fast Forward.

Fast Forward, headed by Dr. Tim Coetzee, is a non-profit subsidiary of the National MS Society which takes a business approach to speeding developments seeking treatments and a cure for people living with MS. Dr. Coetzee reported in a recent letter, “drug development for MS…is costly and risky.” Because the market for MS treatments is not huge, scientific companies can be detoured from investing the funds to move scientific ideas from basic research into pre-clinical development. Dr. Coetzee continued, “Fast Forward aims to close that gap. We will partner with investors and donors to see the value of innovative drug discovery. We will seek out promising companies and scientists with fresh ideas.”

In 2009, Fast Forward funded the next steps in the development of three therapies — to reprogram the immune system in MS; to disrupt the abnormal immune response of MS; and to target and prevent immune system dysfunction in MS. We also forged a five-year $19 million strategic alliance with Merck to fund researchers in companies engaged in cutting-edge MS drug development.

In 2010, Dr. Coetzee tells us, we can expect to fund at least ten new drug discovery development programs. We will “spearhead communication and creative action between academic and industry stakeholders on critical issues related to primary and secondary progressive MS.” We will also launch a comprehensive campaign focused on private philanthropy and strategic alliances with pharmaceutical companies.

The need for effective treatments for people with MS is enormous and Fast Forward is your National MS Society’s attempt to bring new treatments to you as soon as humanly possible. Stay tuned — this should be exciting!

Sincerely,

Leon LeBuffe, Ph.D.

2 | JOin THE MOVEMEnT: nationalMssociety.org TOLL FREE NUMBER 1 800 344 4867 | 3

800.344.4867pUBLiCATiOn OF THE nATiOnAL MULTipLE sCLErOsis sOCiETY Southern California Chapter

Chairman • Paul M. Mahoney, Esq.

Chapter President • Leon LeBuffe, Ph.D.

Newsletter Editor • Marni Deckter

Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. National MS Society medical advisors recommend that people with MS talk with their health care professional about using one of these medications and about strategies and effective treatments to manage symptoms. If you or someone you know has MS, please contact the Society today at nationalMSsociety.org or 800.344.4867 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.

The National Multiple Sclerosis Society (NMSS) does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The NMSS assumes no liability for the use of contents of any product or service mentioned. Information provided by the NMSS is based upon professional advice, published, experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The NMSS recommends that all questions and information be discussed with a personal physician.

We mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by MS.

© 2010 NMSS Southern California Chapter Published Quarterly — Spring 2010

PRESIDENT’S MESSAGE

Save the Date

MS Awareness Week March 8 – 14, 2010

Walk MS April & October 2010

World MS Day May 26, 2010

MS Golf Classic June 7, 2010

Challenge Walk MS September 24 - 26, 2010

Dinner of Champions September 27, 2010

Bike MS October 16 & 17, 2010

Participate.

Volunteer.

Donate.

BOARD OF TRUSTEES

paul M. Mahoney, Esq.,

Chair

Byron Allen

rhona Bader

Arturo Barquet

John V. Bock Jr.

Tevia Celli

richard Corgel

Bruce C. Corwin

Barry Engelman

Brian D. Fox

Dr. Barbara giesser

Dr. Wendy gilmore

roy glickman

Kevin goetz

David M. goldstein

David E. gooding

John Hall

robert E. Harper

Bruce Hecker

Lisa Karpe

ray Karpe

Julie Kaufer, Esq.

Annis Kishner

Leon LeBuffe, ph.D.

Jason Len

simpson C. Leonard, Jr.

robert Mancini

stanley E. Maron

Larry McEwen

roland Mesa

John. F. Murphy

Chris Ojakian

James D. power

David perren

scott perren

Kim phillips

Karen randall

sheri safan

Joan sanders

Arthur E. schramm, Jr.

Britta schramm

sue schroeder

Fern seizer

Madeleine sherak, ph.D.

Thomas sherak

Eric small

Jon strum

Henry Taylor

Dina Tecimer, Esq.

Timur Tecimer

Bill Todman, Jr.

rené Webb

David Weise

gwen Weise

Chet Widom

stacy Wilder

Larry Winter

Honorary TrusteesAmy Alcott

Walter F. Bauer, ph.D.

Edith Furst

steve garvey

Yale gieszl

Edith grady

Harland n. green, Esq.

Alan H. Lederman

Fred Lukas

sue Meltzer

Merlin Olsen

Lawrence pressman

Hon. richard J. riordan

Loren E. sanchez, Ed.D.

David serrano sewell

Dennis H. Vaughn, Esq.

Congressman Henry A.

Waxman & Janet Waxman

Charles C. Wolf, Esq.

Dear Friends,

2009, such a hard year in so many ways, witnessed one great step forward in the movement toward a world free of multiple sclerosis — the flowering of our Fast Forward.

Fast Forward, headed by Dr. Tim Coetzee, is a non-profit subsidiary of the National MS Society which takes a business approach to speeding developments seeking treatments and a cure for people living with MS. Dr. Coetzee reported in a recent letter, “drug development for MS…is costly and risky.” Because the market for MS treatments is not huge, scientific companies can be detoured from investing the funds to move scientific ideas from basic research into pre-clinical development. Dr. Coetzee continued, “Fast Forward aims to close that gap. We will partner with investors and donors to see the value of innovative drug discovery. We will seek out promising companies and scientists with fresh ideas.”

In 2009, Fast Forward funded the next steps in the development of three therapies — to reprogram the immune system in MS; to disrupt the abnormal immune response of MS; and to target and prevent immune system dysfunction in MS. We also forged a five-year $19 million strategic alliance with Merck to fund researchers in companies engaged in cutting-edge MS drug development.

In 2010, Dr. Coetzee tells us, we can expect to fund at least ten new drug discovery development programs. We will “spearhead communication and creative action between academic and industry stakeholders on critical issues related to primary and secondary progressive MS.” We will also launch a comprehensive campaign focused on private philanthropy and strategic alliances with pharmaceutical companies.

The need for effective treatments for people with MS is enormous and Fast Forward is your National MS Society’s attempt to bring new treatments to you as soon as humanly possible. Stay tuned — this should be exciting!

Sincerely,

Leon LeBuffe, Ph.D.

2 | JOin THE MOVEMEnT: nationalMssociety.org TOLL FREE NUMBER 1 800 344 4867 | 3

800.344.4867pUBLiCATiOn OF THE nATiOnAL MULTipLE sCLErOsis sOCiETY Southern California Chapter

Chairman • Paul M. Mahoney, Esq.

Chapter President • Leon LeBuffe, Ph.D.

Newsletter Editor • Marni Deckter

Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. National MS Society medical advisors recommend that people with MS talk with their health care professional about using one of these medications and about strategies and effective treatments to manage symptoms. If you or someone you know has MS, please contact the Society today at nationalMSsociety.org or 800.344.4867 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.

The National Multiple Sclerosis Society (NMSS) does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The NMSS assumes no liability for the use of contents of any product or service mentioned. Information provided by the NMSS is based upon professional advice, published, experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The NMSS recommends that all questions and information be discussed with a personal physician.

We mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by MS.

© 2010 NMSS Southern California Chapter Published Quarterly — Spring 2010

PRESIDENT’S MESSAGE

Save the Date

MS Awareness Week March 8 – 14, 2010

Walk MS April & October 2010

World MS Day May 26, 2010

MS Golf Classic June 7, 2010

Challenge Walk MS September 24 - 26, 2010

Dinner of Champions September 27, 2010

Bike MS October 16 & 17, 2010

Participate.

Volunteer.

Donate.

BOARD OF TRUSTEES

PROGRAMS PROGRAMS

4 | JOin THE MOVEMEnT: nationalMssociety.org TOLL FrEE nUMBEr 1 800 344 4867 | 5

TAx TIME 2010BY ELinOr nAUEn

Just having MS may feel like more than enough to deal with, but you have to pay taxes like everybody else. There is some good news: You can potentially reduce your tax bite. Learn all you can about the allowances available to people with disabilities.

First off, every penny you spend out of pocket, beyond what’s reimbursed by your insurance, may add up to legal deductions.

“Many things qualify as medical expenses,” said Trudy C. Durant, an accountant in New York and New Jersey: medical equipment; supplies; insurance premiums you pay yourself; transportation and lodging (but not meals) for medically essential trips — for both you and a companion; home attendants; and doctor-recommended programs such as weight loss or smoking cessation. A physician’s letter is essential in case you’re audited.

Home improvements that are primarily for medical care are also allowable. This would include air conditioners, a roll-in shower, a stair lift, and an elevator. There is a catch. You can deduct what you spend minus the amount that the improvement increases the value of your property.

Let’s say you installed a $40,000 swimming pool. If it raises the value of your house by $10,000, you can deduct $30,000. Costs to remove a barrier, such as widening doorways to accommodate mobility aids, are also deductible. Spending the winter in Florida? Sorry, you’re out of luck.

All these deductions kick in only after you’ve paid 7.5% of your adjusted gross income for medical expenses. So, for example, if your income was $50,000 a year, and you spent $6,000 on medical expenses, the first $3,750 is your responsibility. You can deduct $2,250 of your $6,000 expense.

Your best bet is to keep really good records, group major expenses into one tax year if you can, and take the advice of a tax professional, including the IRS itself.

“Use common sense. Some potential deductions haven’t been tested in the courts. You’ll have to decide if you want to chance having to fight for them,” Durant said.

For more information Log on to irs.gov or call the IRS’s toll-free number: 800.829.1040. For those who qualify, the IRS’s Volunteer Income Tax Assistance (VITA) program — with offices in many convenient neighborhood locations — helps prepare basic tax returns. Call 800.829.1040.

MANAGING MS IN A TOUGH ECONOMy

The downturn in the economy has no doubt brought changes to your life. You aren’t alone. We have assembled a panel of local experts to help you navigate through these tough times with topics such as budgeting, financial planning, credit management, home mortgages and drug co-pays.

This FREE program is being offered in March in Bakersfield, Fresno, Palm Desert, Palmdale, Pasadena, Rancho Cucamonga, and San Luis Obispo. Register today for Managing MS in a Tough Economy.

Visit nationalMSsociety.org/CALcalendar or call 800.344.4867.

TEEN GETAWAyThis summer, the Chapter will host the The Great Escape – the only camp of its kind in the West, serving teens and adolescents, ages 10 – 18, with MS. This exciting, fun-filled weekend will take place June

11 – 13 at spectacular Pali Mountain in Running Springs, CA. Teens with MS will enjoy the high ropes course and Euro Bungee, outdoor sports, arts & crafts, karaoke, a campfire and a lot more. Plus, they will have the opportunity to meet other teens from across the country who understand life with MS.

This unforgettable weekend is filling up fast. Visit nationalMSsociety.org/CALteencamp to download an application. Or call Tiffany Jordan at 310.479.4456 x130 or 800.344.4867.

NEW MS SPECIALTy CARE

MS specialty care is now available in the Coachella Valley and San Joaquin Valley.

The MS practice at Eisenhower Medical Center in Indian Wells is accepting new patients. MS specialist and long-time National MS Society volunteer Elizabeth H. Morrison, M.D., M.S.Ed said, “The new practice will provide comprehensive medical care for people with MS or suspected MS, including work-up, state-of-the-art MS treatment, symptom management, and wellness care.” The practice will also offer cognitive testing and intravenous infusion of specialized MS medications. Morrison continued, “Eisenhower's medical staff includes outstanding clinicians in a number of MS-related specialties (physiatry, urology, and ophthalmology, just to name a few) to whom patients can be referred whenever the need may arise. I also look forward to collaborating with our community's neurologists, as well as with MS specialists from

USC.” The practice is located in the Wall Street West Complex, 74785 Highway 111, Suite 100, Indian Wells. For more information, please call Suellen Evavold at 760.776.5740.

People with MS in the San Joaquin Valley can visit the California Neuroscience Institute in Fresno for access to a neurologist who specializes in MS, as well as other allied health services, including physical therapy, occupational therapy, speech, respiratory, and nutrition. Neurologist Halim Fadil, MD said, “Multiple sclerosis is best managed through a combination of efforts from different specialists and ancillary service providers. The MS program at the Central California Neuroscience Institute was created in Fresno to provide this comprehensive care to central valley patients.” The outpatient clinic is located at 2335 E. Kashian Lane, Suite 301, Fresno, CA 93701. For more information, please call Susan Mattison at 559.439.2154.

PROGRAMS PROGRAMS


TAx TIME 2010BY ELinOr nAUEn

Just having MS may feel like more than enough to deal with, but you have to pay taxes like everybody else. There is some good news: You can potentially reduce your tax bite. Learn all you can about the allowances available to people with disabilities.

First off, every penny you spend out of pocket, beyond what’s reimbursed by your insurance, may add up to legal deductions.

“Many things qualify as medical expenses,” said Trudy C. Durant, an accountant in New York and New Jersey: medical equipment; supplies; insurance premiums you pay yourself; transportation and lodging (but not meals) for medically essential trips — for both you and a companion; home attendants; and doctor-recommended programs such as weight loss or smoking cessation. A physician’s letter is essential in case you’re audited.

Home improvements that are primarily for medical care are also allowable. This would include air conditioners, a roll-in shower, a stair lift, and an elevator. There is a catch. You can deduct what you spend minus the amount that the improvement increases the value of your property.

Let’s say you installed a $40,000 swimming pool. If it raises the value of your house by $10,000, you can deduct $30,000. Costs to remove a barrier, such as widening doorways to accommodate mobility aids, are also deductible. Spending the winter in Florida? Sorry, you’re out of luck.

All these deductions kick in only after you’ve paid 7.5% of your adjusted gross income for medical expenses. So, for example, if your income was $50,000 a year, and you spent $6,000 on medical expenses, the first $3,750 is your responsibility. You can deduct $2,250 of your $6,000 expense.

Your best bet is to keep really good records, group major expenses into one tax year if you can, and take the advice of a tax professional, including the IRS itself.

“Use common sense. Some potential deductions haven’t been tested in the courts. You’ll have to decide if you want to chance having to fight for them,” Durant said.

For more information Log on to irs.gov or call the IRS’s toll-free number: 800.829.1040. For those who qualify, the IRS’s Volunteer Income Tax Assistance (VITA) program — with offices in many convenient neighborhood locations — helps prepare basic tax returns. Call 800.829.1040.

MANAGING MS IN A TOUGH ECONOMy

The downturn in the economy has no doubt brought changes to your life. You aren’t alone. We have assembled a panel of local experts to help you navigate through these tough times with topics such as budgeting, financial planning, credit management, home mortgages and drug co-pays.

This FREE program is being offered in March in Bakersfield, Fresno, Palm Desert, Palmdale, Pasadena, Rancho Cucamonga, and San Luis Obispo. Register today for Managing MS in a Tough Economy.

