Extended National ICT Research Directors Forum meeting on European Large Scale Actions (ELSA) ICT for Health Dr Dipak Kalra University College London [email protected]on behalf of an panel of experts convened to consider ELSA priorities for ICT solutions for sustainable health
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Extended National ICT Research Directors Forum meetingon European Large Scale Actions (ELSA)
Examples of Health ICT research enabled by the Framework Programme
• Comprehensive electronic records (EHR)
• requirements, information architectures, clinical data standards, terminology systems, security - now published as international standards
• BUT now needing to be validated against large scale challenges
• standardised clinical meaning across diverse communities of practice
• cross-border confidentiality protection and de-identification
• pan-European quality assured and certified eHealth interoperability solutions
• Virtual Physiological Human (VPH)
• sophisticated modelling of how body systems and organs behave in health and in disease, to help optimise treatment decisions
• BUT now needing to be refined through
• linkage with real electronic health records, and real-world clinical data quality
• safety testing for real clinical decisions in varied care settings
• Personal Health Systems (PHS)
• wearable and implanted and near patient monitors, communicating with a central repository: integrating and alerting whenever needed
• BUT now needing to
• integrate with holistic EHR data
• safely advise on patients with multiple diseases and using multi-vendor PHS products
Digital Me
Source: Peter Coveney, UCL
Principles for a successful approach
• To focus on a very concrete societal need which can be addressed by user and experience driven R&D, innovation and large scale demonstrators leading to wide deployment
• Special effort to engage payers, clinicians and patients at every stage in addition to the other (more committed) stakeholders.
• Major milestone: European infostructure on top of national eHealth infrastructures (not their duplication!)
• Focus on few applications demonstrating the benefits of such infostructure and open the way for regional/national/international developments
• Provision of visible and useful milestones, at regular intervals
Examples of objectives of an ELSA on eHealth
• Improve the quality and effectiveness of clinical shared care and facilitate cross border care
• Provide “the right information, in the right place, at the right time” to health providers and patients while securing the citizens right to privacy
• Bring into the equation other data relevant to our health beyond medical information (lifestyle, environment)
• Improve the way clinical research is performed and facilitate faster translation into clinical practice
Emphasising translation
• The EU Health Telematics Framework Programmes have inspired some of the best health informatics research on the planet
• But, it has proved difficult for some of the research to be refined and validated at the scale needed for national or European adoption
• potential impact has not been realised yet
• market potential is as yet under-recognised
• societal gains and cost savings remain a missed opportunity
• It is now vital to capitalise on proof of concept and SME level Health ICT research
• ELSA’s have the potential to provide large scale validation, evidence of what works well, and how to turn research results into products and daily experience