Visit nationalMSsociety.org/CALcalendar or call 800.344.4867.

TEEN GETAWAyThis summer, the Chapter will host the The Great Escape – the only camp of its kind in the West, serving teens and adolescents, ages 10 – 18, with MS. This exciting, fun-filled weekend will take place June

11 – 13 at spectacular Pali Mountain in Running Springs, CA. Teens with MS will enjoy the high ropes course and Euro Bungee, outdoor sports, arts & crafts, karaoke, a campfire and a lot more. Plus, they will have the opportunity to meet other teens from across the country who understand life with MS.

This unforgettable weekend is filling up fast. Visit nationalMSsociety.org/CALteencamp to download an application. Or call Tiffany Jordan at 310.479.4456 x130 or 800.344.4867.

NEW MS SPECIALTy CARE

MS specialty care is now available in the Coachella Valley and San Joaquin Valley.

The MS practice at Eisenhower Medical Center in Indian Wells is accepting new patients. MS specialist and long-time National MS Society volunteer Elizabeth H. Morrison, M.D., M.S.Ed said, “The new practice will provide comprehensive medical care for people with MS or suspected MS, including work-up, state-of-the-art MS treatment, symptom management, and wellness care.” The practice will also offer cognitive testing and intravenous infusion of specialized MS medications. Morrison continued, “Eisenhower's medical staff includes outstanding clinicians in a number of MS-related specialties (physiatry, urology, and ophthalmology, just to name a few) to whom patients can be referred whenever the need may arise. I also look forward to collaborating with our community's neurologists, as well as with MS specialists from

USC.” The practice is located in the Wall Street West Complex, 74785 Highway 111, Suite 100, Indian Wells. For more information, please call Suellen Evavold at 760.776.5740.

People with MS in the San Joaquin Valley can visit the California Neuroscience Institute in Fresno for access to a neurologist who specializes in MS, as well as other allied health services, including physical therapy, occupational therapy, speech, respiratory, and nutrition. Neurologist Halim Fadil, MD said, “Multiple sclerosis is best managed through a combination of efforts from different specialists and ancillary service providers. The MS program at the Central California Neuroscience Institute was created in Fresno to provide this comprehensive care to central valley patients.” The outpatient clinic is located at 2335 E. Kashian Lane, Suite 301, Fresno, CA 93701. For more information, please call Susan Mattison at 559.439.2154.

$50,000 from • The Green Foundation for the MS-Related Care Initiative

$50,000 from the • Hurlbut-Johnson Charitable Trusts, a donor-advised fund of the Silicon Valley Community Foundation, for The Marilyn Hilton MS Achievement Center at UCLA

$25,000 from the • Ahmanson Foundation for the Living Well Blended Learning Program

$25,000 from the • Smidt Family Foundation for local programs and services in the Channel Islands region

$25,000 from the •Wood-Claeyssens Foundation for the Better Living Program in Santa Barbara and Ventura Counties

$20,000 from • Catholic Healthcare West for the Access to MS-Related Care Initiative in Kern County

$15,000 from the • Kenneth T. & Eileen L. Norris Foundation for the Eric Small Centers for Optimal Living with MS

$10,000 from the • John and Maria Laffin Trust for Promise 2010

$7,225 from • Teva Neuroscience ($4,900 for the Chapter’s Annual Meeting and $2,325 for an MS Education Program in Palm Desert)

$5,000 from the • Albert and Elaine Borchard Foundation for the Educational Scholarship Program

$5,000 from the • Lockheed Martin AERO Club for the MS Mountain Getaway at Camp Paivika

$5,000 from the • Montecito Bank & Trust for Financial Assistance & Crisis Management Services in Santa Barbara and Ventura Counties

$5,000 from the • Swift Memorial Healthcare Foundation for general operating support

$2,849 from • Change A Life Foundation ($1,500 unrestricted and $1,349 for the special needs of two individuals with MS)

$1,000 from the • Carl E. Wynn Foundation for Financial Assistance & Crisis Management Services

$5,000 from the • Santa ynez Band of Chumash Indians Foundation for Financial Assistance and Crisis Management Services in the Channel Islands region

$1,500 from the • Rotary Club of Fresno for the Optimal Wellness Program in the North San Joaquin Valley region

PROGRAMS


POPULAR PAMPHLETS

Download these brochures at nationalMSsociety.org (click on “Multimedia Library”) or call 800.344.4867 for a free copy.

A Guide for Caregivers•

At Home with MS: Adapting Your Environment• Modify a house or apartment to save energy, compensate for reduced vision or mobility, and live comfortably when MS is severe.

Hiring Help at Home: The Basic Facts•

Managing Progressive MS•

So You Have Progressive MS?• Sharon M. Brown, a veteran of 11 years, writes frankly about life, family, work, dating, and pursuing your dreams when the diagnosis is “progressive” MS.

PROGRAMS

STEADFAST SUPPORTERS LIVING WITH PROGRESSIVE MS

Progressive MS manifests itself differently in each person. Whether your MS is secondary-progressive, which follows a period of relapsing-remitting MS, or primary-progressive, meaning it has been slowly progressing from the beginning, it is important to realize that “progressive” does not necessarily imply severe disability. But it does mean that there are few or no relapses, and few or no recovery or remission periods when major symptoms abate.

While there are still no effective medical treatments to repair nerves or reverse permanent losses of function, there are many useful strategies and treatments. Even if you cannot use one of the disease-modifying therapies, there are many things you can do to minimize the impact of symptoms on your life, guard your health, improve your quality of life and maximize your ability to function.

Learn more at this free teleconference:

Living with Progressive MSMonday, March 8, 2010 6:00 - 7:30 pm

Patricia K. Coyle, MD, professor and acting chair of neurology, and the director of the MS Comprehensive Care Center at the Stony Brook University Medical Center in New York, will discuss how to live well with progressive MS, about medical management, and how to manage the emotional issues that arise when MS changes. Dr. Coyle is is recognized as a leading expert on MS and neurologic infections. She is currently involved in a number of therapeutic trials testing new immunotherapies for MS.

Register online at nationalMSsociety.org/CALcalendar or call 800.344.4867. You must pre-register to receive the toll-free, dial-in teleconference number.

The Chapter is grateful to the following foundation and corporate supporters for $257,574 in grants awarded October 1, 2009 – January 31, 2010.

In lieu of FLOWERS

Donations in memory of a

loved one can be made to ...

The National MS Society,

Southern Caifornia Chapter.

Beverly, diagnosed 2001

$50,000 from • The Green Foundation for the MS-Related Care Initiative

$50,000 from the • Hurlbut-Johnson Charitable Trusts, a donor-advised fund of the Silicon Valley Community Foundation, for The Marilyn Hilton MS Achievement Center at UCLA

$25,000 from the • Ahmanson Foundation for the Living Well Blended Learning Program

$25,000 from the • Smidt Family Foundation for local programs and services in the Channel Islands region

$25,000 from the •Wood-Claeyssens Foundation for the Better Living Program in Santa Barbara and Ventura Counties

$20,000 from • Catholic Healthcare West for the Access to MS-Related Care Initiative in Kern County

$15,000 from the • Kenneth T. & Eileen L. Norris Foundation for the Eric Small Centers for Optimal Living with MS

$10,000 from the • John and Maria Laffin Trust for Promise 2010

$7,225 from • Teva Neuroscience ($4,900 for the Chapter’s Annual Meeting and $2,325 for an MS Education Program in Palm Desert)

$5,000 from the • Albert and Elaine Borchard Foundation for the Educational Scholarship Program

$5,000 from the • Lockheed Martin AERO Club for the MS Mountain Getaway at Camp Paivika

$5,000 from the • Montecito Bank & Trust for Financial Assistance & Crisis Management Services in Santa Barbara and Ventura Counties

$5,000 from the • Swift Memorial Healthcare Foundation for general operating support

$2,849 from • Change A Life Foundation ($1,500 unrestricted and $1,349 for the special needs of two individuals with MS)

$1,000 from the • Carl E. Wynn Foundation for Financial Assistance & Crisis Management Services

$5,000 from the • Santa ynez Band of Chumash Indians Foundation for Financial Assistance and Crisis Management Services in the Channel Islands region

$1,500 from the • Rotary Club of Fresno for the Optimal Wellness Program in the North San Joaquin Valley region

PROGRAMS


POPULAR PAMPHLETS

Download these brochures at nationalMSsociety.org (click on “Multimedia Library”) or call 800.344.4867 for a free copy.

A Guide for Caregivers•

At Home with MS: Adapting Your Environment• Modify a house or apartment to save energy, compensate for reduced vision or mobility, and live comfortably when MS is severe.

Hiring Help at Home: The Basic Facts•

Managing Progressive MS•

So You Have Progressive MS?• Sharon M. Brown, a veteran of 11 years, writes frankly about life, family, work, dating, and pursuing your dreams when the diagnosis is “progressive” MS.

PROGRAMS

STEADFAST SUPPORTERS LIVING WITH PROGRESSIVE MS

Progressive MS manifests itself differently in each person. Whether your MS is secondary-progressive, which follows a period of relapsing-remitting MS, or primary-progressive, meaning it has been slowly progressing from the beginning, it is important to realize that “progressive” does not necessarily imply severe disability. But it does mean that there are few or no relapses, and few or no recovery or remission periods when major symptoms abate.

While there are still no effective medical treatments to repair nerves or reverse permanent losses of function, there are many useful strategies and treatments. Even if you cannot use one of the disease-modifying therapies, there are many things you can do to minimize the impact of symptoms on your life, guard your health, improve your quality of life and maximize your ability to function.

Learn more at this free teleconference:

Living with Progressive MSMonday, March 8, 2010 6:00 - 7:30 pm

Patricia K. Coyle, MD, professor and acting chair of neurology, and the director of the MS Comprehensive Care Center at the Stony Brook University Medical Center in New York, will discuss how to live well with progressive MS, about medical management, and how to manage the emotional issues that arise when MS changes. Dr. Coyle is is recognized as a leading expert on MS and neurologic infections. She is currently involved in a number of therapeutic trials testing new immunotherapies for MS.

Register online at nationalMSsociety.org/CALcalendar or call 800.344.4867. You must pre-register to receive the toll-free, dial-in teleconference number.

The Chapter is grateful to the following foundation and corporate supporters for $257,574 in grants awarded October 1, 2009 – January 31, 2010.

In lieu of FLOWERS

Donations in memory of a

loved one can be made to ...

The National MS Society,

Southern Caifornia Chapter.

Beverly, diagnosed 2001


LA COUNTy Rx CARDThe Los Angeles Area Chamber of Commerce is now offering a Los Angeles Rx Card savings program, available to all LA County residents, that will provide savings of up to 75% on prescriptions and is accepted at more than 50,000 pharmacies across the country, including CVS, Ralphs, VONS, and Walmart.

With an Rx Card, Angelenos can receive access to free discount prescription drug cards that have no restrictions to membership and any income or age limitations. The program was launched to help uninsured and underinsured residents afford their prescriptions medications.

The Rx Card program can also be used by people who have health insurance coverage with no prescription benefits, which is common in many health savings accounts (HSA) and high-deductible health plans. Additionally, people who have

prescription coverage can use this program for non-formulary or non-covered drugs.

The Rx Card is a solution to the confusing maze of discount prescription programs that have appeared in recent years. Many of these programs only cover certain drugs, charge fees, and some have membership restrictions such as age and income requirements.

To print your free card and for more information, go to: lachamber.com/rxcard.

Source: Chamber Voice, A publication of the Los Angeles Area Chamber of Commerce, Winter 2010, Volume 9, Issue 1

ADVOCACyADVOCACy

Have you recently experienced unexpected increases in your out-of-pocket costs for your prescription drugs? MS-California Action Network (MS-CAN) and Assembly member Bonnie Lowenthal (D-Long Beach) are creating a bill to address this unfair practice and need your help. For the purpose of our proposed legislation, we want to know:

1. When did the increase occur? Was it during the contract year (between open enrollment periods) with your health insurance plan or did it occur at the time of renewal of your insurance plan?

2. How much was the out-of-pocket cost increase? Did it double or triple?

3. If the increase occurred between open enrollment periods, how did you find out about the increase? Did the insurance company notify you or did you find out when you refilled your prescription at the pharmacy?

Share your story. Call Cheryl Roberto-Lvovsky at 310.479.4456 ext. 109 or email [email protected].

SHARE yOUR Rx STORy

SERVING ON A COMMISSION IN My CITy: CITIzENSHIP CAN BE FUN

BY AL TAinsKY

Every third Thursday of the month at 4:30 p.m., I’m at the Santa Monica Housing Commission meeting at the Ken Edwards Center on Fourth Street. I sit as one of seven commissioners who serve in an advisory capacity to the City Council and its staff.

The city’s Department of Housing and Redevelopment is dedicated to preserving existing affordable housing and creating new housing opportunities for residents with low and moderate incomes. In short, the work is serious.

Santa Monica, California, is an eight-square-mile city with a population of about 85,000. I became involved in city government because I wrote a first-person piece for the Los Angeles Times that they titled, ”MS Can’t Cripple Art and Soul.” That was back in 1992.

The article garnered a national writers award from the National MS Society and things started happening. I got a call from City Hall and a request that I sit on the city’s Accessibility Appeals Board.

This led to a request that I sit on the Housing Commission. I’ve done so for the past eight years. They needed a commissioner who was a recipient of Section 8 housing and I fit the bill.

In my town, the Housing Commission is but one of many that study problems and make suggestions in their area of expertise. Some of the others are the Arts Commission, the Commission for the Senior Community, the Landmarks and Historic District Commission, the Recreation and Parks Commission, and so on.

All are dedicated to the betterment of those who reside within the city borders, and the food isn’t bad either. Not many cities I know of would dress the salad at their annual Commissions Dinner with walnuts and blue cheese. Santa Monica’s motto is, “Populas Felix in Urbe Felici,” which translates as, ”A Fortunate People in a Fortunate Land.”

I can’t walk anymore but I can work to better my community. Concurrently, I’m having a blast. Did I mention that the generosity of spirit of the community is almost palpable? ‘Cause it is.

Consider networking with members of local boards and commissions. Make their acquaintance first at regularly scheduled public meetings. Observe hearings, and share outcomes with your network of friends. Not only will discussion be stimulating, but as an increasingly informed citizen — with knowledge of the impact of disability — you may ultimately be invited to serve.

—Renee Vandlik, State and Local Government Relations for the Society

INTERESTED IN CONTRIBUTING TO yOUR

OWN COMMUNITy?

ADVOCACyADVOCACy


LA COUNTy Rx CARDThe Los Angeles Area Chamber of Commerce is now offering a Los Angeles Rx Card savings program, available to all LA County residents, that will provide savings of up to 75% on prescriptions and is accepted at more than 50,000 pharmacies across the country, including CVS, Ralphs, VONS, and Walmart.

With an Rx Card, Angelenos can receive access to free discount prescription drug cards that have no restrictions to membership and any income or age limitations. The program was launched to help uninsured and underinsured residents afford their prescriptions medications.

The Rx Card program can also be used by people who have health insurance coverage with no prescription benefits, which is common in many health savings accounts (HSA) and high-deductible health plans. Additionally, people who have

prescription coverage can use this program for non-formulary or non-covered drugs.

The Rx Card is a solution to the confusing maze of discount prescription programs that have appeared in recent years. Many of these programs only cover certain drugs, charge fees, and some have membership restrictions such as age and income requirements.

To print your free card and for more information, go to: lachamber.com/rxcard.

Source: Chamber Voice, A publication of the Los Angeles Area Chamber of Commerce, Winter 2010, Volume 9, Issue 1

ADVOCACyADVOCACy

Have you recently experienced unexpected increases in your out-of-pocket costs for your prescription drugs? MS-California Action Network (MS-CAN) and Assembly member Bonnie Lowenthal (D-Long Beach) are creating a bill to address this unfair practice and need your help. For the purpose of our proposed legislation, we want to know:

1. When did the increase occur? Was it during the contract year (between open enrollment periods) with your health insurance plan or did it occur at the time of renewal of your insurance plan?

2. How much was the out-of-pocket cost increase? Did it double or triple?

3. If the increase occurred between open enrollment periods, how did you find out about the increase? Did the insurance company notify you or did you find out when you refilled your prescription at the pharmacy?

Share your story. Call Cheryl Roberto-Lvovsky at 310.479.4456 ext. 109 or email [email protected].

SHARE yOUR Rx STORy

SERVING ON A COMMISSION IN My CITy: CITIzENSHIP CAN BE FUN

BY AL TAinsKY

Every third Thursday of the month at 4:30 p.m., I’m at the Santa Monica Housing Commission meeting at the Ken Edwards Center on Fourth Street. I sit as one of seven commissioners who serve in an advisory capacity to the City Council and its staff.

The city’s Department of Housing and Redevelopment is dedicated to preserving existing affordable housing and creating new housing opportunities for residents with low and moderate incomes. In short, the work is serious.

Santa Monica, California, is an eight-square-mile city with a population of about 85,000. I became involved in city government because I wrote a first-person piece for the Los Angeles Times that they titled, ”MS Can’t Cripple Art and Soul.” That was back in 1992.

The article garnered a national writers award from the National MS Society and things started happening. I got a call from City Hall and a request that I sit on the city’s Accessibility Appeals Board.

This led to a request that I sit on the Housing Commission. I’ve done so for the past eight years. They needed a commissioner who was a recipient of Section 8 housing and I fit the bill.

In my town, the Housing Commission is but one of many that study problems and make suggestions in their area of expertise. Some of the others are the Arts Commission, the Commission for the Senior Community, the Landmarks and Historic District Commission, the Recreation and Parks Commission, and so on.

All are dedicated to the betterment of those who reside within the city borders, and the food isn’t bad either. Not many cities I know of would dress the salad at their annual Commissions Dinner with walnuts and blue cheese. Santa Monica’s motto is, “Populas Felix in Urbe Felici,” which translates as, ”A Fortunate People in a Fortunate Land.”

I can’t walk anymore but I can work to better my community. Concurrently, I’m having a blast. Did I mention that the generosity of spirit of the community is almost palpable? ‘Cause it is.

Consider networking with members of local boards and commissions. Make their acquaintance first at regularly scheduled public meetings. Observe hearings, and share outcomes with your network of friends. Not only will discussion be stimulating, but as an increasingly informed citizen — with knowledge of the impact of disability — you may ultimately be invited to serve.

—Renee Vandlik, State and Local Government Relations for the Society

INTERESTED IN CONTRIBUTING TO yOUR

OWN COMMUNITy?

ADVOCACyADVOCACy


ADVOCACyADVOCACy VOLUNTEERSVOLUNTEERS

Age is not a prerequisite for social responsibility. An act of love, coupled with one’s willingness and desire to make a difference is all that it takes to make an impact, especially in the case of eight-year-old Emma May Fujimoto. Emma uses her paintbrush to deliver an extraordinary message of hope and inspiration for the MS community.

“When I first started painting, my mom didn’t have MS,” said Emma. “And then later when she got it (MS), I had a lot of paintings and decided to do something different with them.”

In collaboration with her grandfather, Neil Carrey, and the Los Angeles office of Baker & Hostetler, Emma sold one of her many masterpieces to Baker & Hostetler to raise money for the Chapter. In honor of Emma’s efforts, the company chose the Society to receive proceeds from its “Casual Charity Jean Day” — a concept that entails every employee who wears jeans on

Friday to contribute to a non-profit organization chosen that quarter. The collective efforts of Emma, Neil and the LA office of Baker & Hostetler generously raised $3,000 to help people with MS and their families.

There is no denying that Emma is exceptional. Her eagerness to help her mother overcome the difficulties of living with MS proves that children do have the power to change the world today and far into the future. Emma said, “I just felt like helping my mom and other people who have MS. And, knowing that I actually am helping feels really good.”

Many workplaces today offer the option to make a donation to the National MS Society, Southern California Chapter — and, it’s often as a simple as a payroll deduction. If your workplace is involved in the Combined Federal Campaign, the United Way Campaign or a Community Health Charities

campaign, please remember to note the National MS Society, Southern California Chapter as the recipient of your support. For more information about workplace giving and/or other monthly giving opportunities such as the Chapter’s 1946 Society, please contact Connie Smith at 310.479.4456 ext. 106.

La Sierra High School’s dance team, in partnership with dancers and residents from the community, participated in “Thrill The World” on October 24, 2009 at La Sierra High School’s gymnasium. Thrill The World is the largest, simultaneous fundraiser and dance fest that annually aims to be an unprecedented worldwide celebration of Michael Jackson’s life and music.

As a part-charity fundraiser, La Sierra High School’s dance team, led by dance instructor, Jennifer Allen, donated a portion of its proceeds to the Chapter in honor of two of the dancers’ mothers, Kim Carpenter and Kim Ohashi, who were diagnosed with MS in 1996 and 1998, respectively. Several girls danced in the National MS Society’s orange volunteer shirts, and every dancer wore the Society's band of hope.

Remembering her diagnosis, Carpenter said, “I was always very independent and active, especially with my kids who were only two and six years old at the time. We had just purchased our two-story dream home and I knew right away that moving up and down the stairs would be difficult – my life was going to be different.” Today, Carpenter is as busy as ever, especially with her kids. Her son, Bradley, now 19, is in the army and is scheduled to serve in Iraq early this year. Her daughter, Heather, now 15 years

old, juggles between school, the dance team, and her passion for agriculture.

Kim Ohashi remembers experiencing some of the first signs of numbness in her legs while ice skating. Soon after the numbness subsided, she began to experience blurred vision. “When I was initially diagnosed with MS and had to spend a lot of time in the hospital, my family flew down from Canada to help me,” said Ohashi. “My kids, Sarah and Nicholas, have always been gracious to me, and my husband, Ray, continues to help me understand that my disability doesn’t define me.”

Although Ohashi uses a walker to help her move around, she uses her sense of humor to move forward. Laughingly, Ohashi remarked, “the perks of using my walker is that I don’t have to wait in any lines at the amusement park! And, with handicap parking, I get to park my car closer to everything.” She enjoys her work as a substitute teacher for Liberty Elementary School, while serving as President of La Sierra High School’s Booster Club.

Thanks to the La Sierra High School dance team and their families for organizing this clever fundraiser and raising MS awareness.

NO ‘KID’DING AROUND THRILL THE WORLD

On November 17, 2009 Buchanan High School in Clovis, CA held its annual fundraising powder-puff game. Their football players dressed up as cheerleaders and the cheerleaders took the field as football players, all in the name of raising money for the National MS Society. This event was a huge success, raising over $5,100, thanks in part to Shelley Ray and her tireless efforts to support Chapter. What a fun and interesting way to raise money to help those living with MS in the Central Valley!

Neil Carrey, Emma May Fujimoto and Connie Smith

Adam Hirschhorn, a sixth grader at Brentwood School, sold freshly-squeezed orange juice popsicles at the Pacific Palisades Farmer’s Market in 2009 to raise MS awareness and funds to support the Chapter, in honor of his aunt who has MS. Adam’s older brother Jason was inspired by his brother and submitted an article about his efforts to the Palisadian-Post to further raise awareness.



Age is not a prerequisite for social responsibility. An act of love, coupled with one’s willingness and desire to make a difference is all that it takes to make an impact, especially in the case of eight-year-old Emma May Fujimoto. Emma uses her paintbrush to deliver an extraordinary message of hope and inspiration for the MS community.

“When I first started painting, my mom didn’t have MS,” said Emma. “And then later when she got it (MS), I had a lot of paintings and decided to do something different with them.”

In collaboration with her grandfather, Neil Carrey, and the Los Angeles office of Baker & Hostetler, Emma sold one of her many masterpieces to Baker & Hostetler to raise money for the Chapter. In honor of Emma’s efforts, the company chose the Society to receive proceeds from its “Casual Charity Jean Day” — a concept that entails every employee who wears jeans on

Friday to contribute to a non-profit organization chosen that quarter. The collective efforts of Emma, Neil and the LA office of Baker & Hostetler generously raised $3,000 to help people with MS and their families.

There is no denying that Emma is exceptional. Her eagerness to help her mother overcome the difficulties of living with MS proves that children do have the power to change the world today and far into the future. Emma said, “I just felt like helping my mom and other people who have MS. And, knowing that I actually am helping feels really good.”

Many workplaces today offer the option to make a donation to the National MS Society, Southern California Chapter — and, it’s often as a simple as a payroll deduction. If your workplace is involved in the Combined Federal Campaign, the United Way Campaign or a Community Health Charities

campaign, please remember to note the National MS Society, Southern California Chapter as the recipient of your support. For more information about workplace giving and/or other monthly giving opportunities such as the Chapter’s 1946 Society, please contact Connie Smith at 310.479.4456 ext. 106.

La Sierra High School’s dance team, in partnership with dancers and residents from the community, participated in “Thrill The World” on October 24, 2009 at La Sierra High School’s gymnasium. Thrill The World is the largest, simultaneous fundraiser and dance fest that annually aims to be an unprecedented worldwide celebration of Michael Jackson’s life and music.

As a part-charity fundraiser, La Sierra High School’s dance team, led by dance instructor, Jennifer Allen, donated a portion of its proceeds to the Chapter in honor of two of the dancers’ mothers, Kim Carpenter and Kim Ohashi, who were diagnosed with MS in 1996 and 1998, respectively. Several girls danced in the National MS Society’s orange volunteer shirts, and every dancer wore the Society's band of hope.

Remembering her diagnosis, Carpenter said, “I was always very independent and active, especially with my kids who were only two and six years old at the time. We had just purchased our two-story dream home and I knew right away that moving up and down the stairs would be difficult – my life was going to be different.” Today, Carpenter is as busy as ever, especially with her kids. Her son, Bradley, now 19, is in the army and is scheduled to serve in Iraq early this year. Her daughter, Heather, now 15 years

old, juggles between school, the dance team, and her passion for agriculture.

Kim Ohashi remembers experiencing some of the first signs of numbness in her legs while ice skating. Soon after the numbness subsided, she began to experience blurred vision. “When I was initially diagnosed with MS and had to spend a lot of time in the hospital, my family flew down from Canada to help me,” said Ohashi. “My kids, Sarah and Nicholas, have always been gracious to me, and my husband, Ray, continues to help me understand that my disability doesn’t define me.”

Although Ohashi uses a walker to help her move around, she uses her sense of humor to move forward. Laughingly, Ohashi remarked, “the perks of using my walker is that I don’t have to wait in any lines at the amusement park! And, with handicap parking, I get to park my car closer to everything.” She enjoys her work as a substitute teacher for Liberty Elementary School, while serving as President of La Sierra High School’s Booster Club.

Thanks to the La Sierra High School dance team and their families for organizing this clever fundraiser and raising MS awareness.

NO ‘KID’DING AROUND THRILL THE WORLD

On November 17, 2009 Buchanan High School in Clovis, CA held its annual fundraising powder-puff game. Their football players dressed up as cheerleaders and the cheerleaders took the field as football players, all in the name of raising money for the National MS Society. This event was a huge success, raising over $5,100, thanks in part to Shelley Ray and her tireless efforts to support Chapter. What a fun and interesting way to raise money to help those living with MS in the Central Valley!

Neil Carrey, Emma May Fujimoto and Connie Smith

Adam Hirschhorn, a sixth grader at Brentwood School, sold freshly-squeezed orange juice popsicles at the Pacific Palisades Farmer’s Market in 2009 to raise MS awareness and funds to support the Chapter, in honor of his aunt who has MS. Adam’s older brother Jason was inspired by his brother and submitted an article about his efforts to the Palisadian-Post to further raise awareness.

WALK MS: PUTTING THE “FUN” IN FUNDRAISING!


ADVOCACyADVOCACy SPECIAL EVENTSSPECIAL EVENTS

SATURDAY04.10.2010

Antelope Valley Lancaster Marketplace

Fresno Woodward Park

Santa Barbara Leadbetter Beach

S.W. Riverside County Town Square Park, Murrieta

SATURDAY 04.17.2010

Big Bear Alpine Pedal Path

Desert Cities Palm Desert Civic Center Park

Inland Empire Quakes Stadium

San Luis Obispo Mission Plaza

SUNDAY 04.18.2010Greater Los Angeles Pasadena Rose Bowl

SATURDAY 04.24.2010

Conejo Valley Westlake Village

SATURDAY 10.30.2010

Bakersfield Yokuts Park

walkMSsocal.org“I enjoyed how it was not a race at all so there was no way for me to lose... BUT CHARITY WON! Yay!”

~ Jeff, Team Walka Walka Walka

“It’s not often that I get to spend a day outside, walking with my friends in what is basically a big, fun parade with a very important purpose. But I get to do that with Walk MS, which I think is very special. Also, there’s cotton candy to top it all off, so you know it’s basically the best day ever.”

~ Dickie Copeland

“From check-in, to the sponsor area and all the activities, to the walk itself...everything seems to run seamlessly. Obviously everyone is there to support the cause, but it seems like you’ve turned it into an annual, family event. Something that people mark down on their calendar each year as something fun to do, while supporting a great cause, whether or not MS directly affects you.”

~Matt Halunen

Walk MS is an event for the whole family. It is a fun and exciting way to connect with friends and family while making a move that can make a difference. Walk MS is more than just your average walk. It’s the Southern California Chapter’s largest event. The money you raise will support education, advocacy, research and local programs that enhance the quality of life for people with MS and their families.

Each dollar and every step we take together brings us one step closer to a world free of MS!

Register today at walkMSsocal.org or call 800.344.4867!

“Walk MS is always such an energetic and positive experience for me. It’s wonderful to see the community come out and be involved in such an important event, and it’s a fun, relaxing way to spend time with my team, where we have a chance to work together for such a worthwhile cause.”

~ValArie, Wells Fargo

WALK MS: PUTTING THE “FUN” IN FUNDRAISING!



SATURDAY04.10.2010

Antelope Valley Lancaster Marketplace

Fresno Woodward Park

Santa Barbara Leadbetter Beach

S.W. Riverside County Town Square Park, Murrieta

SATURDAY 04.17.2010

Big Bear Alpine Pedal Path

Desert Cities Palm Desert Civic Center Park

Inland Empire Quakes Stadium

San Luis Obispo Mission Plaza

SUNDAY 04.18.2010Greater Los Angeles Pasadena Rose Bowl

SATURDAY 04.24.2010

Conejo Valley Westlake Village

SATURDAY 10.30.2010

Bakersfield Yokuts Park

walkMSsocal.org“I enjoyed how it was not a race at all so there was no way for me to lose... BUT CHARITY WON! Yay!”

~ Jeff, Team Walka Walka Walka

“It’s not often that I get to spend a day outside, walking with my friends in what is basically a big, fun parade with a very important purpose. But I get to do that with Walk MS, which I think is very special. Also, there’s cotton candy to top it all off, so you know it’s basically the best day ever.”

~ Dickie Copeland

“From check-in, to the sponsor area and all the activities, to the walk itself...everything seems to run seamlessly. Obviously everyone is there to support the cause, but it seems like you’ve turned it into an annual, family event. Something that people mark down on their calendar each year as something fun to do, while supporting a great cause, whether or not MS directly affects you.”

~Matt Halunen

Walk MS is an event for the whole family. It is a fun and exciting way to connect with friends and family while making a move that can make a difference. Walk MS is more than just your average walk. It’s the Southern California Chapter’s largest event. The money you raise will support education, advocacy, research and local programs that enhance the quality of life for people with MS and their families.

Each dollar and every step we take together brings us one step closer to a world free of MS!

Register today at walkMSsocal.org or call 800.344.4867!

“Walk MS is always such an energetic and positive experience for me. It’s wonderful to see the community come out and be involved in such an important event, and it’s a fun, relaxing way to spend time with my team, where we have a chance to work together for such a worthwhile cause.”

~ValArie, Wells Fargo



The Dinner of Champions Inland Empire on January 28th at the Red Hill Country Club in Rancho Cucamonga was a tremendous success. The event, which raised more than $70,000 in its first year, honored Chapter trustee René Webb.

René was diagnosed with MS in 1983. Though the disease progressed quickly, over the years, she has improved from using a scooter, to a wheelchair, to a walking stick. She said, “I attribute this improvement to the encouragement and support of family and friends, lots of prayer and to Society-sponsored programs I have participated in. The Society has made a positive difference in my life, for my husband Reggie and for our children Kiana, Karim and Kyle.”

René has been giving back to the Chapter for the last decade by participating annually in Walk MS. Last year, while printing Walk MS flyers to include with McDonald’s orders in her stores (she and Reggie own 11), René had a chance meeting with commercial real estate broker Mike Radlovic. She related her story about her diagnosis and her experiences with MS. She told of how her Walk team grew from a small group raising $850 in its first year to a larger group that raised over $32,000 in 2009. Mike

was inspired by how René faced the challenges of life with MS head on, and how the disease didn’t stop her from traveling the world and from her tremendous fundraising to help others living with MS. He set the ball in motion for the Dinner and helped to recruit prominent community leaders to get involved.

Randall Lewis stepped forward to emcee the Dinner program and guests danced to the music of The Earley Express band. René’s three children presented a heartfelt tribute their mother. Thank you to chairs: Chuck Carpenter, Nathan Russell, Dr. Randy Karu, Mayor Don Kurth & Dee Matreyek Kurth, Randall Lewis, Richard Lewis, Mike Radlovic and Councilman Tom Thomas for their support. Many thanks also to our host Webb Family Enterprises, Inc.; our sponsors Crowell, Weedon & Co. and EMD Serono, Inc.; and to all of the donors who supported this fantastic evening.

INAUGURAL INLAND EMPIRE DINNER BIKE MS BREAKS RECORDS inland Empire

The Bike MS Southern California Ride 2009 was a tremendous success, with close to1,300 cyclists and volunteers raising nearly $1.2 million. Congratulations and thank you!

Many thanks to each and every cyclist, team, and volunteer who participated in making this year’s ride a success, especially our Century Club members and Elite Teams.

Team NOW-MS Society had an incredible year with Phil Keoghan’s Ride Across America event that brought much needed awareness for multiple sclerosis as well as a phenomenal $500,000+ in donations. On top of that, the team members really

pushed themselves and worked hard to raise an additional $116,196 and earn themselves the #1 fundraising team spot.

Criminal Minds’ star Shemar Moore participated in the Bike MS ride for the fourth time, even after his accident early that summer. There was nothing stopping him to show his support for the cause. We really appreciate his dedication to our mission. Participants opted for one or two days of cycling, ranging from 30 to 160 miles. All cyclists enjoyed themed rest stops every 10 to 15 miles and a festival at our new location at the San Buenaventura State Beach, complete with massages, an expo, and entertainment. On Sunday, more than 500 cyclists continued to finish strong with either a 30 or 60 mile route battling winds along the way. It was definitely a weekend to remember.

Thank you to gold sponsors Sam’s Club and SoyJoy for making the event possible. From the monetary donations that help underwrite the costs of this event to the in-kind donations that helped stock rest stops and feed cyclists, our sponsors’ support allows more dollars to directly support our mission to end MS. Thank you also to sponsors Pop Chips, EMD Serono, Teva Neuroscience, Biogen, Barefoot Winery, Venoco and BJ’s.

Register now for Bike MS 2010 October 16 & 17

2 days. 15 – 160 miles. bikeMSsocal.org

Team NOW-MS Society

Mayor Don Kurth & Dee Matreyek Kurth, Janelle & Randall Lewis, Mike Radlovic

Paul Severloh, Kiana Webb Severloh, Reggie & René Webb, Karim Webb, Kyle Webb

Joe Mantegna, Marilyn Wilson Moore and Shemar Moore

Chuck Carpenter, Nathan Russell, and Gary Grahm



The Dinner of Champions Inland Empire on January 28th at the Red Hill Country Club in Rancho Cucamonga was a tremendous success. The event, which raised more than $70,000 in its first year, honored Chapter trustee René Webb.

René was diagnosed with MS in 1983. Though the disease progressed quickly, over the years, she has improved from using a scooter, to a wheelchair, to a walking stick. She said, “I attribute this improvement to the encouragement and support of family and friends, lots of prayer and to Society-sponsored programs I have participated in. The Society has made a positive difference in my life, for my husband Reggie and for our children Kiana, Karim and Kyle.”

René has been giving back to the Chapter for the last decade by participating annually in Walk MS. Last year, while printing Walk MS flyers to include with McDonald’s orders in her stores (she and Reggie own 11), René had a chance meeting with commercial real estate broker Mike Radlovic. She related her story about her diagnosis and her experiences with MS. She told of how her Walk team grew from a small group raising $850 in its first year to a larger group that raised over $32,000 in 2009. Mike

was inspired by how René faced the challenges of life with MS head on, and how the disease didn’t stop her from traveling the world and from her tremendous fundraising to help others living with MS. He set the ball in motion for the Dinner and helped to recruit prominent community leaders to get involved.

Randall Lewis stepped forward to emcee the Dinner program and guests danced to the music of The Earley Express band. René’s three children presented a heartfelt tribute their mother. Thank you to chairs: Chuck Carpenter, Nathan Russell, Dr. Randy Karu, Mayor Don Kurth & Dee Matreyek Kurth, Randall Lewis, Richard Lewis, Mike Radlovic and Councilman Tom Thomas for their support. Many thanks also to our host Webb Family Enterprises, Inc.; our sponsors Crowell, Weedon & Co. and EMD Serono, Inc.; and to all of the donors who supported this fantastic evening.

INAUGURAL INLAND EMPIRE DINNER BIKE MS BREAKS RECORDS inland Empire

The Bike MS Southern California Ride 2009 was a tremendous success, with close to1,300 cyclists and volunteers raising nearly $1.2 million. Congratulations and thank you!

Many thanks to each and every cyclist, team, and volunteer who participated in making this year’s ride a success, especially our Century Club members and Elite Teams.

Team NOW-MS Society had an incredible year with Phil Keoghan’s Ride Across America event that brought much needed awareness for multiple sclerosis as well as a phenomenal $500,000+ in donations. On top of that, the team members really

pushed themselves and worked hard to raise an additional $116,196 and earn themselves the #1 fundraising team spot.

Criminal Minds’ star Shemar Moore participated in the Bike MS ride for the fourth time, even after his accident early that summer. There was nothing stopping him to show his support for the cause. We really appreciate his dedication to our mission. Participants opted for one or two days of cycling, ranging from 30 to 160 miles. All cyclists enjoyed themed rest stops every 10 to 15 miles and a festival at our new location at the San Buenaventura State Beach, complete with massages, an expo, and entertainment. On Sunday, more than 500 cyclists continued to finish strong with either a 30 or 60 mile route battling winds along the way. It was definitely a weekend to remember.

Thank you to gold sponsors Sam’s Club and SoyJoy for making the event possible. From the monetary donations that help underwrite the costs of this event to the in-kind donations that helped stock rest stops and feed cyclists, our sponsors’ support allows more dollars to directly support our mission to end MS. Thank you also to sponsors Pop Chips, EMD Serono, Teva Neuroscience, Biogen, Barefoot Winery, Venoco and BJ’s.

Register now for Bike MS 2010 October 16 & 17

2 days. 15 – 160 miles. bikeMSsocal.org

Team NOW-MS Society

Mayor Don Kurth & Dee Matreyek Kurth, Janelle & Randall Lewis, Mike Radlovic

Paul Severloh, Kiana Webb Severloh, Reggie & René Webb, Karim Webb, Kyle Webb

Joe Mantegna, Marilyn Wilson Moore and Shemar Moore

Chuck Carpenter, Nathan Russell, and Gary Grahm


ADVOCACyADVOCACy VOLUNTEERSSPECIAL EVENTS

Join the 17th annual MS Golf Classic on Monday, June 7, 2010 at the scenic Robinson Ranch Golf Club course in Santa Clarita, CA. Enjoy 18 holes on a world-championship course, delicious meals, and a variety of fun and challenging contests. Invite family and friends to join you in the evening for the dinner program and live auction. Past auctions have featured sports and movie memorabilia that included Mohammad Ali signed boxing gloves, suites at the Lakers or Clippers games, and golf vacations. The highest bidder not only takes home the prize but also the satisfaction that their bid helps fund cutting-edge MS research and vital programs and services for people with MS and their loved ones.

Many thanks to Ernst & Young for sponsoring this year’s tournament and to Lexus for donating cars as hole-in-one prizes. Thank you also to Chair James Hecker and his committee of volunteers for their support.

Register now at MSgolfclassic.com or call Jon May at 661.945.9111 for more information.

GOLF FORE! MS

Donna Sam and her sister Jo Anne, who has been living with MS for 40 years, organized the 3rd

Annual Dorothy L. Sam Memorial 5K Walk for MS in Long Beach in October. The walk was to honor their mom and also raise awareness and funds for the Chapter. Their mother, Dorothy Sam, was a vocal advocate for finding a cure for MS.

The Inky-Dinky-Do photography studio transformed into the “Witch’s Studio” once again. Every October for two days, owner Stephanie Deveau offers Halloween picture packages, with all proceeds going to a charity. For 2009, Deveau donated to the National MS Society. She raised $1,310 during the two-day event.

On November 5th, Tory Burch Los Angeles hosted an exclusive evening of shopping and cocktails to benefit the Chapter.

Thank you to CB&A for hosting “CB&A Moves to Stop MS” on Friday, November 6th at Wilshire restaurant in Santa Monica. Attendees enjoyed great music, drink specials and a raffle. The event spread MS awareness and raised funds for the Chapter.

Chris Ojakian and Iran Daniel chaired the 2nd annual Ojakian Tennis Celebrity Pro-Am to End MS on November 14th at the Jack Kramer Club in Rolling Hills Estates. The day began with energetic tennis clinics for kids and adults, followed by the official Pro-Am, and then a lively cocktail party. Attendees enjoyed fantastic meals, and bid on terrific items in the silent and live auctions. Pro Tracy Austin received the 2009 Power of Performance Award for raising MS awareness in support of her brother John Austin, who has MS. John and Tracy were the first brother-sister team to win Wimbledon. Many thanks to chairs Chris Ojakian and Iran Daniel, host Tracy Austin, and the staff and members of the Jack Kramer Club for their support. Thank you also to the many pros and celebrities who were involved. The event raised more than $40,000 to support the Chapter’s programs and services.

The Association of Petroleum Wives (APW) in Bakersfield has chosen the National MS Society as one of its four charities to receive proceeds for their signature events in 2010. The biggest event is the Charity Sporting Clay Shoot to be held at the Kern County Gun Club in April. It draws close to 30 teams and raises between $15,000 and $18,000 every year. The APW’s other signature event is a Bunco Night, which will be held March 11th at the Bakersfield Petroleum Club during MS Awareness Week. APW already raised about $2,700 at its Kickoff Gala held last October. APW member Lynn Califf said, “These events are run really well, and we raise a little money, and have a lot of fun.”

If you want to make significant strides toward creating a world free of MS, consider

being part of Challenge Walk MS. This three-day, fifty-mile walk from Carlsbad to San Diego is an experience that will impact your life forever. Here’s just one woman’s experience:

“I would like to tell you about someone very special to me: my mom. She lives with multiple sclerosis. My mom was with me every step of the way growing up and now I am taking steps for her. This is why I registered for Challenge Walk MS.

I cannot express the feelings I had as I finished the Challenge. There were hundreds of people I had gotten to know over the weekend and we all walked the last mile as one, united in our goal to stop MS. As we came through the arch, I saw my mom. I felt so accomplished. The tears wouldn’t stop. I had finished.

I collapsed into my mom’s arms. There was so much pride, so much love, so much passing between us with no words. That hug is the reason why I did all of this. And that hug is the reason why I am doing it again.”

~ Jillian

ACCEPT THE CHALLENGE OF A LIFETIME

Register Today

Challenge Walk 2010 September 24 – 26 Carlsbad to San DiegoVisit myMSchallenge.com or call Jennifer Gaylord at 909.949.1363 or 800.344.4867.

Golf Classic

17th Annual

Jillian and her mom embrace at the 2009 Challenge Walk Stephanie Deveau and

San Joaquin Valley Director Kim Kotrla


ADVOCACyADVOCACy VOLUNTEERSSPECIAL EVENTS

Join the 17th annual MS Golf Classic on Monday, June 7, 2010 at the scenic Robinson Ranch Golf Club course in Santa Clarita, CA. Enjoy 18 holes on a world-championship course, delicious meals, and a variety of fun and challenging contests. Invite family and friends to join you in the evening for the dinner program and live auction. Past auctions have featured sports and movie memorabilia that included Mohammad Ali signed boxing gloves, suites at the Lakers or Clippers games, and golf vacations. The highest bidder not only takes home the prize but also the satisfaction that their bid helps fund cutting-edge MS research and vital programs and services for people with MS and their loved ones.

Many thanks to Ernst & Young for sponsoring this year’s tournament and to Lexus for donating cars as hole-in-one prizes. Thank you also to Chair James Hecker and his committee of volunteers for their support.

Register now at MSgolfclassic.com or call Jon May at 661.945.9111 for more information.

GOLF FORE! MS

Donna Sam and her sister Jo Anne, who has been living with MS for 40 years, organized the 3rd

Annual Dorothy L. Sam Memorial 5K Walk for MS in Long Beach in October. The walk was to honor their mom and also raise awareness and funds for the Chapter. Their mother, Dorothy Sam, was a vocal advocate for finding a cure for MS.

The Inky-Dinky-Do photography studio transformed into the “Witch’s Studio” once again. Every October for two days, owner Stephanie Deveau offers Halloween picture packages, with all proceeds going to a charity. For 2009, Deveau donated to the National MS Society. She raised $1,310 during the two-day event.

On November 5th, Tory Burch Los Angeles hosted an exclusive evening of shopping and cocktails to benefit the Chapter.

Thank you to CB&A for hosting “CB&A Moves to Stop MS” on Friday, November 6th at Wilshire restaurant in Santa Monica. Attendees enjoyed great music, drink specials and a raffle. The event spread MS awareness and raised funds for the Chapter.

Chris Ojakian and Iran Daniel chaired the 2nd annual Ojakian Tennis Celebrity Pro-Am to End MS on November 14th at the Jack Kramer Club in Rolling Hills Estates. The day began with energetic tennis clinics for kids and adults, followed by the official Pro-Am, and then a lively cocktail party. Attendees enjoyed fantastic meals, and bid on terrific items in the silent and live auctions. Pro Tracy Austin received the 2009 Power of Performance Award for raising MS awareness in support of her brother John Austin, who has MS. John and Tracy were the first brother-sister team to win Wimbledon. Many thanks to chairs Chris Ojakian and Iran Daniel, host Tracy Austin, and the staff and members of the Jack Kramer Club for their support. Thank you also to the many pros and celebrities who were involved. The event raised more than $40,000 to support the Chapter’s programs and services.

The Association of Petroleum Wives (APW) in Bakersfield has chosen the National MS Society as one of its four charities to receive proceeds for their signature events in 2010. The biggest event is the Charity Sporting Clay Shoot to be held at the Kern County Gun Club in April. It draws close to 30 teams and raises between $15,000 and $18,000 every year. The APW’s other signature event is a Bunco Night, which will be held March 11th at the Bakersfield Petroleum Club during MS Awareness Week. APW already raised about $2,700 at its Kickoff Gala held last October. APW member Lynn Califf said, “These events are run really well, and we raise a little money, and have a lot of fun.”

If you want to make significant strides toward creating a world free of MS, consider

being part of Challenge Walk MS. This three-day, fifty-mile walk from Carlsbad to San Diego is an experience that will impact your life forever. Here’s just one woman’s experience:

“I would like to tell you about someone very special to me: my mom. She lives with multiple sclerosis. My mom was with me every step of the way growing up and now I am taking steps for her. This is why I registered for Challenge Walk MS.

I cannot express the feelings I had as I finished the Challenge. There were hundreds of people I had gotten to know over the weekend and we all walked the last mile as one, united in our goal to stop MS. As we came through the arch, I saw my mom. I felt so accomplished. The tears wouldn’t stop. I had finished.

I collapsed into my mom’s arms. There was so much pride, so much love, so much passing between us with no words. That hug is the reason why I did all of this. And that hug is the reason why I am doing it again.”

~ Jillian

ACCEPT THE CHALLENGE OF A LIFETIME

Register Today

Challenge Walk 2010 September 24 – 26 Carlsbad to San DiegoVisit myMSchallenge.com or call Jennifer Gaylord at 909.949.1363 or 800.344.4867.

Golf Classic

17th Annual

Jillian and her mom embrace at the 2009 Challenge Walk Stephanie Deveau and

San Joaquin Valley Director Kim Kotrla


ADVOCACyADVOCACy NEWSNEWS

HOW WILL yOU MOVE IT?Move it to end MS during Awareness Week, March 8 – 14, 2010!

Form a Walk MS, Bike MS or Challenge Walk •

MS team. Or, if you already have one, use MS Awareness Week to kick-off or boost your fundraising and recruitment efforts.

Social Network “Chatting” – post messages •

in online forums, social networking sites, etc. announcing MS Awareness Week and encouraging others to Move It. Download digital badges and web banners at nationalMSsociety.org.

Get Involved: Join an MS Awareness •

Week event in your neighborhood. Visit nationalMSsociety.org/cal to find fundraisers, educational programs and more throughout our 12 counties.

Learn more about MS: Join the "Living with •

Progressive MS" teleconference on March 8th, featuring Dr. Patricia Coyle (more info on p.7).

Join the 1946 Society. MS Awareness •

Week commemorates the time when Sylvia Lawry’s search for answers about her brother’s newly diagnosed MS led her to establish the National MS Society in 1946. What better time than now to join the 1946 Society? All you have to do is make a monthly gift of $19.46 or any amount ending in 9.46 (e.g. $29.46, $59.46, etc.). Visit nationalMSsociety.org/cal1946Society.

Be creative…the ideas are endless! And please, share your ideas with us so we can spread the word. Call 800.344.4867 with questions or for more information.

“WE KEEP MOVING” Beginning March 9 during National MS Awareness Week and culminating ten weeks later in New York City on World MS Day, We Keep Moving will seek to unite millions of people affected by MS through a series of online video stories that chronicle the challenges and triumphs of life with MS, and everything between.

Taking the public on a road trip across America,people affected by MS — from those living with the disease, to caregivers, to those who raise funds for the cause — submitted their own stories at wekeepmoving.org for consideration. A committee that includes people living with MS reviewed these submissions to select the finalists.

Each week, finalist stories will be shared at the program’s Web site, where your vote will help to decide which story will be filmed and where our road crew will travel next on this cross-country journey. The road crew is made up of three creative professionals who are living with MS and are on their own journeys to share what it means to live with a disease whose hallmark is unpredictability.

Get involved todayTo share in this journey, visit wekeepmoving.org. Every week, new finalists will be highlighted for public vote, and a new video story of someone living with MS will be posted for viewing and sharing.

PAUL MAHONEy ELECTED CHAPTER CHAIR

Paul M. Mahoney, Esq., an attorney and partner at Claremont's Mahoney & Soll, LLP, was unanimously elected to serve as the Chapter’s Chair of the Board of Trustees. Paul got involved with the Chapter after his daughter Kim was diagnosed with MS in 1995, when she was just 23 years old.

In 2005, as Kim’s symptoms progressed and she faced an early retirement from her teaching career, Paul decided it was time to increase his commitment to the Society. He joined the Board and signed on to the Golden Circle fundraising committee. Paul has been instrumental in securing sponsorship dollars and donations — both in-kind and cash —for many other fundraising campaigns including Walk MS, Challenge Walk, and the Dinner of Champions Inland Empire.

When asked why Paul is so determined to fundraise, he responded, “We absolutely owe it to Kim and all others with MS to do everything possible, financially and otherwise, to make their lives better and to come up with a cure. I am proud to be a member of the Southern California Chapter of the National MS Society and I look forward to continue working with everyone to find a cure for MS.” Paul assumed the role as Chair on December 10 and will serve from 2010 through 2012.

TOM KUHN TO LEAD THE SOCIETy’S NATIONAL BOARD At the Leadership Meeting in Chicago in November, Tom Kuhn accepted the responsibility of being the Society’s top volunteer leader, as chair of the National Board of Directors.

“Tom will see the organization through many coming changes,” said Joyce Nelson, the Society CEO, in welcoming the new leader.

“As oral medications enter the marketplace, the world of MS stands to be transformed,” Kuhn said. “The Society must do all it can to ensure access to MS medications. The role of volunteers in this work can’t be overemphasized.”

Kuhn, who is president of the Edison Electric Institute, a Washington consortium representing the nation’s electric power companies, exemplifies the skilled volunteer leadership to which he refers. He has served the Society as a National Board member since 1997 and is a longtime trustee and chair emeritus of the National Capital Chapter in Washington, D.C. He brings deep knowledge of marketplace economics and organizational dynamics to his newest responsibility.

“I can’t think of anyone better positioned to help us move into the future,” said the outgoing chair, Weyman Johnson, who received heartfelt thanks from the Society for his impressive service to the MS community.

Leon LeBuffe and Paul Mahoney


ADVOCACyADVOCACy NEWSNEWS

HOW WILL yOU MOVE IT?Move it to end MS during Awareness Week, March 8 – 14, 2010!

Form a Walk MS, Bike MS or Challenge Walk •

MS team. Or, if you already have one, use MS Awareness Week to kick-off or boost your fundraising and recruitment efforts.

Social Network “Chatting” – post messages •

in online forums, social networking sites, etc. announcing MS Awareness Week and encouraging others to Move It. Download digital badges and web banners at nationalMSsociety.org.

Get Involved: Join an MS Awareness •

Week event in your neighborhood. Visit nationalMSsociety.org/cal to find fundraisers, educational programs and more throughout our 12 counties.

Learn more about MS: Join the "Living with •

Progressive MS" teleconference on March 8th, featuring Dr. Patricia Coyle (more info on p.7).

Join the 1946 Society. MS Awareness •

Week commemorates the time when Sylvia Lawry’s search for answers about her brother’s newly diagnosed MS led her to establish the National MS Society in 1946. What better time than now to join the 1946 Society? All you have to do is make a monthly gift of $19.46 or any amount ending in 9.46 (e.g. $29.46, $59.46, etc.). Visit nationalMSsociety.org/cal1946Society.

Be creative…the ideas are endless! And please, share your ideas with us so we can spread the word. Call 800.344.4867 with questions or for more information.

“WE KEEP MOVING” Beginning March 9 during National MS Awareness Week and culminating ten weeks later in New York City on World MS Day, We Keep Moving will seek to unite millions of people affected by MS through a series of online video stories that chronicle the challenges and triumphs of life with MS, and everything between.

Taking the public on a road trip across America,people affected by MS — from those living with the disease, to caregivers, to those who raise funds for the cause — submitted their own stories at wekeepmoving.org for consideration. A committee that includes people living with MS reviewed these submissions to select the finalists.

Each week, finalist stories will be shared at the program’s Web site, where your vote will help to decide which story will be filmed and where our road crew will travel next on this cross-country journey. The road crew is made up of three creative professionals who are living with MS and are on their own journeys to share what it means to live with a disease whose hallmark is unpredictability.

Get involved todayTo share in this journey, visit wekeepmoving.org. Every week, new finalists will be highlighted for public vote, and a new video story of someone living with MS will be posted for viewing and sharing.

PAUL MAHONEy ELECTED CHAPTER CHAIR

Paul M. Mahoney, Esq., an attorney and partner at Claremont's Mahoney & Soll, LLP, was unanimously elected to serve as the Chapter’s Chair of the Board of Trustees. Paul got involved with the Chapter after his daughter Kim was diagnosed with MS in 1995, when she was just 23 years old.

In 2005, as Kim’s symptoms progressed and she faced an early retirement from her teaching career, Paul decided it was time to increase his commitment to the Society. He joined the Board and signed on to the Golden Circle fundraising committee. Paul has been instrumental in securing sponsorship dollars and donations — both in-kind and cash —for many other fundraising campaigns including Walk MS, Challenge Walk, and the Dinner of Champions Inland Empire.

When asked why Paul is so determined to fundraise, he responded, “We absolutely owe it to Kim and all others with MS to do everything possible, financially and otherwise, to make their lives better and to come up with a cure. I am proud to be a member of the Southern California Chapter of the National MS Society and I look forward to continue working with everyone to find a cure for MS.” Paul assumed the role as Chair on December 10 and will serve from 2010 through 2012.

TOM KUHN TO LEAD THE SOCIETy’S NATIONAL BOARD At the Leadership Meeting in Chicago in November, Tom Kuhn accepted the responsibility of being the Society’s top volunteer leader, as chair of the National Board of Directors.

“Tom will see the organization through many coming changes,” said Joyce Nelson, the Society CEO, in welcoming the new leader.

“As oral medications enter the marketplace, the world of MS stands to be transformed,” Kuhn said. “The Society must do all it can to ensure access to MS medications. The role of volunteers in this work can’t be overemphasized.”

Kuhn, who is president of the Edison Electric Institute, a Washington consortium representing the nation’s electric power companies, exemplifies the skilled volunteer leadership to which he refers. He has served the Society as a National Board member since 1997 and is a longtime trustee and chair emeritus of the National Capital Chapter in Washington, D.C. He brings deep knowledge of marketplace economics and organizational dynamics to his newest responsibility.

“I can’t think of anyone better positioned to help us move into the future,” said the outgoing chair, Weyman Johnson, who received heartfelt thanks from the Society for his impressive service to the MS community.

Leon LeBuffe and Paul Mahoney


ADVOCACyADVOCACy RESEARCHRESEARCH

According to the sponsor, Ampyra is expected to be ready for prescription by March 2010. A new Society video webcast/podcast from MS Learn Online that discusses Ampyra is now available at nationalMSsociety.org/MSLearnOnline. Acorda has established a phone line that individuals may call for information at 888.881.1918.

Also in January, positive clinical trial results involving two oral MS therapies in the pipeline — cladribine tablets and fingolimod capsules — were published by the New England Journal of Medicine. A potent chemotherapy drug, cladribine kills immune T cells and B cells, both of which are thought to be involved in immune attacks in MS. Fingolimod (or FTY720), an immunosuppressant, keeps harmful immune cells out of the brain and spinal cord where they can cause the damage seen in MS. Oral cladribine (sponsored by EMD Serono) and fingolimod (sponsored by Novartis) have both been shown to have benefit in reducing MS relapses and slowing progression in relapsing-remitting MS. This is encouraging news for people with MS, many of whom have been waiting for the convenience of an oral therapy.

These are just two of a number of experimental MS drugs that are making news. The phase II/III estriol trial recently received an additional $860,440 in grant funding through the American Recovery and Reinvestment Act. This trial which was launched at UCLA, thanks to a $4.6 million pledge from the Chapter, is now enrolling at 16 sites nationwide. There are also the anti-inflammatories: BG00012 (or BG-12), Laquinimod and Teriflunomide. All are taken as pills.

For even more information about the oral MS drugs— including clinical trials that are currently recruiting participants—visit nationalMSsociety.org/news and type the name of a drug into the search field.

The time from here to there The era of the oral MS drugs begins this year. But that doesn’t mean that every drug being tested now will be available this year—or even next. And it’s always possible that a therapy, however promising, will be sent back to the drawing board. Minocycline, an antibiotic in pill form, is currently being studied in a phase III clinical trial—the last step before submission to the FDA for approval—but the study won’t be completed until at least late 2015. And FDA approval could take as long as six months to a year after that.

CONTINUED FROM FRONT COVER

Recent preliminary studies indicate that a phenomenon called CCSVI, a reported abnormality in blood drainage from the brain and spinal cord, may contribute to nervous system damage in MS. This hypothesis has been put forth by Dr. Paulo Zamboni from the University of Ferrara in Italy. Dr. Zamboni proposes that CCSVI may be corrected through endovascular surgery, which involves inserting a tiny balloon or stent into blocked veins in order to permit the flow of blood out of the brain and spinal cord, a procedure that has been called “liberation therapy” in some reports.

The National MS Society is pursuing this potential lead by undertaking the funding of new research on CCSVI in MS and has invited investigators worldwide to apply for grants. We are also working with our sister MS Societies around the world to assure that our research strategies are coordinated. Through an internationally coordinated and expedited review process, new CCSVI research projects are expected to begin July 1, 2010.

Many questions remain about how and when this phenomenon might play a role in nervous system

damage seen in MS, and at the present time there is insufficient evidence to prove that CCSVI is the cause of MS. However, if this hypothesis is confirmed, it could open up new research avenues into the underlying pathology of MS and new treatment approaches to therapy.

As new CCSVI information becomes available, it will be posted at nationalMSsociety.org.

Thanks to the thousands of MS activists nationwide for their tireless efforts, $4.5 million has been appropriated within the FY 2010 Congressionally Directed Medical Research Programs (CDMRP) for MS research. This program is funded through the Defense Department at the direction of Congress and was signed on December 19th by the President.

“Emerging evidence has shown that combat veterans could be at an increased risk of developing MS. This continued opportunity is of great benefit to not only our nation’s 28,000 veterans living with MS, but to everyone and every family touched by the disease,” said Joyce Nelson, the Society’s President and CEO.

Visit nationalMSsociety.org/advocacy to sign up today to be an MS activist.

CCSVI MAKING HEADLINES

DEFENSE DEPT FUNDS MS RESEARCH

National Multiple Sclerosis Society leaders met with Paulo zamboni, MD (2nd from left), on

February 9th in advance of his invited lecture at New york University’s MS Center of Excellence.

GET TO KNOW THEM BY NAME

Atorvastatin (Lipitor)BG00012 (dimethyl fumarate)CladribineEstriolFampridine-SRFingolimod (FTY720)Lamotrigine (Lamictal)LaquinimodMinocyclineMN-166Pioglitazone (Actos)Riluzole (Rilutek)SB-683699Teriflunomide


ADVOCACyADVOCACy RESEARCHRESEARCH

According to the sponsor, Ampyra is expected to be ready for prescription by March 2010. A new Society video webcast/podcast from MS Learn Online that discusses Ampyra is now available at nationalMSsociety.org/MSLearnOnline. Acorda has established a phone line that individuals may call for information at 888.881.1918.

Also in January, positive clinical trial results involving two oral MS therapies in the pipeline — cladribine tablets and fingolimod capsules — were published by the New England Journal of Medicine. A potent chemotherapy drug, cladribine kills immune T cells and B cells, both of which are thought to be involved in immune attacks in MS. Fingolimod (or FTY720), an immunosuppressant, keeps harmful immune cells out of the brain and spinal cord where they can cause the damage seen in MS. Oral cladribine (sponsored by EMD Serono) and fingolimod (sponsored by Novartis) have both been shown to have benefit in reducing MS relapses and slowing progression in relapsing-remitting MS. This is encouraging news for people with MS, many of whom have been waiting for the convenience of an oral therapy.

These are just two of a number of experimental MS drugs that are making news. The phase II/III estriol trial recently received an additional $860,440 in grant funding through the American Recovery and Reinvestment Act. This trial which was launched at UCLA, thanks to a $4.6 million pledge from the Chapter, is now enrolling at 16 sites nationwide. There are also the anti-inflammatories: BG00012 (or BG-12), Laquinimod and Teriflunomide. All are taken as pills.

For even more information about the oral MS drugs— including clinical trials that are currently recruiting participants—visit nationalMSsociety.org/news and type the name of a drug into the search field.

The time from here to there The era of the oral MS drugs begins this year. But that doesn’t mean that every drug being tested now will be available this year—or even next. And it’s always possible that a therapy, however promising, will be sent back to the drawing board. Minocycline, an antibiotic in pill form, is currently being studied in a phase III clinical trial—the last step before submission to the FDA for approval—but the study won’t be completed until at least late 2015. And FDA approval could take as long as six months to a year after that.

CONTINUED FROM FRONT COVER

Recent preliminary studies indicate that a phenomenon called CCSVI, a reported abnormality in blood drainage from the brain and spinal cord, may contribute to nervous system damage in MS. This hypothesis has been put forth by Dr. Paulo Zamboni from the University of Ferrara in Italy. Dr. Zamboni proposes that CCSVI may be corrected through endovascular surgery, which involves inserting a tiny balloon or stent into blocked veins in order to permit the flow of blood out of the brain and spinal cord, a procedure that has been called “liberation therapy” in some reports.

The National MS Society is pursuing this potential lead by undertaking the funding of new research on CCSVI in MS and has invited investigators worldwide to apply for grants. We are also working with our sister MS Societies around the world to assure that our research strategies are coordinated. Through an internationally coordinated and expedited review process, new CCSVI research projects are expected to begin July 1, 2010.

Many questions remain about how and when this phenomenon might play a role in nervous system

damage seen in MS, and at the present time there is insufficient evidence to prove that CCSVI is the cause of MS. However, if this hypothesis is confirmed, it could open up new research avenues into the underlying pathology of MS and new treatment approaches to therapy.

As new CCSVI information becomes available, it will be posted at nationalMSsociety.org.

Thanks to the thousands of MS activists nationwide for their tireless efforts, $4.5 million has been appropriated within the FY 2010 Congressionally Directed Medical Research Programs (CDMRP) for MS research. This program is funded through the Defense Department at the direction of Congress and was signed on December 19th by the President.

“Emerging evidence has shown that combat veterans could be at an increased risk of developing MS. This continued opportunity is of great benefit to not only our nation’s 28,000 veterans living with MS, but to everyone and every family touched by the disease,” said Joyce Nelson, the Society’s President and CEO.

Visit nationalMSsociety.org/advocacy to sign up today to be an MS activist.

CCSVI MAKING HEADLINES

DEFENSE DEPT FUNDS MS RESEARCH

National Multiple Sclerosis Society leaders met with Paulo zamboni, MD (2nd from left), on

February 9th in advance of his invited lecture at New york University’s MS Center of Excellence.

GET TO KNOW THEM BY NAME

Atorvastatin (Lipitor)BG00012 (dimethyl fumarate)CladribineEstriolFampridine-SRFingolimod (FTY720)Lamotrigine (Lamictal)LaquinimodMinocyclineMN-166Pioglitazone (Actos)Riluzole (Rilutek)SB-683699Teriflunomide


ADVOCACyADVOCACy FUNDRAISINGGOLDEN CIRCLE

On November 11, 2009, John Murphy and Mike Streit graciously hosted and underwrote a Golden Circle research reception at their home in Long Beach. Thanks to John and Mike’s generous hospitality, attendees had the opportunity to learn about the Southern California Chapter and its investment in critical research. Those in attendance included several Chapter Board members, Golden Circle donors and new Society friends. The evening featured Dr. John Richert, the National MS Society’s Executive Vice President for Research and Clinical Programs.

Dr. Richert reported on Promise: 2010 and current progress in MS research. Guests enjoyed an elegant and intimate evening, accentuated by beautiful décor, wine and savory hors d’oeuvres. Golden Circle is proud to announce that the event was a true success — several sizable gifts and pledges were made in support of the Chapter and its $3 million pledge for Promise: 2010 research.

Developing relationships and building bridges within the community is crucial to our continued ability to provide essential programs and services, fund MS research, and grow the Golden Circle campaign. If you or someone you know is interested in hosting or underwriting a salon event at your home, business/country club, or other location, please contact Elicia Lopez at 310.479.4456 ext. 111 or [email protected].

HOSTS FOR A CURE A THOUGHT THAT COUNTS IN MORE WAyS THAN ONEThis spring, tell your friend he or she is appreciated; send your love to dad on Father’s Day; thank mom on Mother’s Day for all that she has done; congratulate newlyweds or remember someone very special. The Society’s Tributes and Memorials campaign is an opportunity for anyone with a connection to MS to make a meaningful gift in honor or in memory of someone you care about. Your contribution to the Society’s Tributes and Memorials campaign supports critical MS research, programs, advocacy and MS awareness. When you make a tribute or memorial gift, the Society sends a beautifully personalized card to the designated honoree(s), and informs them that your gift was made in their honor.

Alternatively, you can build a living tribute or memorial Web page through the Society’s online Tribute & Memorial Funds. You can easily personalize your Web page with your own collection of photos and stories, creating a sentimental place for friends and family to visit or participate by signing your guestbook. The Funds also offer visitors the opportunity to make an online donation on behalf of your honoree, while easy-to-use tools help you navigate and track the donations.

To make a gift, learn more about the Society’s Tributes and Memorials campaign, or to create a Fund of your own, visit nationalMSsociety.org/calTM or contact Connie Smith at 310.479.4456 ext. 106.

Dan Hawkins, John Murphy, and Mike Streit

Leon LeBuffe, Dr. John Richert and John Murphy

Susan Bradley and John Murphy

Dr. John Richert and Julie Kaufer Carole, diagnosed in 2005

With our National MS Society Charitable Gift Annuity we fund medical research. We receive fixed payments for life and help scientists find a cure for MS. And it helps the MS community move forward.

Contact the Society and ask how your annuity can support MS research. JOIN THE MOVEMENT® IN A POWERFUL WAy.

Contact Kate McIntosh at 310.479.4456 ext. 124 [email protected]


ADVOCACyADVOCACy FUNDRAISINGGOLDEN CIRCLE

On November 11, 2009, John Murphy and Mike Streit graciously hosted and underwrote a Golden Circle research reception at their home in Long Beach. Thanks to John and Mike’s generous hospitality, attendees had the opportunity to learn about the Southern California Chapter and its investment in critical research. Those in attendance included several Chapter Board members, Golden Circle donors and new Society friends. The evening featured Dr. John Richert, the National MS Society’s Executive Vice President for Research and Clinical Programs.

Dr. Richert reported on Promise: 2010 and current progress in MS research. Guests enjoyed an elegant and intimate evening, accentuated by beautiful décor, wine and savory hors d’oeuvres. Golden Circle is proud to announce that the event was a true success — several sizable gifts and pledges were made in support of the Chapter and its $3 million pledge for Promise: 2010 research.

Developing relationships and building bridges within the community is crucial to our continued ability to provide essential programs and services, fund MS research, and grow the Golden Circle campaign. If you or someone you know is interested in hosting or underwriting a salon event at your home, business/country club, or other location, please contact Elicia Lopez at 310.479.4456 ext. 111 or [email protected].

HOSTS FOR A CURE A THOUGHT THAT COUNTS IN MORE WAyS THAN ONEThis spring, tell your friend he or she is appreciated; send your love to dad on Father’s Day; thank mom on Mother’s Day for all that she has done; congratulate newlyweds or remember someone very special. The Society’s Tributes and Memorials campaign is an opportunity for anyone with a connection to MS to make a meaningful gift in honor or in memory of someone you care about. Your contribution to the Society’s Tributes and Memorials campaign supports critical MS research, programs, advocacy and MS awareness. When you make a tribute or memorial gift, the Society sends a beautifully personalized card to the designated honoree(s), and informs them that your gift was made in their honor.

Alternatively, you can build a living tribute or memorial Web page through the Society’s online Tribute & Memorial Funds. You can easily personalize your Web page with your own collection of photos and stories, creating a sentimental place for friends and family to visit or participate by signing your guestbook. The Funds also offer visitors the opportunity to make an online donation on behalf of your honoree, while easy-to-use tools help you navigate and track the donations.

To make a gift, learn more about the Society’s Tributes and Memorials campaign, or to create a Fund of your own, visit nationalMSsociety.org/calTM or contact Connie Smith at 310.479.4456 ext. 106.

Dan Hawkins, John Murphy, and Mike Streit

Leon LeBuffe, Dr. John Richert and John Murphy

Susan Bradley and John Murphy

Dr. John Richert and Julie Kaufer Carole, diagnosed in 2005

With our National MS Society Charitable Gift Annuity we fund medical research. We receive fixed payments for life and help scientists find a cure for MS. And it helps the MS community move forward.

Contact the Society and ask how your annuity can support MS research. JOIN THE MOVEMENT® IN A POWERFUL WAy.

Contact Kate McIntosh at 310.479.4456 ext. 124 [email protected]



The Chapter is very fortunate to have so many volunteers contribute their time and talents to the movement to create a world free of MS. The following five individuals and companies received the Chapter’s highest awards for their efforts in 2009.

Eric Small received the Norm Cohn Hope Award for his vision and leadership. Eric was diagnosed with MS in 1951 and soon after, he discovered yoga. Today, at 79 years old, Eric is a testament to yoga's power to live well with the disease. He began what became a lifelong mission to help others with MS to go beyond their limitation and live life to the fullest. The Eric Small Adaptive Iyengar Yoga Program reaches 400 people annually. Eric also helped obtain grants to support the Chapter’s wellness programming. In 2005, he worked to secure a grant from the Flora L. Thornton Foundation for $1 million to establish The Eric Small Centers for Optimal Living with MS. Eric Small is a man who recognized a problem, used his resourcefulness and perseverance to improve his life, and ultimately touched and improved the lives of thousands throughout the country.

Julie Kaufer earned the Grisanti Most Valuable Trustee award for her leadership as Chapter Chair from 2007 through 2009. She also served as chair of the Golden Circle committee, which has raised several million dollars in just the last three years for MS research and programs. During her tenure, the Chapter expanded to include the San Joaquin Valley; completed its $3 million commitment to Promise 2010 research; and fulfilled a $4.6 million pledge to Dr. Rhonda Voskuhl’s phase II estriol trial at UCLA.

Special event participant extraordinaire Traci Engelman received the Volunteer of the Year award for being a tremendous ambassador and fundraiser. Traci is not only Walk MS captain of Team Engelman which in 2009 raised over $51,000; she is also the team captain of the Rowdy Riders Bike MS team which raised more than $92,000 last year. Traci organizes fundraisers at restaurants, local hikes and other fun events throughout the year to raise MS awareness, recruit team members and raise money.

CREAM OF THE CROP

Time to Reconnect?

Diagnosed with MS five years ago, Van Roberts was interested in using his expertise in the home building industry to address the limited housing options available for people with MS and disabilities in Bakersfield. He knew

that the most important first step was to keep people in their own

homes. In partnership with the Chapter, Van created the unique “Around the House: Home Improvements to Meet Your Changing Needs” program. Van received the Sylvia Lawry Founder of the Year award for developing and implementing this innovative and extremely beneficial new program that teaches

people with MS and their families how to make design modifications on the smallest or biggest of budgets to make life at home safer, easier and more comfortable.

Brutoco Engineering & Construction, Inc. was honored with the Corporate Luminary award. The Fontana-based contracting company supports the Chapter in several meaningful ways. Brutoco generously stepped in 2010 as the Walk MS presenting sponsor for second time. For the last 3 years, the company has provided trucks for use at the Challenge Walk MS. The President of Brutoco, Mike Murphy, personally drove one of the trucks in support of the cause. Other officers, employees and friends assisted as drivers and volunteers at the event. The company and its principals are also members of Golden Circle.

Britta Schramm and Eric Small

Kim Phillips and Julie Kaufer

Traci Engelman and Julie Kaufer

Van Roberts and San Joaquin Valley

Director Kim Kotrla

Many people with MS call the Society when they are first diagnosed or experience a change in symptoms, but often don’t reach out at other times in between. The National MS Society is truly a movement by and for people with MS. Now, more than ever, we look to you to be a part of this movement. Connect in a way that is most meaningful to you.

Share your time and talents as a volunteer. Volunteers are the backbone of our events and services. Or lend your voice as an MS activist. Spark change at the community, state and/or federal level.

Connect with others who understand what it’s like to live with MS. Or just connect for fun and friendship. The Southern California Young Professionals Group (SoCal YPG) was launched to provide a community for people in their 20s and

30s, who want to do something about MS now. SoCal YPG’s next event is Legendary Bingo on April 7th at Hamburger Mary’s in West Hollywood. Call 310.479.4456 for more information.

Raise funds for a cure. Get involved with Walk MS, Bike MS, Challenge Walk MS or the MS Golf Classic. These fun-filled events are a great way to bond with family and friends, while moving us closer toward a world free of MS.

Reconnect from a new point of support. Did you first call the Chapter looking for a neurologist referral or information about the disease? Did you know that we also provide support to improve wellness and independence, to help in managing relationships and a productive family life, and so much more? Call 1.800.344.4867 to explore the wealth of services available to you.



The Chapter is very fortunate to have so many volunteers contribute their time and talents to the movement to create a world free of MS. The following five individuals and companies received the Chapter’s highest awards for their efforts in 2009.

Eric Small received the Norm Cohn Hope Award for his vision and leadership. Eric was diagnosed with MS in 1951 and soon after, he discovered yoga. Today, at 79 years old, Eric is a testament to yoga's power to live well with the disease. He began what became a lifelong mission to help others with MS to go beyond their limitation and live life to the fullest. The Eric Small Adaptive Iyengar Yoga Program reaches 400 people annually. Eric also helped obtain grants to support the Chapter’s wellness programming. In 2005, he worked to secure a grant from the Flora L. Thornton Foundation for $1 million to establish The Eric Small Centers for Optimal Living with MS. Eric Small is a man who recognized a problem, used his resourcefulness and perseverance to improve his life, and ultimately touched and improved the lives of thousands throughout the country.

Julie Kaufer earned the Grisanti Most Valuable Trustee award for her leadership as Chapter Chair from 2007 through 2009. She also served as chair of the Golden Circle committee, which has raised several million dollars in just the last three years for MS research and programs. During her tenure, the Chapter expanded to include the San Joaquin Valley; completed its $3 million commitment to Promise 2010 research; and fulfilled a $4.6 million pledge to Dr. Rhonda Voskuhl’s phase II estriol trial at UCLA.

Special event participant extraordinaire Traci Engelman received the Volunteer of the Year award for being a tremendous ambassador and fundraiser. Traci is not only Walk MS captain of Team Engelman which in 2009 raised over $51,000; she is also the team captain of the Rowdy Riders Bike MS team which raised more than $92,000 last year. Traci organizes fundraisers at restaurants, local hikes and other fun events throughout the year to raise MS awareness, recruit team members and raise money.

CREAM OF THE CROP

Time to Reconnect?

Diagnosed with MS five years ago, Van Roberts was interested in using his expertise in the home building industry to address the limited housing options available for people with MS and disabilities in Bakersfield. He knew

that the most important first step was to keep people in their own

homes. In partnership with the Chapter, Van created the unique “Around the House: Home Improvements to Meet Your Changing Needs” program. Van received the Sylvia Lawry Founder of the Year award for developing and implementing this innovative and extremely beneficial new program that teaches

people with MS and their families how to make design modifications on the smallest or biggest of budgets to make life at home safer, easier and more comfortable.

Brutoco Engineering & Construction, Inc. was honored with the Corporate Luminary award. The Fontana-based contracting company supports the Chapter in several meaningful ways. Brutoco generously stepped in 2010 as the Walk MS presenting sponsor for second time. For the last 3 years, the company has provided trucks for use at the Challenge Walk MS. The President of Brutoco, Mike Murphy, personally drove one of the trucks in support of the cause. Other officers, employees and friends assisted as drivers and volunteers at the event. The company and its principals are also members of Golden Circle.

Britta Schramm and Eric Small

Kim Phillips and Julie Kaufer

Traci Engelman and Julie Kaufer

Van Roberts and San Joaquin Valley

Director Kim Kotrla

Many people with MS call the Society when they are first diagnosed or experience a change in symptoms, but often don’t reach out at other times in between. The National MS Society is truly a movement by and for people with MS. Now, more than ever, we look to you to be a part of this movement. Connect in a way that is most meaningful to you.

Share your time and talents as a volunteer. Volunteers are the backbone of our events and services. Or lend your voice as an MS activist. Spark change at the community, state and/or federal level.

Connect with others who understand what it’s like to live with MS. Or just connect for fun and friendship. The Southern California Young Professionals Group (SoCal YPG) was launched to provide a community for people in their 20s and

30s, who want to do something about MS now. SoCal YPG’s next event is Legendary Bingo on April 7th at Hamburger Mary’s in West Hollywood. Call 310.479.4456 for more information.

Raise funds for a cure. Get involved with Walk MS, Bike MS, Challenge Walk MS or the MS Golf Classic. These fun-filled events are a great way to bond with family and friends, while moving us closer toward a world free of MS.

Reconnect from a new point of support. Did you first call the Chapter looking for a neurologist referral or information about the disease? Did you know that we also provide support to improve wellness and independence, to help in managing relationships and a productive family life, and so much more? Call 1.800.344.4867 to explore the wealth of services available to you.


ADVOCACyADVOCACy GOLDEN CIRCLEGOLDEN CIRCLE

2009 GOLDEN CIRCLE MATCHING GIFT FUNDIn October 2009, the Kenrose Kitchen Table Foundation and Steve and Caroline Kaufer’s family formed a $350,000 Matching Gift Fund to encourage increased giving to the Southern California Chapter’s Golden Circle campaign.

Through the Matching Gift Fund, Golden Circle donors were offered an opportunity to fund TWICE as much research and help TWICE as many people living with MS. Thanks to the special fund, all Golden Circle contributions made between October 1, 2009 and December 31, 2009 were matched, up to the first $350,000 received.

We are thrilled to announce that with your help the 2009 Matching Gift Fund helped the Chapter raise $680,172. Because of your generosity, Golden Circle not only met the Match, but nearly doubled it! Thanks to each and every one of you who helped make this tremendous success possible.

We would like to extend our heartfelt thanks to the Kenrose Kitchen Table Foundation and Steve and Caroline Kaufer’s family for their incredible support. Your leadership inspires others to join the movement—thank you!

Thanks to the generosity of the following Members, Golden Circle set a new campaign record, raising nearly $1.7 million in 2009!

CIRCLE OF DISTINCTION ($1 million+)

ANGEL ($500,000-$999,999)

BENEFACTOR ($250,000-$499,999) Sharon & Hal Lampert

PATRON ($50,000-$249,999) Sandy & Mitch Francis • Kenrose Kitchen Table Foundation •

Steve and Caroline Kaufer Family • Edward Taran • The Tuffli

Family Foundation

SPONSOR ($10,000-$49,999) Anonymous (3) • Jennifer Berkley & Alan Jones • Martha & Leonard

J. Brutocao, The Leonard J. and Martha Brutaco Foundation • Monica

& Jim Carder • Laura DeBonis & Scott Nathan • John A. Duran &

Family • Elerding Family Foundation • Steffanie & Geoffrey Gee •

Kevin Goetz, The Rhoda Goetz Foundation for Multiple Sclerosis •

Jean & Robert Gryzmala • Shirley & Burt Harris Family Foundation •

Jeanne & Maxwell Kaufer • Julie Kaufer & Frank Reddick • Michael J.

Lichner • Louise Laraway Teal Foundation • Joyce & Fred Lukas • Iris

B. Mahoney • Pamela & Stanley Maron • Melanie Grisanti & Gordon

McLeod • Leah & Lowell Milken, Lowell Milken Family Foundation

• MS Golf Classic • John Murphy & Mike Streit • Gail & Haim Pekelis

• Phi Alpha Kappa Sorority • Karen & Graham A. Ritchie • Joan &

Arnold Seidel, Conrad Schlum Charitable Trust, • Team Taxe • Dina

Tecimer & Masood Sohaili • Universal City Studios, Funny People •

The Warren/Soden/Hopkins Family Foundation

FRIEND ($5,000-$9,999)Donna & Dr. Walter Bauer • Julie & Jim Burge • Julie & Barry Engelman

• Joel Fried • Donna Garber • Ann & Dave Gooding • Golden State

Steel, Erin & Brandon Shollenbarger • Debbie & Bob Harper • Pat

& Jake Jacobs • Charlotte & S. Lawrence Jacobs • Tatiana & James

Todd • Jacqueline & Paul Mahoney • Mahoney & Soll, LLP • Sandra

Milken • Genie R. Mulé • Nancy Patterson, The Nancy J. Patterson

Trust • Overton Moore Properties • Faith Pearlman, Jerome & Faith

Pearlman Foundation • Rope for MS • Sheri & Steven Safan • Fern

& Robert Seizer • Mace Siegel • Rita & Pepe Sigal • Marcia & Mark

Smith • Molly Stamos • Janice & Timur Tecimer • Walter Thomson •

Linda & Dennis Vaughn • VS Media Inc. • Verona E. Weeks • Jane &

Larry Winter

LEADER ($2,500-$4,999) Emily & Zachary Abbott • Linda & Richard Adler • Rhona Bader •

Joanne Beckwith • Vicki & Robert Bond • Barbara & Morton Bowman

• Susan Bradley • Pearl & Mel Brooks • Brutoco Engineering &

Construction, Inc. • Claudia Barski & Peter Carian • Anita DeFrantz •

Anne & David Fass • Judy & Roy Glickman • Susan Ann Graves • Arlene

& Richard Havel • Karen & Donald Karl • Dr. Alex Krammer • Diane

& Don Lake • Stephanie & Bob Lakin • Julena Lind & Leon LeBuffe

• William E. McKenna • Jody & Dennis Moss • Christine & Richard

Newman • Dr. Ian D. Pasch • Karen Randall • Nancy & Mark Samuels

• Sheryl & Barry K. Schwartz • Stella & James N. Smith • Ruth Lynn &

Hank Sobel • Michele & Dr. Patrick Soon-Shiong • Irene Steinman •

Kathleen & David Van Buskirk • Susan & William Weintraub • Diana

& Chet Widom • Carolyn & Gary Youngberg

MEMBER ($1,000-$2,499) Anonymous (1) • LaVilla S. & Dean H. Adamson, Wilbur C. Grosse

Trust • John Albers • Tamra & Rick Baldini • Dr. Babette M. Benken •

Hilda & Dan Bergher • Nancy & Simon Bresler • Jackie & Sid Bogin •

Helen Bolsky • Louis L. Borick, The Louis L. Borick Foundation • Carol

& Donald Bremer, Bremer Charitable Fund • Kappy Bristol • Margaret

Budd • Debbie & James Burrows • Alban Calzada • Eileen & Gary

Caris • Stephen Carroll • Kelly Caves • Laurel & Aaron Clark • Susan

& Robert Clayton, The Clayton Family Foundation • Jim Coiner, Coiner

Nursery • Gerie Coombs • Joan & Rich Corgel • Toni & Bruce Corwin

• Susan & Sid Crossley • Karen & Frank Dabby • Stephen Deitsch •

Janet Dirks • Linda & Steve Dow • Jody & Mitch Dunitz • Gary East •

Laurel & Robert Ehrlich • Enterprise Rent-A-Car Foundation • Holly

Fader • Ronni & Edward A. Fernandez • Betty Filippin • Edith & Joe

Fischer • Sandra & Bernard Fischbach • Gloria & Stan Fishfader •

Wendy & Fred Fleming • Jorge Flores & John Ehlenfeldt • Frederick R.

Weisman Philanthropic Foundation • Anita Dann & Harvey Friedman •

Edith & Arthur Furst • Tracy & Robert Gach • Sharlene & Sol Galper •

Gerry R. Ginsberg • Phyllis & Bill Gibson • Elvie & Yale Gieszl • Barbara

Glazer • Ellen & Richard Gleitman • Nancy & Robert Glickman • Enid &

Sheldon Goldman • Judy & David Goldstein • Marge & Don Graves •

Sherri & Gary Haber • Mr. & Mrs. William Hammond • Marcia Harrow

• Beatrice & Michael Hencel • Neal Hersh, Hersh Mannis Bogen •

Hospice Care of California • Jeffrey Hess • Susan Howard • Charlotte &

Stanley Kandel • Marca & Al Kaufer Foundation • Nicole & Bill Keck •

Sally & Morton Kirshner • Deborah & Timothy Kopack • Sylvia Krug •

Pamela & Marvin Lager • Francis & Jerry Leigh • Pauline & Peter Leslie

• Pauline & Samuel Li • Ernest Lieblich, Ernest Lieblich Foundation •

Celia Light • Frances Lossing • Andrew Maldonado • Robert Manger •

Deborah & Kevin McKenns • Sue & Edward Meltzer • Sheryl Miller &

Dr. Robert Schilling • Moorefield Construction, Inc. • Mahin Namazi,

Mohammad Sheybani & Malek Sheybani • Barbara & Paul Norton •

Dee & George Schuler, Oarsmen Foundation • The Orpheum Theater

• Nancy & David Perren • Scott & Heather Perren • Vivian Perricone-

Rude • Barbara & Dan Peterson, PW Investments 10-81 • Kim Phillips

& Ross Skinner • Lorraine & Kurt Pickus • Julie & Jamey Power • Ellen

Pratt, Pratt Trucking • PSAV, Whit Markowitz • Allane & Jeffery Quirk

• Jo-An & Joel Ravitz • Carole & Doug Rawson • Pam & Josh Reims •

Ric Robertson • Oremor Management and Investment Co. • Janice &

Stephen Sacks • Fred R. Salisbury • Kay R. & Dr. Loren E. Sanchez • Jane

& Charles Schneider • Britta & Arthur Schramm • Priscilla & Harold

Schroeder • Sonia & William Schroeder • Sue Schroeder • Mildred &

Sherwood Schwartz • Jean Seitz • Russell Shank • Fela & David Shapell

• Sheila Gold Foundation • Madeleine & Tom Sherak • Suzanne D. &

Robert M. Siegel • Jane & Doug Smith • Drs. Debra & Philip Sobol •

Linda & Mark Spiegel • Thelma Stewart • Karin & Steven Stoller • Mark

Sullivan • Janis & Jeffrey Susskind • Jessie Anne Tait • Claudette L. &

Henry L. Taylor, Jr. • Gail & John Thomason • Marcia & Marvin Tilker

• Cynthia Torres & Michael Gisser • James Tyre • Wini Vandeman •

Visiting Nurse Association & Hospice • Charlene Voge • Lorna D. & Dr.

Shelby E. Wagner • Kathy Walck • The Weiler Family • Pamela & Dr.

Robert Weingarten • Julia & Roy Weinstein • Mary & Richard Whiting •

Wiles Investment Partnership • Doris Weitz & The Honorable Alexander

Williams, III • Martha & Charles Wolf • Ella Zarky

The Southern California Chapter gratefully acknowledges the 357 Donors who contributed $95,150 to Golden Circle 2009

with gifts from $10 – $999. Thank you!

If you are interested in learning more about Golden Circle, please call Elicia Lopez at 310.479.4456 ext. 111.


ADVOCACyADVOCACy GOLDEN CIRCLEGOLDEN CIRCLE

2009 GOLDEN CIRCLE MATCHING GIFT FUNDIn October 2009, the Kenrose Kitchen Table Foundation and Steve and Caroline Kaufer’s family formed a $350,000 Matching Gift Fund to encourage increased giving to the Southern California Chapter’s Golden Circle campaign.

Through the Matching Gift Fund, Golden Circle donors were offered an opportunity to fund TWICE as much research and help TWICE as many people living with MS. Thanks to the special fund, all Golden Circle contributions made between October 1, 2009 and December 31, 2009 were matched, up to the first $350,000 received.

We are thrilled to announce that with your help the 2009 Matching Gift Fund helped the Chapter raise $680,172. Because of your generosity, Golden Circle not only met the Match, but nearly doubled it! Thanks to each and every one of you who helped make this tremendous success possible.

We would like to extend our heartfelt thanks to the Kenrose Kitchen Table Foundation and Steve and Caroline Kaufer’s family for their incredible support. Your leadership inspires others to join the movement—thank you!

Thanks to the generosity of the following Members, Golden Circle set a new campaign record, raising nearly $1.7 million in 2009!

CIRCLE OF DISTINCTION ($1 million+)

ANGEL ($500,000-$999,999)

BENEFACTOR ($250,000-$499,999) Sharon & Hal Lampert

PATRON ($50,000-$249,999) Sandy & Mitch Francis • Kenrose Kitchen Table Foundation •

Steve and Caroline Kaufer Family • Edward Taran • The Tuffli

Family Foundation

SPONSOR ($10,000-$49,999) Anonymous (3) • Jennifer Berkley & Alan Jones • Martha & Leonard

J. Brutocao, The Leonard J. and Martha Brutaco Foundation • Monica

& Jim Carder • Laura DeBonis & Scott Nathan • John A. Duran &

Family • Elerding Family Foundation • Steffanie & Geoffrey Gee •

Kevin Goetz, The Rhoda Goetz Foundation for Multiple Sclerosis •

Jean & Robert Gryzmala • Shirley & Burt Harris Family Foundation •

Jeanne & Maxwell Kaufer • Julie Kaufer & Frank Reddick • Michael J.

Lichner • Louise Laraway Teal Foundation • Joyce & Fred Lukas • Iris

B. Mahoney • Pamela & Stanley Maron • Melanie Grisanti & Gordon

McLeod • Leah & Lowell Milken, Lowell Milken Family Foundation

• MS Golf Classic • John Murphy & Mike Streit • Gail & Haim Pekelis

• Phi Alpha Kappa Sorority • Karen & Graham A. Ritchie • Joan &

Arnold Seidel, Conrad Schlum Charitable Trust, • Team Taxe • Dina

Tecimer & Masood Sohaili • Universal City Studios, Funny People •

The Warren/Soden/Hopkins Family Foundation

FRIEND ($5,000-$9,999)Donna & Dr. Walter Bauer • Julie & Jim Burge • Julie & Barry Engelman

• Joel Fried • Donna Garber • Ann & Dave Gooding • Golden State

Steel, Erin & Brandon Shollenbarger • Debbie & Bob Harper • Pat

& Jake Jacobs • Charlotte & S. Lawrence Jacobs • Tatiana & James

Todd • Jacqueline & Paul Mahoney • Mahoney & Soll, LLP • Sandra

Milken • Genie R. Mulé • Nancy Patterson, The Nancy J. Patterson

Trust • Overton Moore Properties • Faith Pearlman, Jerome & Faith

Pearlman Foundation • Rope for MS • Sheri & Steven Safan • Fern

& Robert Seizer • Mace Siegel • Rita & Pepe Sigal • Marcia & Mark

Smith • Molly Stamos • Janice & Timur Tecimer • Walter Thomson •

Linda & Dennis Vaughn • VS Media Inc. • Verona E. Weeks • Jane &

Larry Winter

LEADER ($2,500-$4,999) Emily & Zachary Abbott • Linda & Richard Adler • Rhona Bader •

Joanne Beckwith • Vicki & Robert Bond • Barbara & Morton Bowman

• Susan Bradley • Pearl & Mel Brooks • Brutoco Engineering &

Construction, Inc. • Claudia Barski & Peter Carian • Anita DeFrantz •

Anne & David Fass • Judy & Roy Glickman • Susan Ann Graves • Arlene

& Richard Havel • Karen & Donald Karl • Dr. Alex Krammer • Diane

& Don Lake • Stephanie & Bob Lakin • Julena Lind & Leon LeBuffe

• William E. McKenna • Jody & Dennis Moss • Christine & Richard

Newman • Dr. Ian D. Pasch • Karen Randall • Nancy & Mark Samuels

• Sheryl & Barry K. Schwartz • Stella & James N. Smith • Ruth Lynn &

Hank Sobel • Michele & Dr. Patrick Soon-Shiong • Irene Steinman •

Kathleen & David Van Buskirk • Susan & William Weintraub • Diana

& Chet Widom • Carolyn & Gary Youngberg

MEMBER ($1,000-$2,499) Anonymous (1) • LaVilla S. & Dean H. Adamson, Wilbur C. Grosse

Trust • John Albers • Tamra & Rick Baldini • Dr. Babette M. Benken •

Hilda & Dan Bergher • Nancy & Simon Bresler • Jackie & Sid Bogin •

Helen Bolsky • Louis L. Borick, The Louis L. Borick Foundation • Carol

& Donald Bremer, Bremer Charitable Fund • Kappy Bristol • Margaret

Budd • Debbie & James Burrows • Alban Calzada • Eileen & Gary

Caris • Stephen Carroll • Kelly Caves • Laurel & Aaron Clark • Susan

& Robert Clayton, The Clayton Family Foundation • Jim Coiner, Coiner

Nursery • Gerie Coombs • Joan & Rich Corgel • Toni & Bruce Corwin

• Susan & Sid Crossley • Karen & Frank Dabby • Stephen Deitsch •

Janet Dirks • Linda & Steve Dow • Jody & Mitch Dunitz • Gary East •

Laurel & Robert Ehrlich • Enterprise Rent-A-Car Foundation • Holly

Fader • Ronni & Edward A. Fernandez • Betty Filippin • Edith & Joe

Fischer • Sandra & Bernard Fischbach • Gloria & Stan Fishfader •

Wendy & Fred Fleming • Jorge Flores & John Ehlenfeldt • Frederick R.

Weisman Philanthropic Foundation • Anita Dann & Harvey Friedman •

Edith & Arthur Furst • Tracy & Robert Gach • Sharlene & Sol Galper •

Gerry R. Ginsberg • Phyllis & Bill Gibson • Elvie & Yale Gieszl • Barbara

Glazer • Ellen & Richard Gleitman • Nancy & Robert Glickman • Enid &

Sheldon Goldman • Judy & David Goldstein • Marge & Don Graves •

Sherri & Gary Haber • Mr. & Mrs. William Hammond • Marcia Harrow

• Beatrice & Michael Hencel • Neal Hersh, Hersh Mannis Bogen •

Hospice Care of California • Jeffrey Hess • Susan Howard • Charlotte &

Stanley Kandel • Marca & Al Kaufer Foundation • Nicole & Bill Keck •

Sally & Morton Kirshner • Deborah & Timothy Kopack • Sylvia Krug •

Pamela & Marvin Lager • Francis & Jerry Leigh • Pauline & Peter Leslie

• Pauline & Samuel Li • Ernest Lieblich, Ernest Lieblich Foundation •

Celia Light • Frances Lossing • Andrew Maldonado • Robert Manger •

Deborah & Kevin McKenns • Sue & Edward Meltzer • Sheryl Miller &

Dr. Robert Schilling • Moorefield Construction, Inc. • Mahin Namazi,

Mohammad Sheybani & Malek Sheybani • Barbara & Paul Norton •

Dee & George Schuler, Oarsmen Foundation • The Orpheum Theater

• Nancy & David Perren • Scott & Heather Perren • Vivian Perricone-

Rude • Barbara & Dan Peterson, PW Investments 10-81 • Kim Phillips

& Ross Skinner • Lorraine & Kurt Pickus • Julie & Jamey Power • Ellen

Pratt, Pratt Trucking • PSAV, Whit Markowitz • Allane & Jeffery Quirk

• Jo-An & Joel Ravitz • Carole & Doug Rawson • Pam & Josh Reims •

Ric Robertson • Oremor Management and Investment Co. • Janice &

Stephen Sacks • Fred R. Salisbury • Kay R. & Dr. Loren E. Sanchez • Jane

& Charles Schneider • Britta & Arthur Schramm • Priscilla & Harold

Schroeder • Sonia & William Schroeder • Sue Schroeder • Mildred &

Sherwood Schwartz • Jean Seitz • Russell Shank • Fela & David Shapell

• Sheila Gold Foundation • Madeleine & Tom Sherak • Suzanne D. &

Robert M. Siegel • Jane & Doug Smith • Drs. Debra & Philip Sobol •

Linda & Mark Spiegel • Thelma Stewart • Karin & Steven Stoller • Mark

Sullivan • Janis & Jeffrey Susskind • Jessie Anne Tait • Claudette L. &

Henry L. Taylor, Jr. • Gail & John Thomason • Marcia & Marvin Tilker

• Cynthia Torres & Michael Gisser • James Tyre • Wini Vandeman •

Visiting Nurse Association & Hospice • Charlene Voge • Lorna D. & Dr.

Shelby E. Wagner • Kathy Walck • The Weiler Family • Pamela & Dr.

Robert Weingarten • Julia & Roy Weinstein • Mary & Richard Whiting •

Wiles Investment Partnership • Doris Weitz & The Honorable Alexander

Williams, III • Martha & Charles Wolf • Ella Zarky

The Southern California Chapter gratefully acknowledges the 357 Donors who contributed $95,150 to Golden Circle 2009

with gifts from $10 – $999. Thank you!

If you are interested in learning more about Golden Circle, please call Elicia Lopez at 310.479.4456 ext. 111.

MOVING TOWARD A WORLD FREE OF MS | spring • 2010

INSIDE THis issUE

sOUTHErn CALiFOrniA CHApTEr

programs pAgE 4

Advocacy pAgE 8

special Events pAgE 12

Volunteers pAgE 24

ORAL MEDS FOR MS ARE COMING

In January, the FDA approved the marketing of Ampyra™ (dalfampridine, formerly known as fampridine SR, from Acorda Therapeutics) for its ability to improve walking in people with any type of MS. This is the first therapy specifically approved to treat a symptom of MS, and it represents a big step forward for the many people who may benefit.

Ampyra is a tablet containing a sustained-release formula of 4-aminopyridine, which blocks tiny pores, or potassium channels, on the surface of nerve fibers. This blocking ability may improve the conduction of nerve signals in nerve fibers whose insulating myelin coating has been damaged by MS. The first studies of this potassium-blocking approach in people with MS were supported by the National MS Society.

CONTINUED ON PAGE 20

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2440 s. sepulveda Blvd., suite 115Los Angeles, CA 90064

Southern California Chapter 2440 S. Sepulveda Boulevard, Suite 115 Los Angeles, CA 90064 310.479.4456, 800.344.4867

Channel Islands Office 14 West Valerio Street Santa Barbara, CA 93101 805.682.8783 San Luis Obispo Office 805.772.2046

Inland Empire Office 869 E. Foothill Boulevard, Suite I Upland, CA 91786 909.949.1363

Coachella Valley Office 73-710 Fred Waring Drive, Suite 103 Palm Desert, CA 92260 760.776.5740

Antelope & Santa Clarita Valley Office 1669 West Avenue J, Suite 309 Lancaster, CA 93534 661.945.9111

Kern County Office 1800 30th Street, Suite 105 Bakersfield, CA 93301 661.321.9512

San Joaquin Valley Office 7472 N. Fresno Street, Suite 210 Fresno, CA 93720 559.439.2154

How will you move it?nationalMSsociety.org/cal

MS Connection spring 2010

Documents

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coachella valley office

national ms society

san joaquin valley office

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